Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 Have a wonderful birthday today, Marta. I'll pray especially hard for your healing today. You're a woman with a beautiful and wise heart. Hugs, beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 Thanks so much for the kind words, you give me too much credit. I am having a good birthday so far, don't feel a day over 76! ;-) Re: [Lyme-aid] Birthday Marta Have a wonderful birthday today, Marta. I'll pray especially hard for your healing today. You're a woman with a beautiful and wise heart. Hugs, beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 beth wrote: > > Have a wonderful birthday today, Marta. I'll pray especially hard for > your healing today. You're a woman with a beautiful and wise heart. > > Hugs, > > beth Dear Marta: That goes double from me!! Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 1999 Report Share Posted December 2, 1999 Marta, HAPPY BIRTHDAY and thanks for all you do for others. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 1999 Report Share Posted December 2, 1999 I sent the following letter to NJ101.5, a radio station which covers most of NJ, and also sent the press-release to the Star-Ledger, and let them know N.J. Lyme patients would be present. Bernadette Hey Dennis and Judi, Our family is always listening to NJ101.5. Thought you might like to know about this upcoming protest in NYC to protest harrassment of Lyme Disease treating physicians...if you need more info, I can point you to people to interview, like Pat ...of the LDANJ.... I am a Registered Nurse who was severely debilitated from Lyme Disease and was given 12 weeks of IV antibiotics, which helped me greatly. If Lyme Disease is not caught early it causes severe neurological problems, exhibited in many ways. It is dreadfully underreported. There is a group of doctors who are paid by the insurance companies hundreds of dollars to deny I.V. treatment to Lyme patients beyond 3-4 weeks. I am one of the lucky ones whose insurance company told me as long as my Dr. felt it was medically necessary, my therapy would be approved. The Dr. who prescribed this therapy is also a holistic physician, who is also an acupuncturist, so for her to order 12 weeks, she felt very strongly it was medically necessary for me to fight this infection. I have joined this protest action, because there are doctors being harrassed for taking an interest in treating Lyme Disease properly, and are finding that long term meds are necessary. Doctors who are seeing patients who are benifitting from antibiotic therapy longer than 3-4 weeks are being persecuted for their views and their continued research that has found many Lyme patients are not cured with short term therapy, or are being found to have another tick-borne infection in addition to Lyme Disease. The station has always been a source for NJ related problems and tick-borne disorders are a greater menace than people realize. If I had any clue what a tick-bite could do to a person, I would have known to suspect it and sought early treatment, and not lost two years of income, time with my three children, and the benefit to society as I was a high-risk neonatal nurse. The cost to society with this disease is enourmous, especially as it is more easily transmitted than AIDS, and easily mis-diagnosed, and has little funding for research. In addition the tests available are very unreliable, and people who think they do not have it when they test negative, down the road as they get severely ill, only then and sometimes never test positive. Anyone who goes outdoors is at risk in N.J. to be bitten and contract a tick-borne disorder compared to A.I.D.S., which needs a contact with infected person thru sex or blood transfusion. The risk in N.J. is enourmous especially as deer ( ticks tend to travel on) are being pushed into suburban areas due to land development. At my own home where my parents lived since 1954, deer were rarely seen. In the last year, they are often in my back yard, 3-5 of them at a time. It is one of the fastest goring infectious diseases in this country, and if doctors report they have diagnosed patients properly, they risk harrassment. This disease is the " AIDS " of the 90's. This whole Lyme Disease issue deserves air time in N.J., and I am hoping you or a different host will have enough interest to use it as a topic of discussion. Thanks so much.... Bernadette Olejko-Gadaleta, R.N. FOR IMMEDIATE RELEASE CONTACT: Smiley, OPT, MT Voices of Lyme (VOL) . shaniajay12@... Jo DenimLD@... Rita L. Stanley, Ph.D. Ritastan@... Dec. 1, 1999 PATIENTS PROTEST HARASSMENT OF DOCTORS WHO TREAT LYME DISEASE AT NY OFFICE OF PROFESSIONAL MEDICAL CONDUCT An organized demonstration of Lyme disease sufferers will be held outside the Office of Professional Medical Conduct (OPMC), 5 Penn Plaza, New York, NY on Wednesday, December 8, from 12 noon to 2:00 PM. A press conference is scheduled for 1:00 PM. Protest organizers indicate that there is evidence of accelerating harassment of physicians who treat Lyme disease in ways that do not conform to very stringent guidelines. A total of 17 doctors are now being investigated on the East coast. Accusers in many cases are anonymous as are the initial charges filed against the physicians. Dr. Orens of Great Neck, NY, had his license revoked on November 24. Charges against him indicated that he " overdiagnosed " , " overtreated " and " overtested " for Lyme disease. Key to these charges is that Lyme is cured in about 4 weeks of antibiotic treatment. Protestors strongly disagree and demand recognition of open-minded approaches. The Lyme community will publicly protest the OPMC's position on identifying, harassing and severely sanctioning Lyme disease doctors. They will call for the reinstatement of Dr. Orens' license and exposure of the individuals responsible for this outrage. The Lyme community contends that the academically spawned guidelines used for sanctioning doctors are obsolete, biologically unfounded and ethically suspect. Lyme disease, a tick-borne infection, is the second fastest growing infectious disease in the US. With about 17,000 cases reported in 1998, the actual figure may easily be 10 times that according to the CDC. Although publicized chiefly in the Eastern U.S., this infection occurs on a global scale. " Investigation and sanctioning of physicians who deviate from conservative Lyme protocols is a bully tactic used to maintain predominance of a belief system that cannot be sustained in the light of current research, clinical experience and patient perspective. " - Smiley, OPT,MT , protest organizer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 1999 Report Share Posted December 2, 1999 In a message dated 12/01/1999 12:03:57 PM Eastern Standard Time, elsbeth@... writes: << Have a wonderful birthday today, Marta. I'll pray especially hard for your healing today. You're a woman with a beautiful and wise heart. >> Well, that about sizes up how I feel about you too Marta! You are the best! Happy Birthday Marleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 Marleen, Are you up? Can I call you????? Need to talk, urgent....Thanks for the kind words, you give me too much credit. HUgs, Marta Re: [Lyme-aid] Birthday Marta >From: LymeFightr@... > >In a message dated 12/01/1999 12:03:57 PM Eastern Standard Time, >elsbeth@... writes: > ><< Have a wonderful birthday today, Marta. I'll pray especially hard for your >healing today. You're a woman with a beautiful and wise heart. >> > > >Well, that about sizes up how I feel about you too Marta! You are the best! >Happy Birthday >Marleen > >>Send to -Offtopiconelist messages unrelated to lyme, please. >/archive/lyme-aid >/archives.cgi/Lyme-Documents >To unsubscribe, send email to -unsubscribeonelist >You may substitute " subscribe " , or " digest " or " normal " for >the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 1999 Report Share Posted December 3, 1999 Sorry about this, meant to send this via private email, I sure sound desperate, don't I???? LOL! feeling dumb, Marta >From: " J & M McCoy " <mlmccoy@...> > >Marleen, > Are you up? Can I call you????? Need to talk, urgent....Thanks for the >kind words, you give me too much credit. >HUgs, >Marta > >>From: LymeFightr@... >> >> >>Well, that about sizes up how I feel about you too Marta! You are the best! >>Happy Birthday >>Marleen Quote Link to comment Share on other sites More sharing options...
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