Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 Margie, I don't know of any law like that, but there very well may be one. But the nurse at my doctor's office always tells me the results and adds that the doctor hasn't seen them yet. What's the big deal. Next time you talk to your doctor, tell him what is going on and I'll bet he doesn't even know. Ask him if he thinks you are too ignorant to understand the results and insist that he talk to ! Good luck Vicki [ ] What's the law? >From: Margie Roswell <mroswell@...> > >Okay: still haven't gotten my LUAT results, because " hasn't been >able to talk to the doctor yet about it. " The person at the other end of >the phone says they are forbidden by law to give me the test results until >the doctor has reviewed them. > >What law is this? And why don't I have a right to MY test results as soon >as they are available? > >What law is it, and how can I (we?) change it? > >-- >Margie Roswell >3443 Guilford Terrace >Baltimore, MD 21218 >H: 410-467-3727 >W: 410-455-6802 >E: mroswell@... >W: http://hello.to/maps > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 My father used to say, " Possession in 9/10 of the law " . I believe this is the law they are referring to. In most states (if not all) your medical records are YOURS to see and have a copy of WHENEVER you want. The problem is as long as the doctor's office has them they decide what they want to do with them. If you hired an attorney and took them to court you would EASILY win the right to see your medical record. However, that's not a viable option for those of us financially challenged. And by the time you go to court you will have already by passed who ever is. It is a crappy situation to be in. As you may already know threatening them won't work either. Clinics know the law and won't hand anything over unless forced to do so. Then occasionally you find a doctor who knows the law and has nothing to hide from you. If you find one like this hold on to him or her tight! =) I ran into the same situation a few years ago. My doctor talked to his staff about my right to look through my file whenever I wanted. I didn't have any problems after that. Well, until another doctor took over the clinic and suddenly my file was top secret again. Fortunately a nurse in the clinic " leaked " information to me whenever I needed it and eventually I got all four inches copied for my personal use. Talk with your doctor and see if he will help you. In the meantime just keep hanging in there. =) Robynn PS. Lab results may have to GO to a doctor by law. This does not however contradict your right to look at your records once the lab results get filed. [ ] What's the law? > From: Margie Roswell <mroswell@...> > > Okay: still haven't gotten my LUAT results, because " hasn't been > able to talk to the doctor yet about it. " The person at the other end of > the phone says they are forbidden by law to give me the test results until > the doctor has reviewed them. > > What law is this? And why don't I have a right to MY test results as soon > as they are available? > > What law is it, and how can I (we?) change it? > > -- > Margie Roswell > 3443 Guilford Terrace > Baltimore, MD 21218 > H: 410-467-3727 > W: 410-455-6802 > E: mroswell@... > W: http://hello.to/maps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 One time I was at a doctor's office, long before I was sick as I am now, for something different illness. The new doctor who took over after my family doctor passed was so obnoxious to me that I demanded my medical records on the spot. I was told they could not give them to me, and I said find, make me a copy and I'll pay for the copy. I was told they would mail to me. But because of the way the doctor was treating me I knew there was something in my record that they wanted to cover up or for me not to see, so I told them I was not leaving until I had a complete copy of my records. I got on the phone in their waiting area and called a few people I knew and told them what I was doing. Then the doctor determined that I could indeed have a photo copy of my medical records. I stood and watched the woman who copied my record to make sure I got all pages. I got what I wanted and they got rid of me, we were all happy! Try it! My hubby once did something similar when we paid Levitz for a sofa with cashier's check, but they only sent one person to get the sofa off high rack and damaged 3 sofas (fake naugahyde) in getting them down, and we refused all 3 due to the damage. They refused to pull any more down, and we asked for our money back (the check) and were told that because it had been rung up they could not do that. My new husband at the time told them fine, just give us the money since the check was a cashier's check and they knew it was good as did we. They told us it would take 2 weeks for us to get the money. My husband threatened to sit on their counter and tell all the customers who came by about how stupid their practices were if they would listen. The manager quickly determined that we could have the money in cash! Funny, guess that's where the saying about the squeeky wheel comes from, do you think? & Robynn wrote: > From: " & Robynn " <nebneb@...> > > My father used to say, " Possession in 9/10 of the law " . I believe this is > the law they are referring to. > > In most states (if not all) your medical records are YOURS to see and have a > copy of WHENEVER you want. The problem is as long as the doctor's office > has them they decide what they want to do with them. If you hired an > attorney and took them to court you would EASILY win the right to see your > medical record. However, that's not a viable option for those of us > financially challenged. And by the time you go to court you will have > already by passed who ever is. It is a crappy situation to be in. > As you may already know threatening them won't work either. Clinics know > the law and won't hand anything over unless forced to do so. > > Then occasionally you find a doctor who knows the law and has nothing to > hide from you. If you find one like this hold on to him or her tight! =) > > I ran into the same situation a few years ago. My doctor talked to his > staff about my right to look through my file whenever I wanted. I didn't > have any problems after that. Well, until another doctor took over the > clinic and suddenly my file was top secret again. Fortunately a nurse in > the clinic " leaked " information to me whenever I needed it and eventually I > got all four inches copied for my personal use. > > Talk with your doctor and see if he will help you. In the meantime just > keep hanging in there. > > =) > Robynn > > PS. Lab results may have to GO to a doctor by law. This does not however > contradict your right to look at your records once the lab results get > filed. > > [ ] What's the law? > > > From: Margie Roswell <mroswell@...> > > > > Okay: still haven't gotten my LUAT results, because " hasn't been > > able to talk to the doctor yet about it. " The person at the other end of > > the phone says they are forbidden by law to give me the test results until > > the doctor has reviewed them. > > > > What law is this? And why don't I have a right to MY test results as soon > > as they are available? > > > > What law is it, and how can I (we?) change it? > > > > -- > > Margie Roswell > > 3443 Guilford Terrace > > Baltimore, MD 21218 > > H: 410-467-3727 > > W: 410-455-6802 > > E: mroswell@... > > W: http://hello.to/maps > > > Send to -Offtopiconelist messages unrelated to lyme, please. > /archive/lyme-aid > /archives.cgi/Lyme-Documents > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 I too will be checking into this. The patients need more rights and control over their health. It is not just frustrating it is bad to ones emotional well being. I mean many people who read the tests are much more qualified to give you the answers then the doctors because they are the ones who specialize in the area...so therefore I feel we have the rights to have first dibbs. And then if we don't understand what has been given us we can than talk to our doctors. And of course the doctors would retell us and educate us more of what is going on...I am tired of waiting...waiting almost killed my daughter...results that the doctor had known about that neglected to tell me. I mean you would think going to the doctors appointment they would tell you the things the nurses do and so forth. Anyway...it is time for another big change. I have talked to the health and welfare about this a time ago. I wish I would have kept going on it. Said to get a petitiion and so forth...and to write up a bill of rights....which sigh I don't know the first thing about but am willing to learn. If I understand correctly any individual or group can write up a bill and submit...doesn't mean it is going to go any further...but darn it I want to try....give me ideas...and I will try my best...and will also check into this furthur to see if I have my head thinking on right. Feel free to correct me...wouldn't be the first time I was wrong. Cyntha landon Idaho [ ] What's the law? > From: Margie Roswell <mroswell@...> > > Okay: still haven't gotten my LUAT results, because " hasn't been > able to talk to the doctor yet about it. " The person at the other end of > the phone says they are forbidden by law to give me the test results until > the doctor has reviewed them. > > What law is this? And why don't I have a right to MY test results as soon > as they are available? > > What law is it, and how can I (we?) change it? > > -- > Margie Roswell > 3443 Guilford Terrace > Baltimore, MD 21218 > H: 410-467-3727 > W: 410-455-6802 > E: mroswell@... > W: http://hello.to/maps > > > Send to -Offtopiconelist messages unrelated to lyme, please. > /archive/lyme-aid > /archives.cgi/Lyme-Documents > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 Vicki you are very lucky then....it is a law ...I am sure of it. I have never ever known anything before my doctor or my daughters. What a nice doctor you must have. I have had even doctors not telling me things..or tests that they have run....on my daughters side and mine. THat I would find out a round and about way. This should be wrong. And it is not fair. I know that withhoulding information really important is wrong and illegal. For example...now this is a big one: My daughter had two blood transfusions without my concent or knowledge. They did not tell me. I found out from LDS Primary Children's. Well actually I did know about one..but it was because I was smart enough to notice the blood in the iv line...I mean all up and down it...since they had just finished...I am going to go back to Utah Universaty hospital and demand her and her sister Myesha's records...since I am not sure if Myesha hasn't had any. I just recently had a doctor ask me if she had blood transfusions done..Myesha that is...I told him honestly I did not know because of the dishonesty I had from the hospital in Utah. I had to give him the number and doctor she was under while in NICU. He needed it because he took care of her open cut knee that he had to stitch up and accidently got some of her blood in his eye....tells you that there is more than meets the eye going on out there. Cyntha Landon Idaho [ ] What's the law? > > > >From: Margie Roswell <mroswell@...> > > > >Okay: still haven't gotten my LUAT results, because " hasn't been > >able to talk to the doctor yet about it. " The person at the other end of > >the phone says they are forbidden by law to give me the test results until > >the doctor has reviewed them. > > > >What law is this? And why don't I have a right to MY test results as soon > >as they are available? > > > >What law is it, and how can I (we?) change it? > > > >-- > >Margie Roswell > >3443 Guilford Terrace > >Baltimore, MD 21218 > >H: 410-467-3727 > >W: 410-455-6802 > >E: mroswell@... > >W: http://hello.to/maps > > > > > Send to -Offtopiconelist messages unrelated to lyme, please. > /archive/lyme-aid > /archives.cgi/Lyme-Documents > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 I was taught in Nursing School that if a patient asks to see his " chart " he or she has the right. A patient's family member has to have permission of the patient, or be appointed legal guardian. A parent can look or obtain records for there minor children. You can stall, say we are using it, whatever, but ultimately they have the right to see their records. I don't think this has been changed, but since our lawmakers are busy making laws and taking away some of our rights, due to some that are abusing, hurting and killing others, wouldn't surprise me if something was on the record. As far as I know, you are entitled to copies of the record, but are asked to pay for the copies. ********************************** I do not remember a tick bite but feel I was probably infected when very young, and I believe my mother to have suffered from LD also. I have all the classic problems with LD; I collapsed in '95, Some neuro problems have resolved while on abx. I have had rupt. disc, & surgery on low back, surgery to remove gallbladder, also dx. with carpal tunnel, fibromyalgia & CFIDS before LD. On meds for High BP and cardiac irreg., pain, depression, anxiety and for sleep. Barb - Michigan BLFITZMA@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 Cyntha, There is a Bill of Rights Placed in every chart for a hospitalized patient, the patient must sign and also for homecare patients. A copy is supposed to be given to the patient or the patients next of kin. I as an RN was to sit down and go thru the BOR's with each patient I admitted to hospital or homecare. I don't think I have any laying around anywhere now. I know that they are updated every now and then but I do not remember any clause saying that the institution has to give you copies of records. I don't remember them addressing that. I remember some of it says......The patient has the right to be treated respectfully and with dignity. He or she has the right to have informed consent and has the right to turn down a treatment........etc. Wish I could remember more. They also have you sign those dang arbitration papers saying you won't go sue, but will sit down with a board and mediate what ever the problems are. I always refuse to sign this. They write refused and make you initial. I believe it was more of a professional courtesy that a Dr. doing a specialized test always with held his finding until the Dr. that ordered the test spoke with the pt. or family member. Some doctors allow their nurses to give the results out while some docs still prefer to make their own calls. Barb () Fitzmaurice - Michigan BLFITZMA@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 , I know I'm lucky with this new doctor of mine. I've had my share of experiences where they seem to keep my file as a secret, certainly makes me think they have something to hide. But I was appalled that your daughter could have a transfusion without your knowledge???!!!! I have no idea how to write a patient's bill of rights, but it is something we need to look in. I'll see if I can find anything out on the internet, but if anyone has an idea.... Geesh , you've been through too much. Maybe each state has their own law, but even if there is a law to say a doctor gets the results first, which makes sense, you still have a right to anything pertaining to you or your family that is in a doctor's files. I'm so mad at your doctor's office, please talk to him about this as soon as possible and good luck. Vicki Re: [ ] What's the law? >From: " Cyntha Landon " <cyntha@...> > >Vicki you are very lucky then....it is a law ...I am sure of it. I have >never ever known anything before my doctor or my daughters. What a nice >doctor you must have. I have had even doctors not telling me things..or >tests that they have run....on my daughters side and mine. THat I would >find out a round and about way. This should be wrong. And it is not fair. >I know that withhoulding information really important is wrong and illegal. >For example...now this is a big one: My daughter had two blood transfusions >without my concent or knowledge. They did not tell me. I found out from >LDS Primary Children's. Well actually I did know about one..but it was >because I was smart enough to notice the blood in the iv line...I mean all >up and down it...since they had just finished...I am going to go back to >Utah Universaty hospital and demand her and her sister Myesha's >records...since I am not sure if Myesha hasn't had any. I just recently had >a doctor ask me if she had blood transfusions done..Myesha that is...I told >him honestly I did not know because of the dishonesty I had from the >hospital in Utah. I had to give him the number and doctor she was under >while in NICU. He needed it because he took care of her open cut knee that >he had to stitch up and accidently got some of her blood in his eye....tells >you that there is more than meets the eye going on out there. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 In a message dated 10/8/99 1:41:52 AM Eastern Daylight Time, ferraroa@... writes: << For example...now this is a big one: My daughter had two blood transfusions >without my concent or knowledge. They did not tell me. I found out from >LDS Primary Children's. >> When I worked in neonatal ICU, the parent or guardian always signed for any blood transfusion. The only time we could get around that by law ot tried to, is if the parent was gravely ill and unable to sign, or if they were unavailable to even give a phone consent. Both parents if known. We would then have to call the hospital administrator for consent which under law they were alllowed to give rather than possibily have an infant die. It was usually always given. When the parents would show up finally (some were less than stellar...addicts etc.) they would ALWAYS be told the baby was given blood, or plasma. Parental consent was never required for albumin products though. Bernadette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 I was told I could have a copy of my Home Health Care reports but it would cost me over $200 for them to make copies. I can always let my lawyer subpoena them if need be. Lovey Actually, it would be called " Deposition duces tecum " , meaning a deposition is required and all asked for records must be presented at the deposition or they will be held in contempt of court. On Fri, 8 Oct 1999 01:50:51 -0400 " Barbara Fitzmaurice " <blfitzma@...> writes: > From: " Barbara Fitzmaurice " <blfitzma@...> > > Cyntha, > > There is a Bill of Rights Placed in every chart for a hospitalized > patient, the patient must sign and also for homecare patients. A > copy > is supposed to be given to the patient or the patients next of kin. > I > as an RN was to sit down and go thru the BOR's with each patient I > admitted to hospital or homecare. I don't think I have any laying > around anywhere now. I know that they are updated every now and then > but I do not remember any clause saying that the institution has to > give you copies of records. I don't remember them addressing that. I > remember some of it says......The patient has the right to be > treated > respectfully and with dignity. He or she has the right to have > informed consent and has the right to turn down a > treatment........etc. Wish I could remember more. > > They also have you sign those dang arbitration papers saying you > won't > go sue, but will sit down with a board and mediate what ever the > problems are. I always refuse to sign this. They write refused and > make you initial. > > I believe it was more of a professional courtesy that a Dr. doing a > specialized test always with held his finding until the Dr. that > ordered the test spoke with the pt. or family member. Some doctors > allow their nurses to give the results out while some docs still > prefer to make their own calls. > > Barb () Fitzmaurice - Michigan > BLFITZMA@... > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 I'm sorry to say this Barnadette...but that stinks.....I and my husband have a right to make that decision. I have done much studying into the blood transfusion thing for infants. I am also finding out to often they are too quick in giving blood transfusions. I found in my daughter's case she could have possibly rebuilt her blood count on her own and that these treatments could have been unneccessary. We are in a hard spot because they say that we signed what was called a universal paper or something or the other....well at least my husband did. Which means they can treat them with a precedure if life threatening. Even primary Children's says these blood transfusions may have been done in a rush. Primary Children's told us at least the possibility in the future that she may need one done there at their hospital and had us sign a consent form. They told me that university should have had us sign a consent paper for every one of those transfusions and that we should have been notified before hand that they were going to do it. You can tell I like LDS Primary Children's hospital in Utah...although I have had my problems there too...but they at least try to please and give knowledge to the parents. We were in phone range the whole time. Not one call for permission...not one call to tell us they were going to do this procedure. And we weren't the only parents. While at the Mc House I talked to several upset people with their babies at The Utah University Hospital who found out from other hospitals when their child was transferred that their child had received this without their knowlege or consent. While as an EMT I learned all about consent, implied consent and so forth. Being young then we would have given permission. But you know...it would have been nice to know about it. I no longer trust doctors. I know many things are kept from us on purpose. Even insurances no more about us then we do. Hey, I am sorry to say this but I know for a fact they don't always include everything in your medical records. This system isn't for the patient anymore it is for the filling the pockets with bucks. Sorry, you can tell I hate most doctors and wish that I didn't have to count on them so. I am not saying all doctors are like this but I sure seem to have my bucket full of them. Sorry to say though in some sense they are the monkeys in that barrel. I do believe though that one day they will have to answer to the Lord for these things. So I am content in leaving it up to the Lord. Cyntha Landon Idaho Re: [Lyme-aid] What's the law? > From: BratDet@... > > In a message dated 10/8/99 1:41:52 AM Eastern Daylight Time, > ferraroa@... writes: > > << For example...now this is a big one: My daughter had two blood > transfusions > >without my concent or knowledge. They did not tell me. I found out from > >LDS Primary Children's. >> > When I worked in neonatal ICU, the parent or guardian always signed for any > blood transfusion. The only time we could get around that by law ot tried to, > is if the parent was gravely ill and unable to sign, or if they were > unavailable to even give a phone consent. Both parents if known. > We would then have to call the hospital administrator for consent which > under law they were alllowed to give rather than possibily have an infant > die. It was usually always given. > When the parents would show up finally (some were less than stellar...addicts > etc.) > they would ALWAYS be told the baby was given blood, or plasma. Parental > consent was never required for albumin products though. > Bernadette > > > Send to -Offtopiconelist messages unrelated to lyme, please. > /archive/lyme-aid > /archives.cgi/Lyme-Documents > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Sometime ago, in this list, someone posted that they write, on the doctor's requisition for lab work, for the lab to send copies of lab work to them. Even anyone can elaborate. best, lea In a message dated 10/8/99 1:41:44 AM Eastern Daylight Time, ferraroa@... writes: << , I know I'm lucky with this new doctor of mine. I've had my share of experiences where they seem to keep my file as a secret, certainly makes me think they have something to hide. But I was appalled that your daughter could have a transfusion without your knowledge???!!!! I have no idea how to write a patient's bill of rights, but it is something we need to look in. I'll see if I can find anything out on the internet, but if anyone has an idea.... Geesh , you've been through too much. Maybe each state has their own law, but even if there is a law to say a doctor gets the results first, which makes sense, you still have a right to anything pertaining to you or your family that is in a doctor's files. I'm so mad at your doctor's office, please talk to him about this as soon as possible and good luck. Vicki >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Hi Cyntha, It is incredible, unbelieveable and appalling that your daughter was given blood transfusions without your knowledge or consent! The hospital had better do the right thing and send you copies of both girls' records. What was their reason for doing this without your consent? Good Luck, Joan, LI NY 1st Known Deer Tick Bites & Sx: '85 1st (Neg): '89 Daughter Dx'd w/LD: '89 Dogs Dx'd: '90 Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: 4/99 Late Neuro-LD Dx: 6/99 Currently on Biaxin,Plaquenil, Neurontin, Prozac & Celebrex Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Hi Guys, Just wanted to tell you that I had a Neuro-Psych exam done in May at The Dept. of Neurology at StonyBrook. We met with the Dr. in June to review the results, (cognitive problems consistant w/LD), and signed a release to have the results sent to my LLMD.... You guessed it, he still has not received them. My LLMD and I have called and faxed them numerous times, including talking to the Head of the Neurology Dept., who can't understand the delay...hmmmm... Looks like we'll have to have our attorney send them a greeting. UGH!!! Joan LI NY 1st Known Deer Tick Bites & Sx: '85 1st (Neg): '89 Daughter Dx'd w/LD: '89 Dogs Dx'd: '90 Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: 4/99 Late Neuro-LD Dx: 6/99 Currently on Biaxin,Plaquenil, Neurontin, Prozac & Celebrex Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 , I agree with you they will answer to God one day. But it really angers me still, that our health is in the hands of a lot of greedy people. I don't think it is totally the doctor's fault, I think the entire medical insurance industry is only in it for the money and force the doctor's to play ball their way, or no way. It really really angers me that it has come to that. I pray each night that something changes in our lifetime, but I'm afraid it won't, but like you said, one day they'll pay. Hope you feel better. Vicki Re: [Lyme-aid] What's the law? >From: " Cyntha Landon " <cyntha@...> > >I'm sorry to say this Barnadette...but that stinks.....I and my husband have >a right to make that decision. I have done much studying into the blood >transfusion thing for infants. I am also finding out to often they are too >quick in giving blood transfusions. I found in my daughter's case she could >have possibly rebuilt her blood count on her own and that these treatments >could have been unneccessary. We are in a hard spot because they say that >we signed what was called a universal paper or something or the >other....well at least my husband did. Which means they can treat them with >a precedure if life threatening. Even primary Children's says these blood >transfusions may have been done in a rush. Primary Children's told us at >least the possibility in the future that she may need one done there at >their hospital and had us sign a consent form. They told me that university >should have had us sign a consent paper for every one of those transfusions >and that we should have been notified before hand that they were going to do >it. You can tell I like LDS Primary Children's hospital in Utah...although >I have had my problems there too...but they at least try to please and give >knowledge to the parents. We were in phone range the whole time. Not one >call for permission...not one call to tell us they were going to do this >procedure. And we weren't the only parents. While at the Mc >House I talked to several upset people with their babies at The Utah >University Hospital who found out from other hospitals when their child was >transferred that their child had received this without their knowlege or >consent. While as an EMT I learned all about consent, implied consent and >so forth. Being young then we would have given permission. But you >know...it would have been nice to know about it. I no longer trust doctors. >I know many things are kept from us on purpose. Even insurances no more >about us then we do. Hey, I am sorry to say this but I know for a fact they >don't always include everything in your medical records. This system isn't >for the patient anymore it is for the filling the pockets with bucks. >Sorry, you can tell I hate most doctors and wish that I didn't have to count >on them so. I am not saying all doctors are like this but I sure seem to >have my bucket full of them. Sorry to say though in some sense they are the >monkeys in that barrel. I do believe though that one day they will have to >answer to the Lord for these things. So I am content in leaving it up to >the Lord. > >Cyntha Landon Idaho > Re: [Lyme-aid] What's the law? > > >> From: BratDet@... >> >> In a message dated 10/8/99 1:41:52 AM Eastern Daylight Time, >> ferraroa@... writes: >> >> << For example...now this is a big one: My daughter had two blood >> transfusions >> >without my concent or knowledge. They did not tell me. I found out >from >> >LDS Primary Children's. >> >> When I worked in neonatal ICU, the parent or guardian always signed for >any >> blood transfusion. The only time we could get around that by law ot tried >to, >> is if the parent was gravely ill and unable to sign, or if they were >> unavailable to even give a phone consent. Both parents if known. >> We would then have to call the hospital administrator for consent >which >> under law they were alllowed to give rather than possibily have an infant >> die. It was usually always given. >> When the parents would show up finally (some were less than >stellar...addicts >> etc.) >> they would ALWAYS be told the baby was given blood, or plasma. Parental >> consent was never required for albumin products though. >> Bernadette >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 , I am completely and utterly outraged. What happened to you almost sounds like an X-files episodes. There can't be a law that says they can hide things from you. Even if they weren't intentionally hiding them from you, they at least owe it to you as the parents to tell you EVERY SINGLE STEP they are taking. I can't believe they didn't. I don't know what to tell you about being sure about getting all the records. It just seems like they would have to, but from what you've been through I can understand your skepticism about that. Maybe you need a lawyer. Anyway, hopefully your girls are doing better now. But I was wondering, with Celeste (she is the one with most the problems right?) is it an everyday thing for you to administer medical care, i.v.'s, meds, cleaning, etc. I know it is none of my business, I'm just trying to understand what you are going through, although I already know you are going through a lot. My prayers are with you and my prayer list every night is growing exponentially these days, hope some of them get through. Vicki Re: [ ] What's the law? >From: " Cyntha Landon " <cyntha@...> > >I do not know why...all I know is it happened...perhaps they thought we were >young and naive and couldn't make such important decisions. I only know in >the little support group I talked with while Celeste was in the hospital and >the people I talked to in the Mc house had much the same >problems as I did. But blood transfusions weren't the only problem we >had...and remember this is suppose to be one of those top notch hospitals. >They are pretty well known. But two days after Celeste was born we were >told that she did not appear that she would ever need a shunt *a device put >in the head..(and now she has two)..that to me looks much like the iv system >that drains fluid of the brain* and the assured us that this was slim that >she would need one. About three weeks after...one of the nurses slipped and >told us that it looked like her head had grown another 3.4 cm. I was >shocked and asked when they were going to tell us this. We had already had >the finding out about the blood transfusion *one that she had had* She >seemed shocked but first of all....she said oops..very comforting. I got >the impression she wasn't suppose to say anything to us. I demanded to see >her files...but now know they did not give it all to us, for one I saw >nothing on the transfusions from the papers they had given me.... Just what >they felt safe giving us. What other things did they do to my daughter that >I don't know about? Guys how can I be sure if I demand the records that I >get every single piece of paper.? Every single procedure that was done, >ever single lab tests.? This scares me and makes me so mad. We have a >right to know it all. This is our daughter. It seems they have forgotten >that one. I had to ask permission to hold her. I was judged on what I did >with her. I at first didn't feel like she was my child....okay anyway back >to my story......I demanded the records...in reading I found out that her >head had been growing for seven days and that they were scheduling a surgery >to be done by Primary Children's...when were they going to tell us? I >demanded right there and then I talk to the doctor. I showed him I cared >what happened to my daughter. I demanded that right there and then that >they transfer her to Primary Children's right next door. Now this isn't >good for a hospital's credentials and so forth....but I wouldn't take no for >an answer. I am no longer going to sit here in the dark wondering. i will >have to make a trip to Utah.....but I am sick of not knowing what things my >twin girls went through. Scary......What if I hadn't known about the >transfusions...what if she had caught HIV, AIDS even though they screen it >pretty good and slim chance but has happened.? This isn't right. IT was so >disappointing..because even in those seven days they were telling us >everything looked great. Come on...you don't lie to people no matter how >bad it is. My trust in the system has been shot. It scares me that I have >to depend on such unhonest people. I asked the doctor about this when I >demanded to also know why they hadn't called us to tell us Celeste had >caught pneumonia *due to Acid REflux* which was in the middle of the night. >He said, I didn't think it was prudent to call you with such trivial >news....we have this happen all the time...just a little set back...come on >this was big to us.....I was so mad and told him I did not want him working >with our daughter anymore and demanded a new one...which the new one wasn't >that great either. But it was so upseting because the day before she was on >no iv meds no tubes other than the heart monotor and the temperature gauge. >And then the next day before the nurse whome I love to this day, thankyou >, had found out and tried to catch me before I went in....cause she had >found out I hadn't been told....well she was ten seconds to late...Celeste >was on four iv's.....21% room oxygen...feeding tube ...Many different >meds...ten I think total.....it was devestating.....a set back for me her >Daddy and her...and the doctor didn't care. I love for this...she too > yelled at the doctor and told him......she didn't care about the risk she >was taking..but she told him that he had better inform us of >everything.....I love her and you can see why. Anyway..enough horror >story...I have more but won't bother you with it....like the infection she >went with for five months.....even though I kept telling the doctor I knew >something was seriuosly wrong...if you guys want to learn more about Dandy > Malformation and hydrocephalus....you can go here.....a new page that >I just put up on my website. http://members.xoom.com/Myesha/whatisit.html > >Or....go to our main page ...we have lots of fun there...put many sick hours >into it... http://members.xoom.com/Myesha > >Anyway...let you go.....and hope nothing like this happens to any of you. > >Cyntha Landon Idaho > > Re: [ ] What's the law? > > >> From: Namkrats3@... (Joan S.) >> >> Hi Cyntha, >> It is incredible, unbelieveable and appalling that your daughter was >> given blood transfusions without your knowledge or consent! >> >> The hospital had better do the right thing and send you copies of both >> girls' records. What was their reason for doing this without your >> consent? Good Luck, Joan, LI NY >> >> 1st Known Deer Tick Bites & Sx: '85 >> 1st (Neg): '89 >> Daughter Dx'd w/LD: '89 >> Dogs Dx'd: '90 >> Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: >> 4/99 >> Late Neuro-LD Dx: 6/99 >> Currently on Biaxin,Plaquenil, Neurontin, Prozac & Celebrex >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 1999 Report Share Posted October 9, 1999 Celeste actually is doing well with what she has....She does have a feeding tube and some meds for reflux....she does get PT and Oral therapy...and is a bit behind....no iv though...but i hope to have her and her sisters as well as myself treated aggresively with antibiotics..especially my girls...so they have a good fighting chance.....I feed Celeste with a pump...around lunch time and all night.....it is a pump that feeds it continuously to her like a iv would fluid or meds.....thankyou so much for your prayers and thoughts...you are right I may have to get a lawyer...If it wasn't for that universal paper that my husband signed...I also think it had the uh....you can't sue *not sure if that is spelled right* us for this rather and rather and etc. But if I could change it for one more p arnet there with a sick child I would. After all having them in NICU is hard enough....not taking them home after they are born is very emotional....it was so hard when I took Myesha home her twin and left Celeste. Cyntha Landon Idaho Re: [Lyme-aid] What's the law? > > > > > >> From: Namkrats3@... (Joan S.) > >> > >> Hi Cyntha, > >> It is incredible, unbelieveable and appalling that your daughter was > >> given blood transfusions without your knowledge or consent! > >> > >> The hospital had better do the right thing and send you copies of both > >> girls' records. What was their reason for doing this without your > >> consent? Good Luck, Joan, LI NY > >> > >> 1st Known Deer Tick Bites & Sx: '85 > >> 1st (Neg): '89 > >> Daughter Dx'd w/LD: '89 > >> Dogs Dx'd: '90 > >> Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific Bands: > >> 4/99 > >> Late Neuro-LD Dx: 6/99 > >> Currently on Biaxin,Plaquenil, Neurontin, Prozac & Celebrex > >> > > > Send to -Offtopiconelist messages unrelated to lyme, please. > /archive/lyme-aid > /archives.cgi/Lyme-Documents > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 1999 Report Share Posted October 9, 1999 , How old are your girls? Will they be able to go to regular school? I can understand the emotions you must have suffered leaving Celeste at the hospital. I was a twin (faternal) and my sister died at 24 hrs/old. She weighed 4 lbs, but we were a month pre-mature. If it was today, she would have been alive I'm sure. But my mother told me how hard it was, and on top of it she had to leave me at the hospital for six weeks in an incubator. I always wondered if being born prematurely caused me to have a weaker immune system. Anyway, thanks for sharing your story and hang in there. At least through all your tribulations, you have learned a lot and I think it also made you stronger. So keep fighting and have hope for better days. They have to get better and I think every thing happens for a reason, but we may not ever figure out what that reason is until we meet our maker. Boy do I have a lot of questions for her (ha ha). Vicki Re: [Lyme-aid] What's the law? >From: " Cyntha Landon " <cyntha@...> > >Celeste actually is doing well with what she has....She does have a feeding >tube and some meds for reflux....she does get PT and Oral therapy...and is >a bit behind....no iv though...but i hope to have her and her sisters as >well as myself treated aggresively with antibiotics..especially my >girls...so they have a good fighting chance.....I feed Celeste with a >pump...around lunch time and all night.....it is a pump that feeds it >continuously to her like a iv would fluid or meds.....thankyou so much for >your prayers and thoughts...you are right I may have to get a lawyer...If it >wasn't for that universal paper that my husband signed...I also think it had >the uh....you can't sue *not sure if that is spelled right* us for this >rather and rather and etc. But if I could change it for one more p arnet >there with a sick child I would. After all having them in NICU is hard >enough....not taking them home after they are born is very emotional....it >was so hard when I took Myesha home her twin and left Celeste. > >Cyntha Landon Idaho > Re: [Lyme-aid] What's the law? >> > >> > >> >> From: Namkrats3@... (Joan S.) >> >> >> >> Hi Cyntha, >> >> It is incredible, unbelieveable and appalling that your daughter was >> >> given blood transfusions without your knowledge or consent! >> >> >> >> The hospital had better do the right thing and send you copies of both >> >> girls' records. What was their reason for doing this without your >> >> consent? Good Luck, Joan, LI NY >> >> >> >> 1st Known Deer Tick Bites & Sx: '85 >> >> 1st (Neg): '89 >> >> Daughter Dx'd w/LD: '89 >> >> Dogs Dx'd: '90 >> >> Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific >Bands: >> >> 4/99 >> >> Late Neuro-LD Dx: 6/99 >> >> Currently on Biaxin,Plaquenil, Neurontin, Prozac & Celebrex >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 1999 Report Share Posted October 9, 1999 My twin girls will be four years old on February 14, 2000. Sigh they are getting big. But no my girls will not be going to public school. I will be home teaching my girls and my husband.....he is going to be a special ed teacher. It won't be easy I know. But the school system especially down here is not very good. In school they taught me to memorize many things not really learn. In other words memorize to pass the test. I really want the best for my girls and have found many myths about home schooling is not true. I have talked to many homeschooled kids who are so social and smart. I think it depends on the responsibility and time the parents put into it. Plus I can get tutors..yeah. Cyntha Landon Idaho Re: [Lyme-aid] What's the law? > >> > > >> > > >> >> From: Namkrats3@... (Joan S.) > >> >> > >> >> Hi Cyntha, > >> >> It is incredible, unbelieveable and appalling that your daughter was > >> >> given blood transfusions without your knowledge or consent! > >> >> > >> >> The hospital had better do the right thing and send you copies of both > >> >> girls' records. What was their reason for doing this without your > >> >> consent? Good Luck, Joan, LI NY > >> >> > >> >> 1st Known Deer Tick Bites & Sx: '85 > >> >> 1st (Neg): '89 > >> >> Daughter Dx'd w/LD: '89 > >> >> Dogs Dx'd: '90 > >> >> Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific > >Bands: > >> >> 4/99 > >> >> Late Neuro-LD Dx: 6/99 > >> >> Currently on Biaxin,Plaquenil, Neurontin, Prozac & Celebrex > >> >> > >> > > > Send to -Offtopiconelist messages unrelated to lyme, please. > /archive/lyme-aid > /archives.cgi/Lyme-Documents > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 1999 Report Share Posted October 9, 1999 , I admire your strength. It will be hard to home tutor, but I have a few friends that do it, and their kids are especially intelligent. But like you said, it depends on the time dedicated to it. Good luck. You can do it. And they are Aquarians - so they are already ahead! (Just teasing, my birthday is in Feb. to, I've always been told Aquarians think ahead of their time, the types who used to be hung as witches though) Smile. Thanks for sharing everything, my prayers will always be with you and your family. Vicki Re: [ ] What's the law? >From: " Cyntha Landon " <cyntha@...> > >My twin girls will be four years old on February 14, 2000. Sigh they are >getting big. But no my girls will not be going to public school. I will be >home teaching my girls and my husband.....he is going to be a special ed >teacher. It won't be easy I know. But the school system especially down >here is not very good. In school they taught me to memorize many things not >really learn. In other words memorize to pass the test. I really want the >best for my girls and have found many myths about home schooling is not >true. I have talked to many homeschooled kids who are so social and smart. >I think it depends on the responsibility and time the parents put into it. >Plus I can get tutors..yeah. > >Cyntha Landon Idaho > > Re: [ ] What's the law? >> >> > >> >> > >> >> >> From: Namkrats3@... (Joan S.) >> >> >> >> >> >> Hi Cyntha, >> >> >> It is incredible, unbelieveable and appalling that your daughter was >> >> >> given blood transfusions without your knowledge or consent! >> >> >> >> >> >> The hospital had better do the right thing and send you copies of >both >> >> >> girls' records. What was their reason for doing this without your >> >> >> consent? Good Luck, Joan, LI NY >> >> >> >> >> >> 1st Known Deer Tick Bites & Sx: '85 >> >> >> 1st (Neg): '89 >> >> >> Daughter Dx'd w/LD: '89 >> >> >> Dogs Dx'd: '90 >> >> >> Continued Sx & Neg. s: '90-'99 1st WB: 4+ Specific >> >Bands: >> >> >> 4/99 >> >> >> Late Neuro-LD Dx: 6/99 >> >> >> Currently on Biaxin,Plaquenil, Neurontin, Prozac & Celebrex >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 1999 Report Share Posted October 9, 1999 ye sthey are YOUR RESULTS.....HOWEVER THEY ARE SENT TO UR DOCTOR who can charge u for copies .....when getting test done ask for duplicates to be sent to u for ur record......it is ur rite.... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 1999 Report Share Posted October 9, 1999 sounds like when i went to sigal for my comp case.....oh just sign in these two spots......one for permission to treat....(ok) the other for liability to pay.....( do not think so since i was ordered to go there from my ex employeer.....crossed it out wrote i would not pay intialed and signed.....thbey are still looking for the money....oooppppps could not happen to a nicer weasel... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 1999 Report Share Posted October 10, 1999 In a message dated 10/9/99 7:33:27 PM Eastern Daylight Time, RMcmur3194@... writes: << ..HOWEVER THEY ARE SENT TO UR DOCTOR who can charge u for copies ..... >> most times patients ask AFTER they have left that Dr's practice...if you ask every time you are seeing your current Dr., then rarely they charge....I always get copies of anything significant that was done...as it is done for my husband me and the kids...no problem...lately with the two last Drs, they are willing to even fax a copy over...way nice... realized this summer I was missing a copy of my echocardiogram report...and was a little pissed to find I had a mildly enlarged heart...and my Dr. forgot to mention that fact....the year I was treated.... It is good to have copies esp. in this day of everchanging medical plans....years ago when my brother tested positive for a G6PD deficiency..my 2 siblings and I were tested. When we switched HMO's I made sure to get the result...and have it in my personal files...turns out to be an important nugget for my current meds of Cleocin and Quinine...whooops did I forget to mention here I am co-infected....and boy is the meds making me nutty.....anyway people who have that enzyme deficiency can have a serious medical problem if they take the meds i am on...good thing I knew I was tested and neg...I sure would hate to find out the way my brother did.... Monday I make an appt. for all 3 kids to a Inf. D. guy far far away in south jersey...but my pedi who is clueless and wants me to go to an ID guy...so rather than drop the pedi for a LLMD...I am going to try this route first....if it doesn't work...THEN...I drop my pedi (who has been keeping his numbers of USHC patients very limited, and has kept it only to enable certain patients to keep seeing him, that have been his for years..) Boy am I getting questions all over about Lyme....esp. now I can say about the kids all having it...where did u get it is the best question?? I love to say it is ALL over NJ, pick a site. I was thinking of asking Jim Occi to help do a tick collection and testing in my town, as the local health dept. had not a clue on it all...Bernadette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 1999 Report Share Posted October 10, 1999 In a message dated 10/8/99 4:05:27 PM Eastern Daylight Time, Memyo@... writes: << someone posted that they write, on the doctor's requisition for lab work, for the lab to send copies of lab work to them. Even anyone can elaborate. >> I am sure it was me , cause I do it all the time./..and I did mention it on the list...here There is a spot on my lab forms where it asks where to send a duplicate report to..I always put my name and address down...it is a SKB form , they do not always do it.. ..but it being written down there got me prompt notification they were not sending my LUAT's and if I didn't call the day I got the notice, the samples all six of them would have been chucked out.....because they also chose not to call the Dr. and tell him. ..I have no problem with my Dr. giving me copies though...I just do it to save him some time to copy...cause they are always up to their eyeballs in insurance forms...b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 1999 Report Share Posted October 10, 1999 could be just me as my records( complete) are the size of a large phone book.....between my comp case....ssd...and other docsx ihave seen in the last 11 years its huge.......u can get a hernia carrrying it........oh well...... Reid Quote Link to comment Share on other sites More sharing options...
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