Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 Marta, Thank you so much for the warm welcome. It is comforting to know that there are people who do understand. This disease can be so trying! I look forward in getting to know all of you! As we all know, together we can make a difference! Wishing you all a good day tomorrow! Good night all. nne Marta McCoy wrote: > Hi nne, > Welcome to our group, I live in NJ, not too far from PA. Sounds as if > you got bit in Mexico, never met anyone with a bite from there, but I know > plenty of Lyme disease is there. Your search for treatment is so familiar, > many of us see 5 or more doctors before we get a firm diagnosis. What a > shame that you knew so little about LD and the bullseye rash when you were > bitten, we really need to inform the public more about the signs of this > disease, sadly because you did not receive immediate treatment for your tick > bite, you are one of us. I am so happy your PCR's turned up positive, I > never had one yet, after almost four years with this disease. I guess all > the abx I have taken through the years, don't know for sure why, but I > vividly remember removing my tick, and all my problems began there. > Sorry about your argument with your HMO, Lyme disease is not considered a > specialty and if the doctor you are seeing is not on your list of approved > doctors you are pretty much out of luck. Any chance of changing insurers??? > I had to do that to see my LLMD, took me six months to see him as I had to > wait to change the insurance, but fortunately I had found a very > understanding primary who did give me abx (antibiotics) in the meantime. > Unfortunately they were not the right kind, turns out I had Human Monocytic > Ehrlichiosis, and doxy is the drug for that, I could have died, and believe > me I felt like I was, yet one of the idiot infectious disease doctors I saw > in the meantime, said I needed psychiatric care. > Good for you writing to your elected officials, we need them to understand > how severe this disease is. Yesterday about 100 people with Lyme went to > Washington to try to educate some of them, I hope it helped. > Again, welcome to our group, I hope you like us, we are a pretty good group, > very supportive. > Hugs, > Marta > > From: Bianca <bigpapa@...> > > >Hi everyone! > > > >I recently joined lyme-aid and figured out it was time to introduce > >myself and my story. I am from Pennsylvania. Almost a year ago, while > >in Mexico, I noticed a bulls-eye rash on my left forearm. I was > >uneducated on lyme at the time, so I dismissed it. I went on with the > >trip. A week of returning I had a flu like illness, swollen glands, > >stiff neck light sensitiveity etc. I did not remember the rash and it > >was gone now. > > > >Months passed. I kept having sore throats, swollen glands etc. My > >doctor sent me to everyone. I have seen 9 different doctors. I live in > >an area with a teaching hospital. I was told that we did not have lyme > >here and that it is overdiagnosed. I have been told I had chronic > >fatigue, lymphoma, fibro, anxiety disorder, you know the story. > >Finally, I began to do research on my own. I have family members with > >Lyme. I had a few WB " s and . Both came back negative, numerous > >times. I kept researching, lyme net etc. I finally posted a note and > >someone gave me the name of a LLMD. I went to him. I did a LYME PCR > >and a test for babesiosis. Guess what I have both. I have finally > >started treatment and am feeling a little better. I think the protocol > >my doctor is using for the babesiosis has worked. Praise the lord! I > >can turn my head. I am so grateful for the woman who gave me that > >doctors name. > > > >So now I sit and wait to feel " whole " again. I have written to every > >political official I could and anyone else that would listen. I am > >currently fighting with my HMO to get them to cover my LLMD. They are > >denying it! Anyone, have any ideas! Anyway, I wrote enough. Thank you > >for creating such a resource. I would never had been able to get the > >help that I did without places like this! Thank you! > > > >nne > > ------------------------------------------------------------------------ > Would you like to save big on your phone bill -- and keep on saving > more each month? Join beMANY! Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > 1/2567/5/_/484634/_/957472769/ > ------------------------------------------------------------------------ > > Send to -Offtopiconelist messages unrelated to Lyme, please. > Archives can be found at: > /group/lyme-aid. > They are filed by month, pick a month and search those archives for subjects you are interested. > Lyme chat, go to this URL: > /chat/lyme-aid > Should you have trouble opening the page, go back to / and make sure you are registered with a password. You can ask ONELIST to remember you, and will only have to do this one time. > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
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