Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Dear Sheila: Hi! I was not implying that England was not modern but rather about the coincidence of my buddy being one and the same. If I read the situation correctly, I believe that he is justifiably at his ropes end. Like many of us, he has been there and done it to the 10th power. Personally I will never go to another CFIDS/FMS/ME support group again, as long as I live. They are depressing, hopeless and ridiculous as they are about an umbrella of symptoms, nothing more. It would be like going back to square one. Granted, I have spent an inordinate amount of personal time and energy converting CFIDS people to Lyme. I know that by doing this I am a harbinger of hope, cure/treatment, return to an improved quality of life and greater numbers so that the community is properly represented. My suggestion for anyone that cannot find a LLD is (1) cultivate a local doctor (Easy to say -- NOT) or (2) create a long distance doctor/patient relationship (Easy -- NOT). If there are any other options I'm missing, please let me know. By the time most people figure " it " out, they are in an acute/late stage which has escalated to a life/death situation. Considering Lyme is diagnosed by " clinical diagnosis " and the CDC considers labwork a non-issue, treatment becomes empirical. With a treatment trial (4-28 days), if the Herxheimers present -- BINGO! Annie from Los Angeles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Dear Sheila: Hi! I was not implying that England was not modern but rather about the coincidence of my buddy being one and the same. If I read the situation correctly, I believe that he is justifiably at his ropes end. Like many of us, he has been there and done it to the 10th power. Personally I will never go to another CFIDS/FMS/ME support group again, as long as I live. They are depressing, hopeless and ridiculous as they are about an umbrella of symptoms, nothing more. It would be like going back to square one. Granted, I have spent an inordinate amount of personal time and energy converting CFIDS people to Lyme. I know that by doing this I am a harbinger of hope, cure/treatment, return to an improved quality of life and greater numbers so that the community is properly represented. My suggestion for anyone that cannot find a LLD is (1) cultivate a local doctor (Easy to say -- NOT) or (2) create a long distance doctor/patient relationship (Easy -- NOT). If there are any other options I'm missing, please let me know. By the time most people figure " it " out, they are in an acute/late stage which has escalated to a life/death situation. Considering Lyme is diagnosed by " clinical diagnosis " and the CDC considers labwork a non-issue, treatment becomes empirical. With a treatment trial (4-28 days), if the Herxheimers present -- BINGO! Annie from Los Angeles Quote Link to comment Share on other sites More sharing options...
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