Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 Hi, Jeanne I have Lyme, erlichiosis, and babesiosis (other tick-borne diseases) and I am a patient of Nina's. She is definitely Lyme Literate. I can also put you in touch with other Lyme patients of hers who are online. I can also say, as someone who has NO insurance, that IGENEX tests ARE expensive, but I think they are necessary. If you have babesiosis, antibiotics will not help. That must be taken care of first. Feel free to write to me privately with any additional questions you may have. Port Charlotte, FL In a message dated 5/29/99 6:07:10 AM Eastern Daylight Time, Jeanne2du@... writes: > I live in Ft. Lauderdale and have fibromyalgia/cfs/mps. My doctor, Nina > Pearlmutter says she does lots of lyme work. She wants to test me for lyme > disease. I am 45, disabled, and my Medicare HMO does not cover any payment > for testing for lyme. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 Yes Dr.Perlmutter is Lyme literate..... and is probably right about your diagnosis... there are so many people diagnosed with these mysterious illnesses with no known cause. the docs treat the symptoms but never the cause... Dr. Perlmutter knows her stuff! Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 Jeanne, Dr. Nina Pearlmutter is highly recomended by the Florida Lyme Alliance. I would listen to her and get the test, she knows what she is doing when it comes to Lyme. Being a member of the Alliance we have sent many lyme patients to her over the years. Terri Gilbert Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 Hi Jeanne, First off welcome to the list, I have not heard of Pearlmutter, but that doesn't mean she is not knowledgeable in Lyme disease. Lyme testing to me is a waste of time, and money in your case. Lyme is a clinical diagnosis, based on symptoms and response to antibiotic treatment. See if you can get your doctor to do a trial run of abx to see if this helps at all. I am so sorry to hear about your Mom, as you learn more about Lyme and the neurological aspects, you will understand that you Mother may not have been able to help herself, Lyme affects our way of thinking and if it is suspected it is so important to seek treatment. Untreated Lyme causes lots of pain, not just joint pain as lots of Rheumatologists will claim. Early in my disease when all seemed hopeless I considered suicide, fortunately I am now on Paxil and I see things differently, plus I am receiving help with the pain. I hope others on this list can answer your questions regarding this doctor. Please keep us posted on how you are doing. Oh, there is no list that I know of for Literate Lyme doctors other than one maintained by the LDF, here is their web page: http://www.lyme.org/index2.html Hugs, Marta >From: Jeanne2du@... > >I live in Ft. Lauderdale and have fibromyalgia/cfs/mps. My doctor, Nina >Pearlmutter says she does lots of lyme work. She wants to test me for lyme >disease. I am 45, disabled, and my Medicare HMO does not cover any payment >for testing for lyme. I previously lived in Illinois years ago. We took ticks >off our dogs frequently. She says I would likely have never known that I was >bitten. My mother had a similar pain syndrome and my doctor thinks she may >have been bitten with never knowing also. My mother's pain was so bad she >committed suicide in 1974. Does any of this sound at all like lyme disease. >Two people on the Fibro board I am on have tested positive for lyme. I was >wondering if Dr. Pearlmutter is listed as a lyme literate doctor. Is there a >list that can be checked? Thank you. ~jeanne > >- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 your dr. sounds very intelligent. my MD's NEVER suggested lyme testing. only my mother ... she pressured the " little man " to do this!!! he just laughed! i am diag. w/rheumt. arth and sjogrens. i think you get these positive arthritic indicators when you have LD. somehow they bring them on. i would just demand proper abx treatment, sounds like a 95% chance you have LD! tests can be pos or neg and still not know if you have LD. symptoms are the only REAL indicators. >From: Jeanne2du@... > >I live in Ft. Lauderdale and have fibromyalgia/cfs/mps. My doctor, Nina >Pearlmutter says she does lots of lyme work. She wants to test me for lyme >disease. I am 45, disabled, and my Medicare HMO does not cover any payment >for testing for lyme. I previously lived in Illinois years ago. We took ticks >off our dogs frequently. She says I would likely have never known that I was >bitten. My mother had a similar pain syndrome and my doctor thinks she may >have been bitten with never knowing also. My mother's pain was so bad she >committed suicide in 1974. Does any of this sound at all like lyme disease. >Two people on the Fibro board I am on have tested positive for lyme. I was >wondering if Dr. Pearlmutter is listed as a lyme literate doctor. Is there a >list that can be checked? Thank you. ~jeanne > >------------------------------------------------------------------------ >ONElist members are using Shared Files in great ways! > >Are you? If not, see our homepage for details. >------------------------------------------------------------------------ >Please send privately messages unrelated to lyme. >/archives.cgi/ >/archives.cgi/Lyme-Docs >Email: -subscribeonelist >You may substitute " unsubscribe " , " digest " , or " normal " for >the word " subscribe " ( " normal " is the opposite of " digest " ) > > MimiAnne's Specialty Coffee (540) 980-6464 93 W. Main Street Pulaski, VA 24301 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 I've heard good things about her, I've corresponded w/ a patient of hers who is very pleased, she's aggressive w/ her therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 1999 Report Share Posted May 30, 1999 Hi , Sounds like you have a terrific mother.....very smart lady. Best to you both, Marta - >From: mimianne@... > >your dr. sounds very intelligent. my MD's NEVER suggested lyme testing. >only my mother ... she pressured the " little man " to do this!!! he just >laughed! i am diag. w/rheumt. arth and sjogrens. i think you get these >positive arthritic indicators when you have LD. somehow they bring them on. >i would just demand proper abx treatment, sounds like a 95% chance you have >LD! tests can be pos or neg and still not know if you have LD. symptoms >are the only REAL indicators. > > Quote Link to comment Share on other sites More sharing options...
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