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Sharon:

You are playing catch up!

Thanks for te information. I only have one CI, but my old body likes to

sleep on that side. I have found that a memory foam matress and not using a

pillow helps. That way nothing touches the CI.

-- Nan

In a message dated 8/22/2005 12:58:11 AM Mountain Standard Time,

twin_sharon@... writes:

....Sleeping with bilaterals...I had both ears done at the same time. I

stayed in a recliner for the first 4 or 5 weeks because I had a lot of

drainage problems before surgery. In the beginning I would go to sleep with my

head straight but I would wake up on one side. I learned to use a pillow under

my head and another one longways on the side of my face. If I woke up again in

any pain I would change the face pillow to the other side. It was harder when

I returned to my own bed because I can't sleep on my back. I would sleep

with the palm of my hand under the side of my face, in front of my ear.

Sometimes I would wake up with my hand under the CI and would be sore. I would

change

sides until the soreness left, usually just the next night. I know I am very

lucky with my CI's. I didn't have as much pain as I thought I would.

Implanted December 1988, Activated January 1989

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

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Sharon,

It's good to hear from you.. I think summer in the states has left

quite a few people feeling more than a little behind..LOL

but it's great that so many of us are now able to enjoy these months

hearing so many wonderful sounds.

Just wanted to check and see how Twin is coming along. She should be

having her activation before too long shouldn't she?

I won't make this a long post because I know you are trying to catch

up, but it's good to know you are still out there and glad to see your

post.

Hugs,

Silly MI

In , sharon myers <twin_sharon@y...> wrote:

> Multitasking because I am behind.

>

>

> Sharon Myers

> Bialteral CI's

>

>

> __________________________________________________

>

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It is probably the same stuff, but it is soft enough that I can sleep

without a pillow and when I do that nothing touches the implant area. If you

need

your head elevated on a pillow, this will not work for you, but this is one

way to sleep without pressure on the implant.

My mattress is a two inch thick pad put down over a firm regular matress.

It works because you sink into the foam a bit and it conforms to your shape.

(I sound like a matress ad ... grin)

-- Nan

In a message dated 8/22/2005 1:42:45 PM Mountain Standard Time,

wdywms@... writes:

Nan,

I have gried a memory foam pillow and my CI still hurt. Is the mattress any

different from the pillow?

Implanted December 1988, Activated January 1989

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

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Nan,

Because of gastric problems due to chemo, I am to sleep with head elevated

on a certain foam that gradually slopes down to the mattress. Perhaps I

could cover this foam, along with the bed mattress, with this memory foam

pad. 's fad pillow with tiny pellets has been an improvement over other

pillows I have tried to ease CI discomfort when sleeping

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:

It might be worth a try. The trick with the foam is that without a pillow I

slee[ with the side of my face and forehead on the pad and not on my ear.

-- Nan

In a message dated 8/22/2005 7:22:04 PM Mountain Standard Time,

wdywms@... writes:

Nan,

Because of gastric problems due to chemo, I am to sleep with head elevated

on a certain foam that gradually slopes down to the mattress. Perhaps I

could cover this foam, along with the bed mattress, with this memory foam

pad. 's fad pillow with tiny pellets has been an improvement over other

pillows I have tried to ease CI discomfort when sleeping

Implanted December 1988, Activated January 1989

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

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  • 2 weeks later...

Hi Sharon!

Due to having several of my nieces and nephews stay with me the

past week, I'm playing catch up with the forum so I just now read

your question to me. It's a good question and one that I

periodically think about.

I have always wondered what it's like to hear out of both sides of

my head. I have never ever heard via my right ear and had a profound

loss in my left ear that was aidable from the age of 6 until the age

of 39 when I lost the bulk of the rest of the aidable muffleness.

I am fascinated each time someone shares what it's like to be

bilateral. I'm eagerly looking forward to following Flash as she

gets her other ear done. But, would I ever get my other ear done?

At this time, the answer is no; for several reasons. 1) My dad and

siblings are not in support of me going through it again and I don't

blame them. Dealing with me the first 12 weeks was not always easy.

And I would need their support to do it again. 2) We are all so

thrilled with where I am today with my CI. It's the best hearing

I've had in my whole life and I'm very much in awe with what my CI

has given me in just 32 months of being hooked up. 3) It took me 14

months to feel good again after my surgery and I'm just not ready to

deal with it all over again should I have the same outcome following

another CI surgery. I will tell you this though. If the vision in

my left eye ever worsens then I will round up the gang and tell them

it's time to get the other ear done. But, right now I'm pretty busy

getting my life back together. I'm rejoining the workforce this week

after being out of it too long due to hearing and vision problems. I

am looking forward to putting my Early Childhood Teaching Assistant

License to use by starting a new position at my local elementary

school as a Reading Aide. It's a dream for me that I have had to

put on hold for too long. Who knows what the future has in store.

Maybe someday I will know first hand what it's like to hear out of

both sides of my head. If it does not happen, that's fine. I'm

very happy with how I'm hearing these days.

Good luck to all of you who recently joined this group. Best

wishes to all of you who are facing surgery and hook up. May your

surgery be a success and your recovery smooth. And may your hook up

day be a happy one. And my very best wishes go to all of you who

are still struggling with the CI. May you someday soon have

that " Ahhh, this is nice, map! "

Patti

Surgery Day 11/25/02 (What A Day!)

Hook Up Day BWP 1/2/03 (A Happy Day!)

3G 1/31/03 (An Even Happier Day!)

>

> " Patti/Velma....Each time I read about your surgery and recovery I

think how lucky I was to only get real dizzy one time, especially

since I had both ears done at the same time. I do have a

question....Knowing what you went through with the first surgery and

how well you are hearing now, would you consider having the other ear

done?

> Sharon "

>

>

>

> ---------------------------------

> Start your day with - make it your home page

>

>

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  • 1 year later...

And speaking of multitasking, I've realized lately that I *am* multitasking

again.

For a while I couldn't go a few seconds without forgetting an intention. I'd

go from one room to another, really intending to remember why I was going into

the other room, and by the time I turned the corner the thought would be

gone. There were times I just screamed in frustration, and many times commented,

" Brain damage is not fun, " and " I hate Lyme " (and when I was this ill, I was

often dropping things all over the place, so it seems motor skills, along with

various other abilities and functions, may have been vacationing with

multitasking skills - I hope *they* were having fun - I wasn't).

Anyway, the return of multitasking is a recent improvement for me, and goes

hand in hand with general improvement on the herbals.

So besides sharing a milestone of sorts, I also want those of you whose

multitasking abilities have gone on vacation, and are not yet showing signs of

returning, to know the herbals can make it better. Stick with Buhner and your

multitasking abilities will get bored, trust me, and come running back to you

some

day begging to be put to work.

Ann

In a message dated 2/21/07 12:01:47 PM, Grpinfo@... writes:

>

> I hope I'm just doing too much multi-tasking this week, rather than having a

> brain flare!

>

> Ann

**************************************

AOL now offers free email to

everyone. Find out more about what's free from AOL at http://www.aol.com.

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Thanks Selma!

Congrats on your immprovement, too!

Yes, I *will* continue to post on improvement.

I don't have much fatigue anymore. At least not really bad. I haven't tried

any long hikes lately, though.

I, too, feel like I could have more improvement on memory. Learning a

language is definitely a wonderful way to grow your brain :-).

I totally relate on the psyche/psychic wounds, and also the social healing.

Both, for me, are much like you said.

I feel like I'm partly a new person, from the growth Lyme allowed me (though

it's been *very* difficult at times).

Maybe we needed to be away from some people and things, to have room to grow.

And the " hole " in our lives is actually what is leading to us being more

" whole " than before.

I'm glad you're here, too :-)

Ann

In a message dated 2/21/07 6:27:39 PM, hardynaka@... writes:

> Glad to hear that, Ann. Congrats!!!

>

> I guess multitasking was one of the first things I noticed when I

> first started thinking there was a way out from lyme.

>

> It will only get better !!! When you totally forget you're

> multitasking, it means you really got it!

>

> Do you still have fatigue sometimes? Fatigue is the same, we realize

> we don't have much of it, then it gets only better and better. Less

> moments with fatigue, less days, less weeks. Until, I hope, we won't

> think about fatigue anymore! Not my case yet, as it can come with

> excess (wine, lack of sleep, toxin building up...).

>

> I'm still fighting now some memory problems. I guess I am very rusty,

> I don't feel I can memorize things as fast as before (I'm learning

> German again). It still takes me longer to learn than before lyme, I

> feel. I hope it's just from rust, not from permanent damage!

>

> Hope you continue posting about your improvement! H

>

> Have you also passed through a pshychological process after your body

> felt somewhat healed? I mean, I felt like I first needed to heal my

> body, and when it happened (to an extent), I realized I had deep

> pshychological wounds and had to deal with that, because wounds were

> very open. I guess not all will pass through it though, if you hadn't

> a sort of near death experience (with denial of death).

>

> It's strange to me that pshycho wounds were there all the time, but I

> didn't have to deal with it while dealing with a very sick body. Not

> consciously at least. I guess we all have a self-protective mechanism

> to avoid total collapse. It's like I just put the problem away so

> that I could survive, then when I got that body surviving 'well', the

> problem just jumped in front of me again and said: " you got to look

> at me NOW! "

>

> Now I'm kind of healing 'social' wounds too... I feel I'm struggling

> to coming back to a healthy social life again, work, friends, my

> previous interests... It's like there's a HOLE in between my previous

> life, LYME, then my life again now.

>

> Really feeling like I'm coming out of shells. Like pealing the onion.

> It's unbelievable what a disease can do to a person.

>

> Glad there are people like you to share your healing experiences!

>

> Selma

>

>

**************************************

AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

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Haha Ann - I hear ya. My poor computer cant keep up with me now. I

know I am waaay over multi-tasking when the 15-20 windows start

flashing from one to the other. That means I must close 2-3 down and

get my butt back to work, yell at the kids, and talk to customers all

in one quick swing - yeeee haaaaw - here we go now :)

>

> And speaking of multitasking, I've realized lately that I *am*

multitasking

> again.

>

> For a while I couldn't go a few seconds without forgetting an

intention. I'd

> go from one room to another, really intending to remember why I was

going into

> the other room, and by the time I turned the corner the thought

would be

> gone. There were times I just screamed in frustration, and many

times commented,

> " Brain damage is not fun, " and " I hate Lyme " (and when I was this

ill, I was

> often dropping things all over the place, so it seems motor skills,

along with

> various other abilities and functions, may have been vacationing

with

> multitasking skills - I hope *they* were having fun - I wasn't).

>

> Anyway, the return of multitasking is a recent improvement for me,

and goes

> hand in hand with general improvement on the herbals.

>

> So besides sharing a milestone of sorts, I also want those of you

whose

> multitasking abilities have gone on vacation, and are not yet

showing signs of

> returning, to know the herbals can make it better. Stick with

Buhner and your

> multitasking abilities will get bored, trust me, and come running

back to you some

> day begging to be put to work.

>

> Ann

>

>

> In a message dated 2/21/07 12:01:47 PM, Grpinfo@... writes:

> >

> > I hope I'm just doing too much multi-tasking this week, rather

than having a

> > brain flare!

> >

> > Ann

>

>

> **************************************

> AOL now offers free email to

> everyone. Find out more about what's free from AOL at

http://www.aol.com.

>

>

>

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Glad to hear that, Ann. Congrats!!!

I guess multitasking was one of the first things I noticed when I

first started thinking there was a way out from lyme.

It will only get better !!! When you totally forget you're

multitasking, it means you really got it!

Do you still have fatigue sometimes? Fatigue is the same, we realize

we don't have much of it, then it gets only better and better. Less

moments with fatigue, less days, less weeks. Until, I hope, we won't

think about fatigue anymore! Not my case yet, as it can come with

excess (wine, lack of sleep, toxin building up...).

I'm still fighting now some memory problems. I guess I am very rusty,

I don't feel I can memorize things as fast as before (I'm learning

German again). It still takes me longer to learn than before lyme, I

feel. I hope it's just from rust, not from permanent damage!

Hope you continue posting about your improvement!!

Have you also passed through a pshychological process after your body

felt somewhat healed? I mean, I felt like I first needed to heal my

body, and when it happened (to an extent), I realized I had deep

pshychological wounds and had to deal with that, because wounds were

very open. I guess not all will pass through it though, if you hadn't

a sort of near death experience (with denial of death).

It's strange to me that pshycho wounds were there all the time, but I

didn't have to deal with it while dealing with a very sick body. Not

consciously at least. I guess we all have a self-protective mechanism

to avoid total collapse. It's like I just put the problem away so

that I could survive, then when I got that body surviving 'well', the

problem just jumped in front of me again and said: " you got to look

at me NOW! "

Now I'm kind of healing 'social' wounds too... I feel I'm struggling

to coming back to a healthy social life again, work, friends, my

previous interests... It's like there's a HOLE in between my previous

life, LYME, then my life again now.

Really feeling like I'm coming out of shells. Like pealing the onion.

It's unbelievable what a disease can do to a person.

Glad there are people like you to share your healing experiences!

Selma

>

> And speaking of multitasking, I've realized lately that I *am*

multitasking

> again.

>

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