Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 Lea wrote: > > Also, how do we get tested? > thank you > best, > lea > << About the following " > Also, I believe I mentioned on here that my doctor may be identifying a > marker for late Lyme. I tested having a missing subset of killer cell, > something my doctor, who's an immunologist, has never seeen before. He's > gone on to test many others in the area w/ late lyme - SAME WEIRD RESULT. > He'll be trying to get funding to research this. It may have important > implications for diagnosis and treatment. The test he runs is a lymphocyte > phenotype (or subset) test that determines levels of subsets of T cells and > whether or not they're activated. It's one way to paint an immune profile. > The specific subset that we're missing is CD8 - CD57. > > You might want to have this test run. I'm sure my doctor would appreciate > collecting as much data on this as possible. The test is a blood test called lymphocyte phenotyping or lymphocyte subset. Some doctors do this to get an immunological profile but (according to my doctor) they don't get a detailed report on subsets of killer cells, they just get summaries - that's not enough. If you're doctor doesn't know what this means, get back to me and I'll ask. I'm not sure how weird a test this is for non-immunologists. Be well, beth ***************************************************** Iinfected in 1984, Western Sierras, California undiagnosed rash Dormant disease w/ low grade symptoms for 14 yrs. Disease became active in late '98 Primarily neuro symptoms ELISA - neg. Western Blot - equivocal 4 out 5 Bb specific bands positive or equivocal suggestive of OLD infection Abx so far: 6 wks Doxy, 4 wks IV Rocephin, Rocephin ongoing Work with LLMD in San Francisco, R. Stricker Quote Link to comment Share on other sites More sharing options...
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