Re: More ticks than ever??/Sad Day

[Guest guest]

In a message dated 10/29/99 8:07:53 PM Eastern Daylight Time,

conniek@... writes:

<< Wow, I'm very saddened by today's events........I hope this attitude is the

minority....

or the search for a cure......may never exist in our future!!! Connie

nwnj >>

Remind me one day to mail you a copy of what our middle school teachers

provide to parents if they are to go outside for science field studies..they

are warned to dress appropriately, parents have to sign permission

slips...well I had my pta friends show it to our grammar school board...they

scoffed...and guess whose school has a nature trail...and the parents are

NEVER told if their kids are going to go for a nature hike...or warned to

dress right...you have just reminded me to push the issue with the school

nurse..I am going to write her a letter and give her a cops of the middle

school form and inform her since Lyme is a real threat in Edison...that she

needs to have teachers implements something similar...I KNOW how shocked and

saddened you were to see what went on there...glad you shared cause you

served to remind me to make time to push to protect the little

ones.....Bernadette

on a different note...does anyone know how to find out if their diagnosis of

Lyme was ever reported to the state or local board of health? B

[Guest guest]

Connie,

Unfortunately, I think that attitude is more the norm. That is why we have

to educate. If I were you, I'd me so mad that I would write a letter to all

the parents and tell them what happened today and educate them a little

about Lyme. And I hate to say it, but no I better not say I hope this head

coach does get it, and then she what she thinks. NO No I didn't say it!!

Sorry you had go through something so horrible. To me it proves people that

say they understand, really can't unless they know someone or are suffering

themselves with this insidious disease. It seems most people just have to

learn the hard way! I'm luck, recently a friend of mine got in touch with

me, she just got diagnosed with Lyme, but (we worked together) she

remembered things I said. So at least I know she was paying attention, so

not all people are that bad and ignorant. Hang in there.

Vicki

Re: [Lyme-aid] More ticks than ever??/Sad Day

>From: ConnieK <conniek@...>

>

>Thanks for that info Bernadette.........boy isn't there anything for sure

>in this disease???

>Can't even rely on the tests performed on the tick itself.

>

>I had the most upsetting thing happen today..........As you know I am the

>assistant coach of field hockey at my school ......its nearing the end of

>the season......and the Head Coach allowed the team to go on a nature

>walk........(our school in NWNJ is bordered by woods).......I could see

>other teams also in the woods.....hiking around.

>The kids had on shorts and tee-shirts........

>

>I expressed my concern about the ticks/lyme disease........and her response

>was " ahh, if they are going to get it......so they get it " I was

>shocked.......and again expressed my opinion........I couldn't believe her

>attitude........She then told me, she does hay every year on the farm,

>standing in tall grass, and never protects herself.......she repeated " hey,

>if I'm going to get it.......so I'll get it " ....thats when I said " you

>don't realize the seriousness of the disease.......people have been

>crippled, even died!!! .......

>

>.Wow, she hasn't been listening to me at all.........I have been so sick

>over the last four years.......she has seen me limping, coughing, bloodshot

>eyes from lack of sleep, sweating and changing my clothes several times

>during one day, injections, medications,

>missed days, weeks, even months of work.......etc.....

>

>How quickly they forget....It made me think..........how many other people

>out there, don't really know how much I have struggled day to

>day.........and how many more people out there are infected with this

>disease........and are barely functioning, bedridden, crippled, severely

>handicapped, or have died!!!!

>

>Wow, I'm very saddened by today's events........I hope this attitude is the

>minority....

>or the search for a cure......may never exist in our future!!! Connie

>nwnj

>

[Guest guest]

Bernadette,

I agree with you about educating the schools, and the story

(Connie's?)serving as a reminder. On a brighter note. My son, has some

learning disabilities, but still his IQ is in the genius level. However,

this year he started Middle School. When he started to slip, his teachers

met with me (all eight, including School Nurse and Counselor) and told me

when one day, one of them said they were going to call me at home, and my

son replied, " good luck, she probably won't answer the phone (part of his

problem is he has a big mouth!). When this caring teacher asked why (instead

of punishing him for his rude behavior) he told them I sleep all day because

I have Lyme. This teacher talked to the Nurse, and they info on Lyme. At

the conference they told my son they knew how concerned he must be for me,

but it wouldn't help me if I stressed over his school and study habits. I

was so touched, that they went to the trouble to find out this information,

and even asked me more questions about my symptoms, and seemed very

concerned. So there are some out there that still care and want to be

educated.

With regard to finding out if your case was reported, I've been thinking

about that to. I think your LLMD would be able to tell you, since it would

be his job to do so right? I'm going to ask during my next appt. However,

I'm worried he may think I want him to and therefore target him for

investigation. Which I do not want to do. But I'll ask and let you know my

results.

Vicki

Re: [Lyme-aid] More ticks than ever??/Sad Day

>From: BratDet@...

>

>In a message dated 10/29/99 8:07:53 PM Eastern Daylight Time,

>conniek@... writes:

>

><< Wow, I'm very saddened by today's events........I hope this attitude is

the

> minority....

> or the search for a cure......may never exist in our future!!! Connie

> nwnj >>

>Remind me one day to mail you a copy of what our middle school teachers

>provide to parents if they are to go outside for science field

studies..they

>are warned to dress appropriately, parents have to sign permission

>slips...well I had my pta friends show it to our grammar school

board...they

>scoffed...and guess whose school has a nature trail...and the parents are

>NEVER told if their kids are going to go for a nature hike...or warned to

>dress right...you have just reminded me to push the issue with the school

>nurse..I am going to write her a letter and give her a cops of the middle

>school form and inform her since Lyme is a real threat in Edison...that she

>needs to have teachers implements something similar...I KNOW how shocked

and

>saddened you were to see what went on there...glad you shared cause you

>served to remind me to make time to push to protect the little

>ones.....Bernadette

>

>on a different note...does anyone know how to find out if their diagnosis

of

>Lyme was ever reported to the state or local board of health? B

>

[Guest guest]

Thanks for that info Bernadette.........boy isn't there anything for sure

in this disease???

Can't even rely on the tests performed on the tick itself.

I had the most upsetting thing happen today..........As you know I am the

assistant coach of field hockey at my school ......its nearing the end of

the season......and the Head Coach allowed the team to go on a nature

walk........(our school in NWNJ is bordered by woods).......I could see

other teams also in the woods.....hiking around.

The kids had on shorts and tee-shirts........

I expressed my concern about the ticks/lyme disease........and her response

was " ahh, if they are going to get it......so they get it " I was

shocked.......and again expressed my opinion........I couldn't believe her

attitude........She then told me, she does hay every year on the farm,

standing in tall grass, and never protects herself.......she repeated " hey,

if I'm going to get it.......so I'll get it " ....thats when I said " you

don't realize the seriousness of the disease.......people have been

crippled, even died!!! .......

..Wow, she hasn't been listening to me at all.........I have been so sick

over the last four years.......she has seen me limping, coughing, bloodshot

eyes from lack of sleep, sweating and changing my clothes several times

during one day, injections, medications,

missed days, weeks, even months of work.......etc.....

How quickly they forget....It made me think..........how many other people

out there, don't really know how much I have struggled day to

day.........and how many more people out there are infected with this

disease........and are barely functioning, bedridden, crippled, severely

handicapped, or have died!!!!

Wow, I'm very saddened by today's events........I hope this attitude is the

minority....

or the search for a cure......may never exist in our future!!! Connie

nwnj

[Guest guest]

In a message dated 10/29/99 9:51:34 PM Eastern Daylight Time,

ferraroa@... writes:

<< With regard to finding out if your case was reported, I've been thinking

about that to. I think your LLMD would be able to tell you, since it would

be his job to do so right? I'm going to ask during my next appt. >>

Acc to NJ state law, the Dr, is supposed to report within 24 hours of

diagnosis...but since my original Dr.'s office people were less than

stellar....I doubt it...as the local board of hleath acted if Lyme didn't

exist here b

[Guest guest]

Thanks lovey,

Good idea , and I will call as soon as possible.

Vicki

Re: [Lyme-aid] More ticks than ever??/Sad Day

>>

>>

>> >From: BratDet@...

>> >

>> >In a message dated 10/29/99 8:07:53 PM Eastern Daylight Time,

>> >conniek@... writes:

>> >

>> ><< Wow, I'm very saddened by today's events........I hope this

>> attitude is

>> the

>> > minority....

>> > or the search for a cure......may never exist in our future!!!

>> Connie

>> > nwnj >>

>> >Remind me one day to mail you a copy of what our middle school

>> teachers

>> >provide to parents if they are to go outside for science field

>> studies..they

>> >are warned to dress appropriately, parents have to sign permission

>> >slips...well I had my pta friends show it to our grammar school

>> board...they

>> >scoffed...and guess whose school has a nature trail...and the

>> parents are

>> >NEVER told if their kids are going to go for a nature hike...or

>> warned to

>> >dress right...you have just reminded me to push the issue with the

>> school

>> >nurse..I am going to write her a letter and give her a cops of the

>> middle

>> >school form and inform her since Lyme is a real threat in

>> Edison...that she

>> >needs to have teachers implements something similar...I KNOW how

>> shocked

>> and

>> >saddened you were to see what went on there...glad you shared cause

>> you

>> >served to remind me to make time to push to protect the little

>> >ones.....Bernadette

>> >

>> >on a different note...does anyone know how to find out if their

>> diagnosis

>> of

>> >Lyme was ever reported to the state or local board of health? B

>> >

>>

>> ---------------------------

[Guest guest]

Vicki, call Nick at Igenex. He will return your call. Leave your

question on his voice mail if he is not in. Ask him if the Labs send in

the cases to be counted or does the local LLMD? Any dr in his right mind

would not report it at this witchhunting time. Lovey

On Fri, 29 Oct 1999 22:00:28 -0400 " Vicki & Ferraro (home) "

<ferraroa@...> writes:

> From: " Vicki & Ferraro (home) " <ferraroa@...>

>

> Bernadette,

>

> I agree with you about educating the schools, and the story

> (Connie's?)serving as a reminder. On a brighter note. My son, has

> some

> learning disabilities, but still his IQ is in the genius level.

> However,

> this year he started Middle School. When he started to slip, his

> teachers

> met with me (all eight, including School Nurse and Counselor) and

> told me

> when one day, one of them said they were going to call me at home,

> and my

> son replied, " good luck, she probably won't answer the phone (part

> of his

> problem is he has a big mouth!). When this caring teacher asked why

> (instead

> of punishing him for his rude behavior) he told them I sleep all day

> because

> I have Lyme. This teacher talked to the Nurse, and they info on

> Lyme. At

> the conference they told my son they knew how concerned he must be

> for me,

> but it wouldn't help me if I stressed over his school and study

> habits. I

> was so touched, that they went to the trouble to find out this

> information,

> and even asked me more questions about my symptoms, and seemed very

> concerned. So there are some out there that still care and want to be

> educated.

>

> With regard to finding out if your case was reported, I've been

> thinking

> about that to. I think your LLMD would be able to tell you, since it

> would

> be his job to do so right? I'm going to ask during my next appt.

> However,

> I'm worried he may think I want him to and therefore target him for

> investigation. Which I do not want to do. But I'll ask and let you

> know my

> results.

>

> Vicki

> Re: [Lyme-aid] More ticks than ever??/Sad Day

>

>

> >From: BratDet@...

> >

> >In a message dated 10/29/99 8:07:53 PM Eastern Daylight Time,

> >conniek@... writes:

> >

> ><< Wow, I'm very saddened by today's events........I hope this

> attitude is

> the

> > minority....

> > or the search for a cure......may never exist in our future!!!

> Connie

> > nwnj >>

> >Remind me one day to mail you a copy of what our middle school

> teachers

> >provide to parents if they are to go outside for science field

> studies..they

> >are warned to dress appropriately, parents have to sign permission

> >slips...well I had my pta friends show it to our grammar school

> board...they

> >scoffed...and guess whose school has a nature trail...and the

> parents are

> >NEVER told if their kids are going to go for a nature hike...or

> warned to

> >dress right...you have just reminded me to push the issue with the

> school

> >nurse..I am going to write her a letter and give her a cops of the

> middle

> >school form and inform her since Lyme is a real threat in

> Edison...that she

> >needs to have teachers implements something similar...I KNOW how

> shocked

> and

> >saddened you were to see what went on there...glad you shared cause

> you

> >served to remind me to make time to push to protect the little

> >ones.....Bernadette

> >

> >on a different note...does anyone know how to find out if their

> diagnosis

> of

> >Lyme was ever reported to the state or local board of health? B

> >

>

> ---------------------------

[Guest guest]

connie.....did u know that in NJ if a child has lyme thge teacher must take

an inservice course on lyme.....its the law....most schools do not even know

about it.....my town does not i am now pushing it because of my daughters

lyme.....

Reid

[Guest guest]

Vicki,

What a touching story........we need more people like your son's

teacher......

Education is so important........Thanks Bernadette......instead of

crying.....this should only push me to educate.....I've talked to my

supervisor about bringing in a speaker to talk to our Physical/Health

Education classes.......I hope he agrees with me.....Connie

[Guest guest]

Hi Connie,

Wow, I can see why you are upset, such a shame your co-worker has such a

cavalier attitude about the health and well-being of her students. I can

understand her attitude for herself but not poor innocent kids. You did the

right thing telling her about how serious this disease, as for her not

relating your illness to the bite of a tick....I too hope she is in the

minority, but we know she isn't. Take care.

Hugs,

Marta NJ

-

>From: ConnieK <conniek@...>

>

>Thanks for that info Bernadette.........boy isn't there anything for sure

>in this disease???

>Can't even rely on the tests performed on the tick itself.

>

>I had the most upsetting thing happen today..........As you know I am the

>assistant coach of field hockey at my school ......its nearing the end of

>the season......and the Head Coach allowed the team to go on a nature

>walk........(our school in NWNJ is bordered by woods).......I could see

>other teams also in the woods.....hiking around.

>The kids had on shorts and tee-shirts........

>

>I expressed my concern about the ticks/lyme disease........and her response

>was " ahh, if they are going to get it......so they get it " I was

>shocked.......and again expressed my opinion........I couldn't believe her

>attitude........She then told me, she does hay every year on the farm,

>standing in tall grass, and never protects herself.......she repeated " hey,

>if I'm going to get it.......so I'll get it " ....thats when I said " you

>don't realize the seriousness of the disease.......people have been

>crippled, even died!!! .......

>

>.Wow, she hasn't been listening to me at all.........I have been so sick

>over the last four years.......she has seen me limping, coughing, bloodshot

>eyes from lack of sleep, sweating and changing my clothes several times

>during one day, injections, medications,

>missed days, weeks, even months of work.......etc.....

>

>How quickly they forget....It made me think..........how many other people

>out there, don't really know how much I have struggled day to

>day.........and how many more people out there are infected with this

>disease........and are barely functioning, bedridden, crippled, severely

>handicapped, or have died!!!!

>

>Wow, I'm very saddened by today's events........I hope this attitude is the

>minority....

>or the search for a cure......may never exist in our future!!! Connie

>nwnj

[Guest guest]

Hi B,

I know my case of HME was reported to the Board of Health as they sent

notification to my doctor, I have a copy of it...as for Lyme, doctors aren't

required to report it unless the WB has all the bands that CDC requires, I

just read that in the latest Lyme Alliance newsletter.

I wonder if the school nurse would tell you how many kids in the school

district are currently being treated for Lyme and missing school, that

should open her eyes if she correlates that information to your request.

Hugs,

Marta NJ

>From: BratDet@...

>Remind me one day to mail you a copy of what our middle school teachers

>provide to parents if they are to go outside for science field

studies..they

>are warned to dress appropriately, parents have to sign permission

>slips...well I had my pta friends show it to our grammar school

board...they

>scoffed...and guess whose school has a nature trail...and the parents are

>NEVER told if their kids are going to go for a nature hike...or warned to

>dress right...you have just reminded me to push the issue with the school

>nurse..I am going to write her a letter and give her a cops of the middle

>school form and inform her since Lyme is a real threat in Edison...that she

>needs to have teachers implements something similar...I KNOW how shocked

and

>saddened you were to see what went on there...glad you shared cause you

>served to remind me to make time to push to protect the little

>ones.....Bernadette

>

>on a different note...does anyone know how to find out if their diagnosis

of

>Lyme was ever reported to the state or local board of health? B