Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 In a message dated 6/9/2001 7:58:06 PM Central Daylight Time, benpalombo@... writes: > . Some positive input from my fellow CMTers will > help. > , I know how you feel. It sometimes seems that with AFO's there is always something that needs adjusting. I have been having to wear mine for way too many hours over the past two weeks because my father-in-law was in the hospital and there was a lot of walking back and forth to ICU and VERY long days at the hospital. He died Friday. When we finally had two minutes to sit down and relax, I discovered that my left AFO had rubbed a pressure sore on two places on my left foot. Now I have to be careful and let them have a little time off. I felt really clumsy all day today without them. I thought I hated wearing them, but I found out how much I need them. Hang in there. If it's any consolation, I know what it's like to have unsupportive parents where CMT is concerned. My sister and I laugh about it now, but when I was growing up I was constantly falling and spraining and breaking my ankles. She says, " You'd think they (my parents) would have caught on after the fifth or sixth time that something was a little off. " I think denial was a big part of it, their children couldn't have anything wrong with them. For a long time I was very bitter about it all, but before my mother died we sorted through it all and both were at peace with the whole deal. My father still acts like I can do anything, but that's okay. Keep on keeping on, C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Hi , Is it possible that part of the problem might be that the toe well of your shoe is not deep enough? Try pulling out the insole and see if that helps any. Also, by all means, make an appointment right away to have the orthotist make the necessary adjustments. AFOs that fit properly can make a world of difference in your mobility. What design are your AFOs? Are they hinged at the ankle or fixed ankle or any special style? I am in the market for new ones and am seriously considering the Virtual Gait double helix style. Don't be discouraged, as it often takes several tries before getting a perfect fit. You might try marking your foot where it is pinching on your next visit, or wear them long enough so the red spots are still apparent when he looks at your foot. Persevere and let us know how you make out. Hopefully your folks will become more supportive. In the meantime you have your your family and all of us in your corner! Ruth Subject: AFO support needed Hi CMTers, I have had my new AFO'S for two weeks now and I am having a bit of a bad patch at the moment. The left leg AFO is needing to be adjusted as it is cutting off my circulation to my toes so I have stopped wearing them. I feel a bit deflated at the moment, the positive attitude has decreased considerably. I think the worst part is my mum and dad returned from holiday on Tuesday and as usual with anything conected with CMT had not registered an interest in my AFO'S they seem to think it is a step back ward as I will now always have to rely on them. I am so frustrated that I let them get to me as my husband and daughter are so supportive in these matters. Some positive input from my fellow CMTers will help. P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 I, alas, do wear AFO's Whenever a new AFO is made, you have to wear it around a bit to see how it fits. Odds are it won't be quite right. You then need to make an appointment for an adjustment. It may take several adjustment visits before it is right. I've been to several orthodists and it has always been standard practice to schedule adjustment appointments. I've had my current pair of AFO's for over a year and I still go in every now and then for adjustments as my legs/feet change. Hope that this helps! -mari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 In a message dated 6/10/2001 11:32:59 PM Pacific Daylight Time, rfc40@... writes: << I think the worst part is my mum and dad returned from holiday on Tuesday and as usual with anything conected with CMT had not registered an interest in my AFO'S they seem to think it is a step back ward as I will now always have to rely on them. >> , Your parents are wrong. With AFO you will walk with less fatigue. You willl be safer from falls. They can also preserve the muscles from getting over used. You are doing the best thing you can for yourself. jenny Quote Link to comment Share on other sites More sharing options...
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