Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Hi all, can anyone who had bell's palsy describe what it feels like and how it started?? The left side of my face feel kinda numb and i am drooling a little. Could this be bells palsy?? how do they treat it?? Deb-Va Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 In a message dated 8/23/99 8:01:16 PM EST, DJinMECH@... writes: << Hi all, can anyone who had bell's palsy describe what it feels like and how it started?? The left side of my face feel kinda numb and i am drooling a little. Could this be bells palsy?? how do they treat it?? Deb-Va >> Hi Deb, Those are symptoms of Bells Palsy . Did you tell your doctor abt that ? Does he know you are experiencing that ? And do you get dizzy when that happens? di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 In a message dated 8/23/99 9:19:22 PM Eastern Daylight Time, BearyPrety@... writes: << Hi Deb, Those are symptoms of Bells Palsy . Did you tell your doctor abt that ? Does he know you are experiencing that ? And do you get dizzy when that happens? di >> Hi Di, no I have not told my doc, and yes i get lightheaded almost daily, Will let her know tomarrow though. thanks Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 In a message dated 8/23/99 8:35:16 PM EST, DJinMECH@... writes: << Hi Di, no I have not told my doc, and yes i get lightheaded almost daily, Will let her know tomarrow though. thanks Deb >> Please do tell her Deb. I don't want to scare you but those were also symptyoms that I experienced before I had my mini stroke. I just assumed it was bells palsy. Now I assume nothing and call when I have to . It may just be the Bells Palsy, or not even , but I'd feel better if you had it checked out. Also have you had a SPECT scan done? Let me know how it goes with your appt. okay ? Hugs and feel better Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 Hi Deb, See your doctor about this as soon as you can, one side of my face became numb early in my Lyme dx, it felt like Novocain wearing off, and it continues to this day when I am feeling especially bad, and it came back when I took a one month break from my abx. I did not have the droop or the drooling. I am not sure what the treatment is for full blown Bell's Palsy other than abx, to treat Lyme. Let us know how you make out. Hugs, Marta NJ >From: DJinMECH@... > >Hi all, can anyone who had bell's palsy describe what it feels like and how >it started?? The left side of my face feel kinda numb and i am drooling a >little. Could this be bells palsy?? how do they treat it?? >Deb-Va Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 Hi Deb, SEE THE DR ASAP!!! Two friends of mine have Bell's Palsy.. One had it irreversible since she was misdiagnosed and wasn't treated for some time. That was like twenty years ago. Another friend just got it three months ago. He saw the dr who confirmed it was Bell's Palsy and was given steroids for it. The earlier it is arrested and treated, the better the prognosis. Also like Di said, make sure it is not a mini strke. My mother had a stroke last March and her right side of the face was affected. good luck and keep us posted, Deb elizabeth md << From: BearyPrety@... In a message dated 8/23/99 8:35:16 PM EST, DJinMECH@... writes: << Hi Di, no I have not told my doc, and yes i get lightheaded almost daily, Will let her know tomarrow though. thanks Deb >> Please do tell her Deb. I don't want to scare you but those were also symptyoms that I experienced before I had my mini stroke. I just assumed it was bells palsy. Now I assume nothing and call when I have to . It may just be the Bells Palsy, or not even , but I'd feel better if you had it checked out. Also have you had a SPECT scan done? Let me know how it goes with your appt. okay ? Hugs and feel better Di >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 In a message dated 8/24/99 7:29:43 AM Eastern Daylight Time, mlmccoy@... writes: << Hi Deb, See your doctor about this as soon as you can, one side of my face became numb early in my Lyme dx, it felt like Novocain wearing off, and it continues to this day when I am feeling especially bad, and it came back when I took a one month break from my abx. I did not have the droop or the drooling. I am not sure what the treatment is for full blown Bell's Palsy other than abx, to treat Lyme. Let us know how you make out. Hugs, Marta NJ >> HI Marta, I did see my dr today, diagnosed it as Bells Palsy, started me on Predinsone, but unfortunitly they dont know much about lyme disease I will be seeing a neurologist in Sept. Deb-va Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 1999 Report Share Posted August 25, 1999 Bell's Palsy is a *very* common symptom of Lyme, due to inflammation of the cranial nerve that enervates the face (either the fifth or the seventh, I forget which). If it's due to Lyme it should *NOT NOT NOT* be treated with steroids! Steroids for Lyme patients are a disaster -- they work by supressing the immune system, and in the words of our beloved Dr. B, can turn a new Lyme patient into a chronic disseminated Lyme patient in a matter of days! If it's due to Lyme, it will resolve with antibiotic therapy, like everything else. The dizziness you're experiencing could also be due to inflammation of one of the other cranial nerves. I had severe episodes of vertigo when I was first infected, as well as half my face going numb, some drooling, difficulty swallowing, strange taste and smells, and visual field disturbances (I would lose half the visual field in my left eye). They were all due to cranial nerve problems, and they all went away as I got better. Jean Shasus@... wrote: > From: Shasus@... > > Hi Deb, > > SEE THE DR ASAP!!! Two friends of mine have Bell's Palsy.. One had it > irreversible since she was misdiagnosed and wasn't treated for some time. > That was like twenty years ago. Another friend just got it three months ago. > He saw the dr who confirmed it was Bell's Palsy and was given steroids for > it. The earlier it is arrested and treated, the better the prognosis. > > elizabeth > > md Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 1999 Report Share Posted August 25, 1999 hi brought up something that I was wondering... whether it is bell's palsy or a compication from lyme...Both my friends don't have lyme. How would the doctor determine if it is bell's palsy or a neurological symptom of lyme? I am sure others would be interested to know. thanks, elizabeth md << From: Scully <jscully@...> Bell's Palsy is a *very* common symptom of Lyme, due to inflammation of the cranial nerve that enervates the face (either the fifth or the seventh, I forget which). If it's due to Lyme it should *NOT NOT NOT* be treated with steroids! Steroids for Lyme patients are a disaster -- they work by supressing the immune system, and in the words of our beloved Dr. B, can turn a new Lyme patient into a chronic disseminated Lyme patient in a matter of days! If it's due to Lyme, it will resolve with antibiotic therapy, like everything else. The dizziness you're experiencing could also be due to inflammation of one of the other cranial nerves. I had severe episodes of vertigo when I was first infected, as well as half my face going numb, some drooling, difficulty swallowing, strange taste and smells, and visual field disturbances (I would lose half the visual field in my left eye). They were all due to cranial nerve problems, and they all went away as I got better. Jean Shasus@... wrote: > From: Shasus@... > > Hi Deb, > > SEE THE DR ASAP!!! Two friends of mine have Bell's Palsy.. One had it > irreversible since she was misdiagnosed and wasn't treated for some time. > That was like twenty years ago. Another friend just got it three months ago. > He saw the dr who confirmed it was Bell's Palsy and was given steroids for > it. The earlier it is arrested and treated, the better the prognosis. > > elizabeth > > md >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 Hi Jane, Hmm, there appears to be some misunderstanding here ... I don't have bell's palsy.. Two friends of mine. who don't have lyme disease. have it and one was treated with steroids. I don't know about the other person here recenly who said she/he has bell's palsy and the dr put her/him on steriods.. I hope she/he saw your message because I don't know how lyme-literate her/his doctor is.. I know what Bell's Palsy is. I was just curious how the doctor determines if it is bell's palsy as a complication from lyme disease or if it is from a viral infection. What if a person with lyme disease got bell's palsy from a viral infection, nothing from lyme.. that was the track of thought I had when I wrote the other e mail. I guess I didn't express myself clear... thanks to the brain fog.. Perhaps the doctor cannot tell the difference but just takes an educated guess and hopes for the best? It is really amazing how deeply lyme disease affects the neurological system. It is so scary. Thanks for your concern and recommendation of the book. Take care elizabeth << , " Bell's Palsy " = an inflammation of the 5th? or 7th? cranial nerve that enervates the face, which causes drooping and paralysis of the muscles on one side of the face. Whether it's caused by inflammation of the nerve from a viral infection, inflammation from Lyme bacteria, or some other cause, it's still Bell's Palsy. The same condition, Bell's Palsy, can thus have several different causes. Depending on the cause, it can have several different treatments. I was really horrified to read that your doctor gave you prednisone. It is *very dangerous* for Lyme patients to take steroids. Have you showed your doctor Dr. Burrascano's protocol? I can send it to you if you need it. At least then they would have some basis to go on. I would also recommend Vanderhoof-Forschner's book, " Everything You Need to Know About Lyme Disease. " There's a picture in there of her son , who developed bilateral Bell's Palsy from congenital Lyme disease. He died when he was about two or three, despite her desperate efforts to get him appropriate treatment. and her husband Tom subsequently founded the Lyme Disease Foundation. Jean --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 , " Bell's Palsy " = an inflammation of the 5th? or 7th? cranial nerve that enervates the face, which causes drooping and paralysis of the muscles on one side of the face. Whether it's caused by inflammation of the nerve from a viral infection, inflammation from Lyme bacteria, or some other cause, it's still Bell's Palsy. The same condition, Bell's Palsy, can thus have several different causes. Depending on the cause, it can have several different treatments. I was really horrified to read that your doctor gave you prednisone. It is *very dangerous* for Lyme patients to take steroids. Have you showed your doctor Dr. Burrascano's protocol? I can send it to you if you need it. At least then they would have some basis to go on. I would also recommend Vanderhoof-Forschner's book, " Everything You Need to Know About Lyme Disease. " There's a picture in there of her son , who developed bilateral Bell's Palsy from congenital Lyme disease. He died when he was about two or three, despite her desperate efforts to get him appropriate treatment. and her husband Tom subsequently founded the Lyme Disease Foundation. Jean Quote Link to comment Share on other sites More sharing options...
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