Re: Brorson studies/cystic forms

[Guest guest]

Hi ,

Thanks for the info on cysts and Flagyl...it sounds encouraging.

I have my fingers crossed xx for your son.

How early in his illness was he treated?

Take care,

Joan

1st Known Deer Tick Bites & Sx: '85

1st (Neg): '89

Cont'd Sx, Neg. s & No LD Dx: '90-'99 1st WB: 4+ Specific Bands:

4/99

Late Neuro-LD Dx: 6/99

[Guest guest]

Hi Joan,

Actually, about 4 months after having what we thought was a spider bite, he

received augmentin,zith,cefzil and biaxin for what the ped. thought was ear

infections.(Had other symptoms too,headaches,fatigue,cooridination

problems,sleep disorders,etc.)

He herxed twice during these 2 months. Then an I.D. gave him Doxy on 2-1-99,

so it was actually 6 months after infection. He immediately responded to

treatment and was 90% by April, but continued having slight symptoms at the 4

week cycle. When he went on Flagyl & Ceftin, (and then Zith) in July,

within 5 days, he herxed with slight headache and fatigue , and then it

brought him to feeling 100% within

a couple of weeks. He was taking acidophilus, etc., but I wish I had him

taking Olive Leaf Extract at that time too, to try to control the yeast more.

I know some drs. prescribe Diflucan or Nystatin, but I am leary about that

also, as I have read that it can cause resistant strains of yeast to

develope, so we have used a natural route with the OLE and Caprylic

Acid,Glucosomine,Bromelain, Flaxseed oil,

and acidophilus.

I think the Flagyl is worth a try, would like to hear more specific info. as

to why some drs. are against it. My daughter in law(24 yrs.old) was dx'd

with lyme just recently after 10 yrs of symptoms, including 2 knee surgeries,

and numerous neuro symptoms. She found a dr.; after learning of my sons lyme

sx, like many she had for yrs. 10 yrs. ago, they started her on IV treatment

for lyme, but when an MRI showed an Arachnoid(Brain)Cyst, they stopped

treatment and she had the cyst successfully removed. She continued with

rashes, fatigue, stiff necks, neuro, etc for many yrs, and got all the usual

misdiagnosis'.

In fact, she has something she decribes as very odd. She has this feeling

that " her memories are not her own " . Has anyone experienced anything like

this?

I continue to pray that they find a reliable test and treatment for this

horrid disease.

My best wishes to all.

Take Care,

(MN)