Re: doctors avoiding lyme's patients

June 5, 1999

a very select few understand LD and RESEARCH LD. many just know the

standard text book stuff. do you test postive for any other diseases?

this totally knocks the physicians off balance and may be why they are

unsure as to what to do. most MD's want to discuss LD but don't want to

treat it, this is what i have found anyway.

>From: jill schwartz <jilljb@...>

>

>Hi. Sorry I haven't participated in the last few days but I've been

>making some doctor rounds and feeling lousy. My lyme doctor wanted me

>to see some specialists for other problems I am having. Each doctor

>sums it up with stay the course on lyme's and come back to me in the

>months to come. They have no understanding of lyme's and I think they

>are afraid to take a patient on who has lyme's. Anyone else finding

>that?

>They say " Yea, you have a problem " but they don't want to touch you. So

>how do you know if you are better from lyme's if you continue to have

>problems. You could be treated for lyme's forever while the problem is

>something totally different.

>Curious to hear who else experienced this wonderful bedside manner.

>Jill

>

>_________________________________________________________

>

June 5, 1999

Hi Jill,

Sorry to hear that you've been feeling lousy and having no luck w/the

Drs. I have found that as my symptoms increased, I was handed off from

one Dr. to the next without treatment...just more tests. Eventually, my

neurologist agreed to give me very minimal treatment for Lyme, and and

an antidepressant. I finally found a LLMD, but had to wait 2 1/2 months

to get an appt. I will be seeing him next week. I hope that he will be

able to treat ALL of my symptoms.

I think that it is a good thing that your Lyme Dr. wants you to be seen

by other specialists. That way they can rule ot the other major diseases

which may in turn help your Lyme Dr. treat you. I

would be curious to know who your Lyme Dr. is, if you would like to

e-mail me, as I also live on Long Island. Hang in there

and feel better. Joan

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