Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 > , Ive been on some of his herbs now for five months...and so far am experiencing only a worsening of symptoms (which MIGHT be good, as it indicates herxing I think) but not sure. What's been your experience with the herbs? What about anyone else who has been on them more than a few months? Thanks, Connie > Hey Everyone, > > I'd like to know how long everyone has been on the Buhner protocol. > I'm going on my sixth month. I know the book recommends 8 - 12 months. > > Has anyone done the protocol and stopped? What happened? > > Has anyone weaned down, and if so, how? > > Many thanks in advance, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Hi and Connie, I've been on the protocol about 5 months (two months/60 days on max dosages, the minimum suggested in the book). The third month was a really good month (best I had in ages), then a month not as good but not bad, and this month is less good. My biggest improvements have been in energy, mental clarity (less brain fog), and better mood. I started decreasing the herbals (andro, resveratrol, cat's claw and smilax) in the past month or so, from 4 of each 4x daily, to some days doing 4 of each only 3x daily, or other combos. I'm experimenting a bit. Maybe I'd be doing better if I had stayed on max dosages of all every day. My muscle and joint issues have been increasingly flaring for over a month. This may be because I get more active after the heat of summer ends (I seem to have these fall flare-ups every year) and this aggravates pre-existing muscle/joint problems, rather than an actual Lyme bacteria flare. Or it could be my body reacting to seasonal weather and/or light changes. Or a herx. Or all of the above. I also have been adjusting thyroid meds, seeing a new massage therapist whose style or amount of pressure may not be agreeing with me, etc. There's always so many factors it's hard to really tell what's doing what. My energy and brain fog are still holding improvements. My mood is still better but struggling a bit from the muscle/joint pain. As far as anyone who may have dropped off the protocol, odds are they wouldn't still be reading this list. Maybe we can keep in mind that if and when any of us do that, if we are doing well off the herbals to get back here and give a quick update to give hope to others. Thank you all for being here. For those of us who live in areas where Thanksgiving is celebrated, this can be a tougher week than usual. You're not alone. As grateful as possible at the moment. And may that be enough. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Ann, Thank you for sharing your experience. I also have flare up right before I get my period. Any other ladies experience this? I feel like I'm herxing all over again. Major muscle and joint pain, major mood. I've never had PMS before this, so it is new for me. ~angela Re: [ ] Re: How Long On Protocol? > >Hi and Connie, > >I've been on the protocol about 5 months (two months/60 days on max dosages, >the minimum suggested in the book). The third month was a really good month >(best I had in ages), then a month not as good but not bad, and this month is >less good. > >My biggest improvements have been in energy, mental clarity (less brain fog), >and better mood. > >I started decreasing the herbals (andro, resveratrol, cat's claw and smilax) >in the past month or so, from 4 of each 4x daily, to some days doing 4 of each >only 3x daily, or other combos. I'm experimenting a bit. Maybe I'd be doing >better if I had stayed on max dosages of all every day. > >My muscle and joint issues have been increasingly flaring for over a month. >This may be because I get more active after the heat of summer ends (I seem to >have these fall flare-ups every year) and this aggravates pre-existing >muscle/joint problems, rather than an actual Lyme bacteria flare. Or it could be my >body reacting to seasonal weather and/or light changes. Or a herx. Or all of >the above. > >I also have been adjusting thyroid meds, seeing a new massage therapist whose >style or amount of pressure may not be agreeing with me, etc. > >There's always so many factors it's hard to really tell what's doing what. > >My energy and brain fog are still holding improvements. My mood is still >better but struggling a bit from the muscle/joint pain. > >As far as anyone who may have dropped off the protocol, odds are they >wouldn't still be reading this list. Maybe we can keep in mind that if and when any >of us do that, if we are doing well off the herbals to get back here and give a >quick update to give hope to others. > >Thank you all for being here. For those of us who live in areas where >Thanksgiving is celebrated, this can be a tougher week than usual. You're not alone. > >As grateful as possible at the moment. And may that be enough. >Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Connie, I've done very well - I'm very worried about lowering my dose. I can't go back to where I was. I'm sorry to hear you've had a hard time of it. I'm also taking several things made by Rain-tree - they have a " myco " package that helps rid the body of Lyme type organisms. I added that a few months ago. has a book about amazon herbs, which was really informative. She is an ND. Their web site is rain-tree.com. They have a lot of info on the web site, but I really think the book is great. ~ [ ] Re: How Long On Protocol? > > >> >, Ive been on some of his herbs now for five months...and so far >am experiencing only a worsening of symptoms (which MIGHT be good, as >it indicates herxing I think) but not sure. > >What's been your experience with the herbs? What about anyone else who >has been on them more than a few months? > >Thanks, Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Hi , From a previous post: -look thru the archives, eg, msg#912 is the end of a thread about peoples' experiences on the Buhner protocol. My own story: I was diagnosed in May 06 with advanced Lyme. I went on Buhner's protocol for 2 months (the minimum according to him) and I had great improvement. Then I went off the herbs and the pain in my leg came back. Now I'm using some of Buhner's herbs and some others. and am feeling pretty well. I think if you look over the archives, esp at the beginning, you'll learn a lot about how people are faring on the protocol. best, ellen > > Hey Everyone, > > I'd like to know how long everyone has been on the Buhner protocol. > I'm going on my sixth month. I know the book recommends 8 - 12 months. > > Has anyone done the protocol and stopped? What happened? > > Has anyone weaned down, and if so, how? > > Many thanks in advance, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 , This is supposedly very common with women and Lyme, i.e., flares with the female cycle (how many others of you have been dubbed the PMS Queen?!). My LLMD told me I can tell how the Lyme is doing by how bad my PMS is. I don't know the science of it but I know it's true. Ann In a message dated 11/20/06 3:37:03 PM, theursos@... writes: > Ann, > > Thank you for sharing your experience. I also have flare up right before I > get my period. Any other ladies experience this? I feel like I'm herxing all > over again. Major muscle and joint pain, major mood. I've never had PMS before > this, so it is new for me. > > ~angela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Hi All - I started the herbs in July while I was on ABX. I stopped for 2 weeks in September as I was not doing well (stopped ABX altogether then). Now, I am still trying to increase the dosage to the maximum suggested by Buhner. I'm going slow, so as to not overwhelm myself too much. I am at a high level of activity with the ABX treatment (working, horseback riding, gym, pilates, raking leaves, etc.). I can feel some symptoms coming back already, though. My CD-57 is still low at 24. Now I am taking raintree cats claw (3X3), source naturals resveratrol (3X3), and andrographis (2X3). I am thinking of adding stephania root. I do usually have " cycles " or exaggerated symptoms with my menstrual cycle. Sometimes starting in " PMS " time, and sometimes not until it gets started. I think I heard that for many women, the Lyme cycles line up with the menstrual cycle. Has something to do with the hormone levels and the immune system being weaker when progesterone goes low? Robin > > Ann, > > Thank you for sharing your experience. I also have flare up right before I get my period. Any other ladies experience this? I feel like I'm herxing all over again. Major muscle and joint pain, major mood. I've never had PMS before this, so it is new for me. > > ~angela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 Robin, That is really impressive that you are so active! I am not close to being able to jog again, which is a real loss to me. I am wondering what are your symptoms, when you have them? ellen > > > > Ann, > > > > Thank you for sharing your experience. I also have flare up right > before I get my period. Any other ladies experience this? I feel like > I'm herxing all over again. Major muscle and joint pain, major mood. > I've never had PMS before this, so it is new for me. > > > > ~angela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 Hi Ellen - the symptoms that seem to be returning are TMJ-type (jaw clenching), tooth pain, and that " buzzing " feeling. I also feel similar " clenching " feelings in the muscles of my legs. I have had a hard " lymph node " on my neck for years and it is bigger now. I have some symptoms that never went away completely - hip pain, some knee pain, fatigue, brain fog, some ear ringing, some weakness, blurry vision, hot/cold episodes. I'm also dealing with some acne and anger. I found that I just have to keep going even if I don't feel so great. Of course, I do let myself rest when needed. My big turning points were a good physical therapist, the right antibiotics, and ongoing chiropractor care. I have bartonella, borreliosis and I'm pretty sure - babesia. I hope you gain the strength and ability to run again. I hated not being active. I have lost 23 pounds since January! yea! Robin > > > > > > Ann, > > > > > > Thank you for sharing your experience. I also have flare up right > > before I get my period. Any other ladies experience this? I feel like > > I'm herxing all over again. Major muscle and joint pain, major mood. > > I've never had PMS before this, so it is new for me. > > > > > > ~angela > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2007 Report Share Posted April 2, 2007 - I see you wrote this in Nov. I hope my information is not too late. But if it is any consolation I could not have answered in Nov. It turns out Nov is the time I went off andrographis after having been on it a year with phenominal results. Andrographis was my predominate treatment. The results were not good. Just about Nov I was symptom free except for floaters in the eye and fatigue. One thing I noted, in passing, just before I went off the andrographis was my finger nails were starting to grow in smoothly. I had had horizontal (perpendicular to direction of growth) periodic ridges in my nails in a wave like pattern for a long time. There was also minor pitting in my nails. I never really took note of these things until I noticed the smooth growth right before going off the andrographis. It was a small thing, but it is a silent indicator of health. I went off the andrographis gradually reducing the dose each week from 4 tabs, 4 times daily. Fatigue returned with a vengance, along with other symptoms. I stayed off it for two months, the whole time not wanting to believe I was regressing and looking for absolute proof I was regressing. Floaters increased again, " ...but did they really increase or are you just being obsessive " . Shooting pains started again, " ....but they are mild compared to what was normal, maybe these mild ones are permanant and now you are just focusing on them, they haven't returned they just never left " . GI symptoms worsened, " .... Oh they have been up and down for over a year " Balance, fog head, not being able to drive, the sensation of walking through water, and many more came back. But they all could be doubted. In the end it was the nails returning to a wavey pattern that I found to be my indisputable evidence. And that took about two months to show up. I am back on the andrographis again. My recommendation? Wait until you are completely symptom free and then continue for at least 6 months. If your lucky, your nails will tell you when. > > Hey Everyone, > > I'd like to know how long everyone has been on the Buhner protocol. > I'm going on my sixth month. I know the book recommends 8 - 12 months. > > Has anyone done the protocol and stopped? What happened? > > Has anyone weaned down, and if so, how? > > Many thanks in advance, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2007 Report Share Posted April 3, 2007 WHAT else are you taking? Andrographis by itself certainly is NOT going to do it for at least 99% of the people. While I take it, I do not consider it my MAIN herb. I take many, many herbs from Buhner's book. I have been doing it for over 16 months now. When I cut down to 1/3 MY maximum, my symptoms came back big time. I am now back up to 1/2 of my maximum and things are better again. Though not real good yet. Jim. ### cathy_cooter_martin <cathy_cooter_martin@...> wrote: - I see you wrote this in Nov. I hope my information is not too late. But if it is any consolation I could not have answered in Nov. It turns out Nov is the time I went off andrographis after having been on it a year with phenominal results. Andrographis was my predominate treatment. The results were not good. Just about Nov I was symptom free except for floaters in the eye and fatigue. One thing I noted, in passing, just before I went off the andrographis was my finger nails were starting to grow in smoothly. I had had horizontal (perpendicular to direction of growth) periodic ridges in my nails in a wave like pattern for a long time. There was also minor pitting in my nails. I never really took note of these things until I noticed the smooth growth right before going off the andrographis. It was a small thing, but it is a silent indicator of health. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 No, andrographis was mainly it. I was in the care of one of the trained providers on Buhner's list. I took: Skullcap tinture (which I am told can act as a neuromodulater) I had GI and neuro symptoms Bleeding heart tinture (FES brand) for sleep and depression Eleuthero for energy and general health Vitamin B complex PB8 (a probiotic to counter the negative side effect of long term antibiotics) The above did little for me even after several months of taking them. It wasn't until I took andrographis that things improved. My symptoms were mainly CNS symptoms with working memory being the major thing hit. I was likely infected in NJ or Pennsylvania (which the literature seems to show symptoms differ by regions). > - > > I see you wrote this in Nov. I hope my information is not too late. > But if it is any consolation I could not have answered in Nov. > > It turns out Nov is the time I went off andrographis after having > been on it a year with phenominal results. Andrographis was my > predominate treatment. The results were not good. > > Just about Nov I was symptom free except for floaters in the eye > and fatigue. One thing I noted, in passing, just before I went off > the andrographis was my finger nails were starting to grow in > smoothly. I had had horizontal (perpendicular to direction of > growth) periodic ridges in my nails in a wave like pattern for a > long time. There was also minor pitting in my nails. I never really > took note of these things until I noticed the smooth growth right > before going off the andrographis. It was a small thing, but it is a > silent indicator of health. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 When I first started the protocol-- I stayed on until I ran out of my first order-- about 60 days. I was feeling " okay " and got lazy and did not bother to re-order. Boy-- was that a mistake. Symptoms came back-- worse-- as well as the ER rash! Now I'm back on-- but I do not/can not take the maximum dosages recommended. I just can't make myself swalow that many pills/capsules. They feel like they all stick in my throat. Anyway-- I'm back on the core protocol and some other herbs and supplements that Buhner reccommends for " specific " symptoms. I still have days/nights when I'd swear I might be dying.... (Heart attack like chest pains with pain down arm....bad vertigo, arm tingling, creaky sounds in my head- horrible insomnia!!--just to name a few... but I'm still here--after dealing with this for almost three years now. I have now ordered--and just received today-- teasel root tincture-- that I intend to try and see if I really CAN wipe this all out like some have suggested on other sites I frequent. I have to go out of town this weekend--so want start the new therapy till Monday00 just in case-- there is a " bad reaction " ... > > Hey Everyone, > > I'd like to know how long everyone has been on the Buhner protocol. > I'm going on my sixth month. I know the book recommends 8 - 12 months. > > Has anyone done the protocol and stopped? What happened? > > Has anyone weaned down, and if so, how? > > Many thanks in advance, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 > > I just can't make myself swalow that many pills/capsules. I had the same problem, but there are (partial) solutions. Some of the herbs can be mixed with food (requires some experimentation; some suggestions in earlier threads on this forum). And if you make your own capsules you can have nearly 1000 mg in one cap, instead of 400-500 like in most commercial products, so there are less capsules to swallow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 My experience for what its worth; I settled eventually on 4 doses 3 times a day. Just could not get that 4th dose in. Also, I switched over to many powders (from 1st Chinese herbs) slowly instead of pills. Much easier to take by putting on food or just mixing in water (though most are a bit resistant to being mixed). I also make my own glycerite for some of the herbs; tastes sweet and nice and easy to swollow. Don't despair. You'll get there. It takes persistence. No way around that but it does help. I am a lot better, though not 'well.' After 20 years of illness, I'm profoundly grateful for finally getting a lyme diagnosis, for Buhner and his protocol, and finally for now being able to see occasionally a lyme literate doc.I've done a lot of self care over the years so I don't take anything for granted. Each little bit helps and dI have still not given up the idea of being completely well at some point though I had during some of those many dark days. jo > > > > I just can't make myself swalow that many pills/capsules. > > I had the same problem, but there are (partial) solutions. Some of the herbs can be mixed with food (requires some experimentation; some suggestions in earlier threads on this forum). And if you make your own capsules you can have nearly 1000 mg in one cap, instead of 400-500 like in most commercial products, so there are less capsules to swallow. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 My wife tried herbs early on and this was the main reason she decided to find something that was easier to do. In her case Salt/C and later Rife/CS proved very effective. www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - > [ ] Re: How Long On Protocol? > > When I first started the protocol-- I stayed on until I ran > out of my first order-- about 60 days. I was feeling " okay " > and got lazy and did not bother to re-order. Boy-- was that > a mistake. Symptoms came back-- worse-- as well as the ER > rash! Now I'm back on-- but I do not/can not take the > maximum dosages recommended. I just can't make myself swalow > that many pills/capsules. They feel like they all stick in > my throat. Anyway-- I'm back on the core protocol and some > other herbs and supplements that Buhner reccommends for > " specific " symptoms. I still have days/nights when I'd swear > I might be dying.... (Heart attack like chest pains with > pain down arm....bad vertigo, arm tingling, creaky sounds in > my head- horrible insomnia!!--just to name a few... but I'm > still here--after dealing with this for almost three years > now. I have now ordered--and just received today-- teasel > root tincture-- that I intend to try and see if I really CAN > wipe this all out like some have suggested on other sites I > frequent. I have to go out of town this weekend--so want > start the new therapy till Monday00 just in case-- there is a > " bad reaction " ... > > > > > > Hey Everyone, > > > > I'd like to know how long everyone has been on the Buhner > protocol. > > I'm going on my sixth month. I know the book recommends 8 > - 12 months. > > > > Has anyone done the protocol and stopped? What happened? > > > > Has anyone weaned down, and if so, how? > > > > Many thanks in advance, > > > > > > > > > > > ------------------------------------ > > Buy Healing Lyme: Natural Healing And Prevention of Lyme > Borreliosis And Its Coinfections by Buhner at one of > these locations: > http://tinyurl.com/3bgm5d > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Hi!  I'm new here on this place, so I have a question . What is Salt/C and Rife/CS ?  I'm starting my way with Buhner and other herbs or methods against Bb, any help is really needed.  Thanks  MJ From: <msadams@...> Subject: RE: [ ] Re: How Long On Protocol? Date: Thursday, December 2, 2010, 6:04 PM  My wife tried herbs early on and this was the main reason she decided to find something that was easier to do. In her case Salt/C and later Rife/CS proved very effective. www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - > [ ] Re: How Long On Protocol? > > When I first started the protocol-- I stayed on until I ran > out of my first order-- about 60 days. I was feeling " okay " > and got lazy and did not bother to re-order. Boy-- was that > a mistake. Symptoms came back-- worse-- as well as the ER > rash! Now I'm back on-- but I do not/can not take the > maximum dosages recommended. I just can't make myself swalow > that many pills/capsules. They feel like they all stick in > my throat. Anyway-- I'm back on the core protocol and some > other herbs and supplements that Buhner reccommends for > " specific " symptoms. I still have days/nights when I'd swear > I might be dying.... (Heart attack like chest pains with > pain down arm....bad vertigo, arm tingling, creaky sounds in > my head- horrible insomnia!!--just to name a few... but I'm > still here--after dealing with this for almost three years > now. I have now ordered--and just received today-- teasel > root tincture-- that I intend to try and see if I really CAN > wipe this all out like some have suggested on other sites I > frequent. I have to go out of town this weekend--so want > start the new therapy till Monday00 just in case-- there is a > " bad reaction " ... > > > > > > Hey Everyone, > > > > I'd like to know how long everyone has been on the Buhner > protocol. > > I'm going on my sixth month. I know the book recommends 8 > - 12 months. > > > > Has anyone done the protocol and stopped? What happened? > > > > Has anyone weaned down, and if so, how? > > > > Many thanks in advance, > > > > > > > > > > > ------------------------------------ > > Buy Healing Lyme: Natural Healing And Prevention of Lyme > Borreliosis And Its Coinfections by Buhner at one of > these locations: > http://tinyurl.com/3bgm5d > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 > > > Hi! >  > I'm new here on this place, so I have a question . What is Salt/C and Rife/CS ? these have nothing to do with the Buhner protocol. They are 'alternative treatments' (IMHO unproven) that some on the forum recommend or use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 does that mean that the buhner protocol is not " alternative " and is proven? what does proven mean anyway? the only thing i know in lyme that actually has been proven (to some's dismay) is antibiotics. On Fri, Dec 3, 2010 at 7:47 AM, knot_weed <tek0nik@...> wrote: > > > > > > > > > > > Hi! > >  > > I'm new here on this place, so I have a question . What is Salt/C and > Rife/CS ? > > these have nothing to do with the Buhner protocol. They are 'alternative > treatments' (IMHO unproven) that some on the forum recommend or use. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 There are other lyme protocol discussion groups on : bartonella - Bartonella protocol discussion lymestrategies - Salt/Vitamin C protocol Rife groups: Lyme_Rife Lyme_and_Rife dougplus deb > > > > > > > > > Hi! > > >  > > > I'm new here on this place, so I have a question . What is Salt/C and > > Rife/CS ? > > > > these have nothing to do with the Buhner protocol. They are 'alternative > > treatments' (IMHO unproven) that some on the forum recommend or use. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 > > does that mean that the buhner protocol is not " alternative " and is proven? > what does proven mean anyway? the only thing i know in lyme that actually > has been proven (to some's dismay) is antibiotics. wrong. ABX effectiveness against lyme is not proven beyond doubt, even for early lyme. Most studies are severely flawed (e.g. they determine 'effective' from the disappearance of an EM or negative serology some time after ABX course), and there have beeen NO good double-blind placebo-controlled tests. Of course the same goes for all other lyme treatments, because nobody has bothered to test them the way one should test a protocol. For chronic lyme it is evident that the current ABX treatments are relatively ineffective compared to e.g. placebo. This doesn't mean that ABX do not work, it could be that changes in the protocols can improve the outcome, or that it depends on factors that we don't understand yet and that skew the statistics (e.g. borrelia strain, genetic factors of the patient, patient microbiome, unknown coinfections etc.). As explained before, there is (scientifically) a major difference between ABX and Buhner herbs on one side and most of the 'alternative' treatments on the other side. ABX and Buhner herbs have a plausible, scientifically accepted, mechanism of action. And we can assume that they are more or less effective on the basis of past experience with other infections, including other spirochete infections. Both of these are totally lacking with Salt/C, MMS and Rife (and many others). I give CS the benefit of the doubt: there is no plausible scientific mechanism for how it works against spirochetes, but at least there is credible past experience in using it against infections including spirochete infections (e.g. syphilis). Which puts CS a notch below Buhner protocol and above many other 'alternative' treatments IMHO. I agree science does not say everything, but IMHO you ignore it at your own risk. I would not chose a protocol based on just blind faith or the recommendation of some 'guru'. P.S.: I think in Europe Buhner protocol will usually be seen as complementary or integrative medicine (and not allopathic or alternative in general). Maybe it's different in the US. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2010 Report Share Posted December 6, 2010 [snip] and there have beeen NO good double-blind placebo-controlled tests. Of course the same goes for all other lyme treatments, because nobody has bothered to test them the way one should test a protocol. i think one of the reasons there has been no double blind study is because it is unethical to give someone with Lyme disease a placebo. it would be like giving a person a placebo for cancer. they don't do it. they can do comparison studies like this antibiotic regimen vs that one. or antibiotics vs herbs. but you can't just not treat it. ~dory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 [snip] and there have beeen NO good double-blind placebo-controlled tests. Of > course the same goes for all other lyme treatments, because nobody has > bothered to test them the way one should test a protocol. > > i think one of the reasons there has been no double blind study is because it is unethical to give someone with Lyme disease a placebo. true, but you could do a retrospective study, trying to find people who were infected and treated e.g. in the early stage and comparing their early and later symptoms with similar people who were infected (judging from EM or lymetest) and NOT treated. This is not exactly a placebo control, but it is close. There are plenty of patients who are denied treatment, at least initially ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 Salt/c is using non-table salt (usually mined ancient salt or unprocessed sea salt) with vitamin C. Rife is using an electronic device to get EMF into the body. Some use magnetic pulses, some LED lasers, some capacitance fields. CS stands for colloidal Silver. I can get a lot more information on each of these or you can read them on my free lyme resource CD. See web site below. www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - > [ ] Re: How Long On Protocol? > > > > When I first started the protocol-- I stayed on until I ran > out of my > > first order-- about 60 days. I was feeling " okay " > > and got lazy and did not bother to re-order. Boy-- was that > a mistake. > > Symptoms came back-- worse-- as well as the ER rash! Now > I'm back on-- > > but I do not/can not take the maximum dosages recommended. I just > > can't make myself swalow that many pills/capsules. They > feel like they > > all stick in my throat. Anyway-- I'm back on the core protocol and > > some other herbs and supplements that Buhner reccommends for > > " specific " symptoms. I still have days/nights when I'd > swear I might > > be dying.... (Heart attack like chest pains with pain down > arm....bad > > vertigo, arm tingling, creaky sounds in my head- horrible > > insomnia!!--just to name a few... but I'm still here--after dealing > > with this for almost three years now. I have now ordered--and just > > received today-- teasel root tincture-- that I intend to > try and see > > if I really CAN wipe this all out like some have suggested on other > > sites I frequent. I have to go out of town this weekend--so > want start > > the new therapy till Monday00 just in case-- there is a " bad > > reaction " ... > > > > > > > > > > Hey Everyone, > > > > > > I'd like to know how long everyone has been on the Buhner > > protocol. > > > I'm going on my sixth month. I know the book recommends 8 > > - 12 months. > > > > > > Has anyone done the protocol and stopped? What happened? > > > > > > Has anyone weaned down, and if so, how? > > > > > > Many thanks in advance, > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Buy Healing Lyme: Natural Healing And Prevention of Lyme > Borreliosis > > And Its Coinfections by Buhner at one of these locations: > > http://tinyurl.com/3bgm5d > > > > Quote Link to comment Share on other sites More sharing options...
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