Re: Another Lurker Heard From

[Guest guest]

another thing....(oops lyme brain).....we can tell them how inadequite WE

feel.....

but sometimes THEY cannot tell us how helpless living with us feels ....that

was part of our problem 2...

Reid..

[Guest guest]

-Kline Beachem is NOT a lab I would recommend to test anything of

mine. THEY appear to decide whether THEY think it is appropriate to

test the sample or not, regardless of what the doctor has ordered! Plus

they appear to be very unreliable and appear to be insurance friendly.

Lovey

On Thu, 7 Oct 1999 02:24:20 EDT BratDet@... writes:

> From: BratDet@...

>

> In a message dated 10/7/99 2:19:37 AM Eastern Daylight Time,

> lclott@...

> writes:

>

> << Hard not to be

> paranoid about things anymore haha.

> L(MI) >>

> I completely understand...our 6 samples of frozen urine we broughtto

> the lab

> to be sebt to igenx were almost thrown out....!@#$!$#@!#$

> I sent them in the grey tubes provided by Igenex,,,,and SKB lab

> declined to

> send it out saying the tubes were culture tubes...THANK GOD I got

> the

> notification...cause after 5 days they throw out unusable

> specimens...I had

> to get the secretary to place a hold on throwing specimens i had to

> explain

> that was how the previous family members urine was sent,,,,remind

> them it was

> igenex's own tubes...and then gave them the igenex #, so they could

> verify it

> all b4 they sent them...a lot of phone calls...to save valuable pee

> pee

> if I hadn't caught it and got on it right away...no specimens no

> test no

> test results Bernadette

>

> ---------------------------

[Guest guest]

When sending any kind of testing to Igenex or BBI it is important to make

sure you send samples via FedEx NO LATER THAN WEDNESDAY, even earlier is

better. Collect samples over the weekend with the third sample taken on

Monday. If FedExed on the last day of collection, the last sample will

not have to be frozen. Anything FedExed later will sit on the doorstep

through the weekend and the samples will be ruined. FYI, Lovey

On Thu, 7 Oct 1999 00:34:07 -0700 (PDT) lc lott <lclott@...>

writes:

> From: lc lott <lclott@...>

>

> B-

> The way we do ours is to send it direct via Fed Ex. My

> doc has the complete paket and once the samples are

> collected you call Fed Ex and they pick them up at

> your home and they are sent same day to Igenex. At

> least I knew that there was no middle amn involved in

> ours. Glad you got yours in time. If trying to collect

> 3 samples for each person is as complicated in your

> house as it is in mine you having to redo it would be

> a major undertaking haha. Trying to remember which

> days and then trying to make sure you do first morning

> samples. For such an easy thing it sure was an ordeal.

> LOL

> L(MI)

>

> --- BratDet@... wrote:

> > In a message dated 10/7/99 2:19:37 AM Eastern

> > Daylight Time, lclott@...

> > writes:

> >

> > << Hard not to be

> > paranoid about things anymore haha.

> > L(MI) >>

> > I completely understand...our 6 samples of frozen

> > urine we broughtto the lab

> > to be sebt to igenx were almost thrown

> > out....!@#$!$#@!#$

> > I sent them in the grey tubes provided by

> > Igenex,,,,and SKB lab declined to

> > send it out saying the tubes were culture

> > tubes...THANK GOD I got the

> > notification...cause after 5 days they throw out

> > unusable specimens...I had

> > to get the secretary to place a hold on throwing

> > specimens i had to explain

> > that was how the previous family members urine was

> > sent,,,,remind them it was

> > igenex's own tubes...and then gave them the igenex

> > #, so they could verify it

> > all b4 they sent them...a lot of phone calls...to

> > save valuable pee pee

> > if I hadn't caught it and got on it right away...no

> > specimens no test no

> > test results Bernadette

> >

> >

>

------------------------------------------------------------------------

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>

> ---------------------------

[Guest guest]

Great news, Reid!

Your counselor sounds wonderful! You guys are on the right track...keep

it up. Best Wishes, Joan LI NY

1st Known Deer Tick Bites: '85

1st (Neg): '89

Daughter Dx'd w/LD: '89

Dogs Dx'd: '90

Sx & Neg. s: next 10 yrs. 1st WB: 4+ Specific

Bands: 4/99

Late Neuro-LD Dx: 6/99

Currently on Biaxin/Plaquenil

From: RMcmur3194@...

joan ...good suggestion and i am glad it worked for u bu the problwem is i

tried and she would/could not.....she admitted that last nite......she

admitted that alot (and i agreea) comes from her family backround....they

shut down around stress......she is willing to work on it with the help of

conselling so we are started......the therapist told my wife......reids looks

like he is doing what he can in all areas( no im not perfect) but i was

getting very little help or feedback......for those of u out there who have

the same problem i would recomend trying a consellor.....preferabkly one who

has dealt with chronically ill people,....

Reid

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[Guest guest]

In a message dated 10/8/99 4:08:06 AM Eastern Daylight Time, lclott@...

writes:

<< B-

The postage was paid for with the kit. Just had to put

the label on it and call them and give them the number

off the label. Dont know if that is part of the Igenex

charge or if my doc has the postage paid. I >>

i am not allowed to send it directly...( I have the pre-paid Igenex mailers.)

I HAVE to submit the specimen to the local SKB lab, and THEN they sent it to

referral lab testing who sends it out to whomever they have contracted with

like Igenex for the LUAT..unfrotunately in order not to have to pay out of

pocket I have to follow the procedure...If I sent it direct, USHC would not

pay a cent...and all those tests just add up...b

[Guest guest]

Lovey-

Yep it is all in the instructions from my docs office

about when to send. Thanks for the info tho.

--- lovey38@... wrote:

> When sending any kind of testing to Igenex or BBI it

> is important to make

> sure you send samples via FedEx NO LATER THAN

> WEDNESDAY, even earlier is

> better. Collect samples over the weekend with the

> third sample taken on

> Monday. If FedExed on the last day of collection,

> the last sample will

> not have to be frozen. Anything FedExed later will

> sit on the doorstep

> through the weekend and the samples will be ruined.

> FYI, Lovey

>

> On Thu, 7 Oct 1999 00:34:07 -0700 (PDT) lc lott

> <lclott@...>

> writes:

> > From: lc lott <lclott@...>

> >

> > B-

> > The way we do ours is to send it direct via Fed

> Ex. My

> > doc has the complete paket and once the samples

> are

> > collected you call Fed Ex and they pick them up at

> > your home and they are sent same day to Igenex. At

> > least I knew that there was no middle amn involved

> in

> > ours. Glad you got yours in time. If trying to

> collect

> > 3 samples for each person is as complicated in

> your

> > house as it is in mine you having to redo it would

> be

> > a major undertaking haha. Trying to remember which

> > days and then trying to make sure you do first

> morning

> > samples. For such an easy thing it sure was an

> ordeal.

> > LOL

> > L(MI)

> >

> > --- BratDet@... wrote:

> > > In a message dated 10/7/99 2:19:37 AM Eastern

> > > Daylight Time, lclott@...

> > > writes:

> > >

> > > << Hard not to be

> > > paranoid about things anymore haha.

> > > L(MI) >>

> > > I completely understand...our 6 samples of

> frozen

> > > urine we broughtto the lab

> > > to be sebt to igenx were almost thrown

> > > out....!@#$!$#@!#$

> > > I sent them in the grey tubes provided by

> > > Igenex,,,,and SKB lab declined to

> > > send it out saying the tubes were culture

> > > tubes...THANK GOD I got the

> > > notification...cause after 5 days they throw out

> > > unusable specimens...I had

> > > to get the secretary to place a hold on throwing

> > > specimens i had to explain

> > > that was how the previous family members urine

> was

> > > sent,,,,remind them it was

> > > igenex's own tubes...and then gave them the

> igenex

> > > #, so they could verify it

> > > all b4 they sent them...a lot of phone

> calls...to

> > > save valuable pee pee

> > > if I hadn't caught it and got on it right

> away...no

> > > specimens no test no

> > > test results Bernadette

> > >

> > >

> >

>

------------------------------------------------------------------------

> > > Send to -Offtopiconelist messages

> > > unrelated to lyme, please.

> > > /archive/lyme-aid

> > >

> /archives.cgi/Lyme-Documents

> > > To unsubscribe, send email to

> > > -unsubscribeonelist

> > > You may substitute " subscribe " , or " digest " or

> > > " normal " for

> > > the word " unsubscribe " ( " normal " is the opposite

> of

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> subject

> > > header.

> > >

> > <HR>

> > <html>

> > >

> >

> >

> > =====

> >

> > ---------------------------

[Guest guest]

B-

The postage was paid for with the kit. Just had to put

the label on it and call them and give them the number

off the label. Dont know if that is part of the Igenex

charge or if my doc has the postage paid. I know it

didnt cost me anything to send either one of them. But

you are right about the paperwork. Real pain in the

butt and who needs more pain LOL

L(MI)

--- BratDet@... wrote:

> In a message dated 10/7/99 3:28:53 AM Eastern

> Daylight Time, lclott@...

> writes:

>

> << B-

> The way we do ours is to send it direct via Fed Ex.

> My

> doc has the complete paket and once the samples are

> collected you call Fed Ex and they pick them up at

> your home and they are sent same day to Igenex. >>

> If I sent my direct, I would have to pay for

> it...when you have 3 kids and no

> income...well every bit you can save does help...it

> WAs an ordeal...esp.

> since U was told to avoid confusion and to make sure

> they sent all 3

> specimens, I had to make out a completely seperate

> long form for each

> specimen..six times as much work that should be

> unnecessary to do...and they

> STILL screw it up Sheesh B

>

>

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>

=====

[Guest guest]

, she takes the Healthy Trinity from Natren.com

http://www.natren.com

On Tue, 5 Oct 1999 19:09:32 -0700 (PDT) lc lott <lclott@...>

writes:

> From: lc lott <lclott@...>

>

> Lovey-

> I would be interested to know what your friend took if

> you can get that info. Dont think this is a

> gallbladder issue but if I can avoid it I would like

> to try.

> Thanks,

> L(MI)

>

> --- Marvina Lodge <lovey38@...> wrote:

> > I have a friend who avoided surgery on the GB by

> > taking a mixture of

> > natural herbs, i.e. flax seeds, and other stuff

> > which cleared up the

> > sludge which formed in the GB. She was actually on

> > the operating table

> > when the surgeon took one last sonogram and could

> > not find any

> > gallstones, where 3 days prior they had shown up!

> > She calles this the

> > Holy Trinty, so it must be 3 herbs mixed together.

> > I will try to find

> > out for all of you. it purges the GB. Lovey

> >

> > On Sun, 3 Oct 1999 17:13:35 -0700 (PDT) lc lott

> > <lclott@...>

> > writes:

> > > From: lc lott <lclott@...>

> > >

> > > -

> > > Sorry it has taken so long to answer.

> > > To answer your question about being curable the

> > answer

> > > unfortunatlly is no. I went over a year without a

> > dx

> > > ot treatment and possibly have a reoccurance vs.

> > > reinfection from 1994. Was treated that time with

> > Doxy

> > > 200/day for 30 days so we all know that it was

> > > probably not curative then either even tho it was

> > > treated within 2 weeks of my rash. Funny the same

> > doc

> > > that treated me last time refused to treat me this

> > > time. Sent me on to the University.

> > > I also considered the gallbladder possibility but

> > the

> > > pain is muscular and is throughout my entire upper

> > > body. And yes I am a borderline asthmatic. Do not

> > take

> > > any meds regularly but do have an inhaler for

> > acute

> > > attacks. The muscle spasms are from my neck to my

> > > waist on both sides. Even my doc was amazed at how

> > > tight everything was and said he couldnt tell one

> > knot

> > > from another.

> > > I think things are getting better slowly. Must be

> > I

> > > was having or am still having a major Herx. Hope

> > when

> > > the good days come the are really great because Im

> > > looking forward to them.

> > > Thanks again for your input. Hope you are feeling

> > > well.

> > > L

> > >

> > > --- <swsftwtx@...> wrote:

> > > > From: <swsftwtx@...>

> > > >

> > > > Dear L,

> > > >

> > > > Sorry to hear you're having such a rough time

> > > > herxing.

> > > > I know what that's like, as we all do, so you

> > have a

> > > > lot

> > > > of friends here who will understand what your're

> > > > going

> > > > through, so if you need an outlet, we're here!

> > > >

> > > > I even herxed on Amoxil 3 days of taking them

> > and at

> > > > first thought I can deal with this, not much

> > worse

> > > > than what

> > > > I'd been doing for 20 years, but on the 10th

> > day, I

> > > > changed

> > > > my tune! Do you know if your LD caught in time

> > to

> > > > be able

> > > > to cure? Sure hope so, sorry if that's a stupid

> > > > question but

> > > > I don't get a chance to read all the mail.

> > > >

> > > > I had the rib and chest pain along with the

> > spinal

> > > > pain

> > > > years before being diagnosed and treated for LD.

> > I

> > > > found out after beginning treatment the gall

> > bladder

> > > > I

> > > > knew didn't like rich foods, etc. was kaput, and

> > a

> > > > lot

> > > > of the reason for so much chest wall and rib

> > pain.

> > > > The

> > > > pain would be so bad it would take me to my

> > knees,

> > > > and not getting much pain medication, I would

> > use a

> > > > heating pad clutched to my chest. You might ask

> > > > about

> > > > having your gall bladder checked, there's one

> > test

> > > > they

> > > > do along with sonogram where they inject small

> > > > amount

> > > > of " stuff " don't know what it was, but it

> > stressed

> > > > the

> > > > gall bladder, and if it duplicates the pain you

> > > > have, then

> > > > chances are you don't need the gall bladder.

> > And,

> > > > they

> > > > remove them now with 3 small incisions and it's

> > day

> > > > surgery. Bentyl, is something they can give you

> > > > too, to

> > > > help. Wish I'd know years ago, I'd had the

> > thing

> > > > removed then before suffering all those years!

> > > >

> > > > Also, do you have Asthma? I found that between

> > the

> > > > gall bladder and the Asthma, I had a lot of

> > pain.

> > > > Once

> > > > I started taking the Asthma medication every 12

> > hrs.

> > > > (tablet), I also did better and was able to get

> > more

> > > > oxygen too.

> > > >

> > > > One other thing discovered by MRI after I was

> > dx'd

> > > > with the LD was that I had bulges at both

> > cervical

> > > > and lumbar spine. Seems quite a number of

> > people

> > > > with LD have this, without prior injury. Also,

> > too

> > > > many

> > > > of the Fibro people have it too. Seems a paper

> > I

> > > > read

> > > > recently did a study on Fibro people and found

> > > > something like 40% of them positive for LD.

> > > >

> > > > Wishing us all health and freedom from pain,

> > > > both physical and emotional -

> > > >

> > > > lc lott wrote:

> > > >

> > > > > From: lc lott <lclott@...>

> > > > >

> > > > > Hi all-

> > > > > Havent been around much. Dont know if it is

> > the

> > > > HERX

> > > > > from Hell or if it is just the Lyme.

> > > >

> > > > ---------------------------