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Fransea-NJ Seashore-LIVER BIOPSY TODAY...PRAYERS NEEDED!

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hello gang,

its been awhile...but I have not been feeling well at all.

Here it is....one year and ten different doctors later I am

finally getting the liver biopsy done to see what the heck

is wrong with my liver!!! The LFT's are still abnormal...

and there are a few others off also. I just hope they will

find out once and for all what is going on....I only hope its

something that can be treated.

I am also having an extra piece of liver meat taken out for

a Lyme PCR.....just to check. (the hepatologist told us there

is no way that lyme bacteria could be in the liver!!! He is

NOT lyme-literate!!!) I got my own Lyme Doc to write the

script to get the extra biopsy done for the lyme PCR. It would

be nice if they found a spiro or two.......or even a piece!!!

We shall see.

My arthritis is hurting in my hands and fingers...so I don't

do much typing these days. I mostly try and catch up on sleep.

Not sleeping well.......and I am flared with my lyme symptoms...

my knees are so very bad......but I cannot get anymore IV's

until I find out what'sup with my liver.

I will be admitted to the hospital (Underwood for those

familiar!!! in Woodbury) at 930AM and biopsy by catscan

will be done at 10-1030. I will have to stay in the short stay

unit for quite a few hours afterwards to make sure I don't

bleed thru.......my platelets are low...but I should be ok. They

did more labs today. I just hope I don't need a transfusion

(imagineing the worse case scenario) I have a rarer blood type...

AB+........and no family member nearby with my type. Lets just

pray for the best.

Please.....keep me in your prayers....or at least send good vibes

towards NJ!!!!!!

Love to all...I will let you know wat happens.

Fransea

NJ Seashore

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Hi Fransea,

I'm glad that you will finally get to the bottom of your liver

problems...it may not be as serious as you fear. Having a PCR for Lyme

done on your liver is a great idea and has the possibility of helping us

all.

Don't worry too much about the test, and let us know how you are doing

ASAP.

My thoughts are with you!

Joan LI NY

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Hi Fransea,

Damn, I wish I had seen this post yesterday....I live a stone's throw

from Underwood Hospital in Woodbury, about 8 miles or so. I would have come

to visit you or waited in recovery for you. Darn it all. You definitely

have my prayers that all will be well, and a big prayer too that they

remember to biopsy that piece for LD research. I know others who were

promised this and found it was not done. I wish I had your rare blood type,

but I am only A+. Hang in there sweetie, better days are coming, waiting to

hear how you made out.

Love,

Marta

From: SeaFran731@... <SeaFran731@...>

hello gang,

its been awhile...but I have not been feeling well at all.

Here it is....one year and ten different doctors later I am

finally getting the liver biopsy done to see what the heck

is wrong with my liver!!! The LFT's are still abnormal...

and there are a few others off also. I just hope they will

find out once and for all what is going on....I only hope its

something that can be treated.

I am also having an extra piece of liver meat taken out for

a Lyme PCR.....just to check. (the hepatologist told us there

is no way that lyme bacteria could be in the liver!!! He is

NOT lyme-literate!!!) I got my own Lyme Doc to write the

script to get the extra biopsy done for the lyme PCR. It would

be nice if they found a spiro or two.......or even a piece!!!

We shall see.

My arthritis is hurting in my hands and fingers...so I don't

do much typing these days. I mostly try and catch up on sleep.

Not sleeping well.......and I am flared with my lyme symptoms...

my knees are so very bad......but I cannot get anymore IV's

until I find out what'sup with my liver.

I will be admitted to the hospital (Underwood for those

familiar!!! in Woodbury) at 930AM and biopsy by catscan

will be done at 10-1030. I will have to stay in the short stay

unit for quite a few hours afterwards to make sure I don't

bleed thru.......my platelets are low...but I should be ok. They

did more labs today. I just hope I don't need a transfusion

(imagineing the worse case scenario) I have a rarer blood type...

AB+........and no family member nearby with my type. Lets just

pray for the best.

Please.....keep me in your prayers....or at least send good vibes

towards NJ!!!!!!

Love to all...I will let you know wat happens.

Fransea

NJ Seashore

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Does anyone know which lab(s) are able to detect the spirochetes in

specimens? (I'm in Delaware.)

I ask because I had cervical cysts treated twice in the past month

w/silver nitrate. The GYN isn't LL, and I asked him if the specimen

he sent to pathology could bechecked for spirochetes, but hedidn't

thinkso.

I didn't have the energy to follow-up on this at the time, but for

future reference, it'd benice to know where specimens could be sent

for this. btw, the silver nitratecaused a major Herx.

Thanks,

Sue

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  • 2 weeks later...
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Annie wrote:

>Maybe the Silver Nitrate is not the actual cause of the Herx, but rather

the >traumatic event. I just had an Uterine Artery Embolization, which threw

off my >Herx schedule. Just a thought.

I had 2 recent treatments of silver nitrate for cervical cysts. After

the first tx (for the majority of the cysts), w/in days, I had the most

severe Herx I've ever had.

Sue

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