Lea-Burning -PICC & IV

[Guest guest]

> Message: 15

> Date: Tue, 13 Jul 1999 23:18:40 EDT

> From: Memyo@...

> Subject: Re: burning

>

> Hi

> I was wondering if anyone may know why suddenly I would develop a

> burning type pain throughout my back---I seems to be my skin but

> I can't be sure as I believe get a burning muscle pain when I

> overdo but this is constant.

> thank you in advance

> Lea

I've had the experience with burning throughout various parts

of my body. In the beginning, I only experienced this burning when

I was on IV Claforan and every place (legs & feet) where there had

been burning, there is now nerve damage. So, for that time, I believe

the burning was caused by the toxins of the dying spirochetes.

More recently, I've been experiencing burning in my arms, shoulders,

legs & tops of my feet, as well as my wrists & knees. I would have

said that this time the burning is caused more by Lyme itself than

herxing since it's been ongoing for over a month. But, having read

Marta's email in which she said that her doc told her that we can herx

even off of abx, I have to wonder if it is herxing afterall.

Marta and I, as well a many of you, have often wondered if our

worsening of symptoms are flares, regressing or herxing, and I

don't know that we've ever really figured it out.

But lately I've been thinking about it a lot and I'm really beginning

to think that a lot of damage & pain that we experience comes more

from the toxins that the dying spirochetes release and that THIS is

the segment of Lyme that causes most of our problems. If we can herx

off of abx, as well as on, it makes sense to me. In other words, the

spirochetes themselves do a certain amount of damage, but their toxins

(poison) do even more damage.

Just a thought - probably clouded by my muddled Lyme brain, but I

wanted to share it with everyone.

Ya think that's the real meaning to the Elvis song " Hunka, Hunka

BURNING Love " ?!?!?! How about " Come on spiro, light my fire " ???

<G> Geeze, I really need to get a life! <G>

Hugs to all,

Patty

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> Message: 17

> Date: Wed, 14 Jul 1999 03:22:03 GMT

> From: Kiana Rossi <bornfree@...>

> Subject: Re: PICC Line

>

> >From: McDermott <pattymcd@...>

> >

> >Hi ,

> >

> >What you're experiencing is very similar to the way my that my

> >problems with the PICC line began. My left arm ached from day one

> >and continued to get progressively worse. The pain spread

> >into my shoulder & sometimes into my chest.

>

>

> Hi Patty,

>

> I have these problems. No pain upon infusion. Just

> itching and that is a ... & %#@!

>

> My fever was gone today. So I must have been Herxing. So

> much for Herxing on the 4th week. I think I Herxed on the 2nd &

> 3rd weeks for short periods. Now it is happening AGAIN!

>

> Kiana Rossi

Hi ,

Oh gee - forgot about the itching, especially under the dressing!

You're so right $*@~%^@ & !!! I'm so glad to hear that your fever is

gone - at least for now. I guess you've found out first hand that

'when' we herx isn't the same for everyone. I herxed the entire

25 days that I was on IV, with the last 2 days being the worst. So,

I'm not surprised at what you're experiencing. And, this time may

well be the biggie.

Which leads me to something else I want to share with everyone. For

the past year I've been experiencing major weakness - not just

fatigue - but weakness. My LLD would not allow me to try Flagyl

during that time because many of his patients get really weak when

herxing on this particular abx and he said that it would be too

dangerous for me to become even weaker. The weakness has finally

lessened and I started the Flagy with Biaxin about 2 1/2 weeks ago.

I've not experienced any major herxing with it, but it is different

from previous herxing - new arthritic kind of pain with stiffness,

weird sensations throughout my body, and increased muscle twitching.

I know that it could still bet worse, but I also know that the

Flagyl seems to be getting to spirochetes that other abx haven't.

But, I digress - so what's new - right Marta?!! <G>

My point is this - herxing can become very intense and can be

dangerous. So don't try to tough it out beyond a reasonable level

of endurance. It would be safer to stop or decrease the abx. You

woud still herx but more safely, and then you can increase the dose

or resume abx once you've gotten past the worst of it.

I know that we try to be brave and want to kill as many spirochetes

as we can, but sometimes " less is better " .

Patty

(MD)

********************************************************************

> Message: 18

> Date: Tue, 13 Jul 1999 23:27:30 EDT

> From: y26778@...

> Subject: Re: PICC Line

>

> happened to me a couple of times relay pisses me off

Yep, it sure can!

--

Sometimes on our way to our dreams we get lost -

and find something even better.

Home Page: http://www.olg.com/pattymcd