Guest guest Posted May 15, 1999 Report Share Posted May 15, 1999 Hi Connie... Glad to hear the supps are helping you...could the homeopathic be Lyme nosode? If it is, a nosode formula contains a homeopathic dilution of lyme and sometimes other homeos...it triggers the immune system to go after t( the nosode) and in doing so targets the lyme in your body. There is another homeopathic called an isode nosode that has helped alot of people and is free...been used for hundreds of years with great success... has had hundreds of studies done on it, been shown to kill all bacterias it has been tested on( in cultures) and has dna, minerals,amino acids, nosodes,polypeptides.immune components and much more in exactly the right combination for you. And you make it fresh several times each day! What a deal...in the european clinics it is often used without patients knowing its source and they swear by it...anyone guess where it comes from? I love riddles...Take care... Byron Re: [ ] My Vitamin/Supplement Regimen >From: Kiana Rossi <bornfree@...> > >>From: Connie Krawz <conniek@...> >>I think it is called Lyme-Nodosum....not sure if I have >>the spelling correct. Are you taking Olive Leaf Extract or Collidal >>Silver??? I think it is so important to supplement.........I only wish I >>had started all of this four years ago.......Keep up the Regiment........I >>think we are headed in the right direction....Connie nwnj > >Connie, >What are Lyme-Nodosum and OliveLeaf Extract? > >And their purposes? > >Thanks. > >Kiana (CA) >mailto:bornfree@... > ~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~ > " An idea forms into a collocation of colors and design. >My art is a documentary of my complex inner world, expressing > thoughts and feelings through colored pencils and collage. " > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 1999 Report Share Posted May 15, 1999 CONGRATULATIONS ! You guessed right ! Probably not terribly inviting to do but I have seen it turn some peoples lives around...it has the exact components necessary to stimulate the bodies immune system and health... I am not recommending it but have seen it help. Should not be done while on antibiotics or other drugs...would have to be done on a day off. If interested there is info on it on the net. Homeopathics and antibiotics are at cross purposes usually...so it is best to wait. Take care...Byron Re: [ ] My Vitamin/Supplement Regimen >From: Connie Krawz <conniek@...> > >Thanks Byron, >I have a hard time reading her writing.....it looks like Lyme Nodosum, but >I could be wrong. >I didn't give it much thought since she said, I wouldn't start taking it >until I was finished with the Zithromax........btw my Dr. is from >Russia.......this is the second Russian Alternative Dr. I've >seen.......guess we have a lot of catching up to do in this country..... > >I have a question for you though........why not take this Nodosum (sp) >while on abx? >Why should I wait?..........Is it because there really is no way of >restoring your immune system while on such heavy destructive dosages of >antibiotics?? > >In answer to your riddle..........we aren't talking urine are we???? >Connie nwnj > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 1999 Report Share Posted May 15, 1999 Hi... A nosode is designed to stimulate the immune system to target the lyme. If you have developed an aturo-immune reaction and the immune system is trying to attack something that isn't there than a nosode will make it WORSE. This is where a good doc comes in...if you have developed an auto immune reaction there are ways to help shut it down...one technique is neutralization...practiced by clinical ecologists...and there are others... On homeos ...there should not be any live lyme in any formula you use...they are dead fragments, so there is no risk of being infected with lyme. Hope your sleep improves... Best wishes...Byron Re: [ ] My Vitamin/Supplement Regimen >> >> >>>From: Kiana Rossi <bornfree@...> >>> >>>>From: Connie Krawz <conniek@...> >>>>I think it is called Lyme-Nodosum....not sure if I have >>>>the spelling correct. Are you taking Olive Leaf Extract or Collidal >>>>Silver??? I think it is so important to supplement.........I only wish >>I >>>>had started all of this four years ago.......Keep up the >Regiment........I >>>>think we are headed in the right direction....Connie nwnj >>> >>>Connie, >>>What are Lyme-Nodosum and OliveLeaf Extract? >>> >>>And their purposes? >>> >>>Thanks. >>> >>>Kiana (CA) >>>mailto:bornfree@... >>> ~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~ >>> " An idea forms into a collocation of colors and design. >>>My art is a documentary of my complex inner world, expressing >>> thoughts and feelings through colored pencils and collage. " >>> >>> >>> >>>--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 1999 Report Share Posted May 15, 1999 Inositol....is a nervine...soothes nerves...works with gaba receptor site in brain...heals mylein and nerve sheath...increases tryptophane uptake Re: [ ] My Vitamin/Supplement Regimen >From: Connie Krawz <conniek@...> > >Get it at the Health Food Store.......Inositol...600mg and if you wake up >take more....it helps with sleep.......not sure how or why....I just know >my Alt Dr. told me to try it......and its helping........I've built up >tolerances to flexeril, ambien, doral, prosom..........the list is endless >for me...........I've been on every antidepressant that has sedation as a >side-effect.....to help me with sleep......Flexeril (usually used as a >muscle relaxant) was my most successful insomnia remedy.......but I built >up a tolerance to it........as I did with all the sleeping pills and other >drugs.........I wonder if the same thing will happen with the >inositol....nite Connie nj > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 1999 Report Share Posted May 16, 1999 Val... We were having fun with the concept of " urine therapy, the other night, but has been around ,especially in Europe for a long time. There are books out on it but you can find a short blurb on it at the " BIOMEDX " site...sorry didn't keep the address. If it is done right it has helped cure very severe illness. In Europe they also make iso nosode remedies from a persons aliva( for digestive problems ), blood ( for immune system problems ) and urine ( for metabolic problems ) with great success. I mention many of the natural remedies I have seen work not as recommendations but to provide you with information that you may not have heard of. All of these natural therapies are best used as part of a program and less effective by themselves. I recommend seeing a Naturopath or Doc who is familiar with natural medicine...preferably techniques of herbalism, and natural restoration of the body. Although these techniques are used very little in this country...they are widely accepted and used in other areas of the world...with great success. Best wishes...Byron Re: [Lyme-aid] My Vitamin/Supplement Regimen >From: ValP74@... > >In a message dated 6/29/99 9:07:37 PM Pacific Daylight Time, >F.Byron@... writes: > ><< CONGRATULATIONS ! > > You guessed right ! Probably not terribly inviting to do but I have seen > it turn some peoples lives around...it has the exact components necessary to > stimulate the bodies immune system and health... I am not recommending it > but have seen it help. Should not be done while on antibiotics or other > drugs...would have to be done on a day off. If interested there is info on > it on the net. > > Homeopathics and antibiotics are at cross purposes usually...so it is best > to wait. > > Take care...Byron >> >Byron That is crazy I never heard of such a thing but by God if it would help >I would drink a gallon. do you have a web address for this kind of thing on >the net. Feel better -Val > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 1999 Report Share Posted May 16, 1999 Dear Fransea... When pain is high, almost always your body is running acid...trying to break things down in the body... you can get some nitizine paper( measues ph ) . Measure urine ph from 10-am-2pm by dipping strip in urine and reading it on the color chart they give you( try a pharmacy for strips, drug stores )...if it is below 7.4 ( don't have anything to eat 2 hours before test ) you are too acid and by juicing vegetables/or taking calcium carbonate or a product called tri-salts it should go up and your pain should go down... Take with meals...watch out that you take it away from antibiotics though( can decrease their effectiveness). Then monitor again in a few days and increase carbs/vegies up or down as needed to keep ph normal. Your digestion will improve as will your metabolism. Auto-immune reactions( tissue) can be decreased by using quercitin/bromolein( 2,000gdu strength ) 2-3 2x a day on an empty stomach( available at health food store ) Takes time but helps cut down on mast cell production. Auto-immune reactions are common and are best dealt with homeopathically in my experience...I have had several people in my office who were reacting to their own saliva! Anyway try the above and see if it helps... I understand about the need for peace and quiet. I am that way right now as well. Sometimes I just want things to be so much simplier and less stressful that I think of selling my house and moving out to a quiet place by the ocean or in nature and just resting and healing and doing what I want... Sounds good! I think I just convinced myself! Anyway..take care and talk to you soon...Byron Re: [Lyme-aid] My Vitamin/Supplement Regimen >From: SEAFRAN731@... > >In a message dated 6/30/1999 12:17:26 AM Eastern Daylight Time, >F.Byron@... writes: > >> A nosode is designed to stimulate the immune system to target the lyme. If >> you have developed an aturo-immune reaction and the immune system is trying >> to attack something that isn't there than a nosode will make it WORSE. This >> is where a good doc comes in...if you have developed an auto immune >reaction >> there are ways to help shut it down...one technique is >> neutralization...practiced by clinical ecologists...and there are others... >> >> >Hello Byron: >This paragraph caught my attention!! I know that I have some >sort of auto=immune response that goes on.....I have had a positive >ANA for years....I believe that is why I have so many rashes... >and gastric and intestinal problems....My body hyper-reacts to >many things.....I believe the spirochetes, the dead spiros, >toxins and pollutants including just the gases, reactions to new >carpet and new clothes.....just going in a dept store starts me up... > >There is also one other factor that I have finally come to realize >invokes this response in my body.....STRESS.......Ithink I have >known for a long time...but never wanted to face it. If I even >have a disagreement (or a big fight) with my hubby......I will not >be able to sleep AT ALL.....If there are other factors affecting >my life.....I will not sleep for days....I become very ill and then >develope other symptoms....arthritic, severe burning constant >pain (that makes me suicidal) and many others that I just can't >pull from my short term memory at this time!! (Oh yeah.....and >rashes!!!! ) > >I try and keep my life strife free....but its impossible when I >am married to a man going thru his midlife crisis (hes gonna be >45) I know he will mellow out in about 5 years.....but can I live >until then??? I pray alot and love peace and quite and alone >time....like tonight when I can do what I want....which is just >read the list and scan the net and watch the waltons and >listen to the birds.....while my hubby is teaching martial arts and >my son is training....and its just me and my kitty enjoying the >peace and quiet..... > >I would be interested in knowing any ideas for dealing with >this auto immune response.....the doc has given me steroids when >I have the severe herx while on IV......the first few herxs are not >too bad....but then it builds up and I feel like I will die if I do >not get relief.....the steroids calm it down in two days....but I know >the steroids are harmful.....I would rather take a natural >substance....... > >thanks for listening! >Fransea >NJ Seashore > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 1999 Report Share Posted May 16, 1999 Reading over my own text...it should read measure your ph anytime between 10am-2pm Re: [Lyme-aid] My Vitamin/Supplement Regimen > > >>From: SEAFRAN731@... >> >>In a message dated 6/30/1999 12:17:26 AM Eastern Daylight Time, >>F.Byron@... writes: >> >>> A nosode is designed to stimulate the immune system to target the lyme. >If >>> you have developed an aturo-immune reaction and the immune system is >trying >>> to attack something that isn't there than a nosode will make it WORSE. >This >>> is where a good doc comes in...if you have developed an auto immune >>reaction >>> there are ways to help shut it down...one technique is >>> neutralization...practiced by clinical ecologists...and there are >others... >>> >>> >>Hello Byron: >>This paragraph caught my attention!! I know that I have some >>sort of auto=immune response that goes on.....I have had a positive >>ANA for years....I believe that is why I have so many rashes... >>and gastric and intestinal problems....My body hyper-reacts to >>many things.....I believe the spirochetes, the dead spiros, >>toxins and pollutants including just the gases, reactions to new >>carpet and new clothes.....just going in a dept store starts me up... >> >>There is also one other factor that I have finally come to realize >>invokes this response in my body.....STRESS.......Ithink I have >>known for a long time...but never wanted to face it. If I even >>have a disagreement (or a big fight) with my hubby......I will not >>be able to sleep AT ALL.....If there are other factors affecting >>my life.....I will not sleep for days....I become very ill and then >>develope other symptoms....arthritic, severe burning constant >>pain (that makes me suicidal) and many others that I just can't >>pull from my short term memory at this time!! (Oh yeah.....and >>rashes!!!! ) >> >>I try and keep my life strife free....but its impossible when I >>am married to a man going thru his midlife crisis (hes gonna be >>45) I know he will mellow out in about 5 years.....but can I live >>until then??? I pray alot and love peace and quite and alone >>time....like tonight when I can do what I want....which is just >>read the list and scan the net and watch the waltons and >>listen to the birds.....while my hubby is teaching martial arts and >>my son is training....and its just me and my kitty enjoying the >>peace and quiet..... >> >>I would be interested in knowing any ideas for dealing with >>this auto immune response.....the doc has given me steroids when >>I have the severe herx while on IV......the first few herxs are not >>too bad....but then it builds up and I feel like I will die if I do >>not get relief.....the steroids calm it down in two days....but I know >>the steroids are harmful.....I would rather take a natural >>substance....... >> >>thanks for listening! >>Fransea >>NJ Seashore >> >>--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 In a message dated 6/29/99 9:07:37 PM Pacific Daylight Time, F.Byron@... writes: << CONGRATULATIONS ! You guessed right ! Probably not terribly inviting to do but I have seen it turn some peoples lives around...it has the exact components necessary to stimulate the bodies immune system and health... I am not recommending it but have seen it help. Should not be done while on antibiotics or other drugs...would have to be done on a day off. If interested there is info on it on the net. Homeopathics and antibiotics are at cross purposes usually...so it is best to wait. Take care...Byron >> Byron That is crazy I never heard of such a thing but by God if it would help I would drink a gallon. do you have a web address for this kind of thing on the net. Feel better -Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Hi, I am new to the list. I'm 19 years old and was diagnosed with Lyme Disease a few weeks ago. I don't know much about it but I am trying to learn. Any help would be so appreciated. Thank you, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 >From: Connie Krawz <conniek@...> >I think it is called Lyme-Nodosum....not sure if I have >the spelling correct. Are you taking Olive Leaf Extract or Collidal >Silver??? I think it is so important to supplement.........I only wish I >had started all of this four years ago.......Keep up the Regiment........I >think we are headed in the right direction....Connie nwnj Connie, What are Lyme-Nodosum and OliveLeaf Extract? And their purposes? Thanks. Kiana (CA) mailto:bornfree@... ~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~ " An idea forms into a collocation of colors and design. My art is a documentary of my complex inner world, expressing thoughts and feelings through colored pencils and collage. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 In a message dated 6/29/99 10:18:02 PM Pacific Daylight Time, bornfree@... writes: << Ask away and we all will try to answer your questions. And if you go through a bad time like I just did people will be here to support you. >> What happened? I am wondering what some of the long-term effects are, if any. I need to do some research but I'm glad for this list. <3 Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 That's what I was thinking... NO WAY but thanks anyways. Anita Re: [ ] My Vitamin/Supplement Regimen >From: Connie Krawz <conniek@...> > >Thanks Byron, >I have a hard time reading her writing.....it looks like Lyme Nodosum, but >I could be wrong. >I didn't give it much thought since she said, I wouldn't start taking it >until I was finished with the Zithromax........btw my Dr. is from >Russia.......this is the second Russian Alternative Dr. I've >seen.......guess we have a lot of catching up to do in this country..... > >I have a question for you though........why not take this Nodosum (sp) >while on abx? >Why should I wait?..........Is it because there really is no way of >restoring your immune system while on such heavy destructive dosages of >antibiotics?? > >In answer to your riddle..........we aren't talking urine are we???? >Connie nwnj > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 I'm taking a homeopathic called Lym D with the nosode. One doc recommends it..and another says that although we don't know for sure, we could possibly be reinfecting ourselves?? Any opinions?? And what are others doing for this ##@@@@ insomnia?? AHHHHHHHHHHHHHHHH!!!! Anita (yawn) Re: [ ] My Vitamin/Supplement Regimen > > >>From: Kiana Rossi <bornfree@...> >> >>>From: Connie Krawz <conniek@...> >>>I think it is called Lyme-Nodosum....not sure if I have >>>the spelling correct. Are you taking Olive Leaf Extract or Collidal >>>Silver??? I think it is so important to supplement.........I only wish >I >>>had started all of this four years ago.......Keep up the Regiment........I >>>think we are headed in the right direction....Connie nwnj >> >>Connie, >>What are Lyme-Nodosum and OliveLeaf Extract? >> >>And their purposes? >> >>Thanks. >> >>Kiana (CA) >>mailto:bornfree@... >> ~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~ >> " An idea forms into a collocation of colors and design. >>My art is a documentary of my complex inner world, expressing >> thoughts and feelings through colored pencils and collage. " >> >> >> >>--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 I'll wait 'till everyone else is cured first!! And what's inositol?? Thanks, and sweet dreams! Anita Re: [ ] My Vitamin/Supplement Regimen >From: Connie Krawz <conniek@...> > >If you knew without a doubt, you would be cured by drinking your own >urine.........you wouldn't do it??? I sure would!! (I would probably >disguise the taste......but if I knew it was a definite cure.........I've >suffered enough......I would drink it....Con >Try taking a large dose of Inositol......I just took some, and its >beginning to kick in..... > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 I take a tremdous amt of supplements too.......my C is slightly higher than yours.....my Alternative Dr. wants me to take as much as I can without side effects (like diarrhea) I'm taking two 500 tab twice a day.......(Ester-C)..she wanted me to take 3000mg...I can't handle that much 2000mg is my limit right now...and let me tell you I go regularly......first time in my entire life........I have always been constipated.....I know some people can tolerate so much more.......thats about as high as I can go right now....There is a special homeopathic supplement she wants me to take, but not until I am finished with the antibiotics.......I think it is called Lyme-Nodosum....not sure if I have the spelling correct. Are you taking Olive Leaf Extract or Collidal Silver??? I think it is so important to supplement.........I only wish I had started all of this four years ago.......Keep up the Regiment........I think we are headed in the right direction....Connie nwnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 >From: XtrixieX@... > >Hi, >I am new to the list. I'm 19 years old and was diagnosed with Lyme Disease a >few weeks ago. I don't know much about it but I am trying to learn. Any >help would be so appreciated. Thank you, Kim Hi Kim, Welcome to the list! Some good info can be found at the following sites: http://www.lymenet.org/ Dr. Burrascano's paper called The New Lyme Disease can be found here. http://mentalhealthandillness.com/lymeframes.html Dr. Bransfield's Neuropsychiatric Assessment for Lyme Disease can be found here. http://cassia.org/essay.htm Dr. Bleiweiss's page When To Suspect Lyme can be found here. Ask away and we all will try to answer your questions. And if you go through a bad time like I just did people will be here to support you. Great place to get support. Kiana (CA) mailto:bornfree@... O happy day Rocephin Came my way To fight this Lyme It is about tyme!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Hi , Olive Leaf extract .....is like a natural antibiotic it inactivates bacteria by dissolving its outer lining........the Lyme-Nodosum.....I don't know because I haven't started it yet.......but it is used in the rebuilding of your immune system after treatment of the Lyme with antibiotics......I wish I could tell you more......but won't know until I see my Dr. again and I can ask questions......Connie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Thanks Byron, I have a hard time reading her writing.....it looks like Lyme Nodosum, but I could be wrong. I didn't give it much thought since she said, I wouldn't start taking it until I was finished with the Zithromax........btw my Dr. is from Russia.......this is the second Russian Alternative Dr. I've seen.......guess we have a lot of catching up to do in this country..... I have a question for you though........why not take this Nodosum (sp) while on abx? Why should I wait?..........Is it because there really is no way of restoring your immune system while on such heavy destructive dosages of antibiotics?? In answer to your riddle..........we aren't talking urine are we???? Connie nwnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 If you knew without a doubt, you would be cured by drinking your own urine.........you wouldn't do it??? I sure would!! (I would probably disguise the taste......but if I knew it was a definite cure.........I've suffered enough......I would drink it....Con Try taking a large dose of Inositol......I just took some, and its beginning to kick in..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Get it at the Health Food Store.......Inositol...600mg and if you wake up take more....it helps with sleep.......not sure how or why....I just know my Alt Dr. told me to try it......and its helping........I've built up tolerances to flexeril, ambien, doral, prosom..........the list is endless for me...........I've been on every antidepressant that has sedation as a side-effect.....to help me with sleep......Flexeril (usually used as a muscle relaxant) was my most successful insomnia remedy.......but I built up a tolerance to it........as I did with all the sleeping pills and other drugs.........I wonder if the same thing will happen with the inositol....nite Connie nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Hi and Connie, I have taken Lyme Nosode. It's a homeopathic remedy. The theory behind homeopathy is to treat " like with like " . For example, the Lyme nosode contains Lyme, it is supposed to attract and bind to disease causing Lyme cells and nuetralize them. I do think it helped, however, I have not been able to follow up with my homeopath because she has left her practice to stay home with her new baby. I hope it works for you Connie! Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Here is some info. about nosode I ran across. I don't know if it is the same product as you are taking. http://cassia.org/ledum.htm Homeopathy for Prevention " I have been using Borrelia burgdorferi 60x nosode, a homeopathic preparation, as a preventative for Lyme disease in dogs. I give one oral dose daily for one week, then one dose a week for one month, then one dose every six months. In the past four years, I have had only two dogs our of over five hundred on this regimen contract Lyme disease; both cases readily cleared with Ledum. Webmaster's note: While I include the above information for the purposes of complete information, Bb 60x nosode is a preparation that includes live spirochete fragments. Besides the fact that this is unavailable except to licensed professionals, it is very important to understand that the taking of this preparation can be very dangerous to anyone with a lyme condition (and very possibly anyone). The introduction into a system of more spirochetes has the very strong possibility of flaring an underlying condition. (Also note that the Bb nosode is a very different product from the homeopathic preparation, Ledum, which carries no known risk.) " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Hi Kim Welcome to the list. This is a great group of people who are extremely knowledgeable on Lyme disease. How long have you had symptoms and what current treatment are you on. The key to curing this disease is getting it in it's early stages. I hope you are newly infected. Where are you from? -Val NY,LI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 hi kim u came to the right place......u will learn much here and get the support that we lymies need........welcome again Reid....nnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 kim this can be a very draining disease.....emotinally and physically......many of us suffer long term effects ....personally i have had lyme for 11 years.....good days and bad days......then july 3,1996 i became unable to work at all due to disabiling problems i have due to lyme disease.....i have been totally disabled and reieve social security since then and will most likely never be able to work again thanks to this disease and the length of time duw to ignorant doctors that it took me to get dx'd.....also lyme is a political football right now.....with two distinct sides......the insurance cos. on one side and us patients looking for agggressive(and costly) treatment on the other........it is probably the most misunderstood disease ever......and we suffer many social and persoanl problems due to the fact that we " don't look sick " whatevetr thast meens.......guess when u feel like shit u should look the same way ......i don't know ......but the truth is with lyme u may look " normal " and feel like an aching zombie from another planet.......non lymies have no idea what we live with......thats why the support from this group is very important to me and the others here......the understand because they have been there........i keeps us sane alot of times.....we can bitch to the group when a normal person would not understqand ...we are like family here an i for one love all that participate on lyme aid......bless u all my little lyme brained friends....we may be a tad nuts.......but we do have fun........hey lyme makes life extremely interesting if nothing else......no dab i am not drooling now........welcome again kim.....sit back relax and ask away .......within a few days u will know all about us......maybe more than u want...lol Reid......nnj Quote Link to comment Share on other sites More sharing options...
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