Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 Hey Reid, Kaylen is comming to this one too . SHes 10. I can't wait for her to meet the other kids. I can't wait to meet them either. It will be so good for them to meet other child lymies.. they need to feel like they are not alone. There is that wonderful children's lyme chat on mondays which is such a great idea.. they need more contact with other kids their age. This will be soo good for them too . hugs di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 great di....it will be a joy to see her again.....i really think it is good for children to see....and be involved with lymies or not.....even my 12 yo has been thru a lot having a dad and sis with lyme it totally changed my whole families life......group consceinse things like this i believe help our young folks... i remember when i was young a family friend had a barn fire in NY state......an old fashion barn raising was held and we went.....old and young ...rich and poor....all were there to help their neighbor....the lady that owns crane paper( they supply the us mint) who is worth $$$$ was mucking out burnt manure.....a priest..rabbi and pastor were banging in nails side by side......the church and other groups supplied meals .....it was a wonderfull experiance that i will never forget.....nor will i forget the NYC rally and i am sure gettysburg.....can't wait..... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 Hey Reid, Kaylen is comming to this one too . SHes 10. I can't wait for her to meet the other kids. I can't wait to meet them either. It will be so good for them to meet other child lymies.. they need to feel like they are not alone. There is that wonderful children's lyme chat on mondays which is such a great idea.. they need more contact with other kids their age. This will be soo good for them too . hugs di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 great di....it will be a joy to see her again.....i really think it is good for children to see....and be involved with lymies or not.....even my 12 yo has been thru a lot having a dad and sis with lyme it totally changed my whole families life......group consceinse things like this i believe help our young folks... i remember when i was young a family friend had a barn fire in NY state......an old fashion barn raising was held and we went.....old and young ...rich and poor....all were there to help their neighbor....the lady that owns crane paper( they supply the us mint) who is worth $$$$ was mucking out burnt manure.....a priest..rabbi and pastor were banging in nails side by side......the church and other groups supplied meals .....it was a wonderfull experiance that i will never forget.....nor will i forget the NYC rally and i am sure gettysburg.....can't wait..... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 , I was thinking, I type pretty fast, I could bring a laptop and try to type what is being said and you could read it. I used to be called " Speedy " and " fast fingers " . I'm not as fast as I used to be, but I bet I could catch most of it. Then we'd also have a transcript! Think about it. Vicki, Md Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Hi , I am forwarding your letter to Lovette to see if she can dig up an interpreter for you, even if she cannot, we will help you along the best we can, I agree with Reid (usually do) we speak the universal language of love, and you will feel it. I can imagine you can read lips and can get the gist of what is going on that way. Just being there even without hearing everything will be fun, I have a hearing problem and have worn a hearing aid for years, so I miss a lot too, not as much as you I am sure, but please don't let this hold you back from coming, we want to meet as many list members as possible. Hugs, Marta >From: rmcmur3194@... > >elizabeth....ur body would be welcome there......we would all love to meet >u......and we do speak a universal language.....lyme and love......please >consider it....what u will miss due to hearing the speakers will be made up >by the feelings of love and friendship......believe me ...i found that out in >the middle of NYC....with the hustle and bustle all around.....and great >anxiety on my part....lyme brain in NY....but it was great.....hope u will >join us... >Reid > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2000 Report Share Posted March 12, 2000 Hi , Sometime before we go to G-burg, if you or Connie could post the phone number of where you will be staying (Comfort Inn, I think more than one there) we will call and leave message or speak with you and let you know where we are, so we can arrange to meet. Hugs, Marta >From: lc lott <lclott@...> > >Hi all- >Just wanted to put in my 2 cents. Cant wait to see and >meet you all in Gburg. Ang and I are so excited. >Connie and I are just hoping we dont get lost LOL... >Not sure where the Comfort Inn is from everyone else >but we are hoping to be in there early Fri eve. Guess >we will have to figure out how to find everyone. >Cant wait for April!!!! > L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 i apoligize diana......truly.....u really confused me girl...as for perceptions i agree.....but they are welcome to the party even the spies .....rite lovette......they will see a group of caring people talking......maybe some dancing .....most non lymies....and yes even maybe me.....adrenalin does strange things.....that does not change the fact i am sick......no i dont look sicjk but i am......as for the spies....we i have found can tell who is one of us or not....tonites meeting i talked to a ladie.....i told her.....u do not have lyme....she was like how do u know.....i cna tell....her 16 yo daughter does....and is having a ruff time.....she cannot comprehend.....a couple of us talked to her.....gave her #'s and i invited her to lyme aid....the daughter......i told her we do understand......while this ladie has all good intentions she only knows what it is like to live with a lymie.....not to be one.......we all deal with that.....she sounded like my wife......even pat smith admitted she does not know what we go thru only in the family sense as she does not have lyme .....family does.........are u now coming diana>>>>>> Reid.. if i only dance once it will be with u....who can pass up such a deal......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 In a message dated 3/21/00 11:27:03 PM Eastern Standard Time, rmcmur3194@... writes: << who can pass up such a deal......... >> OBVIOUSLY LOTS OF PEOPLE ON THIS LIST !! LOL but thanks for your kind words. I truly do love ya ! diana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 In a message dated 3/21/00 2:32:33 AM Eastern Standard Time, lclott@... writes: << We need our docs and we need each other. There is enough anger and pain with this as it si. Lets focus on getting our goals accomplished and at the samr time trying to be as " normal " as we can. Just my two cents FWIW Love to all, L(MI) >> Of course we need our docs and eachother ! I am very sorry that you have lost your doctor. I have lost mine as well, and know how it feels . : ( I don't think anyone here is " ANGRY " , at least I hope not . I think its because we all love eachother here on this group that we feel comfortable enough to discuss things that we are concerned about. Including the fact that there may be media coverage that might not be good for us. The letter was never intended to make anyone angry, I am sorry if you took that the wrong way. I am very grateful to Lovette for all of her work. I don't think the party is a bad idea at all. I love the idea. I am just worried about the way that it was advertised on line in an open forum where who knows who will attend. I think that if it had been mentioned privately at the rally to people who we know are on our side. It would have been a little safer .It really hurts me that some of you see this as an attack on Lovette. That is so untrue. Lovette if your reading this, I hope you don't feel that way, and I apologize again for making you feel badly, if that is the case.. That is not my intention, I just feel that there was no way for me , in good conscience, to " not " mention the potential risks to many of us here who may have not thought of them on our own. Lots of us here are on Social Security Disability, and some of us even have legal suits pending ! We have to be careful. YES " WE " as Lymies understand what the Party is about, Getting together and having a chance to enjoy eachothers company, we understand about having good days and bad days, we know that we will probably spend 2-3 days in bed recouperating after a rally , as we did in NYC , for a great cause, for " OUR " cause. but the " lay " people, the media, the evil spies, and anyone else who is jealous of our progress in the past few months may look at this as a great opportunity to make us look bad. And that IS very important. We can " t afford any setbacks from people who don't understand us. Afterall, how many times have we said, and agreed that unless you have lyme disease you can't understand how we feel.? Lovette was right when she said that people look at us and tell us that we look so good when we feel so poorly. This is what I am talking about when I say that the media could misconstrue the party.They will see us out after a long rally and think that we are all full of it. In there eyes, we could look like a bunch of hippocrits, they have no idea by looking at us how we are feeling.That could read very poorly in a newspaper,magazine or tv show. Afterall we have been lucky enough to have our stories written in New York Magazine, and yes.. even the Gettysburg press. I know I said I wasn't going to continue writing about this, but it does hurt me that many of you are taking this the wrong way. Those of you who know me personally, I hope, will know that I am not trying to hurt you guys, or rain on our parade, I am truly just trying to watch out for all of us !! I would say that I am sorry for writing that post ,but I would be lying. I am not sorry , because I feel that I have made som e very valid points, I hope , after a while you guys will understand that. And.. before I close here.. I want to say that I am TRULY GRATEFUL to all of you on this list !! Everyone one of you has helped me in one way or another, just having you guys here as my second family means the world to me. I would never do anything to INTENTIONALLY try to upset you . I AM one of the good guys !! Love and hugs to all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 In a message dated 3/21/00 11:27:03 PM Eastern Standard Time, rmcmur3194@... writes: << who can pass up such a deal......... >> OBVIOUSLY LOTS OF PEOPLE ON THIS LIST !! LOL but thanks for your kind words. I truly do love ya ! diana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 My thoughts will be with everyone and I wish so much that I could be there with you!! But I'll sure be looking forward to everyone's comments afterwards ... and of course, the remarks about Reid's Kissing Booth. Y'all take lots of pictures and post them so us poor folks who have to stay home and can live vicariously through them. Have a great time!!! (TX) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 My thoughts will be with everyone and I wish so much that I could be there with you!! But I'll sure be looking forward to everyone's comments afterwards ... and of course, the remarks about Reid's Kissing Booth. Y'all take lots of pictures and post them so us poor folks who have to stay home and can live vicariously through them. Have a great time!!! (TX) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 Hi Gang - before I fall over, I just wanted to tell you that the media and the momentum are beginning to build. Just got a call from Fox T.V., so we're really rolling now. BIG TIME IS HERE, and GETTYSBURG IS THE PLACE!!!! We've got oranges and sodas/water donated by The Pub, and we've got Gettysburg College vans to take those who can't walk 2 1/2 blocks to the Chapel. Our town is ready to meet, greet and love you guys, so LET'S GET READY TO RUMBLE!!!! Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Hi Gang - before I fall over, I just wanted to tell you that the media and the momentum are beginning to build. Just got a call from Fox T.V., so we're really rolling now. BIG TIME IS HERE, and GETTYSBURG IS THE PLACE!!!! We've got oranges and sodas/water donated by The Pub, and we've got Gettysburg College vans to take those who can't walk 2 1/2 blocks to the Chapel. Our town is ready to meet, greet and love you guys, so LET'S GET READY TO RUMBLE!!!! Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 lovette, sounds like the town of g burg is behind u all the way.....counting the days...can't wait... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 Oh , This is awful, I hope that you are wrong and it is just a one day thing, keep us posted. You have a few days to recover. Hugs, Marta -----Original Message----- From: m2hmghb@... <m2hmghb@...> >I will probably not be able to attend due to what appears to be a herx asnd >the begining of a stomach bug. > > " The only people who are insane are the sane themselves " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 , I'm so sorry to hear you are not feeling well, and very disappointed I won't be able to meet you in person. But you'll be there with us in spirit and we'll let you know how it went. Good luck, talk to you soon. Vicki, Md >I will probably not be able to attend due to what appears to be a herx asnd >the begining of a stomach bug. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 Wow, Lovette, Your making me want to move to Gettysburg, what a wonderful community! And thanks for all your exhausting work. I'm not feeling very good, but so excited about Gettysburg, that it lifts my spirits. Can't wait to meet my family! Vicki, Md >Hi Gang - before I fall over, I just wanted to tell you that the media >and the momentum are beginning to build. Just got a call from Fox T.V., >so we're really rolling now. BIG TIME IS HERE, and GETTYSBURG IS THE >PLACE!!!! We've got oranges and sodas/water donated by The Pub, and >we've got Gettysburg College vans to take those who can't walk 2 1/2 >blocks to the Chapel. Our town is ready to meet, greet and love you >guys, so LET'S GET READY TO RUMBLE!!!! > >Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2000 Report Share Posted April 10, 2000 Dear Friends: Despite the weather, WE REALLY RUMBLED IN GETTYSBURG!!! My most fun was having everyone chant " TOFU, TOFU " - and the best part was seeing ALL of my Internet friends. It was really overwhelming to see all of you whom I trust with my life in person. It has made a HUGE difference in my life to put names to faces and to hugs - BTW, ALL LYMIES GIVE BIG WARM HUGS!!! I slept until 4 p.m. today [exhausted from the rally], and I'm going to bed early as well. I love you all!! Just sorry you couldn't swim in the heated pool and dance in our barn - but we had a blast anyway. Thanks to all of you for coming!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 Hi all- Like everyone else I am still recovering from the Gettysburg trip as is my daughter.. But for the first time since Ive had this awful disease all the pain and fatigue is worth every second. I am so glad we were able to make the trip.. And everything about it was awesome... It was just so wonderful being surrounded by everyone that knows exactly how we all feel and the love and caring was something I will never forget... Thanks to everyone for making this a very special time in my life. L(MI) P.S. If anyone wants to know where you can stop for ice cream between Gettysburg and MI ask Connie (Cslyme). She found them all LOL... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 Where there any t-shirts or anything available to the public to buy? I am interested if so. [ ] Gettysburg Hi all- Like everyone else I am still recovering from the Gettysburg trip as is my daughter.. But for the first time since Ive had this awful disease all the pain and fatigue is worth every second. I am so glad we were able to make the trip.. And everything about it was awesome... It was just so wonderful being surrounded by everyone that knows exactly how we all feel and the love and caring was something I will never forget... Thanks to everyone for making this a very special time in my life. L(MI) P.S. If anyone wants to know where you can stop for ice cream between Gettysburg and MI ask Connie (Cslyme). She found them all LOL... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 e mail lovette she can help u on t shirts....they are great but sizes run a little on the small side...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 In a message dated 4/26/2000 8:22:40 PM Eastern Daylight Time, smott@... writes: << www.gburgtimes.com >> Great letter from Phyllis Mervine......I had to send one too!! Happy (Maine) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Dear Friends: The Gettysburg Times has been publishing Letters to the Editor about our Lyme Rally. It recently published a letter from Phyllis Mervine. Why not write a letter to the editor and get yourselves in print?? www.gburgtimes.com Lovette Quote Link to comment Share on other sites More sharing options...
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