Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 In a message dated 7/5/2001 9:21:28 PM Pacific Daylight Time, rfc40@... writes: > Reply-to: <A HREF= " mailto: " > </A> > > > > > > > Ruth is there a website so I can see what they look like? jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 I am not Ruth, but it is http://www.virtualgait.com/pages/frames.html It is listed on the Links page and if you search the archives they have been discussed several times. They sound good, but for me it's a LONG way to Vegas from south GA and a week or two in a motel there would not be in my budget. ----- Original Message ----- From: Mommy2Adam@... Sent: Friday, July 06, 2001 01:36 AM Subject: Re: [] Viirtual Gait Braces In a message dated 7/5/2001 9:21:28 PM Pacific Daylight Time, rfc40@... writes: > Reply-to: <A HREF= " mailto: " > </A> > > > > > > > Ruth is there a website so I can see what they look like? jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 So can someone explain virtual gait to me? What is the diffrence from regular AFO or DAFO? jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 In a message dated 7/6/2001 1:19:46 AM Pacific Daylight Time, lls@... writes: > > I am not Ruth, but it is http://www.virtualgait.com/pages/frames.html It is > listed on the Links page and if you search the archives they have been > discussed several times. They sound good, but for me it's a LONG way to > Vegas from south GA and a week or two in a motel there would not be in my > budget. > Thanks Lamar , Hey you can get a hotel in vegas for under 75.00 during the week. www.Travelcity.com. I am going to look at the virtualgait site now. jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 Virtual Gail is simply the name of the company run by Jean- Neilsen and three of his colleagues, Marmaduke Loke who has his office in San Diego, Mitch Warner and Jean- Neilsen of Las Vegas and a third gentlemen up in Vancouver, British Columbia. Jean- Neilsen started the company. He originally worked for the Oregon Orthotic System (he might have even started that company but don't quote me on that). Jean- Neilsen invented and has a patent pending of the helix braces and double helix braces. He designed these braces specifically for CMT and Post Polio patients due to the fact that supposedly the two ailments have alot of the same symptons. These braces are unlike anything on the market as far as AFO's are concerned. I was told that I would need a KAFO braces for my legs since my thighs were becoming so weak and also I have severe recurvatum in my knees (my knees extend way back). I had been corresponding with Jean- at the same time I was going to my orthotist in Lancaster and he called Jean- for me and Jean- told him that he thought he could help me stay out of KAFO's with the double helix braces. I flew out to Vegas in December and stayed for one week and was retrained on how to walk with the double helix braces. Some people don't have to spend a week there, it depends on the severity of your legs and feet. I stayed at a very inexpensive motel that Jean- recommended for me that was very close to his office. He had offered to pick me up at the airport and bring me to my motel but I chose to rent a car instead. I had written to Ruth earlier today and congratulated her on getting her new braces and told her that it is impossible to explain how great these braces are for CMT patients. My legs were extremely weak and my balance was horrendous and I was just about ready to get a scooter. With these braces I can perform my daily functions so much easier and not get so fatigued. My balance has improved 100%. I never worry about losing my balance and falling anymore. I don't understand physics and principals behind why these braces work so much better than other braces. All I do know is that they do. I do know that they are made of a special material that no other brace out there is made of (I think it is a carbon composite) and there is a patent pending.When you walk the helix part of the brace bends a tiny bit and propels you forward. They are supposedly very durable and guaranteed for 2 years against breakage. I know you have kids and that is why I mentioned this although I myself do not have the energy like a child does to put these to the test in that respect. They are very expensive but for me they have been worth every penny. I hope I answered some of your questions . Betty ;: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 Oh I forgot to mention, I think you mean KAFO instead of DAFO. A KAFO is a knee, ankle, foot orhosis. It is a huge entire length of leg brace. Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 -----Original Message----- From: Buchie54@... <Buchie54@...> < > Date: Friday, July 06, 2001 7:54 PM Subject: Re: [] Viirtual Gait Braces Oh I forgot to mention, I think you mean KAFO instead of DAFO. A KAFO is a knee, ankle, foot orhosis. It is a huge entire length of leg brace. Betty >>>>>>KAFO I have seen are up to mid thigh, not full leg brace length. I have braces from toes to groin and wanted KAFO's not the ones I had to have. They showed me the difference in them. Due to my having less than 50% quad strength, I had to have the full leg braces. ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/6/2001 6:54:03 PM Pacific Daylight Time, Buchie54@... writes: > They are supposedly very durable and > guaranteed for 2 years against breakage. I know you have kids and > that > is why I mentioned this although I myself do not have the energy like a > child > does to put these to the test in that respect. They are very expensive but > for me they have been worth every penny. I hope I answered some of your > questions . > Betty > > > > Thanks Betty, I wonder if blue cross will cover them? jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 : I have no idea if Blue Cross will cover them but apparently Ruth is going to try and see if they do. Maybe she can let you know how she makes out. Also, remember Mr. Loke had offered a free set of the double helix braces to a child on . I have no idea if anybody from the group ever took him on his offer. You could contact him and see. You will live out in California, his office is in San Diego. Betty Quote Link to comment Share on other sites More sharing options...
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