Re: [Lyme-aid] Re: allergic reaction

[Guest guest]

oh my caroylnn i have had a reaction to every classification of

antibiotics!!!!!!!!! i am now on an iv pump i get claforan 2 gm every 8

hours i have to take 100 mg of benedryl before each dose lets talk rash it

is terrible but i am not willing to stop treatment have been on this abt

since october my insurance company is throwing a fit i from a scale of 1-10

1 being the worse i would say that i am at a 5 now still have really bad

days but i do have good days now at least since the last 2 weeks hang in

there if ya can keep the benedryl handy my pharmacist cannot believe i am

still hanging in there but i am determined to win this dang war!!!!!!!!!

lots of love and prayers

cindy in mich

[Lyme-aid] Re: allergic reaction

> Hi Roe,

>

> I had a reaction the first time I ever got IV Rocephin. They stopped

> treatment and sent me to another hospital to try and desensitize me

> to

> it so I could continue treatment. Strange thing, I didn't react to it

> there and never had a problem again. I have a problem with hives with

> the lyme itself. I'll break out in scattered hives when I start to

> relapse and also with treatment. I do believe this is due strictly to

> the lyme. Hives can be a form of the lyme rash and it makes sense

> that

> if the lyme is acting up the hives come to life. Hives do indicate an

> allergic reaction and with lyme, at least in my case, I think it's an

> allergic reaction to the bug itself, or at least what that bug causes

> my body to do. There was no doubt on my first dose of IV Rocephin

> that

> it needed to be halted. I broke out all over and had a hard time

> breathing. That is a severe reaction. I'm not a doctor but have

> played

> one with myself often. If you don't want to stop treatment, don't. It

> doesn't sound like you are having a reaction to the Rocephin, just

> what it's making the bug do. Have some Benadryl handy just in case

> because you'll know if you have a major reaction, that way you'll

> have

> some treatment if needed until you get to the hospital. I really

> think

> that if it was a reaction to the drug itself there would have been no

> doubt that it was the cause and it would have happened almost

> immediately. I have the hive problem with my lyme all the time, on

> abx

> or off!! Don't cheat yourself of good treatment for what sounds like

> the same problem. )

>

> Carolyn

>

> P.S. I want to say it again, I'm no doc!!!! I've just been through

> both major reactions and lyme hives.

>

>

> has anyone had this problem with antibiotics? Is it safe to

> > continue treatment? could it just be a lyme thing? If i tell my

> > doctor he is going to tell me to stop the treatment. i dont know

> what

> > to do, maybe i should get tested for allergies? any advice would be

> > welcomed. thank you all for being there.

> > roe

> >

> > __________________________________________________

> >

[Guest guest]

Thank you Carolyn, just what i needed to hear. I dont have any

breathing problems and when i talked to my doctor a couple of weeks ago

he said it may be a type of herx reaction. of course he is

speculating, but he let me stay on the abx, his theory was that as the

abx is moving through the bloodstream, it is causing a reation at the

site it is busy killing the bugs. he said it much better then this and

it made sense. I really dont think it is an allergy either, i take

benedryl and it really doesnt help, the day i wrote the letter to the

list it was really bad. i had a friend over and we were watching a

movie and i couldnt stop scratching, it was really embarrassing. that

night i slept 16 hours! its got to be a lyme thing and no way am i

giving up the IV for an itch!

roe

--- Carolyn Rowe <skidrowe@...> wrote:

> Hi Roe,

>

> I had a reaction the first time I ever got IV Rocephin. They stopped

> treatment and sent me to another hospital to try and desensitize me

> to

> it so I could continue treatment. Strange thing, I didn't react to it

>

> there and never had a problem again. I have a problem with hives with

>

> the lyme itself. I'll break out in scattered hives when I start to

> relapse and also with treatment. I do believe this is due strictly to

>

> the lyme. Hives can be a form of the lyme rash and it makes sense

> that

> if the lyme is acting up the hives come to life. Hives do indicate an

>

> allergic reaction and with lyme, at least in my case, I think it's an

>

> allergic reaction to the bug itself, or at least what that bug causes

>

> my body to do. There was no doubt on my first dose of IV Rocephin

> that

> it needed to be halted. I broke out all over and had a hard time

> breathing. That is a severe reaction. I'm not a doctor but have

> played

> one with myself often. If you don't want to stop treatment, don't. It

>

> doesn't sound like you are having a reaction to the Rocephin, just

> what it's making the bug do. Have some Benadryl handy just in case

> because you'll know if you have a major reaction, that way you'll

> have

> some treatment if needed until you get to the hospital. I really

> think

> that if it was a reaction to the drug itself there would have been no

>

> doubt that it was the cause and it would have happened almost

> immediately. I have the hive problem with my lyme all the time, on

> abx

> or off!! Don't cheat yourself of good treatment for what sounds like

> the same problem. )

>

> Carolyn

>

> P.S. I want to say it again, I'm no doc!!!! I've just been through

> both major reactions and lyme hives.

>

>

> has anyone had this problem with antibiotics? Is it safe to

> > continue treatment? could it just be a lyme thing? If i tell my

> > doctor he is going to tell me to stop the treatment. i dont know

> what

> > to do, maybe i should get tested for allergies? any advice would

> be

> > welcomed. thank you all for being there.

> > roe

> >

> > __________________________________________________

> >

[Guest guest]

I have been told all my life I am allergic to penicillin. Three years ago I

was tested and sure enough I was. I wear something that says I am allergic to

this - then when I had the Lyme testing they tested for penicillin and it

came out I was no longer allergic. I think that we can become allergic to

things after awhile and then not be. I have tons of allergies and get shots

and carry needles. Hives can be serious if they get into your throat or your

throat closes off the airway. Play it safe - carry benedryl and an epi-pen.

KIM

[Guest guest]

Hey Kim, its me! Roe! glad you joined this group. i am staying on the

rocephin. the itching comes and goes, when it comes it can be really

awful my doctor thinks its lyme and not allergy and their is no other

reations and the insurance co. just approved 2 more weeks. i am so

exited!! and i just got a supply of benydryl and some anti itch cream.

roe

--- timibug2@... wrote:

> I have been told all my life I am allergic to penicillin. Three years

> ago I

> was tested and sure enough I was. I wear something that says I am

> allergic to

> this - then when I had the Lyme testing they tested for penicillin

> and it

> came out I was no longer allergic. I think that we can become

> allergic to

> things after awhile and then not be. I have tons of allergies and get

> shots

> and carry needles. Hives can be serious if they get into your throat

> or your

> throat closes off the airway. Play it safe - carry benedryl and an

> epi-pen.

> KIM

>

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