Re: Vitamin-C drip/keeping an open mind

[Guest guest]

Connie who's to say lyme won't develop an impervious shell to AB's just read

a book called OMEGA and you'll see what i mean

[Guest guest]

In a message dated 7/13/99 10:49:59 PM Eastern Daylight Time,

conniek@... writes:<< How about natural abx.......after four years of

trying traditional

ways.......it certainly can't hurt to try alternative.....at the moment I

have nothing too lose....and everything to gain....I want my life back, and

I will try anything....especially coming from an alternative Dr. who had at

one time Lyme Disease....Its important to stay open minded to all

treatments...Connie nwnj >>

i am open minded to use it as an adjunct if you were on some kind of natural

antibiotics like the nosode stuff or even allicin therapy...hot saunas and

hot baths....but Vit C alone seems awfully " light " in terms of agressiveness

if you want to get your life back before school starts in the fall....I guess

part of me feels you yourself want a quick fix....don't take that the wrong

way please...I mean you want to be well before school begins again...an

awfully restrictive window to return to health...took me a FULL year....AFTER

12 weeks of iv therapy.....to even feel normal

I guess I do not consider Vit C a natural antibiotic...but rather an immune

strengthener...but if your normal immune system before Lyme couldn't handle

the Lyme fight....I just can't see Vit C helping that much...I am not Against

IV Vit C, just consider it expensive when you consider the cost/benefit

ratio...ya could have popped 2 cents worth of 1,000 mg. pills...or tripled

the dose for pennies .I know a lot of people who have tried high dose Vit C

oral therapy....why didn't the Dr. do that first??

Why did your prior natural Dr. tell you you had a thyroid problem, yet you

declined therapy....my gut feeling is ya shoulda tried it....Thyroid mimics

Lyme like you would not believe....BTW I do not consider myself cured for

sure....but you change therapies without giving enough time.....Dr.

Burrascano has stated he sees too many pt's do not stay on the antibiotics

long enough.....and the constant switching seems to do more harm than good.

I wish there was an easy answer...but I wish you would add some other

therapies along with the C.....but my wish is based on a desire to have you

return to a healthy state as quickly as possible....Bernadette

[Guest guest]

Hi Marta...

Dean Adel has missed the mark alot of times in my opinion. The only reason you

would not want to boost the immune system is if you are having a auto immune

response or your immune system is severly out of balance( like in CFIDS), then

you want to balance the system... Please people don't ever think that

antibiotics alone are defeating this bug...your immune system is extremely

important...unless you have been shown to have auto immune problems you should

be o.k.

Re: [Lyme-aid] Vitamin-C drip/keeping an open mind

Connie and Bernadette,

I recall reading someone's post on the Lyme newsgroup a few years ago,

( I think it was BCLyme) he said, if someone convinced him that drinking Battery

acid would cure his Lyme, he would certainly do it. I am paraphrasing this, my

memory is not as good as it used to be. I remember reading that with

awe.....and realizing how desperate this disease (or maybe other chronic

diseases....who knows?) makes us. I stopped my abx recently because I wasn't

convinced it was not doing the trick for me, I didn't try an alternative

medicine or supplement, I just wanted to give my body a break. My doctor told

me my immune system stopped doing it's job, and the abx were the only thing

working for me....later, I heard Dr Dean Edell say recently on his radio

program, that he has no idea why people take all these

herbs/supplements/vitamins etc., hoping to improve or enhance their immune

systems. He says that is the last thing one wants to do.....I missed his reason

why, drove under a tunnel and lost the reception....drat! Anyone have any idea

why we would not want to improve our immune systems??? I don't get it?

Totally confused,

Marta NJ

---

<Vit C seems to be a great adjunct therapy for

some...but for my money I would prefer to be killing spirochetes...as

long as

they are alive and wandering thru your body...all the Vit C in the world

ain't gonna kill em.>

I'm not so sure.........all the abx in the world is going to kill them

off either...in fact with as much abx we have all been on.....whats to say we

will ever be able to rebuild our immune systems.....

How about natural abx.......after four years of trying traditional

ways.......it certainly can't hurt to try alternative.....at the moment I have

nothing too lose....and everything to gain....I want my life back, and I will

try anything....especially coming from an alternative Dr. who had at one time

Lyme Disease....Its important to stay open minded to all treatments...Connie

nwnj

[Guest guest]

<Vit C seems to be a great adjunct therapy for

some...but for my money I would prefer to be killing spirochetes...as long

as

they are alive and wandering thru your body...all the Vit C in the world

ain't gonna kill em.>

I'm not so sure.........all the abx in the world is going to kill them off

either...in fact with as much abx we have all been on.....whats to say we

will ever be able to rebuild our immune systems.....

How about natural abx.......after four years of trying traditional

ways.......it certainly can't hurt to try alternative.....at the moment I

have nothing too lose....and everything to gain....I want my life back, and

I will try anything....especially coming from an alternative Dr. who had at

one time Lyme Disease....Its important to stay open minded to all

treatments...Connie nwnj

[Guest guest]

In a message dated 7/14/99 4:40:47 AM Eastern Daylight Time,

mlmccoy@... writes:

<< drat! Anyone have any idea why we would not want to improve our immune

systems??? I don't get it? >>

funny you should mention that...Lyme tends to trigger auto-immune

disorders....I have 4...that I KNOW of <grin> so if you strengthen the

immune system you can also strenghten it in it's fight against your own

body...simplest way I can think of to explain it....Ok I wasn't happy you

went off your antibiotics either (starting to feel like a surrogate mom here)

BUT...your plans and goals to health are not set on an express train....but

the local...so I figured...for you it was the right decision..based on what

you have said to us all

in Connie's case...I see her trying to go express train...to health ..so

since that was the choice she has made...I hope she adds a few more items in

her fight....and packs the damn train....when I was on antibiotics, I went

thru the list of stuff in the Lyme-Ade supplement and tried to figure out

which ones were the ones of most valuable.....and did take herbal

supplements..and regular stuff too..I also did hot saunas and hot tubs a few

weeks when we were traveling with my husband....everything is

complementary...No Lyme treatment seems to work alone....Bernadette

[Guest guest]

Connie and Bernadette,

I recall reading someone's post on the Lyme newsgroup a few years ago, ( I

think it was BCLyme) he said, if someone convinced him that drinking Battery

acid would cure his Lyme, he would certainly do it. I am paraphrasing this, my

memory is not as good as it used to be. I remember reading that with

awe.....and realizing how desperate this disease (or maybe other chronic

diseases....who knows?) makes us. I stopped my abx recently because I wasn't

convinced it was not doing the trick for me, I didn't try an alternative

medicine or supplement, I just wanted to give my body a break. My doctor told

me my immune system stopped doing it's job, and the abx were the only thing

working for me....later, I heard Dr Dean Edell say recently on his radio

program, that he has no idea why people take all these

herbs/supplements/vitamins etc., hoping to improve or enhance their immune

systems. He says that is the last thing one wants to do.....I missed his reason

why, drove under a tunnel and lost the reception....drat! Anyone have any idea

why we would not want to improve our immune systems??? I don't get it?

Totally confused,

Marta NJ

---

<Vit C seems to be a great adjunct therapy for

some...but for my money I would prefer to be killing spirochetes...as long

as

they are alive and wandering thru your body...all the Vit C in the world

ain't gonna kill em.>

I'm not so sure.........all the abx in the world is going to kill them off

either...in fact with as much abx we have all been on.....whats to say we will

ever be able to rebuild our immune systems.....

How about natural abx.......after four years of trying traditional

ways.......it certainly can't hurt to try alternative.....at the moment I have

nothing too lose....and everything to gain....I want my life back, and I will

try anything....especially coming from an alternative Dr. who had at one time

Lyme Disease....Its important to stay open minded to all treatments...Connie

nwnj

[Guest guest]

In a message dated 7/14/99 1:44:35 PM Eastern Daylight Time,

F.Byron@... writes:

<< The only reason you would not want to boost the immune system is if you

are having a auto immune response >>

but UNTIL your dr. looks for the autoimmune problems...or KNOWS to look for

them....you can be intensifying all your symptoms by aiding your body to in

essence fight itself....I only KNOW of 4 different ones I do have....others

have not been looked for...example

I recently read about an anti-body that works on heart tissue....since I

already have a 1st degree heart block because of Lyme...who knows...if I also

have the cardiac antibodies.....

on a related side note...I have been on replacement thyroid hormones T3 & T4

since December 1st....it took till April 21st to reach a fairly stable dosing

of both) oddly enough I have not had a single cold or sinus infection since

then...(prior to that I was having them constantly)

..supposedly the non-working thyroid has a seriously significant impact on

regulating the immune system...which I didn't fully understand the large role

thyroid hormones do play in the immune system till I saw the clear positive

significant impact on my own body over the last 8 months. I presently take a

gazillion supplements and one day will type it all up to share (more than my

previous listing).....

it amazes me when you realize how much there is to learn and research about

Lyme...and really maybe only a small fraction of the aspects of Lyme are even

being studied....thank god for the Drs. who do care...Bernadette

[Guest guest]

Hi Marta...

In my experience, all of medicine is a guessing game...some are better at it

than others. No medical tests are absolute or fool proof. There are tests for

auto-immune diseases that docs run...your doc should know about them. One of the

theories in lyme/cfids is that the immune system is trying to fight something

that is no longer there...some enviremental docs use neutralizing therapy for

lymes to stop the body from attacking itself. It does make sence since the lyme

invades our cells that the body may produce an auto-immune reaction to our own

cells in an attempt to kill the lyme...how much this is occuring is another

question.

Byron

Re: [Lyme-aid] Vitamin-C drip/keeping an open mind

Thanks Byron,

I don't ever put 100% faith in anything I read or hear, getting too old

for that, with age comes some wisdom anyway....LOL! Unfortunately a little

knowledge is a dangerous thing, and that is my problem when it comes to things

medical, hey, if I were really into that stuff I would have wanted to go to

medical school.

Are there tests (accurate ones) to determine if one does have a true

autoimmune disease???? Seems to me that diagnosis' like Lyme, CFIDS, MS etc.,

are strictly guessing games?

Best to you,

Marta

-

Hi Marta...

Dean Adel has missed the mark alot of times in my opinion. The only

reason you would not want to boost the immune system is if you are having a auto

immune response or your immune system is severly out of balance( like in CFIDS),

then you want to balance the system... Please people don't ever think that

antibiotics alone are defeating this bug...your immune system is extremely

important...unless you have been shown to have auto immune problems you should

be o.k.

[Guest guest]

...

I agree with everything you shared. I had the same experience and have seen

it devestate and alter peoples lives...mostly avoidable...if only the docs

listened and were better diagnosticians...took more time to care and work

with the patient.

Byron

Re: [Lyme-aid] Vitamin-C drip/keeping an open mind

>From: Shasus@...

>

>Sigh.. I truly believe that a lot of doctors are not knowledgeable about

>specific diseases.. like lyme disease, cfids, fms, MS, due to lack of

>reliable diagnostic tests.. look at me.. I was diagnosed as cfids for some

>years.. when I got treated with antibiotics, I felt better and shared my

>stories with other people with cfids online. Some got tested for lyme

disease

>and got positive results.They are undergoing treatment now.. Others tested

>negative, but felt that they couldnt have cfids because their responses to

>antibiotics were abberant. Unfortunately they are stonewalled by the

doctors

>who are still convinced that they have cfids, period, no further

discussions.

>I dont understand why so many physicians are so conservative and not

willing

>to explore other causative possibilities.. I think it is a crime because so

>many lives are being destroyed. If I was diagnosed properly at the

beginning,

>I wouldnt have lost so many years untreated..

>

>elizabeth

>

>---------------------------

[Guest guest]

Sigh.. I truly believe that a lot of doctors are not knowledgeable about

specific diseases.. like lyme disease, cfids, fms, MS, due to lack of

reliable diagnostic tests.. look at me.. I was diagnosed as cfids for some

years.. when I got treated with antibiotics, I felt better and shared my

stories with other people with cfids online. Some got tested for lyme disease

and got positive results.They are undergoing treatment now.. Others tested

negative, but felt that they couldnt have cfids because their responses to

antibiotics were abberant. Unfortunately they are stonewalled by the doctors

who are still convinced that they have cfids, period, no further discussions.

I dont understand why so many physicians are so conservative and not willing

to explore other causative possibilities.. I think it is a crime because so

many lives are being destroyed. If I was diagnosed properly at the beginning,

I wouldnt have lost so many years untreated..

elizabeth

[Guest guest]

Thanks Byron,

I don't ever put 100% faith in anything I read or hear, getting too old for

that, with age comes some wisdom anyway....LOL! Unfortunately a little

knowledge is a dangerous thing, and that is my problem when it comes to things

medical, hey, if I were really into that stuff I would have wanted to go to

medical school.

Are there tests (accurate ones) to determine if one does have a true autoimmune

disease???? Seems to me that diagnosis' like Lyme, CFIDS, MS etc., are strictly

guessing games?

Best to you,

Marta

-

Hi Marta...

Dean Adel has missed the mark alot of times in my opinion. The only reason

you would not want to boost the immune system is if you are having a auto immune

response or your immune system is severly out of balance( like in CFIDS), then

you want to balance the system... Please people don't ever think that

antibiotics alone are defeating this bug...your immune system is extremely

important...unless you have been shown to have auto immune problems you should

be o.k.