Re: Another Lurker Heard From

[Guest guest]

Dear L,

Sorry to hear you're having such a rough time herxing.

I know what that's like, as we all do, so you have a lot

of friends here who will understand what your're going

through, so if you need an outlet, we're here!

I even herxed on Amoxil 3 days of taking them and at

first thought I can deal with this, not much worse than what

I'd been doing for 20 years, but on the 10th day, I changed

my tune! Do you know if your LD caught in time to be able

to cure? Sure hope so, sorry if that's a stupid question but

I don't get a chance to read all the mail.

I had the rib and chest pain along with the spinal pain

years before being diagnosed and treated for LD. I

found out after beginning treatment the gall bladder I

knew didn't like rich foods, etc. was kaput, and a lot

of the reason for so much chest wall and rib pain. The

pain would be so bad it would take me to my knees,

and not getting much pain medication, I would use a

heating pad clutched to my chest. You might ask about

having your gall bladder checked, there's one test they

do along with sonogram where they inject small amount

of " stuff " don't know what it was, but it stressed the

gall bladder, and if it duplicates the pain you have, then

chances are you don't need the gall bladder. And, they

remove them now with 3 small incisions and it's day

surgery. Bentyl, is something they can give you too, to

help. Wish I'd know years ago, I'd had the thing

removed then before suffering all those years!

Also, do you have Asthma? I found that between the

gall bladder and the Asthma, I had a lot of pain. Once

I started taking the Asthma medication every 12 hrs.

(tablet), I also did better and was able to get more

oxygen too.

One other thing discovered by MRI after I was dx'd

with the LD was that I had bulges at both cervical

and lumbar spine. Seems quite a number of people

with LD have this, without prior injury. Also, too many

of the Fibro people have it too. Seems a paper I read

recently did a study on Fibro people and found

something like 40% of them positive for LD.

Wishing us all health and freedom from pain,

both physical and emotional -

lc lott wrote:

> From: lc lott <lclott@...>

>

> Hi all-

> Havent been around much. Dont know if it is the HERX

> from Hell or if it is just the Lyme.

[Guest guest]

,

I to get that morning sickness after eating lately. When I was on

antibiotics it was due to yeast and eating carbs caused it. But I've been

off anbx's for two months now and the last few days have been hell. I don't

know,but maybe its the carbs. Lyme also causes our bodies to much acidity,

so when we eat carbs its turns to alcohol in our blood stream. Just a

thought. Maybe you should try limiting your carbohydrate intake. No

potatoes, rice, pasta or sugar. Try it for a few days and see if it helps. I

plan to start it again. The pain the last few days has been awful, don't

know if the carbs cause the pain to be worse but probably will help the

nauseousness. Good luck

Vicki

[Lyme-aid] Another Lurker Heard From

>From: lc lott <lclott@...>

>

>Hi all-

>Havent been around much. Dont know if it is the HERX

>from Hell or if it is just the Lyme. Have been having

>horrible back rib and chest spasms along with just

>feeling like crap. Feel like I have morning sickness

>every time I eat and no there is no chance that I am

>pregnant so thats out. Have been reading the posts tho

>and have wanted to answer but just cant seem to find

>the energy or the words. Taking advantage of a little

>lull tonite. Not feeling as brain dead. Still having

>pain but it is bearable tonite.

>Dabs-Saying big prayers for you that you are going to

>keep feeling as good as you are.

>Reid-You are still my inspiration to keep fighting and

>not just let the bas***ds get us down!!

>Sorry guys I tried to remember all the biggies I

>wanted to say something to in this and it came and

>went but I know you can all relate to that.

>Just wanted everyone to know that although Im not

>saying much I love you guys and you are all keeping me

>from just saying to hell with it and just crawling

>into bed and hybernating till this is over. Thanks

>all.

>Missed the conference on the 25th. Wanted to go so bad

>but knew I would never make it thru it so didnt even

>try it.

>Well Im about at my limit for sitting so better go try

>to move around and then see if I can sleep tonite.

>Once again Thanks all and big hugs to everyone.

> L(MI)37 going on 207 LOL

>

>

>=====

>

>

[Guest guest]

lisa...many time i feel like lurking.....i do not always want to be a role

model....just a catalyst.....for people to fight .....right noe i feel like

shit.....no energy.....mowed the front lawn ...maybe my wife will like

me....and put dishes in the dish washer......

did my pills and had a fe w beers today to feel like a human( yes i know it

is wrong) but how long can i stay at home ...by myself..and be human...went

to my shrink yeater day ...did not say to drink but to get out....have been

suicidal....homicidal...Z( the wife) dont want to kill anyone but have

thought about it....it sucks.....

we are starting therapy nest wed...with my old therapist....hopefully it

helps ...love her but hate her at the same time......??????....lyme sucks and

has changed everything....and i mean everything.....thats why i am passinate

about it....heas it ruined my life....i do not knowe...but it has changed it

immensly....love to all

Reid

[Guest guest]

thanks joan,,,,,,i am not proud of what i am doing but need to be out....the

4 walls cave in on me.....do just a couple.....solve the problems of the

worl(lol) and come home....once i go back on abx will stop and do

soada....hopefully nest month( 1 yr break after 8 years on.....) don not

expect miracle but who knows....

Reid

[Guest guest]

Hi ,

I know how you feel 'cos I'm feeling lousy also. I never know if it's a

Herx or just the Lyme... but I don't think a Herx can last for months!

What meds are you on now? My LLMD tried combining Doxy w/Biaxin, and I

got so sick that he discontinued the Doxy. I'm now on Biaxin/Plaquinel,

and I can tolerate that combo much better. He also has me on Celebrex

for the neck and back pain, and thankfully that is helping me.

My daughter went through the nausea after eating her 1st meal of the

day, and we never got to the bottom of it. She wasn't on abx at the

time, and it eventually resolved itself. She does get nauseous, however,

if she gets up too early without having had enough sleep.

Hang in there, and we'll lurk together!

Joan LI NY

[Guest guest]

Hi Reid.

I'm sorry to hear that you are so depressed...I understand the beers,

but getting out of the house IS a good idea...even if it's just out to

the mailbox to see the cars drive by.

As far as the therapy goes, that's really a good step. Good luck to you

and your wife. Hugs, Joan LI NY

From: RMcmur3194@...

lisa...many time i feel like lurking.....i do not always want to be a role

model....just a catalyst.....for people to fight .....right noe i feel like

shit.....no energy.....mowed the front lawn ...maybe my wife will like

me....and put dishes in the dish washer......

did my pills and had a fe w beers today to feel like a human( yes i know it

is wrong) but how long can i stay at home ...by myself..and be human...went

to my shrink yeater day ...did not say to drink but to get out....have been

suicidal....homicidal...Z( the wife) dont want to kill anyone but have

thought about it....it sucks.....

we are starting therapy nest wed...with my old therapist....hopefully it

helps ...love her but hate her at the same time......??????....lyme sucks and

has changed everything....and i mean everything.....thats why i am passinate

about it....heas it ruined my life....i do not knowe...but it has changed it

immensly....love to all

Reid

Send to -Offtopiconelist messages unrelated to lyme, please.

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[Guest guest]

Reid,

I have had both those feelings too. And when I love my husband so much

sometimes, it makes me wonder how I can ever entertain the hatred feelings.

I go back and forth from one minute to the next. Good idea to get help, good

luck and hang in there.

Vicki

Re: [ ] Another Lurker Heard From

>From: RMcmur3194@...

>

>lisa...many time i feel like lurking.....i do not always want to be a role

>model....just a catalyst.....for people to fight .....right noe i feel like

>shit.....no energy.....mowed the front lawn ...maybe my wife will like

>me....and put dishes in the dish washer......

>did my pills and had a fe w beers today to feel like a human( yes i know it

>is wrong) but how long can i stay at home ...by myself..and be human...went

>to my shrink yeater day ...did not say to drink but to get out....have been

>suicidal....homicidal...Z( the wife) dont want to kill anyone but have

>thought about it....it sucks.....

>we are starting therapy nest wed...with my old therapist....hopefully it

>helps ...love her but hate her at the same time......??????....lyme sucks

and

>has changed everything....and i mean everything.....thats why i am

passinate

>about it....heas it ruined my life....i do not knowe...but it has changed

it

>immensly....love to all

>Reid

>

>-----

[Guest guest]

--- " Joan S. " <Namkrats3@...> wrote:

> From: Namkrats3@... (Joan S.)

>

> Hi ,

> I know how you feel 'cos I'm feeling lousy also. I

> never know if it's a

> Herx or just the Lyme... but I don't think a Herx

> can last for months!

>

> What meds are you on now? My LLMD tried combining

> Doxy w/Biaxin, and I

> got so sick that he discontinued the Doxy. I'm now

> on Biaxin/Plaquinel,

> and I can tolerate that combo much better. He also

> has me on Celebrex

> for the neck and back pain, and thankfully that is

> helping me.

>

> My daughter went through the nausea after eating her

> 1st meal of the

> day, and we never got to the bottom of it. She

> wasn't on abx at the

> time, and it eventually resolved itself. She does

> get nauseous, however,

> if she gets up too early without having had enough

> sleep.

> Hang in there, and we'll lurk together!

> Joan LI NY

> Joan-

Im on Doxy 500 mg/day. I take 200 in the morning 200

in the afternoon and then 100 at night. I was off of

it for a week to do another LUAT and was on 300/day at

that point. When I went back on after the LUAT I went

back on at 500/day. Dont know if it is just too much

or if I am killing things off now and thats why I feel

so crappy.

I tried Celebrex and it worked well for a few weeks

and then quit. Switched to Relafen with the same

result. Ive also been on Ultram which does ok but

makes do weird things like sleepwalk and also makes me

feel really strange. Didnt seem like the benefit was

worth the side effects so Im now taking Motrin. Think

that might be part of my stomach problem so I am

backing off on it too and of course then the pain is

what knocks me down. My entire upper body goes into

spasms from my neck to my waist. Some days it is so

bad I have trouble breathing because the muscles are

so tight.

The reason I think this may be a Herx is because all

of this started 3 days after restarting the Doxy at

500 mg a day.

If I knew there was an end in sight I could handle it

but it just seems to get worse instead of better. I

have debated as Im sure all of us have at some point

in time just stopping everything and letting my body

rest and detox itself. But then of course there is the

fear of further damage. Just want this nightmare to be

over. I want to be able to do the basic things in life

like clean my house and be a normal person. Sorry just

having a little pity party tonite.

Hope you start feeling better soon. In the mean time

guess we can keep each other company in the land of

the lurkers.

L

> ---------------------------

[Guest guest]

--- " Vicki & Ferraro (home) "

<ferraroa@...> wrote:

> From: " Vicki & Ferraro (home) "

> <ferraroa@...>

>

> ,

> I to get that morning sickness after eating lately.

> When I was on

> antibiotics it was due to yeast and eating carbs

> caused it. But I've been

> off anbx's for two months now and the last few days

> have been hell. I don't

> know,but maybe its the carbs. Lyme also causes our

> bodies to much acidity,

> so when we eat carbs its turns to alcohol in our

> blood stream. Just a

> thought. Maybe you should try limiting your

> carbohydrate intake. No

> potatoes, rice, pasta or sugar. Try it for a few

> days and see if it helps. I

> plan to start it again. The pain the last few days

> has been awful, don't

> know if the carbs cause the pain to be worse but

> probably will help the

> nauseousness. Good luck

> Vicki

> >Vicki-

Thanks for the suggestion. Never even thought about it

maybe being my diet other than the spicy stuff and

greasy stuff. I have given those up. I am a big pasta

and potatoe eater so that may be the problem. I will

try not eating those things and see if it helps.

I know what you mean about the pain being awful. My

entire body feels like it has been run over by a

really big truck. Not just aches but severe muscle

pain like you get if you try to start working out and

overdo it. Feel like I tried the whole gym on the

first day LOL.

Thanks again for the suggestion. Ill give it a try.

Take care and hope you feel better soon as well.

L

> >

> >=====

> >

> >

>

> ---------------------------

[Guest guest]

Hi ,

So sorry you are feeling so bad, I sure can empathize with you. The rib

pains you are experiencing are a symptom many of us have at one time or

another, and they are extremely painful, the good news is they will pass.

If you have been following the list, you know I am having lots of dizziness

since late August, I was on Meclizine 25mg three times a day but I sure knew

when the drug wore off, so my doctor rx'd the patch for motion sickness.

You wear it three days, and then put another one on the other side of your

ear. It has helped me quite a bit, and I was finally able to stop the oral

Meclizine.

I do hope you feel better real soon, rest as much as you can, and ask

your doctor for something to counteract the nausea.

Hugs,

Marta NJ

Tick found in scalp, August 1996. I live in South Jersey

and my tick bite was from here. Tested positive for HME

& Lyme disease in Feb 1997. Have had 6 weeks of IV,

on oral meds for over 3 years now. Suffering from Peripheral

Neuropathy, Herniated cervical discs. Still herx monthly.

>From: lc lott <lclott@...>

>

>Hi all-

>Havent been around much. Dont know if it is the HERX

>from Hell or if it is just the Lyme. Have been having

>horrible back rib and chest spasms along with just

>feeling like crap. Feel like I have morning sickness

>every time I eat and no there is no chance that I am

>pregnant so thats out. Have been reading the posts tho

>and have wanted to answer but just cant seem to find

>the energy or the words. Taking advantage of a little

>lull tonite. Not feeling as brain dead. Still having

>pain but it is bearable tonite.

>Dabs-Saying big prayers for you that you are going to

>keep feeling as good as you are.

>Reid-You are still my inspiration to keep fighting and

>not just let the bas***ds get us down!!

>Sorry guys I tried to remember all the biggies I

>wanted to say something to in this and it came and

>went but I know you can all relate to that.

>Just wanted everyone to know that although Im not

>saying much I love you guys and you are all keeping me

>from just saying to hell with it and just crawling

>into bed and hybernating till this is over. Thanks

>all.

>Missed the conference on the 25th. Wanted to go so bad

>but knew I would never make it thru it so didnt even

>try it.

>Well Im about at my limit for sitting so better go try

>to move around and then see if I can sleep tonite.

>Once again Thanks all and big hugs to everyone.

> L(MI)37 going on 207 LOL

[Guest guest]

In a message dated 10/1/99 10:10:49 PM Eastern Daylight Time,

lclott@... writes:

<< Lyme also causes our

> bodies to much acidity,

> so when we eat carbs its turns to alcohol in our

> blood stream>>

if this statement was valid, every Lyme patient on Flagyl would be seriously

ill unless they cut their carb intake to zero, since my husband has been

eating a normal diet since starting Flagyl almost a month ago with no

" violent reaction " as possible from the combo of alcohol ingestion and

Flagyl....Carbohydrates do not turn into alcohol...b

[Guest guest]

Marta-

I tried to call my doc and got his MA. She is new and

didnt have a clue. I wasnt up to the whole explanation

about HERXing and on and on so I just told her never

mind. I see him on the 20th and will discuss

everything at that time. My stomach has settled down

since I quit taking the Motrin as well as the pain

meds. The trade off is that my back and ribs are worse

as well as my knees and elbows. When it gets

unbearable I do take my pain meds but Im not taking

them on a regular basis.

Sorry you are feeling so lousy too. Hopefully we are

both HERXing and this will be over soon and we can

have some sunny days and great chats.

Take care and hope to be back soon.

Hugs,

--- J & M McCoy <mlmccoy@...> wrote:

> From: " J & M McCoy " <mlmccoy@...>

>

> Hi ,

> So sorry you are feeling so bad, I sure can

> empathize with you. The rib

> pains you are experiencing are a symptom many of us

> have at one time or

> another, and they are extremely painful, the good

> news is they will pass.

> If you have been following the list, you know I am

> having lots of dizziness

> since late August, I was on Meclizine 25mg three

> times a day but I sure knew

> when the drug wore off, so my doctor rx'd the patch

> for motion sickness.

> You wear it three days, and then put another one on

> the other side of your

> ear. It has helped me quite a bit, and I was

> finally able to stop the oral

> Meclizine.

> I do hope you feel better real soon, rest as much

> as you can, and ask

> your doctor for something to counteract the nausea.

> Hugs,

> Marta NJ

> Tick found in scalp, August 1996. I live in South

> Jersey

> and my tick bite was from here. Tested positive for

> HME

> & Lyme disease in Feb 1997. Have had 6 weeks of IV,

> on oral meds for over 3 years now. Suffering from

> Peripheral

> Neuropathy, Herniated cervical discs. Still herx

> monthly.

>

>

> >From: lc lott <lclott@...>

> >

> >Hi all-

> >Havent been around much. Dont know if it is the

> HERX

> >from Hell or if it is just the Lyme. Have been

> having

> >horrible back rib and chest spasms along with just

> >feeling like crap. Feel like I have morning

> sickness

> >every time I eat and no there is no chance that I

> am

> >pregnant so thats out. Have been reading the posts

> tho

> >and have wanted to answer but just cant seem to

> find

> >the energy or the words. Taking advantage of a

> little

> >lull tonite. Not feeling as brain dead. Still

> having

> >pain but it is bearable tonite.

> >Dabs-Saying big prayers for you that you are going

> to

> >keep feeling as good as you are.

> >Reid-You are still my inspiration to keep fighting

> and

> >not just let the bas***ds get us down!!

> >Sorry guys I tried to remember all the biggies I

> >wanted to say something to in this and it came and

> >went but I know you can all relate to that.

> >Just wanted everyone to know that although Im not

> >saying much I love you guys and you are all keeping

> me

> >from just saying to hell with it and just crawling

> >into bed and hybernating till this is over. Thanks

> >all.

> >Missed the conference on the 25th. Wanted to go so

> bad

> >but knew I would never make it thru it so didnt

> even

> >try it.

> >Well Im about at my limit for sitting so better go

> try

> >to move around and then see if I can sleep tonite.

> >Once again Thanks all and big hugs to everyone.

> > L(MI)37 going on 207 LOL

>

> ---------------------------

[Guest guest]

Reid-

I know the love/hate feeling. Right now it just

requires too much energy to even feel so I just dont

and that is percieved as not caring by my signifigant

other. I know he is trying to deal with all this too

but telling me that I need to just do this or do that

just sends me over the edge and I just shut myself

away from him and everyone else. He has no concept of

what it is like to feel the way we feel and lose

everything we lose. Tried to expalin it but you know

how that goes.

Am back on my Doxy now so wont do the beer thing. Last

time was when I was off the abx and figured what the

hell. And with the way my stomach has been dont think

beer is on the menu anyway haha.

Take care and hang in there buddy. We all love you.

--- RMcmur3194@... wrote:

> From: RMcmur3194@...

>

> lisa...many time i feel like lurking.....i do not

> always want to be a role

> model....just a catalyst.....for people to fight

> .....right noe i feel like

> shit.....no energy.....mowed the front lawn ...maybe

> my wife will like

> me....and put dishes in the dish washer......

> did my pills and had a fe w beers today to feel like

> a human( yes i know it

> is wrong) but how long can i stay at home ...by

> myself..and be human...went

> to my shrink yeater day ...did not say to drink but

> to get out....have been

> suicidal....homicidal...Z( the wife) dont want to

> kill anyone but have

> thought about it....it sucks.....

> we are starting therapy nest wed...with my old

> therapist....hopefully it

> helps ...love her but hate her at the same

> time......??????....lyme sucks and

> has changed everything....and i mean

> everything.....thats why i am passinate

> about it....heas it ruined my life....i do not

> knowe...but it has changed it

> immensly....love to all

> Reid

>

> ---------------------------

[Guest guest]

-

Sorry it has taken so long to answer.

To answer your question about being curable the answer

unfortunatlly is no. I went over a year without a dx

ot treatment and possibly have a reoccurance vs.

reinfection from 1994. Was treated that time with Doxy

200/day for 30 days so we all know that it was

probably not curative then either even tho it was

treated within 2 weeks of my rash. Funny the same doc

that treated me last time refused to treat me this

time. Sent me on to the University.

I also considered the gallbladder possibility but the

pain is muscular and is throughout my entire upper

body. And yes I am a borderline asthmatic. Do not take

any meds regularly but do have an inhaler for acute

attacks. The muscle spasms are from my neck to my

waist on both sides. Even my doc was amazed at how

tight everything was and said he couldnt tell one knot

from another.

I think things are getting better slowly. Must be I

was having or am still having a major Herx. Hope when

the good days come the are really great because Im

looking forward to them.

Thanks again for your input. Hope you are feeling

well.

L

--- <swsftwtx@...> wrote:

> From: <swsftwtx@...>

>

> Dear L,

>

> Sorry to hear you're having such a rough time

> herxing.

> I know what that's like, as we all do, so you have a

> lot

> of friends here who will understand what your're

> going

> through, so if you need an outlet, we're here!

>

> I even herxed on Amoxil 3 days of taking them and at

> first thought I can deal with this, not much worse

> than what

> I'd been doing for 20 years, but on the 10th day, I

> changed

> my tune! Do you know if your LD caught in time to

> be able

> to cure? Sure hope so, sorry if that's a stupid

> question but

> I don't get a chance to read all the mail.

>

> I had the rib and chest pain along with the spinal

> pain

> years before being diagnosed and treated for LD. I

> found out after beginning treatment the gall bladder

> I

> knew didn't like rich foods, etc. was kaput, and a

> lot

> of the reason for so much chest wall and rib pain.

> The

> pain would be so bad it would take me to my knees,

> and not getting much pain medication, I would use a

> heating pad clutched to my chest. You might ask

> about

> having your gall bladder checked, there's one test

> they

> do along with sonogram where they inject small

> amount

> of " stuff " don't know what it was, but it stressed

> the

> gall bladder, and if it duplicates the pain you

> have, then

> chances are you don't need the gall bladder. And,

> they

> remove them now with 3 small incisions and it's day

> surgery. Bentyl, is something they can give you

> too, to

> help. Wish I'd know years ago, I'd had the thing

> removed then before suffering all those years!

>

> Also, do you have Asthma? I found that between the

> gall bladder and the Asthma, I had a lot of pain.

> Once

> I started taking the Asthma medication every 12 hrs.

> (tablet), I also did better and was able to get more

> oxygen too.

>

> One other thing discovered by MRI after I was dx'd

> with the LD was that I had bulges at both cervical

> and lumbar spine. Seems quite a number of people

> with LD have this, without prior injury. Also, too

> many

> of the Fibro people have it too. Seems a paper I

> read

> recently did a study on Fibro people and found

> something like 40% of them positive for LD.

>

> Wishing us all health and freedom from pain,

> both physical and emotional -

>

> lc lott wrote:

>

> > From: lc lott <lclott@...>

> >

> > Hi all-

> > Havent been around much. Dont know if it is the

> HERX

> > from Hell or if it is just the Lyme.

>

> ---------------------------

[Guest guest]

Bernadette,

Thanks for the clarification. I have the same understanding you do.

beth

--------------------------------------------------------------------------

infected w/ Bb in 1984 in California or Vermont

Undiagnosed bullseye rash

Low grade symptoms through 98

Late neuro symptoms 1/99

No ELISA, Western Blot equivocal w/ 4 out of 5 Bb specific bands positive

or equivocal indicative of OLD infection

Abx's: 6 wks oral doxy, 4 wks IV Rocephin, Rocephin ongoing

[Guest guest]

lisa......

yes it is hard to live with us and our baggage.......man what a

weekend,,,,,,,wanted to end it all and went on a tear........did not help the

way i felt or my marriage.......wnated to die......and guess i tried to do

myself in.......she still does not understand but knows i have mental

/physical/ conflicts i must resovle myself.....we are going to consuling on

wed....wish us luck....am thinking about doing a questionare for both of us

to fill out maybe it will help........like i have always said....the only

people who understand me are fellow lymies......but thats the way it is.....

should just live with a lymie girl i guess......yummmmmmm

Reid

[Guest guest]

In a message dated 10/4/99 11:26:24 PM, RMcmur3194@... writes:

<<she still does not understand but knows i have mental

/physical/ conflicts i must resovle myself.....we are going to consuling on

wed....wish us luck..>>

Hi Reid!

Wishing you lots of luck with the counseling!

You have been through so much individually and together,

it would be nice if you can develop a real understanding of

one another's point of view... I will be thinking of you!

{{hugs}}

Jane

[Guest guest]

In a message dated 10/4/1999 7:42:08 PM Eastern Daylight Time,

smott@... writes:

<<

Reid: You've got to be kidding!!! Who would feed us???

Lovette

>>

ROFLMAO!!!!!!!!! Well, we could all have a scheduled day to cook!

Deb-va

[Guest guest]

<<<<

Reid: You've got to be kidding!!! Who would feed us???

Lovette

>>

ROFLMAO!!!!!!!!! Well, we could all have a scheduled day to cook!

Deb-va>>

Forget that TAKE OUT!!! Deliver!!! LOL

Jane

[Guest guest]

RMcmur3194@... wrote:

>

> From: RMcmur3194@...

>

> lisa......

> yes it is hard to live with us and our baggage.......man what a

> wshould just live with a lymie girl i guess......yummmmmmm

> Reid

>

> -

Reid: You've got to be kidding!!! Who would feed us???

Lovette

[Guest guest]

Brad,

I think I read that in Dr. Adkins website and his new Revolution Diet book.

Maybe I misinterpreted. But you can check it out if you search on Dr.

Adkins. I'll look into it again also and let you know if I find anything.

Vicki

Re: [ ] Another Lurker Heard From

>From: BratDet@...

>

>In a message dated 10/1/99 10:10:49 PM Eastern Daylight Time,

>lclott@... writes:

>

><< Lyme also causes our

> > bodies to much acidity,

> > so when we eat carbs its turns to alcohol in our

> > blood stream>>

>if this statement was valid, every Lyme patient on Flagyl would be

seriously

>ill unless they cut their carb intake to zero, since my husband has been

>eating a normal diet since starting Flagyl almost a month ago with no

> " violent reaction " as possible from the combo of alcohol ingestion and

>Flagyl....Carbohydrates do not turn into alcohol...b

>

[Guest guest]

Reid-

I wish you both the best of luck with the counseling.

And yes it is hard to live with our baggage but I

guess those around us need to understand that we didnt

ask for this baggage nor do we WANT this baggage.I

have tried to stress to everyone around here that I am

not exactly having the time of my life either and that

although it may be an inconvienance or they are

expected to do more at least they have the option. I

on the other hand have to take it day by day and hope

that each new day will be bearable.

Guess I dont expect them to understand but to at least

show an effort to help ease my guilt and frustration

would be nice.

I keep reminding them that when I get upset I get

stressed out which in turn triggers the spasms which

put me right back in bed so therefore they have a

certain responsibility in this as well.

Hang in there Reid my friend and good luck on Wed. Let

us know how it goes. In the meantime know that there

are those that can and do relate and that love you no

matter what.

L(MI)

--- RMcmur3194@... wrote:

> lisa......

> yes it is hard to live with us and our

> baggage.......man what a

> weekend,,,,,,,wanted to end it all and went on a

> tear........did not help the

> way i felt or my marriage.......wnated to

> die......and guess i tried to do

> myself in.......she still does not understand but

> knows i have mental

> /physical/ conflicts i must resovle myself.....we

> are going to consuling on

> wed....wish us luck....am thinking about doing a

> questionare for both of us

> to fill out maybe it will help........like i have

> always said....the only

> people who understand me are fellow lymies......but

> thats the way it is.....

> should just live with a lymie girl i

> guess......yummmmmmm

> Reid

>

>

------------------------------------------------------------------------

> Send to -Offtopiconelist messages

> unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to

> -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or

> " normal " for

> the word " unsubscribe " ( " normal " is the opposite of

> " digest " ). Leave blank both the message and subject

> header.

>

<HR>

=====

[Guest guest]

, my LLMD has put me on Vioxx, 25mg once a day. It is an

antiinflamatory and it is working well. Although it does have a tendency

to slow the bowel down some. It is a COX-2 inhibitor as well. Lovey

On Sun, 3 Oct 1999 16:34:31 -0700 (PDT) lc lott <lclott@...>

writes:

> From: lc lott <lclott@...>

>

> Marta-

> I tried to call my doc and got his MA. She is new and

> didnt have a clue. I wasnt up to the whole explanation

> about HERXing and on and on so I just told her never

> mind. I see him on the 20th and will discuss

> everything at that time. My stomach has settled down

> since I quit taking the Motrin as well as the pain

> meds. The trade off is that my back and ribs are worse

> as well as my knees and elbows. When it gets

> unbearable I do take my pain meds but Im not taking

> them on a regular basis.

> Sorry you are feeling so lousy too. Hopefully we are

> both HERXing and this will be over soon and we can

> have some sunny days and great chats.

> Take care and hope to be back soon.

> Hugs,

>

>

> --- J & M McCoy <mlmccoy@...> wrote:

> > From: " J & M McCoy " <mlmccoy@...>

> >

> > Hi ,

> > So sorry you are feeling so bad, I sure can

> > empathize with you. The rib

> > pains you are experiencing are a symptom many of us

> > have at one time or

> > another, and they are extremely painful, the good

> > news is they will pass.

> > If you have been following the list, you know I am

> > having lots of dizziness

> > since late August, I was on Meclizine 25mg three

> > times a day but I sure knew

> > when the drug wore off, so my doctor rx'd the patch

> > for motion sickness.

> > You wear it three days, and then put another one on

> > the other side of your

> > ear. It has helped me quite a bit, and I was

> > finally able to stop the oral

> > Meclizine.

> > I do hope you feel better real soon, rest as much

> > as you can, and ask

> > your doctor for something to counteract the nausea.

> > Hugs,

> > Marta NJ

> > Tick found in scalp, August 1996. I live in South

> > Jersey

> > and my tick bite was from here. Tested positive for

> > HME

> > & Lyme disease in Feb 1997. Have had 6 weeks of IV,

> > on oral meds for over 3 years now. Suffering from

> > Peripheral

> > Neuropathy, Herniated cervical discs. Still herx

> > monthly.

> >

> >

> > >From: lc lott <lclott@...>

> > >

> > >Hi all-

> > >Havent been around much. Dont know if it is the

> > HERX

> > >from Hell or if it is just the Lyme. Have been

> > having

> > >horrible back rib and chest spasms along with just

> > >feeling like crap. Feel like I have morning

> > sickness

> > >every time I eat and no there is no chance that I

> > am

> > >pregnant so thats out. Have been reading the posts

> > tho

> > >and have wanted to answer but just cant seem to

> > find

> > >the energy or the words. Taking advantage of a

> > little

> > >lull tonite. Not feeling as brain dead. Still

> > having

> > >pain but it is bearable tonite.

> > >Dabs-Saying big prayers for you that you are going

> > to

> > >keep feeling as good as you are.

> > >Reid-You are still my inspiration to keep fighting

> > and

> > >not just let the bas***ds get us down!!

> > >Sorry guys I tried to remember all the biggies I

> > >wanted to say something to in this and it came and

> > >went but I know you can all relate to that.

> > >Just wanted everyone to know that although Im not

> > >saying much I love you guys and you are all keeping

> > me

> > >from just saying to hell with it and just crawling

> > >into bed and hybernating till this is over. Thanks

> > >all.

> > >Missed the conference on the 25th. Wanted to go so

> > bad

> > >but knew I would never make it thru it so didnt

> > even

> > >try it.

> > >Well Im about at my limit for sitting so better go

> > try

> > >to move around and then see if I can sleep tonite.

> > >Once again Thanks all and big hugs to everyone.

> > > L(MI)37 going on 207 LOL

> >

> > ---------------------------

[Guest guest]

I have a friend who avoided surgery on the GB by taking a mixture of

natural herbs, i.e. flax seeds, and other stuff which cleared up the

sludge which formed in the GB. She was actually on the operating table

when the surgeon took one last sonogram and could not find any

gallstones, where 3 days prior they had shown up! She calles this the

Holy Trinty, so it must be 3 herbs mixed together. I will try to find

out for all of you. it purges the GB. Lovey

On Sun, 3 Oct 1999 17:13:35 -0700 (PDT) lc lott <lclott@...>

writes:

> From: lc lott <lclott@...>

>

> -

> Sorry it has taken so long to answer.

> To answer your question about being curable the answer

> unfortunatlly is no. I went over a year without a dx

> ot treatment and possibly have a reoccurance vs.

> reinfection from 1994. Was treated that time with Doxy

> 200/day for 30 days so we all know that it was

> probably not curative then either even tho it was

> treated within 2 weeks of my rash. Funny the same doc

> that treated me last time refused to treat me this

> time. Sent me on to the University.

> I also considered the gallbladder possibility but the

> pain is muscular and is throughout my entire upper

> body. And yes I am a borderline asthmatic. Do not take

> any meds regularly but do have an inhaler for acute

> attacks. The muscle spasms are from my neck to my

> waist on both sides. Even my doc was amazed at how

> tight everything was and said he couldnt tell one knot

> from another.

> I think things are getting better slowly. Must be I

> was having or am still having a major Herx. Hope when

> the good days come the are really great because Im

> looking forward to them.

> Thanks again for your input. Hope you are feeling

> well.

> L

>

> --- <swsftwtx@...> wrote:

> > From: <swsftwtx@...>

> >

> > Dear L,

> >

> > Sorry to hear you're having such a rough time

> > herxing.

> > I know what that's like, as we all do, so you have a

> > lot

> > of friends here who will understand what your're

> > going

> > through, so if you need an outlet, we're here!

> >

> > I even herxed on Amoxil 3 days of taking them and at

> > first thought I can deal with this, not much worse

> > than what

> > I'd been doing for 20 years, but on the 10th day, I

> > changed

> > my tune! Do you know if your LD caught in time to

> > be able

> > to cure? Sure hope so, sorry if that's a stupid

> > question but

> > I don't get a chance to read all the mail.

> >

> > I had the rib and chest pain along with the spinal

> > pain

> > years before being diagnosed and treated for LD. I

> > found out after beginning treatment the gall bladder

> > I

> > knew didn't like rich foods, etc. was kaput, and a

> > lot

> > of the reason for so much chest wall and rib pain.

> > The

> > pain would be so bad it would take me to my knees,

> > and not getting much pain medication, I would use a

> > heating pad clutched to my chest. You might ask

> > about

> > having your gall bladder checked, there's one test

> > they

> > do along with sonogram where they inject small

> > amount

> > of " stuff " don't know what it was, but it stressed

> > the

> > gall bladder, and if it duplicates the pain you

> > have, then

> > chances are you don't need the gall bladder. And,

> > they

> > remove them now with 3 small incisions and it's day

> > surgery. Bentyl, is something they can give you

> > too, to

> > help. Wish I'd know years ago, I'd had the thing

> > removed then before suffering all those years!

> >

> > Also, do you have Asthma? I found that between the

> > gall bladder and the Asthma, I had a lot of pain.

> > Once

> > I started taking the Asthma medication every 12 hrs.

> > (tablet), I also did better and was able to get more

> > oxygen too.

> >

> > One other thing discovered by MRI after I was dx'd

> > with the LD was that I had bulges at both cervical

> > and lumbar spine. Seems quite a number of people

> > with LD have this, without prior injury. Also, too

> > many

> > of the Fibro people have it too. Seems a paper I

> > read

> > recently did a study on Fibro people and found

> > something like 40% of them positive for LD.

> >

> > Wishing us all health and freedom from pain,

> > both physical and emotional -

> >

> > lc lott wrote:

> >

> > > From: lc lott <lclott@...>

> > >

> > > Hi all-

> > > Havent been around much. Dont know if it is the

> > HERX

> > > from Hell or if it is just the Lyme.

> >

> > ---------------------------

[Guest guest]

In a message dated 10/4/1999 10:49:23 PM Eastern Daylight Time, JVSPL@...

writes:

<<

Forget that TAKE OUT!!! Deliver!!! LOL

Jane

>>

I am soooo happy that we got that all figured out!! ROFL

Deb