RE: [Lyme-aid] Fw: Lyme News Update ....

[Guest guest]

Hi,

The normal length to review an application for SSDI is approximately six

months. So yours are one month longer than average, but that is not unusual,

unfortunately. They need to review applications submitted earlier than yours,

then they need time to contact doctors, etc ... If your daugher completed the

forms thoroughly, that will help speed up the process..If your doctors have

their forms ready, that helps a lot, too..

Good luck

elizabeth

In a message dated 3/19/00 2:39:05 PM Eastern Standard Time,

skoog44@... writes:

<<

My big question is how to get a ruling from the SSDI? My daughter submitted

to them almost 4 mos ago and they have said it could be another 3 months.

>>

[Guest guest]

penny.....4 months is nothing.....hate to say it but it took me over 2

yrs.......try raising kids and keeping a wife with no money coming

in........also be prepared to be denied on the initial claim and also the

reconsideration.....most of us with lyme (not all) have had to go to either a

thing called attorney review( which i got) or most commanly a hearing before

a judge.......however now that more people are being granted full ssd for

lyme it is getting a little better......when i went thru it very few lyme

cases were approved ( as lyme was or is not on their list of approved

disabilitys)

some hints........bombard them with every piece of information u can on lyme

disease....(they love paperwork) make su4re u llmd keeps complete

records....keep a journal on ddaily symptoms ect....if she is depressed go to

a shrink and have him document everything....and finally get ur elected

officals involved ......i got to be great friends with the lady who works for

my congressman.......when i was told it could take up to a year to be sked.

for a hearing before the judge.......she started calling ss every other

day.....putting pressure on them to expedite my hearing.....2 months later my

attorney got a call from ss.....they just wanted an update on my condition

when it was shown i had not improved ....a attorney review was done and i was

approved......my lawyer had never heard of attorney review ( he does alot of

ssd work) till me.....he said it was directly due to the congressmans

calls.....good luck and hope u get it on first try.....if not keep

fighting......they want u to gdown and give up.....

Reid

[Guest guest]

Hi All

Somehow this doesn't ring true...but I have never heard of them.

My big question is how to get a ruling from the SSDI? My daughter submitted

to them almost 4 mos ago and they have said it could be another 3 months.

Does anyone have any suggestions of how to expedite their decision? Short

of sitting on their doorstep night and day. LOL Any info would be

appreciated. Also her insurance disability is dragging their feet and she

desperately needs some income as most of you can relate to.

Thanks in advance

Penny

>

> From: " Family " <hughes@...>

>

> I recieved this and I have never heard of them before, does

> anyone reconize

> the name or has anyone used them? Meg

>

>

> Sent: Friday, March 17, 2000 5:25 PM

> Subject: Lyme News Update ....

> > Greetings:

> >

> > As many of you may already be aware, <A

> > HREF= " http://www.dominionlifefoundation.com " >The Dominion-Life

> Foundation</A>

> > is one of the few, if only organizations who has successfully

> represented

> > lyme patients before the Social Security Administration and the Workers'

> > Compensation Appeals Board. Though we are proud to boast that we have

> never

> > lost a case in over twenty-five years, unlike any other organization in

> > existence, <A HREF= " http://www.dominionlifefoundation.com " >The

> Dominion-Life

> > Foundation</A> is not in the business of profiting from its efforts on

> behalf

> > of its clients: we seek only to recover the expenses we have incurred in

> the

> > pursuit of our client's claims. Most firms charge 25% of each client's

> > award; <A HREF= " http://www.dominionlifefoundation.com " >The Dominion-Life

> > Foundation</A> has never sought in excess of 10%. Likewise, none of the

> > staff " employed " by <A HREF= " http://www.dominionlifefoundation.com " >The

> > Dominion-Life Foundation</A> are compensated for their work;

> this is what

> > makes us a truly unique non-profit organization. We perform

> our tasks out

> of

> > love for all mankind.

> >

> > As news of our success has spread through individuals such as

> " LymeBarb, "

> we

> > have been inundated with requests for representation at the appeals

> process.

> > Of course, the pursuit of each and every case requires a great

> deal of out

> of

> > pocket expenses, and up front costs.

> >

> > As many of you are already aware, most individuals who are on disability

> > related to the debilitating effects of lyme disease do not have the

> financial

> > resources it takes to pursue their claims. But, <A

> > HREF= " http://www.dominionlifefoundation.com " >The Dominion-Life

> Foundation</A>

> > has never turned a client away even though it is becoming more and more

> > difficult to accept all the claims we are confronted with on a daily

> basis.

> >

> > HOWEVER, with your help we can meet each and every individual's request

> for

> > help and representation. Without that help many lyme patients

> face losing

> > their homes, and an inability to provide for the daily necessities of

> life.

> >

> > By establishing a permanent " reserve " account, we will be afforded

> sufficient

> > means to draw from this account to provide payment of costs associated

> with

> > representation of each client. At the resolution of each and

> every claim

> we

> > can then replenish this account.

> >

> > Therefore, all we are asking from you is a contribution of whatever you

> can

> > afford: $5.00, $10.00 or even $25.00. Whatever you can afford

> will help.

> All

> > assistance should be sent to Post Office Box 5084, Walnut Creek,

> California,

> > 94596; or directly to the Foundation office address at 2242 Gladwin

> Drive,

> > Walnut Creek, California, 94596. We also have the ability to accept

> credit

> > card donations. To contribute by credit card, simply send a letter or

> e-mail

> > to our office with your name, address, and telephone number, your credit

> card

> > number and then indicating Visa or Mastercard, the expiration date, the

> > amount you wish to contribute, and your signature if by letter. We will

> > forward a receipt to you for your record and future tax purposes.

> >

> > We are attempting to reach a goal of $65,000.00 by June 1,

> 2000. Once we

> > have reached this goal we will let you know. Likewise, with your

> permission,

> > as we build upon this account, we will e-mail you to let you know of our

> > progress. Likewise, your assistance in forwarding this letter

> to everyone

> > you know would also be greatly appreciated. Getting the word out is the

> most

> > important assistance we can achieve in meeting our goal as quickly as

> > possible.

> >

> > In advance we thank you for your support, your consideration, and your

> > assistance. We look forward to being there also for you.

> >

> > " I thank my God upon every remembrance of you, always in every prayer of

> mine

> > for you all making request with joy. "

> >

> > Warmly,

> > HIS GRACE FR. ANTONIO DI GIOVANNI,

> > Director and President

> > <A HREF= " http://www.dominionlifefoundation.com " >The Dominion-Life

> Foundation</

> > A>

> > Post Office Box 5084

> > Walnut Creek, California 94596-5084

> > (925) 930-7846 / Office

> > (925) 930-8451 / Facsimile

> > TDLF@... / E-mail

> > http://www.dominionlifefoundation.com / Web Address

> > 9259775477@... / E-mail pager address

> >

> > HG ADG:jlm

> >

>

>

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[Guest guest]

Hi Reid,

Thanks that is excellent advice. We will get started right away.

Hugs

Penny

> From: rmcmur3194@...

>

> penny.....4 months is nothing.....hate to say it but it took me over 2

> yrs.......try raising kids and keeping a wife with no money coming

> in........also be prepared to be denied on the initial claim and also the

> reconsideration.....most of us with lyme (not all) have had to go

> to either a

> thing called attorney review( which i got) or most commanly a

> hearing before

> a judge.......however now that more people are being granted full ssd for

> lyme it is getting a little better......when i went thru it very few lyme

> cases were approved ( as lyme was or is not on their list of approved

> disabilitys)

> some hints........bombard them with every piece of information u

> can on lyme

> disease....(they love paperwork) make su4re u llmd keeps complete

> records....keep a journal on ddaily symptoms ect....if she is

> depressed go to

> a shrink and have him document everything....and finally get ur elected

> officals involved ......i got to be great friends with the lady

> who works for

> my congressman.......when i was told it could take up to a year

> to be sked.

> for a hearing before the judge.......she started calling ss every other

> day.....putting pressure on them to expedite my hearing.....2

> months later my

> attorney got a call from ss.....they just wanted an update on my

> condition

> when it was shown i had not improved ....a attorney review was

> done and i was

> approved......my lawyer had never heard of attorney review ( he

> does alot of

> ssd work) till me.....he said it was directly due to the congressmans

> calls.....good luck and hope u get it on first try.....if not keep

> fighting......they want u to gdown and give up.....

> Reid

>

> ------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9%

> Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

> 1/936/5/_/484634/_/953508888/

> ------------------------------------------------------------------------

>

> Send to -Offtopiconelist messages unrelated to Lyme, please.

> Archives can be found at:

> /group/lyme-aid.

> They are filed by month, pick a month and search those archives

> for subjects you are interested.

> Lyme chat, go to this URL:

> /chat/lyme-aid

> Should you have trouble opening the page, go back to

/ and make sure you are registered with a password.

You can ask ONELIST to remember you, and will only have to do this one time.

To unsubscribe, send email to -unsubscribeonelist

You may substitute " subscribe " , or " digest " or " normal " for

the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

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[Guest guest]

Hi Meg,.

I have come across their web pages before, but I do not know anyone who

has used them to fight for their insurance claims. It does say they are

Non-profit, could very well be a legitimate concern that are willing to

help those in need. Not sure though.

Hugs,

Marta

-

>From: " Family " <hughes@...>

>

>I recieved this and I have never heard of them before, does anyone reconize

>the name or has anyone used them? Meg

>

>

>Sent: Friday, March 17, 2000 5:25 PM

>Subject: Lyme News Update ....

>> Greetings:

>>

>> As many of you may already be aware, <A

>> HREF= " http://www.dominionlifefoundation.com " >The Dominion-Life

>Foundation</A>

[Guest guest]

Hi, Penny,I filed for SSDI in September 1995. It took 9 denials, 2 1/2 years before receiving approval. At that time, I was told it was routine for the first 3 to be denied automatically. Had to appear before a judge, who ruled it should have been granted on the first go-round.

It was granted on the basis of Lyme, and its many associated illnesses: encephalitis, seizure disorder, fibromyalgia, bipolar disorder, cognitive dysfunction, chronic fatigue, somnambulism, abnormal evoked potentials (results of EEGs), etc. Supporting evidence included all testing from my LLMD (including my blood cultures, spinal tap analysis, MRI), my chiropractor, my psychiatrist, and another pain specialist (did nerve-block for pain management) who also did range-of-motion testing, and strength testing, etc.

Fortunately, my long-term disability advanced all funds that Social Security should have paid, and when I received my lump-sum benefits retroactively, I repaid the long-term disability company what they had advanced. I was represented in court by the long-term disability insurance attorney. They actually handled everything for me in the two-year period, except for the actual filling out of forms. They were very helpful in walking me through all the confusion and reassuring me when I got panicky.

On the other hand, when applied (years later), he got it on the first go-round. You can never tell.

You certainly can't do anything to expedite, except maybe to call on current status, but that just might make them mad. They do things in their own sweet time, depending on caseload.Rose in Texas

Jim & Penny Skoog <skoog44@...> wrote:

My big question is how to get a ruling from the SSDI? My daughter submittedto them almost 4 mos ago and they have said it could be another 3 months.Does anyone have any suggestions of how to expedite their decision? Shortof sitting on their doorstep night and day. LOL Any info would beappreciated. Also her insurance disability is dragging their feet and shedesperately needs some income as most of you can relate to.The "RoseWriter" says: "Teach Tolerance, Overcome Ignorance, Advocate Lyme Literacy." See http://www.angelfire.com/tx3/RoseWriter/ or http://www.angelfire.com/biz/romarkaraoke/james.html for our Lyme Disease Horror Stories, links to LD research articles & websites, & current news items on Lyme. These sites are updated frequently, so please revisit.

[Guest guest]

Hi, y'all,Sounds like scam to me. I would never send an unknown organization my credit card number or check. Pursuing SSDI benefits is time-consuming. But they can't do anything for you that you can't do for yourself with a little patience and a lot of hassle.Rose in Texas

Family <hughes@...> wrote:

From: " Family" <hughes@...> We also have the ability to acceptcredit> card donations. To contribute by credit card, simply send a letter ore-mail> to our office with your name, address, and telephone number, your creditcard> number and then indicating Visa or Mastercard, the expiration date, the> amount you wish to contribute, and your signature if by letter.

Send to -Offtopiconelist messages unrelated to Lyme, please.Archives can be found at:/group/lyme-aid. They are filed by month, pick a month and search those archives for subjects you are interested.Lyme chat, go to this URL:/chat/lyme-aidShould you have trouble opening the page, go back to / and make sure you are registered with a password. You can ask ONELIST to remember you, and will only have to do this one time.To unsubscribe, send email to -unsubscribeonelistYou may substitute "subscribe", or "digest" or "normal" forthe word "unsubscribe" ("normal" is the opposite of "digest"). Leave blank both the message and subject header. The "RoseWriter" says: "Teach Tolerance, Overcome Ignorance, Advocate Lyme Literacy." See http://www.angelfire.com/tx3/RoseWriter/ or http://www.angelfire.com/biz/romarkaraoke/james.html for our Lyme Disease Horror Stories, links to LD research articles & websites, & current news items on Lyme. These sites are updated frequently, so please revisit.

[Guest guest]

Woops,

I did not see that credit card part, I definitely agree with Rose, sorry Meg.

Marta

From: " J. 'Rose' Rose " <therosewriter@...>

Hi, y'all,Sounds like scam to me. I would never send an unknown organization my credit card number or check. Pursuing SSDI benefits is time-consuming. But they can't do anything for you that you can't do for yourself with a little patience and a lot of hassle.Rose in Texas

Family <hughes@...> wrote:

From: " Family " <hughes@...> We also have the ability to acceptcredit> card donations. To contribute by credit card, simply send a letter ore-mail> to our office with your name, address, and telephone number, your creditcard> number and then indicating Visa or Mastercard, the expiration date, the> amount you wish to contribute, and your signature if by letter.