Re: Fibromyalgia and Lyme Disease

June 1, 2000

Yes, yes, yes, yes. You better rule it out with a LLD. Please.

June 1, 2000

Yes, yes, yes, yes. You better rule it out with a LLD. Please.

June 2, 2000

> Yes, yes, yes, yes. You better rule it out with a LLD. Please.

Note that " LLD " Means " Lyme Literate Doctor. " Sometimes that's also

abbreviated as " LLMD. "

It is possible to be " seronegative, " that is, to have your bloodwork

show up negative, even when you DO have lyme. It is also possible to

have other tick infections besides Lyme, such as babesiosis and

ehrlichiosis. You should be tested for those, as well (and most

doctors don't routinely test for these.)

Contact the Lyme Disease Foundation at lyme.org to request a

referral. They may charge a small referral fee, but it's worth it.

If you have received hundreds tick bites in your life, and you feel

lousy, there's a GOOD chance that you have lyme.

This will be an excellent starting point for you

http://www.geocities.com/HotSprings/Spa/6772/missouri-index.html

Margie Roswell

June 2, 2000

dear laura

your own 'hunches' are right. I was MISADIAGNOSED as having

FMS/CFS/CFIDS four years ago....health took another dive..got tested for lyme

disease BINGO...my answer of why suddenly ill....every fellow patient i know

with the DX of FMS/CFS has tested positive for lyme disease !

find a lyme literate doctor...i think there are people here from your

part of the country.that could refer you.....MANY MANY patients of these

'syndrome' diagnosis are now learning they have lyme disease...in most cases

it is now late-stage....

this is the reality of what is really going on....

In a message dated 6/1/00 10:44:39 AM, RemaxR@... writes:

<<Is it really possible

that I have been bitten by an infected tick??? I live in a rural

area and have had literally hundreds of tick bites over the past

years. >>

June 2, 2000

> Yes, yes, yes, yes. You better rule it out with a LLD. Please.

Note that " LLD " Means " Lyme Literate Doctor. " Sometimes that's also

abbreviated as " LLMD. "

It is possible to be " seronegative, " that is, to have your bloodwork

show up negative, even when you DO have lyme. It is also possible to

have other tick infections besides Lyme, such as babesiosis and

ehrlichiosis. You should be tested for those, as well (and most

doctors don't routinely test for these.)

Contact the Lyme Disease Foundation at lyme.org to request a

referral. They may charge a small referral fee, but it's worth it.

If you have received hundreds tick bites in your life, and you feel

lousy, there's a GOOD chance that you have lyme.

This will be an excellent starting point for you

http://www.geocities.com/HotSprings/Spa/6772/missouri-index.html

Margie Roswell

June 3, 2000

,

There is a physician in Cape Girardeau who has presented at many Lyme meetings

and is

apparently quite knowledgeable about LD or something that resembles it.

His name is Ed Masters. Contacting him directly or through the Lyme Disease

Foundation would

make a lot of sense. If seeing him will not be feasible, though the ride to the

Cape

shouldn't be all too bad, he may know other physicians closer to your home.

Good Luck.

Bea

RemaxR@... wrote:

> I have been going to the doctor for several years now wondering what

> was wrong with me. One of my first thoughts was lyme disease and the

> doctor said it wasn't even in our state at that time. But he ran

> blood tests for all types of arthritis and they were all negative. He

> couldn't tell me what was wrong....so he put me on anti-depressants.

> I quit seeing him and went to a rheumatologist who said I have

> fibromyalgia and also put me on anti-depressants. When I questioned

> her about lyme disease she said that if I had it I would have seen a

> big sore where the tick bite was and would be alot worse.

>

> A friend of mine told me about this group and thought I should check

> it out. I am amazed at what I am reading. Is it really possible

> that I have been bitten by an infected tick??? I live in a rural

> area and have had literally hundreds of tick bites over the past

> years. I also saw where someone commented about it being worse just

> before a menstrual cycle. I am experiencing the same thing. How can

> I find a doctor in the St. Louis, Missouri area that knows about lyme

> disease and can maybe help me.

>

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June 3, 2000