- Reid

[Guest guest]

Hi ,

I think what you're doing is a so needed and I know very appreciated.

So many of us are lucky enough to feel this same exhilaration every time

we're able to help another human being - especially those with Lyme.

And you're absolutely right - no one should have to go through this

disease alone.

Great job, !!!

Patty (MD)

> Date: Fri, 20 Aug 1999 17:29:56 EDT

> From: LymeDizzez@...

> Subject: Hi

>

> I just wanted to share this with all of you. I just finished talking

> to a woman who lives in Arizona. She is the first documented case of

> Lyme Disease for that state. She has just learned that she is no

> longer alone in dealing with Lyme Disease and was a bit surprised to

> learn that she is not the only one with our symptoms. I needed to

> share this with you because the chat room was originally set up as a

> gift to me from a very good friend. I just thought it would be a nice

> place for us to chat. When I finished speaking with that woman, I

> felt drained and exhilarated. My goal is to help as many fellow

> Lymies as I can but to hear relief in words that are typed was

> something I never expected to experience. I know, LOL, I'm rambling.

> But each time someone else learns they are not alone, I get all

> emotional and I know that all of here in this group are doing a good

> thing spreading the word.

> No one should have to deal with Lyme Disease alone.

> , New Bedford, MA.

*********************************************************************

Damn, I feel so bad for what you're going through, Reid. This week or

so will certainly be a very important one for you - this is not an easy

decision to make. But for now, you have to do what's best for YOU, and

remember that any decision you make does not have to be permanent.

You know that we're all here for you and will help in any way we can.

Take care and may God guide you in making the right decision for this

time of your life.

Hugs,

Patty (MD)

> Date: Fri, 20 Aug 1999 17:58:40 EDT

> From: RMcmur3194@...

> Subject: Re: Reid

>

> thanks patty i have truly missed the whole crazy bunch of u...things

> are still kinda nuts here marriage wise and i am going back to pa

> for another week or so.....then i will make the decision on future

> living arraingements......however any way i will have a computer as

> my mom just updated and we got her old one so if i do leave i will

> at least be able to take one( probably the old one) but at least i

> will bwe able to get on.....love to u all Reid

******************************************************************

Reid - I agree with you 99%! The 1% disagreement has only to do with

insurance companies that require positive blood test results before they

will approve treatment for Lyme - usually IV treatment. Until that

stupid requirement of theirs can be changed, many won't get the

treatment they need from some doctors and insurance companies without

some kind of positive tests. Does this suck - you bet it does - big

time!!!

I'm so sorry to hear about your friend. In a way, I think Lyme is

harder for men because of society's " male macho " crap. I hope that he

is able to derive some comfort from his male buddy.

And, yes, we're very glad you're back!!!!!

Patty (MD)

> Date: Fri, 20 Aug 1999 18:06:38 EDT

> From: RMcmur3194@...

> Subject: Re: Significance of WB Bands - Lovette - Dab's Herx

>

>HEY REIDS BACK!!!!!!!!

> get over what the blood test say...(yes i know i sound like a broken

> record) they are so INACCURATE it makes me sick...the last i talk to

> pros they said even for treatment...not only dx...they are touchy at

> best....hey gang who cares what the blood work says we and out lld

> know we are infected/.....who cares what bands we are......they show

> nothing.....the proof is how we feel.....i had a friend call me this

> morning......he was just dx'ed in nov....but has had for years since

> he worked for the rail road....he is now going thru what i went thru

> in 96 fights with ssd ect........he appoligized when people use to

> say " maybe reid just got lazy " he kinda agreed .....now he knows the

> full story......he is(was) a mountain of a man and now at 35 is

> crippled from this disease....sucks big time.......all it takes is a

> walk in my shoes....call what ever we have what ever u want .....it

> still adds up to a major life and health change....it has profoundly

> changed mine and others that i know .....until the blood work gets

> reliable quit arguing over it ...we can not afford to expend any more

> energy than we have to......as i have stated before...... " until they

> come up with a RELIABLE TEST I WILL NO LONGER DONATE ANY BLOOS OR

> URINE TO LYME TESTING........SOMEONE WROTE ABOUT TITRE LEVELS....MINE

> HAVE NEVER RELATED TO HOW I FEEL!!!!!! Reid

> (ain't ya glad i'm back....lol)