Re: Dr. Nina Pearlmutter

[Guest guest]

Hi, Jeanne

I have Lyme, erlichiosis, and babesiosis (other tick-borne diseases) and I am

a patient of Nina's. She is definitely Lyme Literate. I can also put you in

touch with other Lyme patients of hers who are online.

I can also say, as someone who has NO insurance, that IGENEX tests ARE

expensive, but I think they are necessary. If you have babesiosis,

antibiotics will not help. That must be taken care of first.

Feel free to write to me privately with any additional questions you may have.

Port Charlotte, FL

In a message dated 5/29/99 6:07:10 AM Eastern Daylight Time,

Jeanne2du@... writes:

> I live in Ft. Lauderdale and have fibromyalgia/cfs/mps. My doctor, Nina

> Pearlmutter says she does lots of lyme work. She wants to test me for lyme

> disease. I am 45, disabled, and my Medicare HMO does not cover any payment

> for testing for lyme.

[Guest guest]

Yes Dr.Perlmutter is Lyme literate..... and is probably right about your

diagnosis... there are so many people diagnosed with these mysterious

illnesses with no known cause. the docs treat the symptoms but never the

cause... Dr. Perlmutter knows her stuff! Good luck!

[Guest guest]

Jeanne, Dr. Nina Pearlmutter is highly recomended by the Florida Lyme

Alliance. I would listen to her and get the test, she knows what she is doing

when it comes to Lyme. Being a member of the Alliance we have sent many lyme

patients to her over the years. Terri Gilbert

[Guest guest]

Hi Jeanne,

First off welcome to the list, I have not heard of Pearlmutter, but that

doesn't mean she is not knowledgeable in Lyme disease. Lyme testing to me

is a waste of time, and money in your case. Lyme is a clinical diagnosis,

based on symptoms and response to antibiotic treatment. See if you can get

your doctor to do a trial run of abx to see if this helps at all. I am so

sorry to hear about your Mom, as you learn more about Lyme and the

neurological aspects, you will understand that you Mother may not have been

able to help herself, Lyme affects our way of thinking and if it is

suspected it is so important to seek treatment. Untreated Lyme causes lots

of pain, not just joint pain as lots of Rheumatologists will claim. Early

in my disease when all seemed hopeless I considered suicide, fortunately I

am now on Paxil and I see things differently, plus I am receiving help with

the pain. I hope others on this list can answer your questions regarding

this doctor. Please keep us posted on how you are doing. Oh, there is no

list that I know of for Literate Lyme doctors other than one maintained by

the LDF, here is their web page:

http://www.lyme.org/index2.html

Hugs,

Marta

>From: Jeanne2du@...

>

>I live in Ft. Lauderdale and have fibromyalgia/cfs/mps. My doctor, Nina

>Pearlmutter says she does lots of lyme work. She wants to test me for lyme

>disease. I am 45, disabled, and my Medicare HMO does not cover any payment

>for testing for lyme. I previously lived in Illinois years ago. We took

ticks

>off our dogs frequently. She says I would likely have never known that I

was

>bitten. My mother had a similar pain syndrome and my doctor thinks she may

>have been bitten with never knowing also. My mother's pain was so bad she

>committed suicide in 1974. Does any of this sound at all like lyme disease.

>Two people on the Fibro board I am on have tested positive for lyme. I was

>wondering if Dr. Pearlmutter is listed as a lyme literate doctor. Is there

a

>list that can be checked? Thank you. ~jeanne

>

>-

[Guest guest]

your dr. sounds very intelligent. my MD's NEVER suggested lyme testing.

only my mother ... she pressured the " little man " to do this!!! he just

laughed! i am diag. w/rheumt. arth and sjogrens. i think you get these

positive arthritic indicators when you have LD. somehow they bring them on.

i would just demand proper abx treatment, sounds like a 95% chance you have

LD! tests can be pos or neg and still not know if you have LD. symptoms

are the only REAL indicators.

>From: Jeanne2du@...

>

>I live in Ft. Lauderdale and have fibromyalgia/cfs/mps. My doctor, Nina

>Pearlmutter says she does lots of lyme work. She wants to test me for lyme

>disease. I am 45, disabled, and my Medicare HMO does not cover any payment

>for testing for lyme. I previously lived in Illinois years ago. We took ticks

>off our dogs frequently. She says I would likely have never known that I was

>bitten. My mother had a similar pain syndrome and my doctor thinks she may

>have been bitten with never knowing also. My mother's pain was so bad she

>committed suicide in 1974. Does any of this sound at all like lyme disease.

>Two people on the Fibro board I am on have tested positive for lyme. I was

>wondering if Dr. Pearlmutter is listed as a lyme literate doctor. Is there a

>list that can be checked? Thank you. ~jeanne

>

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MimiAnne's Specialty Coffee

(540) 980-6464

93 W. Main Street

Pulaski, VA 24301

[Guest guest]

I've heard good things about her, I've corresponded w/ a patient of hers

who is very pleased, she's aggressive w/ her therapy.

[Guest guest]

Hi ,

Sounds like you have a terrific mother.....very smart lady.

Best to you both,

Marta

-

>From: mimianne@...

>

>your dr. sounds very intelligent. my MD's NEVER suggested lyme testing.

>only my mother ... she pressured the " little man " to do this!!! he just

>laughed! i am diag. w/rheumt. arth and sjogrens. i think you get these

>positive arthritic indicators when you have LD. somehow they bring them

on.

>i would just demand proper abx treatment, sounds like a 95% chance you have

>LD! tests can be pos or neg and still not know if you have LD. symptoms

>are the only REAL indicators.

>

>