Re: Scanner, Geek, LymeHead...

[Guest guest]

Thanks Marta,

I felt disappointed after the first try, embarrassed after the second, but

purely stupid after the third. I even got a good laugh! Thanks to all who

refrained from making comments about the obvious!

The Zithro/Flagyl combo is working, I'm feeling much better today after

coming through this herx. Wow, this was a tough one. I don't think I'll

have trouble identifying my " time of the month, " so to speak, after this

first episode on the new meds. It's pretty obvious now.

I'm still pursuing a second opinion...by the way, has anyone here pursued

legal action against incompetent MD's?

Thanks, Jim

[Guest guest]

--- JSchm47974@... wrote:

> From: JSchm47974@...

>

> Thanks Marta,

> I felt disappointed after the first try,

> embarrassed after the second, but

> purely stupid after the third. I even got a good

> laugh! Thanks to all who

> refrained from making comments about the obvious!

> The Zithro/Flagyl combo is working, I'm feeling

> much better today after

> coming through this herx. Wow, this was a tough

> one. I don't think I'll

> have trouble identifying my " time of the month, " so

> to speak, after this

> first episode on the new meds. It's pretty obvious

> now.

>

> I'm still pursuing a second opinion...by the way,

> has anyone here pursued

> legal action against incompetent MD's?

>

> Thanks, Jim

>

> Jim-

I am currently in the process of filing a suit against 4 docs that

failrd to treat me when not only were my clinical symptoms so obvoius

but also had 5 ELISAs and 5 WB that were positive . Ended up with a CFS

dx by one of them and was told to go home and rest and let it run its

course. She told me I should be better in a year or so and to just

learn to live with it.

She also documented in my chart that the weakness I was having on my

left side was intentional and that I wanted a different dx because I

would not get Disability with a CFS dx.

Thanks to her records I am now in a huge fight with my LTD as well as

SSD. Not only am I filing a suit because of the misdiagnosis but for my

own principals. I am not a law-suit type of person but the kind of

abuse we take is outrageous and somehow we have to stop it. I feel if

there are enough suits filed against these Drs. we will all see the

benefit someday.

L

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[Guest guest]

Hi Jim,

So glad your herx is done and you feel normal again....I hate to admit it

but it sure gives me pleasure to see a guy refer to " His time of the

Month " ........LOL!

I considered a suit against the incompetents I saw early in my Lyme

treatment, I even contacted Ira Maurer and he was willing to help me, but I

was so sick, I let the statute of limitations run out....(2 years). Ira has

lots of Lyme related cases listed at his site, on LymeNet. Have you seen

postings from DenimN on the Lyme newsgroup? I know she recently lost her

malpractice case against doctors who treated her in the Texas area.

If you want to pursue something, contact Ira Maurer and see what he

thinks. Wishing you the best always,

Hugs,

Marta

>From: JSchm47974@...

>

> Thanks Marta,

> I felt disappointed after the first try, embarrassed after the second, but

>purely stupid after the third. I even got a good laugh! Thanks to all who

>refrained from making comments about the obvious!

> The Zithro/Flagyl combo is working, I'm feeling much better today after

>coming through this herx. Wow, this was a tough one. I don't think I'll

>have trouble identifying my " time of the month, " so to speak, after this

>first episode on the new meds. It's pretty obvious now.

>

> I'm still pursuing a second opinion...by the way, has anyone here pursued

>legal action against incompetent MD's?

>

> Thanks, Jim

>

[Guest guest]

Hi L,

I was glad to see that you are taking the Dr.s who misdiagnosed you to

court. It's a shame that you have to go through all that, but hopefully

it will be worth it.

I was wondering if you ever found out what caused the weakness in your

left side-I have the same thing, and was never given a reason for it. I

think it's some kind of neurological damage, but my Evoked Potential

Test (I call it my " electrocution test " ) came out negative. I was also

wondering if you or anyone else has experienced extreme muscle

twitching?

I am in the 3rd week of Doxy. and I woke up with the most annoying

muscle twitches I have ever had.

Take care and keep fighting! Joan

[Guest guest]

--- Starkman <Namkrats3@...> wrote:

> From: Namkrats3@... ( Starkman)

>

> Hi L,

> I was glad to see that you are taking the Dr.s who

> misdiagnosed you to

> court. It's a shame that you have to go through all

> that, but hopefully

> it will be worth it.

>

> I was wondering if you ever found out what caused

> the weakness in your

> left side-I have the same thing, and was never given

> a reason for it. I

> think it's some kind of neurological damage, but my

> Evoked Potential

> Test (I call it my " electrocution test " ) came out

> negative. I was also

> wondering if you or anyone else has experienced

> extreme muscle

> twitching?

> I am in the 3rd week of Doxy. and I woke up with the

> most annoying

> muscle twitches I have ever had.

>

> Take care and keep fighting! Joan

>

> Joan-

My LLD says it is nerve damage from Lyme. I also have severe muscle

twitching esp at night. It was getting better on the magnesium but now

it is coming back. I will wake myself up from a sound sleep kicking and

jumping all over. I try to get up and walk it out but it doesnt help so

I just live with it until the muscles settle down. Not only in my legs

but also my arms. I have noticed a pattern to it as well. If I have the

shakes during the day I am guarenteed to be twitching all night. I am

starting my 4th week of IV Rocephin and it has gotten steadily worse so

will talk to my doc about it on Mon.

As far as the lawsuit we will see what happens. I have been so angry

that it keeps my will to fight alive but the last few days I have just

been to tired to even be angry. I am just tired of the whole thing and

want to just go back to a normal life. Think the fatigue is getting to

me.

Take care .

L

>

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_________________________________________________________

[Guest guest]

Hi L,

Sorry you're feeling so bad. Do you think it's a sign that the IV

Rocephin is working? I would be interested to know what your LLD says

Mon.

I didn't expect to have so many symptom flare-ups on only 200 mg. of

Doxy a day. Could it be because I hadn't been treated at all for 10

yrs., or am I just getting worse? Hmmm, will have to ask the new LLMD

next Fri.

Feel better. I know what you mean about wanting to go back to a normal

life. Keep fighting and you will.

Take Care, Joan

[Guest guest]

Starkman wrote:

>

> Hi L,

>

> Sorry you're feeling so bad. Do you think it's a sign that the IV

> Rocephin is working? I would be interested to know what your LLD says

> Mon.

>

> I didn't expect to have so many symptom flare-ups on only 200 mg. of

> Doxy a day. Could it be because I hadn't been treated at all for 10

> yrs., or am I just getting worse? Hmmm, will have to ask the new LLMD

> next Fri.

>

> Feel better. I know what you mean about wanting to go back to a normal

> life. Keep fighting and you will.

>

> Take Care, Joan

>

> ---------------------------------------------------------------

>

> Subject: Re: [Lyme-aid] Scanner, Geek, LymeHead...

> Date: Thu, 3 Jun 1999 15:23:47 -0700 (PDT)

> From: lc lott <lclott@...>

> Reply-lyme-aidonelist

> lyme-aidonelist

>

> From: lc lott <lclott@...>

>

> --- Starkman <Namkrats3@...> wrote:

> > From: Namkrats3@... ( Starkman)

> >

> > Hi L,

> > I was glad to see that you are taking the Dr.s who

> > misdiagnosed you to

> > court. It's a shame that you have to go through all

> > that, but hopefully

> > it will be worth it.

> >

> > I was wondering if you ever found out what caused

> > the weakness in your

> > left side-I have the same thing, and was never given

> > a reason for it. I

> > think it's some kind of neurological damage, but my

> > Evoked Potential

> > Test (I call it my " electrocution test " ) came out

> > negative. I was also

> > wondering if you or anyone else has experienced

> > extreme muscle

> > twitching?

> > I am in the 3rd week of Doxy. and I woke up with the

> > most annoying

> > muscle twitches I have ever had.

> >

> > Take care and keep fighting! Joan

> >

> > Joan-

> My LLD says it is nerve damage from Lyme. I also have severe muscle

> twitching esp at night. It was getting better on the magnesium but now

> it is coming back. I will wake myself up from a sound sleep kicking and

> jumping all over. I try to get up and walk it out but it doesnt help so

> I just live with it until the muscles settle down. Not only in my legs

> but also my arms. I have noticed a pattern to it as well. If I have the

> shakes during the day I am guarenteed to be twitching all night. I am

> starting my 4th week of IV Rocephin and it has gotten steadily worse so

> will talk to my doc about it on Mon.

> As far as the lawsuit we will see what happens. I have been so angry

> that it keeps my will to fight alive but the last few days I have just

> been to tired to even be angry. I am just tired of the whole thing and

> want to just go back to a normal life. Think the fatigue is getting to

> me.

> Take care .

> L

> >

> ------------------------------------------------------------------------

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> > ONElist of the Week.

> >

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> > changing YOUR life!

> >

> ------------------------------------------------------------------------

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> _________________________________________________________

>

[Guest guest]

--- noah williams <noah@...> wrote:

> From: noah williams <noah@...>

>

> Starkman wrote:

> >

> > Hi L,

> >

> > Sorry you're feeling so bad. Do you think it's a

> sign that the IV

> > Rocephin is working? I would be interested to

> know what your LLD says

> > Mon.

> >

> > I didn't expect to have so many symptom flare-ups

> on only 200 mg. of

> > Doxy a day. Could it be because I hadn't been

> treated at all for 10

> > yrs., or am I just getting worse? Hmmm, will have

> to ask the new LLMD

> > next Fri.

> >

> > Feel better. I know what you mean about wanting to

> go back to a normal

> > life. Keep fighting and you will.

> >

> > Take Care, Joan

> >

> > Joan-

I would say the Rocephin is working. Slowly but it is working. Sounds

like the Doxy must be doing something. I would ask about the dosage

tho. My LLD told me that 300 mg of Doxy a day was too low when I was

waiting to see the ID guy that blew me off.

I am feeling a little better today I guess. I just decided to give

myself a mental break for a week or so until I can regroup and regain

the strenght to fight. Let me know how things go with the LLD Fri.

L

> ---------------------------------------------------------------

> >

> > Subject: Re: [Lyme-aid] Scanner, Geek, LymeHead...

> > Date: Thu, 3 Jun 1999 15:23:47 -0700 (PDT)

> > From: lc lott <lclott@...>

> > Reply-lyme-aidonelist

> > lyme-aidonelist

> >

> > From: lc lott <lclott@...>

> >

> > --- Starkman <Namkrats3@...> wrote:

> > > From: Namkrats3@... ( Starkman)

> > >

> > > Hi L,

> > > I was glad to see that you are taking the Dr.s

> who

> > > misdiagnosed you to

> > > court. It's a shame that you have to go through

> all

> > > that, but hopefully

> > > it will be worth it.

> > >

> > > I was wondering if you ever found out what

> caused

> > > the weakness in your

> > > left side-I have the same thing, and was never

> given

> > > a reason for it. I

> > > think it's some kind of neurological damage, but

> my

> > > Evoked Potential

> > > Test (I call it my " electrocution test " ) came

> out

> > > negative. I was also

> > > wondering if you or anyone else has experienced

> > > extreme muscle

> > > twitching?

> > > I am in the 3rd week of Doxy. and I woke up with

> the

> > > most annoying

> > > muscle twitches I have ever had.

> > >

> > > Take care and keep fighting! Joan

> > >

> > > Joan-

> > My LLD says it is nerve damage from Lyme. I also

> have severe muscle

> > twitching esp at night. It was getting better on

> the magnesium but now

> > it is coming back. I will wake myself up from a

> sound sleep kicking and

> > jumping all over. I try to get up and walk it out

> but it doesnt help so

> > I just live with it until the muscles settle down.

> Not only in my legs

> > but also my arms. I have noticed a pattern to it

> as well. If I have the

> > shakes during the day I am guarenteed to be

> twitching all night. I am

> > starting my 4th week of IV Rocephin and it has

> gotten steadily worse so

> > will talk to my doc about it on Mon.

> > As far as the lawsuit we will see what happens. I

> have been so angry

> > that it keeps my will to fight alive but the last

> few days I have just

> > been to tired to even be angry. I am just tired of

> the whole thing and

> > want to just go back to a normal life. Think the

> fatigue is getting to

> > me.

> > Take care .

> > L

> > >

> >

>

------------------------------------------------------------------------

> > > " Congratulations to 'Voice-Diary,' our latest

> > > ONElist of the Week.

> > >

> > > Visit our homepage and share with us how ONElist

> is

> > > changing YOUR life!

> > >

> >

>

------------------------------------------------------------------------

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> lyme.

> > > /archives.cgi/

> > > /archives.cgi/Lyme-Docs

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> > > You may substitute " unsubscribe " , " digest " , or

> > > " normal " for

> > > the word " subscribe " ( " normal " is the opposite

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> > > " digest " )

> > >

> >

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> >