Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Sharon: You are playing catch up! Thanks for te information. I only have one CI, but my old body likes to sleep on that side. I have found that a memory foam matress and not using a pillow helps. That way nothing touches the CI. -- Nan In a message dated 8/22/2005 12:58:11 AM Mountain Standard Time, twin_sharon@... writes: ....Sleeping with bilaterals...I had both ears done at the same time. I stayed in a recliner for the first 4 or 5 weeks because I had a lot of drainage problems before surgery. In the beginning I would go to sleep with my head straight but I would wake up on one side. I learned to use a pillow under my head and another one longways on the side of my face. If I woke up again in any pain I would change the face pillow to the other side. It was harder when I returned to my own bed because I can't sleep on my back. I would sleep with the palm of my hand under the side of my face, in front of my ear. Sometimes I would wake up with my hand under the CI and would be sore. I would change sides until the soreness left, usually just the next night. I know I am very lucky with my CI's. I didn't have as much pain as I thought I would. Implanted December 1988, Activated January 1989 Legally blind most of my life Totally deaf for part of my life Nan Rosen _www.rosetwig.com_ (http://www.rosetwig.com/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Sharon, It's good to hear from you.. I think summer in the states has left quite a few people feeling more than a little behind..LOL but it's great that so many of us are now able to enjoy these months hearing so many wonderful sounds. Just wanted to check and see how Twin is coming along. She should be having her activation before too long shouldn't she? I won't make this a long post because I know you are trying to catch up, but it's good to know you are still out there and glad to see your post. Hugs, Silly MI In , sharon myers <twin_sharon@y...> wrote: > Multitasking because I am behind. > > > Sharon Myers > Bialteral CI's > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 It is probably the same stuff, but it is soft enough that I can sleep without a pillow and when I do that nothing touches the implant area. If you need your head elevated on a pillow, this will not work for you, but this is one way to sleep without pressure on the implant. My mattress is a two inch thick pad put down over a firm regular matress. It works because you sink into the foam a bit and it conforms to your shape. (I sound like a matress ad ... grin) -- Nan In a message dated 8/22/2005 1:42:45 PM Mountain Standard Time, wdywms@... writes: Nan, I have gried a memory foam pillow and my CI still hurt. Is the mattress any different from the pillow? Implanted December 1988, Activated January 1989 Legally blind most of my life Totally deaf for part of my life Nan Rosen _www.rosetwig.com_ (http://www.rosetwig.com/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Nan, I have gried a memory foam pillow and my CI still hurt. Is the mattress any different from the pillow? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Nan, Because of gastric problems due to chemo, I am to sleep with head elevated on a certain foam that gradually slopes down to the mattress. Perhaps I could cover this foam, along with the bed mattress, with this memory foam pad. 's fad pillow with tiny pellets has been an improvement over other pillows I have tried to ease CI discomfort when sleeping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 : It might be worth a try. The trick with the foam is that without a pillow I slee[ with the side of my face and forehead on the pad and not on my ear. -- Nan In a message dated 8/22/2005 7:22:04 PM Mountain Standard Time, wdywms@... writes: Nan, Because of gastric problems due to chemo, I am to sleep with head elevated on a certain foam that gradually slopes down to the mattress. Perhaps I could cover this foam, along with the bed mattress, with this memory foam pad. 's fad pillow with tiny pellets has been an improvement over other pillows I have tried to ease CI discomfort when sleeping Implanted December 1988, Activated January 1989 Legally blind most of my life Totally deaf for part of my life Nan Rosen _www.rosetwig.com_ (http://www.rosetwig.com/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Hi Sharon! Due to having several of my nieces and nephews stay with me the past week, I'm playing catch up with the forum so I just now read your question to me. It's a good question and one that I periodically think about. I have always wondered what it's like to hear out of both sides of my head. I have never ever heard via my right ear and had a profound loss in my left ear that was aidable from the age of 6 until the age of 39 when I lost the bulk of the rest of the aidable muffleness. I am fascinated each time someone shares what it's like to be bilateral. I'm eagerly looking forward to following Flash as she gets her other ear done. But, would I ever get my other ear done? At this time, the answer is no; for several reasons. 1) My dad and siblings are not in support of me going through it again and I don't blame them. Dealing with me the first 12 weeks was not always easy. And I would need their support to do it again. 2) We are all so thrilled with where I am today with my CI. It's the best hearing I've had in my whole life and I'm very much in awe with what my CI has given me in just 32 months of being hooked up. 3) It took me 14 months to feel good again after my surgery and I'm just not ready to deal with it all over again should I have the same outcome following another CI surgery. I will tell you this though. If the vision in my left eye ever worsens then I will round up the gang and tell them it's time to get the other ear done. But, right now I'm pretty busy getting my life back together. I'm rejoining the workforce this week after being out of it too long due to hearing and vision problems. I am looking forward to putting my Early Childhood Teaching Assistant License to use by starting a new position at my local elementary school as a Reading Aide. It's a dream for me that I have had to put on hold for too long. Who knows what the future has in store. Maybe someday I will know first hand what it's like to hear out of both sides of my head. If it does not happen, that's fine. I'm very happy with how I'm hearing these days. Good luck to all of you who recently joined this group. Best wishes to all of you who are facing surgery and hook up. May your surgery be a success and your recovery smooth. And may your hook up day be a happy one. And my very best wishes go to all of you who are still struggling with the CI. May you someday soon have that " Ahhh, this is nice, map! " Patti Surgery Day 11/25/02 (What A Day!) Hook Up Day BWP 1/2/03 (A Happy Day!) 3G 1/31/03 (An Even Happier Day!) > > " Patti/Velma....Each time I read about your surgery and recovery I think how lucky I was to only get real dizzy one time, especially since I had both ears done at the same time. I do have a question....Knowing what you went through with the first surgery and how well you are hearing now, would you consider having the other ear done? > Sharon " > > > > --------------------------------- > Start your day with - make it your home page > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 And speaking of multitasking, I've realized lately that I *am* multitasking again. For a while I couldn't go a few seconds without forgetting an intention. I'd go from one room to another, really intending to remember why I was going into the other room, and by the time I turned the corner the thought would be gone. There were times I just screamed in frustration, and many times commented, " Brain damage is not fun, " and " I hate Lyme " (and when I was this ill, I was often dropping things all over the place, so it seems motor skills, along with various other abilities and functions, may have been vacationing with multitasking skills - I hope *they* were having fun - I wasn't). Anyway, the return of multitasking is a recent improvement for me, and goes hand in hand with general improvement on the herbals. So besides sharing a milestone of sorts, I also want those of you whose multitasking abilities have gone on vacation, and are not yet showing signs of returning, to know the herbals can make it better. Stick with Buhner and your multitasking abilities will get bored, trust me, and come running back to you some day begging to be put to work. Ann In a message dated 2/21/07 12:01:47 PM, Grpinfo@... writes: > > I hope I'm just doing too much multi-tasking this week, rather than having a > brain flare! > > Ann ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Thanks Selma! Congrats on your immprovement, too! Yes, I *will* continue to post on improvement. I don't have much fatigue anymore. At least not really bad. I haven't tried any long hikes lately, though. I, too, feel like I could have more improvement on memory. Learning a language is definitely a wonderful way to grow your brain :-). I totally relate on the psyche/psychic wounds, and also the social healing. Both, for me, are much like you said. I feel like I'm partly a new person, from the growth Lyme allowed me (though it's been *very* difficult at times). Maybe we needed to be away from some people and things, to have room to grow. And the " hole " in our lives is actually what is leading to us being more " whole " than before. I'm glad you're here, too :-) Ann In a message dated 2/21/07 6:27:39 PM, hardynaka@... writes: > Glad to hear that, Ann. Congrats!!! > > I guess multitasking was one of the first things I noticed when I > first started thinking there was a way out from lyme. > > It will only get better !!! When you totally forget you're > multitasking, it means you really got it! > > Do you still have fatigue sometimes? Fatigue is the same, we realize > we don't have much of it, then it gets only better and better. Less > moments with fatigue, less days, less weeks. Until, I hope, we won't > think about fatigue anymore! Not my case yet, as it can come with > excess (wine, lack of sleep, toxin building up...). > > I'm still fighting now some memory problems. I guess I am very rusty, > I don't feel I can memorize things as fast as before (I'm learning > German again). It still takes me longer to learn than before lyme, I > feel. I hope it's just from rust, not from permanent damage! > > Hope you continue posting about your improvement! H > > Have you also passed through a pshychological process after your body > felt somewhat healed? I mean, I felt like I first needed to heal my > body, and when it happened (to an extent), I realized I had deep > pshychological wounds and had to deal with that, because wounds were > very open. I guess not all will pass through it though, if you hadn't > a sort of near death experience (with denial of death). > > It's strange to me that pshycho wounds were there all the time, but I > didn't have to deal with it while dealing with a very sick body. Not > consciously at least. I guess we all have a self-protective mechanism > to avoid total collapse. It's like I just put the problem away so > that I could survive, then when I got that body surviving 'well', the > problem just jumped in front of me again and said: " you got to look > at me NOW! " > > Now I'm kind of healing 'social' wounds too... I feel I'm struggling > to coming back to a healthy social life again, work, friends, my > previous interests... It's like there's a HOLE in between my previous > life, LYME, then my life again now. > > Really feeling like I'm coming out of shells. Like pealing the onion. > It's unbelievable what a disease can do to a person. > > Glad there are people like you to share your healing experiences! > > Selma > > ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Haha Ann - I hear ya. My poor computer cant keep up with me now. I know I am waaay over multi-tasking when the 15-20 windows start flashing from one to the other. That means I must close 2-3 down and get my butt back to work, yell at the kids, and talk to customers all in one quick swing - yeeee haaaaw - here we go now > > And speaking of multitasking, I've realized lately that I *am* multitasking > again. > > For a while I couldn't go a few seconds without forgetting an intention. I'd > go from one room to another, really intending to remember why I was going into > the other room, and by the time I turned the corner the thought would be > gone. There were times I just screamed in frustration, and many times commented, > " Brain damage is not fun, " and " I hate Lyme " (and when I was this ill, I was > often dropping things all over the place, so it seems motor skills, along with > various other abilities and functions, may have been vacationing with > multitasking skills - I hope *they* were having fun - I wasn't). > > Anyway, the return of multitasking is a recent improvement for me, and goes > hand in hand with general improvement on the herbals. > > So besides sharing a milestone of sorts, I also want those of you whose > multitasking abilities have gone on vacation, and are not yet showing signs of > returning, to know the herbals can make it better. Stick with Buhner and your > multitasking abilities will get bored, trust me, and come running back to you some > day begging to be put to work. > > Ann > > > In a message dated 2/21/07 12:01:47 PM, Grpinfo@... writes: > > > > I hope I'm just doing too much multi-tasking this week, rather than having a > > brain flare! > > > > Ann > > > ************************************** > AOL now offers free email to > everyone. Find out more about what's free from AOL at http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Glad to hear that, Ann. Congrats!!! I guess multitasking was one of the first things I noticed when I first started thinking there was a way out from lyme. It will only get better !!! When you totally forget you're multitasking, it means you really got it! Do you still have fatigue sometimes? Fatigue is the same, we realize we don't have much of it, then it gets only better and better. Less moments with fatigue, less days, less weeks. Until, I hope, we won't think about fatigue anymore! Not my case yet, as it can come with excess (wine, lack of sleep, toxin building up...). I'm still fighting now some memory problems. I guess I am very rusty, I don't feel I can memorize things as fast as before (I'm learning German again). It still takes me longer to learn than before lyme, I feel. I hope it's just from rust, not from permanent damage! Hope you continue posting about your improvement!! Have you also passed through a pshychological process after your body felt somewhat healed? I mean, I felt like I first needed to heal my body, and when it happened (to an extent), I realized I had deep pshychological wounds and had to deal with that, because wounds were very open. I guess not all will pass through it though, if you hadn't a sort of near death experience (with denial of death). It's strange to me that pshycho wounds were there all the time, but I didn't have to deal with it while dealing with a very sick body. Not consciously at least. I guess we all have a self-protective mechanism to avoid total collapse. It's like I just put the problem away so that I could survive, then when I got that body surviving 'well', the problem just jumped in front of me again and said: " you got to look at me NOW! " Now I'm kind of healing 'social' wounds too... I feel I'm struggling to coming back to a healthy social life again, work, friends, my previous interests... It's like there's a HOLE in between my previous life, LYME, then my life again now. Really feeling like I'm coming out of shells. Like pealing the onion. It's unbelievable what a disease can do to a person. Glad there are people like you to share your healing experiences! Selma > > And speaking of multitasking, I've realized lately that I *am* multitasking > again. > Quote Link to comment Share on other sites More sharing options...
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