Re: ATT: Need Names for protest against Steere!!!

[Guest guest]

In a message dated 10/31/99 2:10:39 PM Pacific Standard Time,

Namkrats3@... writes:

<< 1. Name: Kim S.

(Full or partial)

2. State you live in: NJ

3. State where thought to have contracted: NJ

4. First became ill: 1996

5. How long have you been ill: >> 3 years of misdiagnosis

[Guest guest]

Fill out what you want to have on the poster to represent you:

1. Name: D.

(Full or partial)

2. State you live in: TX

3. State where thought to have contracted: MI

4. First became ill: 1990

5. How long have you been ill: 10 yrs.

[Guest guest]

Hi Barb..thanks for your efforts!

Name: Joan Starkman

State I live in & contracted LD: N.Y.

1st became ill: approx 1985

How long ill: approx. 15 yrs.

From: " Barbara Fitzmaurice " <blfitzma@...>

For those that would like to participate in the protest at NIH against

Steere and cannot be there, please send me the following information

and I will forward to those that will make a point of listing us as

being supportive of the protest. We want to make up posters for the

Lyme Victims who are suffering due to Steere's contentions that Lyme

is not a chronic disease.

You may send the info to me;

blfitzma@... or the list, lyme-aidonelist

*************************************************

Fill out what you want to have on the poster to represent you:

1. Name:

(Full or partial)

2. State you live in:

3. State where thought to have contracted:

4. First became ill:

5. How long have you been ill:

Send to -Offtopiconelist messages unrelated to lyme, please.

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[Guest guest]

Name : Chan

State I Live in is, N.Y. & Contracted it in N.J.

First became ill June,91

How long ill; 8.5 yrs

[Guest guest]

I already sent specific info, not knowing I might

get to pick what goes on poster to represent me.

If possible, I would like

STOP A STEERE

FROM DOING MORE HARM

Joan wrote:

> Hi Barb..thanks for your efforts!

>

> Name: Joan Starkman

>

> State I live in & contracted LD: N.Y.

>

> 1st became ill: approx 1985

>

> How long ill: approx. 15 yrs.

>

> ------------------------------------------------------------------------

>

> Subject: [ ] ATT: Need Names for protest against Steere!!!

> Date: Sun, 31 Oct 1999 14:27:03 -0500

> From: " Barbara Fitzmaurice " <blfitzma@...>

> Reply-lyme-aidonelist

> Organization: Prodigy Internet

> <lyme-aidonelist>

> References: <3623297@...>

<000a01bf23cc$bead6b40$c4b04c3f@...>

>

> From: " Barbara Fitzmaurice " <blfitzma@...>

>

> For those that would like to participate in the protest at NIH against

> Steere and cannot be there, please send me the following information

> and I will forward to those that will make a point of listing us as

> being supportive of the protest. We want to make up posters for the

> Lyme Victims who are suffering due to Steere's contentions that Lyme

> is not a chronic disease.

>

> You may send the info to me;

> blfitzma@... or the list, lyme-aidonelist

> *************************************************

> Fill out what you want to have on the poster to represent you:

>

> 1. Name:

> (Full or partial)

>

> 2. State you live in:

>

> 3. State where thought to have contracted:

>

> 4. First became ill:

>

> 5. How long have you been ill:

>

> Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

[Guest guest]

Here's my info:

Name: beth Feldman

State I live in: California

State where thought to have contracted: California

First became ill: 1984

How long ill: 15 years

Thanks for doing this,

beth

[Guest guest]

In a message dated 10/31/1999 3:31:08 PM Eastern Daylight Time,

blfitzma@... writes:

> From: " Barbara Fitzmaurice " <blfitzma@...>

>

> For those that would like to participate in the protest at NIH against

> Steere and cannot be there, please send me the following information

> and I will forward to those that will make a point of listing us as

> being supportive of the protest. We want to make up posters for the

> Lyme Victims who are suffering due to Steere's contentions that Lyme

> is not a chronic disease.

>

> You may send the info to me;

> blfitzma@... or the list, lyme-aidonelist

> *************************************************

> Fill out what you want to have on the poster to represent you:

>

> 1. Name: FRAN PIAZZA-PARKINSON

> (Full or partial) BRIAN'S WIFE AND RANDY'S MOM

>

> 2. State you live in: NEW JERSEY SEASHORE (TICK HEAVEN)

>

> 3. State where thought to have contracted: PA/NJ '92/'93

NJ '99 (bit INSIDE

home!!)

>

> 4. First became ill: DISABLED 3-16-93

>

> 5. How long have you been ill: 6 1/2 LONG PAINFUL EXPENSIVE YEARS!!!

>

>

[Guest guest]

Lovey aka Marvina,

*Native Floridian,

*First bitten in Florida, (where were Willie B & A. Steere when I needed

them?)

*first tickbite 1950 -rash, high fevers, hallucinations, forced to take

" tonics " for years, could not put on weight;

*1967-was told I was in " early menopause at age 26;

*1968-tick paralysis lasted 7 days until tick removed from head;

*1969-all extremities had numbness/tingling, dx: vitamin deficiencies;

*1970-L-5 herniated disk removal;

*1971-hysterectomy;

*1975-rash, flu symptoms;

*1975-1989-continual phleabitis in right leg, nerve damage blamed;

*1989-Rushed to ER with menengitis symptoms, blinding headache, spiking

105 fevers, for 2 weeks, diagnosis: must have 2 or more of the " new " flu

viruses at one time, I believe this was onset of Ehrlichiosis;

*1992 right epicondral injury(?)surgery 6/93;

*1/1994 Carpal Tunnel Release right palm;

*4/1994 Left Wrist Carpal Tunnel Release;

*1996 Carpal Tunnel Release of Radial Nerve, left forearm;

*July 1998 bitten on right hand by tick, no rash;

*August 1998 bitten twice under right breast by adult tick or Brown

Recluse Spider; put on 14 days abx, site of bite presented as

" volcano-like " protrusion with varying shades of purple/white rings,

debrided on day 14, exactly 10 days later Immune System closed down and

ALL lyme symptoms presented;

*Nov. 1998 had T.I.A. and left with right side weakness, foot drag;

*Dec 1, 1998 Dx by LLMD with Bb, Babesiosis, Ehrlichiosis (both human

strains).

I WILL BE 59 YEARS OLD ON NOV 2nd. I HAVE HAD BORRELLIOSIS ALMOST ALL OF

MY LIFE! The Summer of 1998 brought co-infections for sure. Tested

positive for ELISA, negative Western Blot, positive Babesiosis, positive

Ehrlichiosis (both strains) at first time testing, positive LUAT

followed, positive PCR blood culture for Bb this month.

*Our son was born in 1960 with " thrush mouth " and has all symptoms of Bb;

*Our daughter was born in 1961 with rash on face.

*Both have degenerating disk problems.

*I have disk herniations at C4, C-5, L-4 and slight bulge at T-3 and now

have RA in spine;

*My spouse, Major Lyme, had L-5 disk removed July 1996 and was dxd with

borrelliosis in April. 1999;

*We are both Chronic Lyme sufferers.

Barbara, feel free to shorten this history or we may need a parade just

for my story! Ha.

Lovey the LongSuffering Lymie

On Sun, 31 Oct 1999 14:27:03 -0500 " Barbara Fitzmaurice "

<blfitzma@...> writes:

> From: " Barbara Fitzmaurice " <blfitzma@...>

>

> For those that would like to participate in the protest at NIH

> against

> Steere and cannot be there, please send me the following information

> and I will forward to those that will make a point of listing us as

> being supportive of the protest. We want to make up posters for the

> Lyme Victims who are suffering due to Steere's contentions that Lyme

> is not a chronic disease.

>

> You may send the info to me;

> blfitzma@... or the list, lyme-aidonelist

> *************************************************

> Fill out what you want to have on the poster to represent you:

>

> 1. Name:

> (Full or partial)

>

> 2. State you live in:

>

> 3. State where thought to have contracted:

>

> 4. First became ill:

>

> 5. How long have you been ill:

>

> ---------------------------

[Guest guest]

> You may send the info to me;

> blfitzma@... or the list, lyme-aidonelist

> *************************************************

> Fill out what you want to have on the poster to represent you:

>

> 1. S.

> 2. Connecticut

> 3. Connecticut

> 4. 1992

> 5. 1992, Diag 1999, currently awaiting second IV treatment.

> > Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank both the message and subject header.

>

[Guest guest]

In a message dated 10/31/99 4:24:54 PM Eastern Standard Time, jeand@...

writes:

<< 1. Name: lisa

2. State you live in: MI

3. State where thought to have contracted: MI

4. First became ill: 1985

5. How long have you been ill: 14 yrs.

>>

[Guest guest]

Sorry for delay, hope this makes your list in time,

Hugs,

Foggy Marta

>*************************************************

>Fill out what you want to have on the poster to represent you:

>

>1. Name:

> (Full or partial) Marta McCoy

>

>2. State you live in: New Jersey

>

>3. State where thought to have contracted: NJ

>

>4. First became ill: August 1996

>

>5. How long have you been ill: Over three years

>

>