Re: J.Fox/Parkinson's Research

[Guest guest]

In a message dated 9/29/99 8:16:02 PM, C13JK@... writes:

<<Parkinson's usually appears in the 60s and 70s, Fox is more the exception

being affected so young. I know this sounds callous but, 70 yr.old people

need a cure, when we don't even have a reliable test for diagnosis, for a

disease that has affected,destroyed and killed young people?>>

Hi

I happen to know quite a few folks that have been diagnosed with Parkinson's

Disease between the ages of 40-50. There is no cure for it, and it is a

progressive disease. In My Humble Opinion: It would be nice if all diseases

could get the appropriate funding for research!!! Lets stop pitting one

disease against another and fight to be heard!

My 2 cents worth.

Take Care,

Jane

[Guest guest]

,

I'd like to see a copy of your letter. By the way, did you actually see

J. Fox, I thought he did well, he said something to the effect of

not wanting to take away anything from any other medical cause, but that if

they gave him what he asked for, they (Parkinson sufferers) would go away,

he felt they were so close to a cure or something. Anyway, just goes to

show, it takes a famous person to get their attention. I've always been

baffled why we as a society put so much weight on a celebrity? We need more

praise and funding for doctors and education. I do understand your

frustration, but remember our disease is fairly new compared to Parkinson,

and we just need to keep fighting and shouting and not give up. If we all

pull together, we will get something done. I called the Senators offices

again, and this time took Reid's lead and asked for a hearing like M.J. Fox

got. They sounded as if they were humoring me when taking my message. But I

plan to back it up with letters - LETS JUST BOMBARD them with letters and

calls, eventually we'll get someone's attention.

Be well

Vicki

[Lyme-aid] J.Fox/Parkinson's Research

>From: C13JK@...

>

>Well folks, this article really got my dander up. So much that I decided to

>copy it in case anyone has missed it in their local papers.

>I have already sent a letter to our dear Sen.Wellstone, and am working on

one

>to Sen Specter.

>My point being, where is the funding for Lyme Disease???

>Parkinson's usually appears in the 60s and 70s, Fox is more the exception

>being affected so young. I know this sounds callous but, 70 yr.old people

>need a cure, when we don't even have a reliable test for diagnosis, for a

>disease that has affected,destroyed and killed young people?

>I also sent Wellstone Art's links on Parkinson's and Lyme. He should take

>notice as both his parents are affected with Parkinson's .

>I did refrain from being hostile in my letter, but you guys understand my

>emothion here,right? If any one wants a copy of what I wrote, let me know.

>Still steamin'

> (MN)

>

>

> Published Wednesday, September 29, 1999 /Minneapolis Star Tribune

>

> J. Fox seeks more research funding for Parkinson's disease

>Coralie Carlson / Star Tribune

>

>WASHINGTON, D.C. -- J. Fox took a break from his acting duties

>Tuesday to talk about his real-life battle with Parkinson's disease and to

>urge a Senate panel to expedite the search for a cure.

>

>Congress can do that, he said, by providing an additional $75 million to

>Parkinson's research.

>

>Fox, who was diagnosed with Parkinson's eight years ago, said researchers

>expect to discover a cure within 10 years -- if they have enough money to

>complete their studies.

>

> " There's a path that's already been started on that could lead to a cure, "

>said Fox, who stars in the television sitcom " Spin City. "

>

>Along with a panel of experts and a group of Parkinson's patients, Fox

asked

>the Senate Labor, Health and Human Services subcommittee to allocate an

>additional $2 billion to the National Institute of Health (NIH). Of that

>money, $75 million would go to NIH departments that study Parkinson's.

>

>The Senate is expected to vote on the proposal this week, said Sen. Arlen

>Specter, R-Penn., chairman of the subcommittee.

>

>In 1997, Congress authorized $100 million each year for Parkinson's

research,

>but it has not yet fully funded that legislation.

>

>Sen. Wellstone, D-Minn., said the Senate needs to make Parkinson's

>research a priority.

>

> " It's a question of political will, " he said Tuesday. " Are we going to

>continue to play budget games or are we going to commit the resources

>necessary to finding the cure for Parkinson's that is within reach? "

>

>Both of Wellstone's parents suffered from Parkinson's disease, and he has

>became an advocate in the Senate for more funding.

>

>After the hearing, Fox said he was " hoping to put a face that people know "

on

>the disease.

>

> " This isn't some strange, kind of exotic thing, " he said. " The one million

>people living with Parkinson's want to beat this disease. "

>

>

>© Copyright 1999 Star Tribune. All rights reserved.

>

>

>

>

>->------------------------------------------------------------------------

>Send to -Offtopiconelist messages unrelated to lyme, please.

>/archive/lyme-aid

>/archives.cgi/Lyme-Documents

>To unsubscribe, send email to -unsubscribeonelist

>You may substitute " subscribe " , or " digest " or " normal " for

>the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

>

[Guest guest]

what about Lyme disease that is more prominent I am sure. Oh I am on a mad

streak today...lol

Cyntha Landon

[Lyme-aid] J.Fox/Parkinson's Research

> From: C13JK@...

>

> Well folks, this article really got my dander up. So much that I decided

to

> copy it in case anyone has missed it in their local papers.

> I have already sent a letter to our dear Sen.Wellstone, and am working on

one

> to Sen Specter.

> My point being, where is the funding for Lyme Disease???

> Parkinson's usually appears in the 60s and 70s, Fox is more the exception

> being affected so young. I know this sounds callous but, 70 yr.old people

> need a cure, when we don't even have a reliable test for diagnosis, for a

> disease that has affected,destroyed and killed young people?

> I also sent Wellstone Art's links on Parkinson's and Lyme. He should take

> notice as both his parents are affected with Parkinson's .

> I did refrain from being hostile in my letter, but you guys understand my

> emothion here,right? If any one wants a copy of what I wrote, let me know.

> Still steamin'

> (MN)

>

>

> Published Wednesday, September 29, 1999 /Minneapolis Star Tribune

>

> J. Fox seeks more research funding for Parkinson's disease

> Coralie Carlson / Star Tribune

>

> WASHINGTON, D.C. -- J. Fox took a break from his acting duties

> Tuesday to talk about his real-life battle with Parkinson's disease and to

> urge a Senate panel to expedite the search for a cure.

>

> Congress can do that, he said, by providing an additional $75 million to

> Parkinson's research.

>

> Fox, who was diagnosed with Parkinson's eight years ago, said researchers

> expect to discover a cure within 10 years -- if they have enough money to

> complete their studies.

>

> " There's a path that's already been started on that could lead to a cure, "

> said Fox, who stars in the television sitcom " Spin City. "

>

> Along with a panel of experts and a group of Parkinson's patients, Fox

asked

> the Senate Labor, Health and Human Services subcommittee to allocate an

> additional $2 billion to the National Institute of Health (NIH). Of that

> money, $75 million would go to NIH departments that study Parkinson's.

>

> The Senate is expected to vote on the proposal this week, said Sen. Arlen

> Specter, R-Penn., chairman of the subcommittee.

>

> In 1997, Congress authorized $100 million each year for Parkinson's

research,

> but it has not yet fully funded that legislation.

>

> Sen. Wellstone, D-Minn., said the Senate needs to make Parkinson's

> research a priority.

>

> " It's a question of political will, " he said Tuesday. " Are we going to

> continue to play budget games or are we going to commit the resources

> necessary to finding the cure for Parkinson's that is within reach? "

>

> Both of Wellstone's parents suffered from Parkinson's disease, and he has

> became an advocate in the Senate for more funding.

>

> After the hearing, Fox said he was " hoping to put a face that people know "

on

> the disease.

>

> " This isn't some strange, kind of exotic thing, " he said. " The one million

> people living with Parkinson's want to beat this disease. "

>

>

> © Copyright 1999 Star Tribune. All rights reserved.

>

>

>

>

> > Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank both the message and subject header.

>

[Guest guest]

Okay perhaps this was uncalled for from me...but I am sorry...I don't feel

so sorry today...tomorrow I will apologize for my meanness...

Cyntha Landon

[Lyme-aid] J.Fox/Parkinson's Research

>

>

> > From: C13JK@...

> >

> > Well folks, this article really got my dander up. So much that I decided

> to

> > copy it in case anyone has missed it in their local papers.

> > I have already sent a letter to our dear Sen.Wellstone, and am working

on

> one

> > to Sen Specter.

> > My point being, where is the funding for Lyme Disease???

> > Parkinson's usually appears in the 60s and 70s, Fox is more the

exception

> > being affected so young. I know this sounds callous but, 70 yr.old

people

> > need a cure, when we don't even have a reliable test for diagnosis, for

a

> > disease that has affected,destroyed and killed young people?

> > I also sent Wellstone Art's links on Parkinson's and Lyme. He should

take

> > notice as both his parents are affected with Parkinson's .

> > I did refrain from being hostile in my letter, but you guys understand

my

> > emothion here,right? If any one wants a copy of what I wrote, let me

know.

> > Still steamin'

> > (MN)

> >

> >

> > Published Wednesday, September 29, 1999 /Minneapolis Star Tribune

> >

> > J. Fox seeks more research funding for Parkinson's disease

> > Coralie Carlson / Star Tribune

> >

> > WASHINGTON, D.C. -- J. Fox took a break from his acting duties

> > Tuesday to talk about his real-life battle with Parkinson's disease and

to

> > urge a Senate panel to expedite the search for a cure.

> >

> > Congress can do that, he said, by providing an additional $75 million to

> > Parkinson's research.

> >

> > Fox, who was diagnosed with Parkinson's eight years ago, said

researchers

> > expect to discover a cure within 10 years -- if they have enough money

to

> > complete their studies.

> >

> > " There's a path that's already been started on that could lead to a

cure, "

> > said Fox, who stars in the television sitcom " Spin City. "

> >

> > Along with a panel of experts and a group of Parkinson's patients, Fox

> asked

> > the Senate Labor, Health and Human Services subcommittee to allocate an

> > additional $2 billion to the National Institute of Health (NIH). Of that

> > money, $75 million would go to NIH departments that study Parkinson's.

> >

> > The Senate is expected to vote on the proposal this week, said Sen.

Arlen

> > Specter, R-Penn., chairman of the subcommittee.

> >

> > In 1997, Congress authorized $100 million each year for Parkinson's

> research,

> > but it has not yet fully funded that legislation.

> >

> > Sen. Wellstone, D-Minn., said the Senate needs to make Parkinson's

> > research a priority.

> >

> > " It's a question of political will, " he said Tuesday. " Are we going to

> > continue to play budget games or are we going to commit the resources

> > necessary to finding the cure for Parkinson's that is within reach? "

> >

> > Both of Wellstone's parents suffered from Parkinson's disease, and he

has

> > became an advocate in the Senate for more funding.

> >

> > After the hearing, Fox said he was " hoping to put a face that people

know "

> on

> > the disease.

> >

> > " This isn't some strange, kind of exotic thing, " he said. " The one

million

> > people living with Parkinson's want to beat this disease. "

> >

> >

> > © Copyright 1999 Star Tribune. All rights reserved.

> >

> >

> >

> >

> > > Send to -Offtopiconelist messages unrelated to lyme,

please.

> > /archive/lyme-aid

> > /archives.cgi/Lyme-Documents

> > To unsubscribe, send email to -unsubscribeonelist

> > You may substitute " subscribe " , or " digest " or " normal " for

> > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

> blank both the message and subject header.

> >

>

> > Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank both the message and subject header.

>

[Guest guest]

cindy....this is what i have been writing about......u must call ur

congressman....we need a congressional hearing.....i called mine yester day

and will continue to follow up.....the last hearing was in 1993 i feel it is

time to have our story told....so much has transpired since

then........please everyone call or write ur congressman ....we need this

hearing .....get passinonate get invloved.....

Reid

[Guest guest]

jane ....i am not saying don't fund parkinsons......but we NEED FUNDING FOR

LYE....WITHOUT GETTING POLITCAL AND PUSHING OUR REPS WE WILL GET

NOWHERE.......WRITE /CALL.....DO SOMETHING...

REID

[Guest guest]

In a message dated 9/30/99 9:12:31 PM, RMcmur3194@... writes:

<<..but we NEED FUNDING FOR

LYE....WITHOUT GETTING POLITCAL AND PUSHING OUR REPS WE WILL GET

NOWHERE.......WRITE /CALL.....DO SOMETHING...>>

Hi Reid

Please don't SHOUT at me! I have been writing letters and sending e-mail

messages

ever since May! I was very involved with helping to get CT's legislature to

improve the

Health Care Legislation, which was passed and goes into effect tomorrow on my

B'day!

I know we need funding for research and I will continue to write my

congressmen and other political figures! That is what I was saying, instead

of discussing being upset over other diseases getting more funding, we need

to fight to improve the funding for Lyme Disease!!

I have only been ill for 5 months, and I have been told by many that my case

is one of the worse they have ever seen! I am doing all I can! I think we

need to take all the negative energy and turn it so that it is positive and

productive energy!

Be well,

Jane

[Guest guest]

sorry jane ....do not mean to yelll however this is important.......while we

all feel like crap....we must continue to fight ....figured by welling i

would wak some people up......

do not worry if they blow u off.....just keep alling ....writing

newspapers....send a letter to the pres.....whoever....if they get enuff they

will listen...

Reid