Re: Fwd: If YOU could be there, what would you say or show?

[Guest guest]

This is what I received from Art in reference to questions for Steere.

NOW, we have NO guarantee that these questions will ever be asked

but we can provide to the PRESS/attendees a list of our questions.

Rita said we must all learn to speak in sound bites. That leaves me

out. Concise isn't my forte as I'm sure everyone can see.

If you would like to add to these questions ... please do so.

Marleen

Here is the list of questions for Steere prepared by Rita S. for his

November 1996 talk in Seattle - hope this helps:

QUESTIONS FOR ALLEN STEERE

1. Chronically ill Lyme disease patients consistently report response

to antibiotic treatment but are routinely denied antibiotic treatment

based on your " standard of care. " Why?

2. Why do you routinely dismiss the large body of scientific data that

points to persistence of infection as anecdotal?

3. Why are you on the record as having been opposed to the current

treatment trials being conducted by NIH?

4. You are credited with coining the phrase " post Lyme syndrome " to

explain ongoing symptomolgy. In the absence of a definitive test, how

can you conclude that a patient has been sufficiently treated?

5. You have indicated that if a patient diagnosed with Lyme disease

does not respond to treatment that the initial diagnosis was most likely

incorrect. In the current climate of bacterial resistance how can you

confidently make that conclusion?

6. Why did you testify against Dr. ph Natole, resulting in severe

sanctions and his inability to treat 400+ Lyme patients?

7. Understanding that the primary reason Dr. Natole was sanctioned was

his treating Lyme patients with antibiotics longer than 4 weeks, do you

think his former patients feel you have done them a service?

8. How much were you paid to testify against Dr. Natole?

9. Why do you repeatedly ignore clinical doctors' findings and

observations, and how many of these doctors have had their practices

limited?

10. Why do you think your " standard of care " is popular with the

insurance companies (with whom you consult) and managed care?

-----

Art D.

[Guest guest]

Wow! Those are GREAT questions. And Marleen, you certainly could do

sound-bite format if you have them written down and stick to what's on the

paper. Boy! do I wish I could be there to see how he responds or if we just

get escorted out the door. Those of you who are going ... is anyone planning

to take a video camera?

(Michigan)

[Guest guest]

In a message dated 10/27/1999 5:31:09 PM Eastern Daylight Time,

lisa86@... writes:

> Boy! Do I wish I could be there to see how he responds or if we just

> get escorted out the door. Those of you who are going ... is anyone

planning

>

> to take a video camera?

I don't own one --- but I certainly hope someone brings one or two to

document the festivities!

Marleen

[Guest guest]

In a message dated 10/27/1999 5:42:57 PM Eastern Daylight Time,

ferraroa@... writes:

> But I'm extremely

> stubborn when the underdog is being hurt, so if no one speaks up, I will,

> I'll just memorize the list of questions so I'm ready. Hope my brain can be

> ready to memorize, here goes more ginko biloba!

That's what I feel we're going for, not myself personally, but all the

underdogs.

People, human beings who've lives have been destroyed. I have more strength

to fight for them then myself.

> Great questions, thanks!

I didn't come up with those, Rita Stanley did when they crashed the Seatlle

event.

>

[Guest guest]

In a message dated 10/27/99 5:56:51 PM Eastern Daylight Time,

ferraroa@... writes:

<< Video Camera, good idea, my husband has access to one, and I'll see if he

will bring it. >>

a hidden small tape recorder might even be better for someone to have...

Bernadette

[Guest guest]

Marleen

I think that is wonderful! Thanks

Vicki

[Lyme-aid] Fwd: If YOU could be there, what would you say or show?

>Hi Group members,

>Hope you don't mind but I sent the following post to two people that I

think

>excell in the Lyme community

>and that is of course Art & Milo. Bet they come up with some great stuff.

And

>I did this privately so they won't send it to the NG and tip our hats.

>Marleen

>

>

>In a message dated 10/27/1999 2:06:35 PM Eastern Daylight Time, LymeFightr

>writes:

>

>> Hi Art,

>> Wanted to pick that fabulous brain of yours. Behind the scenes, our Gala

>> Event to HONOR Steere on 11/3/88 is really starting to come together.

There

>> are two camps that are planning on arriving.

>>

>> (1) One group is going inside to listen and ask pertinent questions.

>That's

>> where you come in. You are SO SMART about this stuff ... can you add to

our

>> list below some questions that we/YOU would ask Steere if given the

>> opportunity to do so?

>>

>> They are also going to being providing a medical hand out of info to

give

>to

>> the people who are arriving. I assume they are planning to provide

medical

>> info that contradicts the Steere - Sigal camp.

>>

>> If YOU have any ideas on what you would LOVE to be included in that

>package,

>> if you sent it to me, I'll copy it and see about including it.

>>

>> This is all we got so far. Not too original --

>> again, this is where you come in, I hope.

>>

>> We need a least a list of 15 questions or so to share with the media -

>>

>> 1. Steere - how much money do you get from expert witness testimony?

>>

>> 2. How much $ and other benefits (travel, etc.) do you get from ins co;s

>> etc.

>>

>> We're going to try to get the media to get the answers for us.

>>

>> The second camp (my group) will be outside picketing. So, we feel we

have

>> killed two turds with one shot. We are going to be Politically Correct

....

>> and show them that we are appalled that this creature is getting an honor

>> from the NIH!

>>

>> Thank you for your consideration.

>> Marleen

>

>

[Guest guest]

Bernadette makes a good point -- I'd say the chances are strong that even if

you bring a video cam, they won't let you take it in. It's worth taking it

along, just in case, but the hidden tape recorder is a good back-up idea!

[Guest guest]

Marleen,

I can't be precise either so that may leave me out. But I'm extremely

stubborn when the underdog is being hurt, so if no one speaks up, I will,

I'll just memorize the list of questions so I'm ready. Hope my brain can be

ready to memorize, here goes more ginko biloba!

Great questions, thanks!

Vicki

Re: [ ] Fwd: If YOU could be there, what would you say or

show?

>From: LymeFightr@...

>

>This is what I received from Art in reference to questions for Steere.

>NOW, we have NO guarantee that these questions will ever be asked

>but we can provide to the PRESS/attendees a list of our questions.

>

>Rita said we must all learn to speak in sound bites. That leaves me

>out. Concise isn't my forte as I'm sure everyone can see.

>

>If you would like to add to these questions ... please do so.

>Marleen

>

>

>Here is the list of questions for Steere prepared by Rita S. for his

>November 1996 talk in Seattle - hope this helps:

>

>QUESTIONS FOR ALLEN STEERE

>

>1. Chronically ill Lyme disease patients consistently report response

>to antibiotic treatment but are routinely denied antibiotic treatment

>based on your " standard of care. " Why?

>

>2. Why do you routinely dismiss the large body of scientific data that

>points to persistence of infection as anecdotal?

>

>3. Why are you on the record as having been opposed to the current

>treatment trials being conducted by NIH?

>

>4. You are credited with coining the phrase " post Lyme syndrome " to

>explain ongoing symptomolgy. In the absence of a definitive test, how

>can you conclude that a patient has been sufficiently treated?

>

>5. You have indicated that if a patient diagnosed with Lyme disease

>does not respond to treatment that the initial diagnosis was most likely

>incorrect. In the current climate of bacterial resistance how can you

>confidently make that conclusion?

>

>6. Why did you testify against Dr. ph Natole, resulting in severe

>sanctions and his inability to treat 400+ Lyme patients?

>

>7. Understanding that the primary reason Dr. Natole was sanctioned was

>his treating Lyme patients with antibiotics longer than 4 weeks, do you

>think his former patients feel you have done them a service?

>

>8. How much were you paid to testify against Dr. Natole?

>

>9. Why do you repeatedly ignore clinical doctors' findings and

>observations, and how many of these doctors have had their practices

>limited?

>

>10. Why do you think your " standard of care " is popular with the

>insurance companies (with whom you consult) and managed care?

>

>-----

>Art D.

>

>>Send to -Offtopiconelist messages unrelated to lyme, please.

>/archive/lyme-aid

>/archives.cgi/Lyme-Documents

>To unsubscribe, send email to -unsubscribeonelist

>You may substitute " subscribe " , or " digest " or " normal " for

>the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

>

[Guest guest]

Video Camera, good idea, my husband has access to one, and I'll see if he

will bring it. Thanks for the idea.

Vicki

Re: [ ] Fwd: If YOU could be there, what would you say or

show?

>From: lisa86@...

>

>Wow! Those are GREAT questions. And Marleen, you certainly could do

>sound-bite format if you have them written down and stick to what's on the

>paper. Boy! do I wish I could be there to see how he responds or if we just

>get escorted out the door. Those of you who are going ... is anyone

planning

>to take a video camera?

>

> (Michigan)

>

>>Send to -Offtopiconelist messages unrelated to lyme, please.

>/archive/lyme-aid

>/archives.cgi/Lyme-Documents

>To unsubscribe, send email to -unsubscribeonelist

>You may substitute " subscribe " , or " digest " or " normal " for

>the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

>

[Guest guest]

Wow, these are perfect! This list of questions is the most potent weapon we

have. Strategically, posing powerful questions is more effective that making

strong statements. I'll keep them handy when emailing to media. This is the

kind of clear thinking I not able to do. Thank goodness some of us can!

beth

Re: [Lyme-aid] Fwd: If YOU could be there, what would you say or

show?

> From: LymeFightr@...

>

> This is what I received from Art in reference to questions for Steere.

> NOW, we have NO guarantee that these questions will ever be asked

> but we can provide to the PRESS/attendees a list of our questions.

>

> Rita said we must all learn to speak in sound bites. That leaves me

> out. Concise isn't my forte as I'm sure everyone can see.

>

> If you would like to add to these questions ... please do so.

> Marleen

>

>

> Here is the list of questions for Steere prepared by Rita S. for his

> November 1996 talk in Seattle - hope this helps:

>

> QUESTIONS FOR ALLEN STEERE

>

> 1. Chronically ill Lyme disease patients consistently report response

> to antibiotic treatment but are routinely denied antibiotic treatment

> based on your " standard of care. " Why?

>

> 2. Why do you routinely dismiss the large body of scientific data that

> points to persistence of infection as anecdotal?

>

> 3. Why are you on the record as having been opposed to the current

> treatment trials being conducted by NIH?

>

> 4. You are credited with coining the phrase " post Lyme syndrome " to

> explain ongoing symptomolgy. In the absence of a definitive test, how

> can you conclude that a patient has been sufficiently treated?

>

> 5. You have indicated that if a patient diagnosed with Lyme disease

> does not respond to treatment that the initial diagnosis was most likely

> incorrect. In the current climate of bacterial resistance how can you

> confidently make that conclusion?

>

> 6. Why did you testify against Dr. ph Natole, resulting in severe

> sanctions and his inability to treat 400+ Lyme patients?

>

> 7. Understanding that the primary reason Dr. Natole was sanctioned was

> his treating Lyme patients with antibiotics longer than 4 weeks, do you

> think his former patients feel you have done them a service?

>

> 8. How much were you paid to testify against Dr. Natole?

>

> 9. Why do you repeatedly ignore clinical doctors' findings and

> observations, and how many of these doctors have had their practices

> limited?

>

> 10. Why do you think your " standard of care " is popular with the

> insurance companies (with whom you consult) and managed care?

>

> -----

> Art D.

>

> > Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank both the message and subject header.

>

[Guest guest]

Hidden camera, hmm, good idea, Anyone have one??!

Re: [Lyme-aid] Fwd: If YOU could be there, what would you say or

show?

>From: BratDet@...

>

>In a message dated 10/27/99 5:56:51 PM Eastern Daylight Time,

>ferraroa@... writes:

>

><< Video Camera, good idea, my husband has access to one, and I'll see if

he

> will bring it. >>

>a hidden small tape recorder might even be better for someone to have...

>Bernadette

>

>>Send to -Offtopiconelist messages unrelated to lyme, please.

>/archive/lyme-aid

>/archives.cgi/Lyme-Documents

>To unsubscribe, send email to -unsubscribeonelist

>You may substitute " subscribe " , or " digest " or " normal " for

>the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

>