Re: Help with head pressure-pain

[Guest guest]

Hi ,

Wow, sounds like some awful pain, Helen on this list liveitup@...

is very familiar with the facial type pain you are describing, I hope she

sees your post and responds with some suggestions. I can't believe the Lyme

doctor will not give you pain meds. Get on the phone today, holiday or no,

and tell one of your doctors how badly you are suffering. There is no

reason for you to have to suffer like this, tell him you are feeling

suicidal too, something to make them understand how serious this pain is. I

wish I could email you some of my pain meds to help you, fortunately I made

my doctor aware that I needed to function and he is willing to prescribe

them for me. Are you able to sleep or is the pain too bad?

Your mention of feeling suicidal reminds me that two years ago today,

Memorial day, I was feeling just like you do now, maybe not so bad with the

pain, but I was so depressed feeling like I had no life at all, my husband

went off to a picnic without me, (I insisted) and I just felt like no one in

the world understood me. I posted a long weepy letter to the Lyme

newsgroup, and got back so many encouraging letters, I printed them out and

put them in a booklet, I keep it near my bed in my headboard, I figured the

next time I got so down, I would read them....you know, that time never

came, but I am still holding on to it, just in case. You need to talk to

your doctor also about depression meds. I have been taking Paxil for almost

two years, and it has made a world of difference for me. Anyone who is

chronically ill is bound to get depressed, add major pain, and you really

have a problem. I was hesitant at first to take them, but my doctor

explained to me, it was like the difference between a cloudy day and a sunny

day, and he sure was right.

Well, none of this drivel is helping your head pain, I hope someone

responds with some good ideas for you today, but in the meantime, call the

doctor and have him prescribe something immediately.

{{{{{BIG SUPPORTIVE HUGS}}}}}

Marta

--

>From: BailieBoy@...

>

>Hi everyone,

>I have pain on the right side of my neck -actually it is intense

>pressure-that then goes up into my head and around my ear and jaw. I feel

>like I am GOING TO ScREAM!! I have tried 800 mg ibiprofun (sp?-sorry),

>advil, ice, heat. Nothing is working. It is the most awful pain of my

life

>and its effecting me in any way.

>I asked my doctor about it and he said to ask my regular doctor as he

doesn't

>want to give me pain meds and I'm already on antibiotics. Talk about

passing

>the buck.

>I can't wait until my LLMD appt. which is July 3rd since I have to travel.

>Anyone else have relief from this????????? I will take ANY AND ALL

>suggestions. I am going to call my regular doctor tomorrow about trying

>acupuncture. This disease is ruining my life and sometimes I even get

>suicidal feelings.

>

>

[Guest guest]

Hi LIsa,

As Dr. Lionetti said, much of our pain is neuropathic and can be helped with

Neurontin. You might want to ask you doctor. Dr. L, says it is working well

for his patients, they do get relief,

Connie, MI

[Guest guest]

,

I understand how bad the headaches can be, I laid in bed almost 3 weeks

thinking that my head would just explode while all of the Dr's I saw said

that there was nothing wrong. The Neuro I finally saw gave me Trazodone for

the headaches, a drastic drug but it finally stopped them cold in their

tracks. It took 4-5 days at some dosage I don't remember (pills looked like

an aspirin, I took 1 per day prior to bed, they also helped w/ the insomnia I

had at the time). This drug seemed like a miracle to me.

The potential side effects are frightening at a higher dosage, and I'm not

sure what they may be for a women. I don't know how to say it any other way

but that for a minority of men it can be permanently damaging in the Bob

Dole/ ED sort of way, 'nuff said there. This stuff really worked well, it

allowed me to do something other than moan in bed, like worry that I had Mad

Cow or something!!! Seriously, it relieved the unbearable pain of those

headaches. It may have been purely coincidence, but I really doubt that. My

Neuro knew what to prescribe immediately, so I believe it must be used for

some similar things. I think it is related to Methadone, used to relieve

pain of withdrawal symptoms. It worked...

I know that you are in a great deal of pain, just know that we're all

praying for you, and understand. Hope you can get some help,

Jim

[Guest guest]

In a message dated 6/1/99 11:52:21 AM Eastern Daylight Time, smott@...

writes:

<< e also. There are two things that seem

to work for me. First, Dr. B has prescribed physical therapy. They do

electric stim, ultrasound and, the most wonderful of all, a massage!!

That actually helps. If I go two days without it I'm back in pain

again, but I do get some relief. The >>

,

I also go to PT for neck and shoulder pain. I receive heat ultra sound and a

massage... It has helped me so much. I just fought with the insurance

company to get more visits and I won!!! I also wanted to say that it is

HORRIBLE that your doctor isn't giving you anything for the pain. I would

call and tell him you need something. Taken advil is like taken candy... It

doesn't even touch the pain. I'm also on relefen... I LOVE THEM!!! I also

take a mild antidepresent effor. I think it has helped greatly. My famliy

also says that I'm handling everything very well for being soo sick.. I

think the antidepresent has a lot to do with it. My doc said that it also

helps with the pain.

Feel better,

[Guest guest]

,We may have the same DR. in Mi. If we do call him. he put another

patient with this type of pain on a medication that has allowed her to go

back to work. Don't wait and sugger call him. Carol

[Guest guest]

BailieBoy@... wrote:

>

> From: BailieBoy@...

>

> Hi everyone,

> I have pain on the right side of my neck -actually it is intense

> pressure-that then goes up into my head and around my ear and jaw. I feel

> like I am GOING TO ScREAM!! I have tried 800 mg ibiprofun (sp?-sorry),

> advil, ice, heat. Nothing is working. It is the most awful pain of my life

> and its effecting me in any way.

> I asked my doctor about it and he said to ask my regular doctor as he doesn't

> want to give me pain meds and I'm already on antibiotics. Talk about passing

> the buck.

> I can't wait until my LLMD appt. which is July 3rd since I have to travel.

> Anyone else have relief from this????????? I will take ANY AND ALL

suggestions...

Dear : My neck is killing me also. There are two things that seem

to work for me. First, Dr. B has prescribed physical therapy. They do

electric stim, ultrasound and, the most wonderful of all, a massage!!

That actually helps. If I go two days without it I'm back in pain

again, but I do get some relief. The second thing that seemed to help

is Magnesium infusion. I got a shot of it in the doctor's office and

that seemed to help. I'm now supposed to take it with my IV, but I've

had some difficulty with the IV port site, so I haven't done that. Good

luck!

Lovette

[Guest guest]

F. Mott wrote:

> From: " F. Mott " <smott@...>

>

> BailieBoy@... wrote:

> >

> > From: BailieBoy@...

> >

> > Hi everyone,

> > I have pain on the right side of my neck -actually it is intense

> > pressure-that then goes up into my head and around my ear and jaw. I feel

> > like I am GOING TO ScREAM!! I have tried 800 mg ibiprofun (sp?-sorry),

> > advil, ice, heat. Nothing is working. It is the most awful pain of my life

> > and its effecting me in any way.

> > I asked my doctor about it and he said to ask my regular doctor as he

doesn't

> > want to give me pain meds and I'm already on antibiotics. Talk about

passing

> > the buck.

> > I can't wait until my LLMD appt. which is July 3rd since I have to travel.

> > Anyone else have relief from this????????? I will take ANY AND ALL

> suggestions...

>

This sounds like it could be trigeminal neuralgia, doesn't it? The trigeminal

nerve

runs in the route you described your pain following -- it has 3 branches

(trigeminal). Possibly you could be helped by Neurontin or some other med that

other folks have found helpful with their nerve pain?

This is also called tic doulereux -- you could look it up on the Web. It's also

caused by shingles when the herpes virus inflames the nerve.

Jean

[Guest guest]

In a message dated 6/1/99 9:32:22 PM, Prinny328@... writes:

<<Val,

Effexor 75mg a day. I know there are tons of antidepressents out there. I

think anyone with an long-term illness should be on anti-depressants. I'm

still on flaygl/zithro/mepron/bicillian injections. I'm doing better. Hang

in Val. I felt horrible at first with mepron and zitro and then I improved.

>>

Thanks for the info. I hope you continue to improve everyday. -Val