Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 In a message dated 6/23/01 1:39:53 PM, liliwigg@... writes: << You have nerve pain ? What is the nerve pain ? What is it like? Do we all have that too ? >> Some CMTers have nerve pain. Some have structual pain - such as arthritis or joint pains. Some have both. Some CMTers have no pain. My neurologist says I have nerve pain. Mine has varied over the years. The most striking nerve pain is when you feel as if you are being electrocuted from the inside. Shocks and jolts of varying intensity cause you to jump or jerk. It's almost as if you are being touched by " hot " wires and receiving shocks, but they are under your skin. That's one kind of nerve pain. My shock and jolt pain has gradually changed over to what I call wrenching spasms. They only last a few seconds, most of the time, but can double me over in no time. Sometimes they last a number of seconds, and that really smarts! The third pain is one of frostbite, even though my feet are warm to the touch. At first my feet burned, but for the past few years they have been painfully frozen. When they burned I could cool them a little. Now I can't warm them no matter what I try. There are occasional pains that feel like bee stings, but those are less common. My neuro says the various types of nerve pain is caused by my nerves dying and sending false messages. It's not like back pain when you've strained your back, nor like arthritis pain. It's in the nerves, not the muscles or the skeleton. Most people don't know anything is going on with me unless they see me jump or jerk involuntarily. I keep as active as possible, but the nerve pain is always with me. That's my story on nerve pain. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 Kat, Wow ! Interesting ! I'm gonna keep this information in my file. Someday I will know when it comes. Thank you, Kat Patti ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 -----Original Message----- From: Gretchen Glick <liliwigg@...> < > Date: Saturday, June 23, 2001 3:30 PM Subject: [] nerve pain >Dear group, > >You have nerve pain ? What is the nerve pain ? What is it like? >Do we all have that too ? > >Patti > >>> Hi Patti, for me the nerve pain is the constant burning in my feet and legs, now thighs too. But yet they are cold all the time (hands and feet). My hands/feet get cold even in 90 degree weather. And the sharp jabbing pains that feel like someone has stuck me with a hat pin! Sometimes they are on surface of skin, those are not so bad, but mostly they are deep into the skin just like being stabbed with something narrow and very sharp. I get them on feet, ankles, lower legs, thighs, hips, waist, rib cage area, breasts, chest and tips of my fingers. I get those all the time now. Then there is the sudden electric shocks I get, its just like being shocked with 110 electricity for a split second and makes me cry out, (very embarrassing) and can bring tears fast! I call them lightening strikes! That's how it feels to me. And I can actually feel as if electricity is passing thru me and out finger tips, and it leaves a zinging/vibrating sensation for a few seconds after it happens. Or maybe that's the after affects my body is feeling trying to adjust to the nerves going haywire all over suddenly? I have no clu, just know I wish they would go away! LOL that's my nerve pain, I won't even go into the ones Kat mentioned, joints/muscles, tendons! If I listed where, what and how it hurts, LOL....it would be a shorter list to list what doesn't hurt at times! Thankfully, not everything hurts at the same time too often, those are the days/nights, that are the worst. ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 I get electrical shocks. And your face or your body can't camouflage what just happened. No matter what you are doing... it demands your immediate attention. I often yell at my body and tell it to quit it... we are suppose to be kind to each other... Good thing others don't hear me doing that, they would probably think I am nuts. Ok... maybe I am.. but that is another issue. I also have a thickness in my fingers... like they have been frostbit for years. But that is not really a pain.. but a lack of feeling. Gail -----Original Message----- From: Gretchen Glick [mailto:liliwigg@...] Sent: Saturday, June 23, 2001 2:26 PM Subject: [] nerve pain Dear group, You have nerve pain ? What is the nerve pain ? What is it like? Do we all have that too ? Patti ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 -----Original Message----- From: Gail Tibbetts <gltibbetts@...> < > Date: Sunday, June 24, 2001 1:43 AM Subject: RE: [] nerve pain >I get electrical shocks. And your face or your body can't camouflage what >just happened. No matter what you are doing... it demands your immediate >attention. I often yell at my body and tell it to quit it... we are suppose >to be kind to each other... Good thing others don't hear me doing that, they >would probably think I am nuts. Ok... maybe I am.. but that is another >issue. > >I also have a thickness in my fingers... like they have been frostbit for >years. But that is not really a pain.. but a lack of feeling. > >Gail > >>>>>>>>Gail, I talk to my body all the time to. To bad it won't listen! LOL.... I talk to myself to, but that's ok, cuz as my grandmother would say when asked who she was talking to when she talked to herself, her reply, a sensible person! LOL, ~>Becky M. >-----Original Message----- >From: Gretchen Glick [mailto:liliwigg@...] >Sent: Saturday, June 23, 2001 2:26 PM > >Subject: [] nerve pain > > >Dear group, > >You have nerve pain ? What is the nerve pain ? What is it like? >Do we all have that too ? > >Patti > >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/tagj. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 There must be a lot of sensible people on this earth... don't you think (all of them talking to themselves) Gail -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Sunday, June 24, 2001 1:00 AM Subject: Re: [] nerve pain -----Original Message----- From: Gail Tibbetts <gltibbetts@...> < > Date: Sunday, June 24, 2001 1:43 AM Subject: RE: [] nerve pain >I get electrical shocks. And your face or your body can't camouflage what >just happened. No matter what you are doing... it demands your immediate >attention. I often yell at my body and tell it to quit it... we are suppose >to be kind to each other... Good thing others don't hear me doing that, they >would probably think I am nuts. Ok... maybe I am.. but that is another >issue. > >I also have a thickness in my fingers... like they have been frostbit for >years. But that is not really a pain.. but a lack of feeling. > >Gail > >>>>>>>>Gail, I talk to my body all the time to. To bad it won't listen! LOL.... I talk to myself to, but that's ok, cuz as my grandmother would say when asked who she was talking to when she talked to herself, her reply, a sensible person! LOL, ~>Becky M. >-----Original Message----- >From: Gretchen Glick [mailto:liliwigg@...] >Sent: Saturday, June 23, 2001 2:26 PM > >Subject: [] nerve pain > > >Dear group, > >You have nerve pain ? What is the nerve pain ? What is it like? >Do we all have that too ? > >Patti > >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/tagj. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 In a message dated 6/23/01 11:09:21 PM, pattipeterson@... writes: << Someday I will know when it comes. >> Remember that many CMTers never have nerve pain! You may be one of the fortunate ones. I forgot to mention involuntary gasps and groans that often accompany my wrenching spasms, by the way. Embarrassing, as Becky said. It's not something we dwell on, it's just that it announces itself over and over all day every day so we aren't allowed to forget we have it. I've experienced bursitis, tendonitis, injured back, and so forth. The pain from those is not the same as nerve pain. Nerve pain is irrational, in my opinion. Kat >^.^< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 > I've experienced bursitis, tendonitis, injured back, and so forth. The pain > from those is not the same as nerve pain. Nerve pain is irrational, in my > opinion. > > Kat > >^.^< > Kat, Absolutely the best description of nerve pain I've ever read! > Quote Link to comment Share on other sites More sharing options...
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