Guest guest Posted May 20, 1995 Report Share Posted May 20, 1995 Sheila i know exactly how you feel... infact i am sure that we all do.. what day is the wedding on?? i work every wed night i am a pale as a ghost and have to take my morphine and vicodins ES before i can work then i am still in pain it is very very hard isleep all day before i go. but i have to do it to feed my kids i have no hubby or boyfriend. but i do put mind over matter every wed you are the only one that knows how you yourself is feeling much love and prayers in Mich oh and my kids know what disappoint ment is they been living with it for the last 2 years. Re: [Lyme-aid] Re: Still searching > Hello Vicki and Everyone > Thank you for the words of support. I am finding this disease harder and > harder to cope with on a daily basis, particularly being so far away from > people who understand and deal with lyme on a daily basis. I can't tell > you how wonderful it is to know that there are lovely people like you all to > help when things get tough - and tough it is. I'm a social worker by > profession and was used to sorting out other peoples' problems, but now I > have problems that I can't really sort out - this illness has a mind of its > own - it is devious and nasty. We have a big family wedding coming up in a > couple of weeks which is in London - 6 hours drive away - and will need to > stay in a hotel for 3 nights. What with all preparations to make, then the > travel, I'm not sure I can make it, but if I don't go, I'll be letting my > little girl down so badly. She never gets to go anywhere because I am > always too ill. My husband won't even consider leaving me to take her > alone, and I'm not sure I could handle the nights alone, they are the worst > time for symptoms. Do I sound like a whinger. Sorry. I used to be a > fighter but lost my punch somewhere along the line. > sheila > > > ------------------------------------------------------------------------ > Best friends, most artistic, class clown Find 'em here: > 1/4054/8/_/484634/_/958820468/ > ------------------------------------------------------------------------ > > is dedicated to Marta McCoy, the foundation behind what is today. > > Easy Reference: > Send a blank email message to: > > -Subscribeegroups - Subscribe to the list through email > -Unsubscribeegroups - Unsubscribe from the list > -Digestegroups - Switch your subscription to a digest format > -Normalegroups - Switch your subscription to normal > > Please send messages not related to Lyme disease to -Offtopicegroups > > Archives can be accessed at lyme-aid > > Please visit the chat room at chat/lyme-aid > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 girls....i totally agree......i like marta now take a good day for what it is......a chance to do some long neglected stuff( and usually pay for it by overdoing) .....i relish those days.....i am getting better at working thru the what are now " normal days " this charity thing i am doing has me so excited ...a sense of purpose again.....i am overdoing and paying but loving it till i fall down......check out our site www.racing4kids.org i am on the board ...and the NJ rep.....it is so much fun..... plus i can do it from home when i have the energy ( and sometimes when i don't) plus during those sleepless nites that we all know to much about love ya all........getting ready to rumble Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 vicki....cleaning is good but not to fullfilling.....i have sent so many e mails to teams for donations to my auction i am going cross eyed.....just read some mail ....some major NHRA drag racing teams are sending me stuff......soooo cool......i am so excited....even though i am having a little problem with the paper work with the state....after 3 years of bordom and self loathing i finally feel good about a few things now.....it has given me purpose....which i sorely needed....while i know i shall never have a " real job " again ....i appreciate this......now if i had a lap top i could work from bed.....instead of jumping up and down all the time due to pain......tiring but worth it Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Reid, Great site, I bookmarked it so I can read it thoroughly when I have time. I'm so proud of you! You give me hope, that one day I can do something more productive other than cleaning my house on one of my " good days " . I cleaned it completely, this weekend for the first time in months. Ant could sit at the computer and have a dump truck of dirt dumped all around him and he still wouldn't care. Lucky for me he doesn't care, because that means he doesn't get upset with me for not keeping a clean house. In fact,I think he is glad, because I used to be a neat freak and he is a classic slob! I digress, I know. But thanks for your inspiration. Vicki, Md >From: rmcmur3194@... > >girls....i totally agree......i like marta now take a good day for what it >is......a chance to do some long neglected stuff( and usually pay for it by >overdoing) .....i relish those days.....i am getting better at working thru >the what are now " normal days " >this charity thing i am doing has me so excited ...a sense of purpose >again.....i am overdoing and paying but loving it till i fall down......check >out our site >www.racing4kids.org >i am on the board ...and the NJ rep.....it is so much fun..... >plus i can do it from home when i have the energy ( and sometimes when i >don't) plus during those sleepless nites that we all know to much about >love ya all........getting ready to rumble >Reid > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hi Vicki, Glad to hear that you had such a good week! When I have a day when I feel " good " , I enjoy every minute of it!!! And when I'm feeling lousy, I remember that good days will return again, and that keeps me going. Take Care, Joan LI NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Dear Sheila: Thanks for the reality check! You got a hearty laugh out of me, something I have not done much lately. Hope you don't loose anything in the near future, but if you do, let us know about it! Sincerely, Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Sheila, you may have lost your short term memory (like a lot of us) but your sense of humor is great you could write articles like Irma Bombeck. You made me laugh, I have done the same thing! Carol F. In Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Hi Sheila, I guess Hope's post and the ID doctor she saw did not scare you off from the Mattman and Whittaker tests. I am pretty sure they would agree to test your blood, here is the site that will allow you to contact them. http://www.bowen.org/ Good luck, Hugs, Marta From: Sheila Darbyshire <sheila-e@...> > >Hello >Can the Mattman and Bowen test be accessed by anyone in countries other than >USA? >Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Marta I am so sorry that you are unable to continue as our moderator. I have been so grateful for the kind and balanced guidance you have given us since I joined the list. You have given us all hope and encouragement when we needed it badly and I for one will miss you in that role, very much. I hope we will still hear from you often as you have become a good and valued friend, and also that your health improves as the workload eases up. Thanks for all your hard work. sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Dear Sheila, hi...wnated to share withg you that my 1st lyme western blot was negative...yet showed 'significant' bands..i also did a lyme LUAT...lyme urine antigen test ...thru IGENEX labs and was defineately positve for borellia...i then was retested again with Elissa (neg) and another western blot with BBI labs...this western blot was pos. with the bands 62,64, & 66..... no doubt ...i got 'it'......i started with Biaxcin 500 mg to do the LUAT while on menus. i continued Biaxcin, as i had a sinus infection, as well as waiting for my 2 months to see a wonderful lyme-literate doctor...it kept me on the holding field. When i saw the lyme-lit doctor she up the doses of Biaxcin to 500mg QID AND she 'added' on doxcycline 100mg QID and also added FLAGLY 500mg 3x's per day. i herxed...but it was welcomed to get to improvement status.... I want to mention that i live in 'sunny' california and thru the windshield of my car the sun 'burnt' my hands from driving , FROM THE DOXYCYCLINE....do not expose yourself to the sun....i got 2nd degree burns it hurt terribly and i could'nt use my hands for a couple weeks...' Thus the doctor took me off the doxy...got burn cream...and she swithced the doxy to Amoxicillian 875mg 2 pills each 3x'sper day.....the flagly was phased out, only took it for 2 months... i will be consulting with my doctor to phase in I.V. antibiotics....which i have heard many success with ...BUT first since the blood work for the Babesia and hlia is potentially not accurate .....i am going to do a bone marrow sample from my spine just to make SURE ...i don't have babsia/erhichliosis (sp?) ....because as we lymies all know...you will never get rid of lyme if you have babesia...which must be taken into account.... i hope this helps you...this has been my experience so far....am still on the warpath to kill the spirochete enemy.... best, cheryl In a message dated 5/15/00 11:37:46 AM, sheila-e@... writes: <<H U R R A H ! ! ! After 22 years of terrible, lousy illness, my new specialist has agreed to try a low dose of doxycycline for about a month and if successful, raise the dose and continue for three months. Put the flags out, turn up the music, I'm having a party !!!!!! The tests for toxoplasmosis were negative, although I have had it at some stage in my life because I have antibodies. He wants me to have a spinal tap to exclude other demyelinating illnesses which he is concerned about. I KNOW I was infected with a nasty lyme-type bug on holiday in NE America. He says he is not concerned so much with giving it a label which may not be possible because my W Blot was negative, but trying to find something to alleviate or remove my symptoms. One problem - my GP has just diagnosed me with severe gastritis and has put me on omazaprole (spelling?) antacid which has made a big difference to the gastric pain. Its also stopped that awful knawing hunger I use to have. However, I know that this type of drug can bind with the doxycycline and limit its effectiveness. Does anyone have any opinion on whether I should stop taking it for the time being? Also, am I likely to develop Herxs on doxy? Doctor says unlikely but he has little experience of lyme - especially late lyme. What is the dose that I should be aiming for in the next few weeks. I get the feeling that 100 mg is way too low. Any advice please? By the way Reid, how I admire you and the others like you, who are dealing with their rotten illness in such a positive way, by doing something useful in their communities despite all the pain and exhaustion of lyme. I lurk each night when I can't sleep and read all your stories about your lives and support for each other, and never cease to wonder at the courage and sheer guts so many people on this list show in the face of suffering. Some of us may not contribute very often but we are lifted by your spirit and humour. sheila-e@... ------------------------------------------------------------------------ Best friends, most artistic, class clown Find 'em here: 1/4054/8/_/484634/_/958415765/ ------------------------------------------------------------------------ Send to -Offtopiconelist messages unrelated to Lyme, please. Archives can be found at: /group/lyme-aid. They are filed by month, pick a month and search those archives for subjects you are interested. Lyme chat, go to this URL: /chat/lyme-aid Should you have trouble opening the page, go back to / and make sure you are registered with a password. You can ask ONELIST to remember you, and will only have to do this one time. To unsubscribe, send email to -unsubscribeonelist You may substitute " subscribe " , or " digest " or " normal " for the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. ----------------------- Headers -------------------------------- Return-Path: <sentto-7384-23744-CherylMcQ=aol.comreturns (DOT) onelist.com> Received: from rly-ye01.mx.aol.com (rly-ye01.mail.aol.com [172.18.151.198]) by air-ye04.mx.aol.com (v73.12) with ESMTP; Mon, 15 May 2000 14:37:46 -0400 Received: from mk. (mk. [207.138.41.165]) by rly-ye01.mx.aol.com (v72.8) with ESMTP; Mon, 15 May 2000 14:37:21 -0400 X-eGroups-Return: sentto-7384-23744-CherylMcQ=aol.comreturns (DOT) onelist.com Received: from [10.1.10.38] by mk. with NNFMP; 15 May 2000 18:36:08 -0000 Received: (qmail 14329 invoked from network); 15 May 2000 18:36:04 -0000 Received: from unknown (10.1.10.26) by m4.onelist.org with QMQP; 15 May 2000 18:36:04 -0000 Received: from unknown (HELO cmailg5.svr.pol.co.uk) (195.92.195.175) by mta1 with SMTP; 15 May 2000 18:36:03 -0000 Received: from modem-62.cesium.dialup.pol.co.uk ([62.136.46.62] helo=xpiagoyn) by cmailg5.svr.pol.co.uk with smtp (Exim 3.13 #0) id 12rPij-0006XN-00 for lyme-aidegroups; Mon, 15 May 2000 19:36:01 +0100 Message-ID: <001c01bfbe99$d47b7e40$3e2e883e@xpiagoyn> <lyme-aidegroups> X-Priority: 3 X-MSMail-Priority: Normal X-Mailer: Microsoft Outlook Express 4.72.3110.5 X-Mimeole: Produced By Microsoft MimeOLE V4.72.3110.3 From: " Sheila Darbyshire " <sheila-e@...> MIME-Version: 1.0 Mailing-List: list lyme-aidegroups; contact lyme-aid-owneregroups Delivered-mailing list lyme-aidegroups Precedence: bulk List-Unsubscribe: <mailto:lyme-aid-unsubscribeegroups> Date: Mon, 15 May 2000 19:16:49 +0100 Reply-lyme-aidegroups Subject: [Lyme-aid] Re: Still Searching Content-Type: text/plain; charset=US-ASCII Content-Transfer-Encoding: 7bit >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Sheila, Congratulations on at least getting on an abx, even if such a low dose. Hopefully you will have a herx and that should prove to your doctor that you have Lyme. Can you have a LUAT test done? You can give your doctor info on it from their site: http://www.igenex.com/ . I don't know about the gastric drug, but I do agree with you that 100 mgs of Doxy is too low. How many times a day do you take it? I was on 200mgs twice a day, then raised to 400mgs twice a day, after a few months, I didn't feel like it was working any longer. It is usually prescribed for early Lyme and there are so many stronger abx's he could use. Good Luck, & if I can help in any other way, please let me know. Vicki, Md -----Original Message----- From: Sheila Darbyshire <sheila-e@...> >After 22 years of terrible, lousy illness, my new specialist has agreed to >try a low dose of doxycycline for about a month and if successful, raise the >dose and continue for three months. Put the flags out, turn up the music, >I'm having a party !!!!!! > > What is the dose that I should be aiming for in the >next few weeks. I get the feeling that 100 mg is way too low. Any advice >please? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Hi Sheila, Congrats on getting your doc to give you abx! I was started on 100mg. 2x day of Doxy by a Non-LLMD for a total of 3 weeks and really herxed. When I was fortunate enough to have found my LLMD and saw him for the 1st time, he said that Doxy is good for EARLY Lyme and Ehrlichiosis. He switched me to 500mg 2x a day of Biaxin. Since then, I have been on a number of oral abx combos (Ins.Co. won't pay for IV abx), and have found Ceftin and Flagyl may be putting a dent in this damned disease... Good Luck, Joan LI NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Dear Sheila: It is my understanding that a Lyme patient tries to take 600-800 mg. of Doxycyline daily. Have you looked at the protocols? It will help to have one in-hand when you assist your doctor off the floor, smelling salts may be warranted, too. Take what you can tolerate to blast the organism. Sincerely, Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2000 Report Share Posted May 17, 2000 In reply to Annie, Yes, I was very wary of the doc doing a spinal tap as a way of excluding lyme, but the way he described it, it sounds as if he is just wanting to exclude other demyelinating disorders, and I know he is concerned at a slight chance of MS. After all these years of crap doctors, their derogatory comments, and no medical help whatsoever, it is good to know that this doctor at least, is straight with me and trying to do what he can to help. sheila >Dear Jim: > >You make a terrific point towards the end of your response. With a Spinal >Tap, there is only a 17% chance of finding Lyme. I hope that should the >result be negative, that this information will not be used as a way to >justify a non-Lyme diagnosis, termination of Antibiotics (i.e., oral or IV) >or a referral to a Psychiatrist. Personally, I would do a Spinal Tap but >only allow it to be tested for non-Lyme testing, especially if you already >have some positive objective results. Remember, the spinal fluid and other >bodily fluids belong to you, you get to make the final disposition. Don't >let anyone intimidate you. False-negatives/false-positives will be used >against you, coming or going. Be aware! > >Sincerely, >Annie > >------------------------------------------------------------------------ >72% off on Name brand Watches! >Come and buy today and get free shipping! >1/4011/8/_/484634/_/958454885/ >------------------------------------------------------------------------ > >Send to -Offtopiconelist messages unrelated to Lyme, please. >Archives can be found at: >/group/lyme-aid. >They are filed by month, pick a month and search those archives for subjects you are interested. >Lyme chat, go to this URL: >/chat/lyme-aid >Should you have trouble opening the page, go back to / and make sure you are registered with a password. You can ask ONELIST to remember you, and will only have to do this one time. >To unsubscribe, send email to -unsubscribeonelist >You may substitute " subscribe " , or " digest " or " normal " for >the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 In a message dated 00-05-18 18:41:13 EDT, you write: << I have been on doxycycline for only a week and only at 100 mg a day, but it seems to be aggravating the gastritis I developed after using NSAIDS for several years. (I don't take them any more) I am taking an antacid tablet at night and the doxy in the morning to try to avoid discomfort, but its pretty awful. does anyone else have symptoms like this. >> Dear Shelia, YES! Daughter had these symptoms for 1-2 yrs before being dxd with lyme & co-infections. What we found to work like MAGIC was the DGL (stands for deglycerinated licorice - it's deglycerinated, so that it does not raise blood pressure - as licorice sometimes does.). If interested any health good store should have it. Slowly chew 3 tablets (licorice taste) - 3 times per day - about 20-30 min before meal. This actually rebuilds mucosal lining in stomach. VERY common to have what you & daughter experience(d) - after anti-inflammatories. It is important to chew very slowly, as the saliva reacts in some way with the DGL (about $12 per bottle, BTW), to set things in motion. This we found after many expensive tests, over 1 yr on Prilosec, anti-acids, etc. She used this treatment about 1 yr ago and has never had this problem again! VBG! Hats off to Dr. Murray! LEarned of this from a free flyer in health food store - written by a Dr. Murray (real genius, this doc - has written about 30 books). If you have trouble finding this flyer, just let me know, can probably find 1 & mail it to you. Blessings, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 Dear Chris: VBG = ? Does the flyer give the background/mechanism of how DGL works? Doc Weiss is having a hard time taking his meds (as probably most people on the list doing active treatment). I have yet to start eradicating the Lyme, I hope I'm finishing up with the Babesia treatment and am getting a confirmatory BMB soon. My turn is next! Don't want to bother you with requesting a hardcopy needelessly. Sincerely, Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 Hello Vicki and Everyone Thank you for the words of support. I am finding this disease harder and harder to cope with on a daily basis, particularly being so far away from people who understand and deal with lyme on a daily basis. I can't tell you how wonderful it is to know that there are lovely people like you all to help when things get tough - and tough it is. I'm a social worker by profession and was used to sorting out other peoples' problems, but now I have problems that I can't really sort out - this illness has a mind of its own - it is devious and nasty. We have a big family wedding coming up in a couple of weeks which is in London - 6 hours drive away - and will need to stay in a hotel for 3 nights. What with all preparations to make, then the travel, I'm not sure I can make it, but if I don't go, I'll be letting my little girl down so badly. She never gets to go anywhere because I am always too ill. My husband won't even consider leaving me to take her alone, and I'm not sure I could handle the nights alone, they are the worst time for symptoms. Do I sound like a whinger. Sorry. I used to be a fighter but lost my punch somewhere along the line. sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 Hi Sheila, Thanks for the good advice, I did not think of heat or ice, I have all kinds of contraptions that I can try. Used to use them mostly for my neck. I need to make an appt. with an orthopedic doctor to get good splints for my hands, I am using one from a long time ago that goes right up to the elbow, too bulky but it does keep the wrist still. I must take it off to type though. I hate to call my doctor for another referral for the orthopedic doctor, he sure isn't making any money off of me with the HMO plan that I have, but this is getting too annoying, may as well make it while I have my husband available to take me. I appreciate your kind words, you give me way too much credit, but I will stay involved with the list and type when I can. Hugs, Marta From: Sheila Darbyshire <sheila-e@...> >Dear Marta >I miss hearing your wise and kindly messages on the lyme group. I too get >bad carpal tunnel particularly in my left arm. I have a wheat bag which can >be heated in the microwave or chilled in the freezer. It is wide enough >(about 6 inches) to rest the arm on and long enough (about 16 inches) to >wrap around the affected limb and is really soothing. I prefer to heat it >as I think this gives maximum relief to the hand. I also have >professionally made wrist braces which I use only when the condition is >going through a bad spell. The support is underneath the wrist in the form >of a padded metal strip and the brace is connected by velcro strips. It >allows the wrist to rest completely while the fingers are free to move as >usual. I know they are not very glamorous, but they allow the inflammation >in the joint to disperse and remove the pressure on the nerve. I hope you >find some relief - it is very painful I know. If I wear mine, I can type >and do patchwork, although holding a pencil is a little tricky. >sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 CTS: i forgot to that ice and heat are always good remidies always....i put ice /heat on the hands and wrist with the wrist guard i bought at the drug store.... and these well made ...well design wrist guards are made so you can where them and type and eat and drive...able to use your hands....it's no big deal....it is easy and effective... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Neurontin is an anti-convulsant used to treat seizure disoredrs. I think some are trying this and it seems the brain can seizure from the Lyme and this helps. KIM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Dear Sheila: I have to rush out the door...are you aware that certain Lyme protocols state that 600-800mg should be taken? I believe that people with acne take more than 100mg daily. For your best interests, please look up some of the protocols that are written/established. At this rate, you could end up a " lifer, " which I think anyone would ideally try to avoid the maintenance route. Sincerely, Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 <snip>. I am taking omazeprole antacid for the stomach pain, but really need something for the other pain as well. My GP says the pain under my shoulder blades and under both sides of my ribs is nothing to do with gallbladder disease or gastritis. She has no idea what may be causing it. I have heard people in the group talk about Neurontin. What is this and can anyone say whether it is useful for muscle, joint and nerve pain. Are there any serious side effects that should make me think twice about using it? sheila ---------------------------------------- Same thing happened to me Sheila. Stomach could not tolerate non-steriodial pains meds, plain tylenol didn't work. Ended up on Tylenol #3 which had codeine in it. I think the back pain around the middle ribs is mainly muscle pain and sometimes this spreads down into lower abd. area. Flexeril really helps these muscle groups that feel like they are in contraction a lot of the time. Can't stand something binding at all around my mid area either. This has passed but I still have back problems. Helps to take pain med on a regular schedule and rest periods. I know what works for some may not work for others so you play around to find what does work. Take care, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2000 Report Share Posted May 30, 2000 Good for you Sheila that you could come back at that doctor. I laughed when I saw the syphilis info, not really funny one bit, but I thought yeah, go get em! I don't think I ever think fast enough in situations like that and then I come home and go over what I should have said and done. I think you did pretty good. It is pitiful that doctors won't take time to learn or use it as an excuse. Maybe some over your way need to be summoned to court? Or is that even possible in the health care system you have? Thank heavens you have your little one to keep you going! Are you anywhere near Somersetshire? Somerset Co? I do genealogy, well I did but slowed done trying to keep up with LD activism. Anyway my grandma folks originated in that area. Petheram. I some day would like to come over and see that area. People have been so nice to send me pictures of the church and some of the old tombstones of ancestors. Really neat. It is a nice diversion from LD thinking. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Hello Barb, Sorry, I am at the other end of Britain - in the cold north of the Peak District. I hear Somerset is beautiful, orchard country, where I would love to visit someday. Thank you for responding. A friendly voice is much needed at the moment. sheila >Are you anywhere near Somersetshire? Somerset Co? I do genealogy, well I >did but slowed done trying to keep up with LD activism. Anyway my grandma >folks originated in that area. Petheram. I some day would like to come over >and see that area. People have been so nice to send me pictures of the >church and some of the old tombstones of ancestors. Really neat. It is a >nice diversion from LD thinking. > >Barb > > >------------------------------------------------------------------------ >Hot off the press- summer's here! >School's out and it's sizzling hot. Whether you're planning a >graduation party, a summer brunch, or simple birthday party, >shop GreatEntertaining.com before your next celebration. >1/4473/8/_/484634/_/959744439/ >------------------------------------------------------------------------ > >Many thanks to our founder and friend, Marta McCoy, for making what it is today. > > >Easy Reference: >Send a blank email message to: > > -Subscribeegroups - Subscribe to the list through email > -Unsubscribeegroups - Unsubscribe from the list > -Digestegroups - Switch your subscription to a digest format > -Normalegroups - Switch your subscription to normal > >Please send messages not related to Lyme disease to -Offtopicegroups > >Archives can be accessed at lyme-aid > >Please visit the chat room at chat/lyme-aid > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 In a message dated 00-06-06 18:13:53 EDT, you write: << I promised myself that from now on, I go in to each consultation armed with knowledge and the support of this group, and hopefully that will see me through. Take Care. Sheila >> Dear Marta & Sheila, MARTA - so glad to see you posting. I think of you & pray for you ( & ALL) EVERY DAY! Sheila - WAY TO GO! I do the same thing - armed with info - most docs ( & vets) don't like it - even when you print them a copy with site references - but so be it. Medicine is changing for the better because we are all more informed about our treatments. After all - it is YOUR body & YOU are paying DOC to treat you - not the other way around! VBG! (Sometimes they get confused on this issue...) So - the choices should be YOURS - not DOCS! Blessings, Chris Quote Link to comment Share on other sites More sharing options...
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