Re: Positive for the doctor

[Guest guest]

ROSA....

its not just being an rn though i was an emt......my battle with chronic lyme

for 11 years has made me realize numerous things....we with lyme must be

active in our own treatment.....doing research and educating doctors along

with the rest of the world...as med school spend a whole 8 hours on lyme at

the most.....i have also learned to fight the government(i collect ssd now)

insurance co.s and uninformed docotrs or those with " old lyme info " (steere ,

sigal circa 1989)..... as hard as this terrable disease has hit me it has had

its positives instead of being a workaholic i now can enjoy my family when i

feel up 2 it.....money is NOT EVERYTHING.....

true friends( like those on this list) stay around others don't....and a

sense of humor and faith in a higher power can get u thru almost

anything......u were lucky to trest positive.....the test are

terrible.....lyme is a clinical dx.....if and when u test neg.....do not

discontinue treatment...the recomendation is to continue for at least 2

months after cestation of SYMPTOMS.....

Reid

[Guest guest]

As far as LLMD's in Washington.......did you speak to Rita Stanley? Her

e-mail address is: ritastan@... She's the support group leader

for that area....

Or check Art Doherty's Washington website at:

<A

HREF= " http://www.geocities.com/HotSprings/Spa/6772/washington-patients.txt " >Ly

me Disease Support Groups & Patients in Washington

</A>

In a message dated 6/1/99 5:13:32 PM Eastern Daylight Time,

bornfree@... writes:

<<My goal is to educate a doctor in WA state. I found out that there are no

LLMDs there

>>

[Guest guest]

I thought there are no stages of Lyme.....? I read (somewhere, maybe in Dr

B's latest protocol?) that it all depends how many 'chetes get into you to

begin with, how long it takes them to spread throughout you....or am I wrong?

In a message dated 6/1/99 4:10:03 PM Eastern Daylight Time,

bornfree@... writes:

> It is Late Stage.

[Guest guest]

>From: RMcmur3194@...

>

>ROSA....

>its not just being an rn though i was an emt......my battle with chronic lyme

>for 11 years has made me realize numerous things....we with lyme must be

>active in our own treatment.....doing research and educating doctors along

>with the rest of the world...

>true friends( like those on this list) stay around others don't....and a

>sense of humor and faith in a higher power can get u thru almost

>anything......u were lucky to trest positive.....the test are

>terrible.....lyme is a clinical dx.....if and when u test neg.....do not

>discontinue treatment...the recomendation is to continue for at least 2

>months after cestation of SYMPTOMS.....

>Reid

Hi Reid,

This was a Lousy Lyme Doctor, : ) , who had to have her positive so she

could treat me. And then she wants to treat conservatively, 200 mg of Doxy

PER day for 30 days. Stop. Then if no improvement start again. No way,

no go. Adios!

My goal is to educate a doctor in WA state. I found out that there are no

LLMDs there. Not good news. So now I need to find one when I get back

from CA and educate them. I already know one doctor it WONT be. She has

the worst bedside manner of any doctor I have ever seen. Kind of like a

steel gurney!

I know I don't have to test positive for Lyme but my Lousy Lyme Doctor

couldn't tell that I had Lyme with my blatant symptoms. Duh!

Kiana Rossi

mailto:bornfree@...

~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~

" An idea forms into a collocation of colors and design.

My art is a documentary of my complex inner world,

expressing thoughts and feelings through

colored pencils and collage. "

[Guest guest]

>From: FIG4159@...

>

>As far as LLMD's in Washington.......did you speak to Rita Stanley? Her

>e-mail address is: ritastan@... She's the support group leader

>for that area....

>

>Or check Art Doherty's Washington website at:

>

><A

>HREF= " http://www.geocities.com/HotSprings/Spa/6772/washington-patients.txt "

Yes, to both. There are currently no LLMD in WA. Rita sends people to CA.

She recommended finding a doctor I liked in WA and train/educate them. I

think that is my only recourse at this point. I am returning to my husband

in July hopefully with enough meds for a couple of months.

Kiana Rossi

mailto:bornfree@...

~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~

" An idea forms into a collocation of colors and design.

My art is a documentary of my complex inner world,

expressing thoughts and feelings through

colored pencils and collage. "

[Guest guest]

>From: FIG4159@...

>

>I thought there are no stages of Lyme.....? I read (somewhere, maybe in Dr

>B's latest protocol?) that it all depends how many 'chetes get into you to

>begin with, how long it takes them to spread throughout you....or am I wrong?

>

>

>

>In a message dated 6/1/99 4:10:03 PM Eastern Daylight Time,

>bornfree@... writes:

>> It is Late Stage.

Hi ,

I am going by old protocol literature/information, 1993, 1994, 1995.

Kiana Rossi

mailto:bornfree@...

~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~

" An idea forms into a collocation of colors and design.

My art is a documentary of my complex inner world,

expressing thoughts and feelings through

colored pencils and collage. "

[Guest guest]

,

I think you may have saw Connie's notes from the lecture Forschner

and Dr. Lionetti had in Michigan. It said:

" There is no more “three stages” instead it is......

Acute local lyme

Acute disseminated lyme

Chronic Lyme "

Hugs,

Marta

>From: FIG4159@...

>

>I thought there are no stages of Lyme.....? I read (somewhere, maybe in Dr

>B's latest protocol?) that it all depends how many 'chetes get into you to

>begin with, how long it takes them to spread throughout you....or am I

wrong?

>

>

>

[Guest guest]

Kiana Rossi wrote:

>

> From: Kiana Rossi <bornfree@...>

>

> >From: RMcmur3194@...

> >

> >ROSA....

> >its not just being an rn though i was an emt......my battle with chronic lyme

> >for 11 years has made me realize numerous things....we with lyme must be

> >active in our own treatment.....doing research and educating doctors along

> >with the rest of the world...

>

> >true friends( like those on this list) stay around others don't....and a

> >sense of humor and faith in a higher power can get u thru almost

> >anything......u were lucky to trest positive.....the test are

> >terrible.....lyme is a clinical dx.....if and when u test neg.....do not

> >discontinue treatment...the recomendation is to continue for at least 2

> >months after cestation of SYMPTOMS.....

> >Reid

>

> Hi Reid,

>

> This was a Lousy Lyme Doctor, : ) , who had to have her positive so she

> could treat me. And then she wants to treat conservatively, 200 mg of Doxy

> PER day for 30 days. Stop. Then if no improvement start again. No way,

> no go. Adios!

>

> My goal is to educate a doctor in WA state. I found out that there are no

> LLMDs there. Not good news. So now I need to find one when I get back

> from CA and educate them. I already know one doctor it WONT be. She has

> the worst bedside manner of any doctor I have ever seen. Kind of like a

> steel gurney!

>

> I know I don't have to test positive for Lyme but my Lousy Lyme Doctor

> couldn't tell that I had Lyme with my blatant symptoms. Duh!

>

> Kiana Rossi

> mailto:bornfree@...

> ~ ~~ ~~~ ~~~~ ~~~~~ ~~~~~~ ~~~~~~~

> " An idea forms into a collocation of colors and design.

> My art is a documentary of my complex inner world,

> expressing thoughts and feelings through

> colored pencils and collage. "

>

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Dear , you go, girl. I'm educating my doc in NC and he is willing

and fully cooperating. One doc at a time! Judy

[Guest guest]

Hi Carlene,

How old is . I know of a great pediatrition for lyme. he is on long

island.

Connie, MI