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Weather and CMT

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In a message dated 5/21/2001 11:59:51 PM Pacific Daylight Time, lls@...

writes:

<< Lynn,

I assure you that south GA is hot. While I have never been to AZ, I

understand the humidity is low. Here we often 100 with a near 100%

humidity. It feels hotter here at 90 than in TX at 115. >>

Lamar do you swell in the humid weather? Southern Ca gets hot but we only

have 2 weeks of humidity.. I am glad thats all I can stand.

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Differing from many with CMT, I have edema all the time to some extent. As

with any edema it tends to be worse in heat. This is actually true with

most people. Most only see a small difference, that rings do not fit as

tight in cold weather. The heat causes the surface blood vessels to expand

to increase blood flow in order to cool the body. Therefore there is some

slight increase.

----- Original Message -----

From: Mommy2Adam@...

Sent: Tuesday, May 22, 2001 08:37 PM

Subject: [] Weather and CMT

In a message dated 5/21/2001 11:59:51 PM Pacific Daylight Time,

lls@...

writes:

<< Lynn,

I assure you that south GA is hot. While I have never been to AZ, I

understand the humidity is low. Here we often 100 with a near 100%

humidity. It feels hotter here at 90 than in TX at 115. >>

Lamar do you swell in the humid weather? Southern Ca gets hot but we only

have 2 weeks of humidity.. I am glad thats all I can stand.

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In a message dated 5/22/2001 9:09:05 PM Pacific Daylight Time,

rmax@... writes:

> do you get the Santa Ana winds where you are at? I hated those. I

> never could breath right during those winds if outside, it seemed to take my

> breath away, ~>

We get the santa ana winds but my side of town is not so bad. Its the

*blessed* side of town, lol

jenny

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-----Original Message-----

From: Mommy2Adam@... <Mommy2Adam@...>

>Lamar do you swell in the humid weather? Southern Ca gets hot but we only

>have 2 weeks of humidity.. I am glad thats all I can stand.

>

>

>>>> do you get the Santa Ana winds where you are at? I hated those. I

never could breath right during those winds if outside, it seemed to take my

breath away, ~>Becky M.

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> In a message dated 5/21/2001 11:59:51 PM Pacific Daylight Time,

lls@r...

> writes:

>

> << Lynn,

> I assure you that south GA is hot. While I have never been to

AZ, I

> understand the humidity is low. Here we often 100 with a near

100%

> humidity. It feels hotter here at 90 than in TX at 115. >>

>

>

> Lamar do you swell in the humid weather? Southern Ca gets hot but

we only

> have 2 weeks of humidity.. I am glad thats all I can stand.

>

Hello ;

My name is Becky LaPrarie

I have cmtd- and I swell bad sometimes especially when I travel-

please tell me about your disease and what all happens to you I have

no one at this time to share with--thanks truly and God bless you! I

am 41--have a great day

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  • 7 years later...
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Hi ,

No, my CMT is not affected by the weather, but my mood is. I think

I have one of those " seasonal affective disorders " . As it happens,

I'm on antidepressants anyway, cause depression runs in my family.

Already being on antidepressants when diagnosed with CMT probably

helped in my acceptance of it!

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I get depressed also...in the winter I'm in all the time and in the summer I

can't find anything to do outside..or am not being able of doing what I would

like to do...need to make some $ but art is not selling..crafts are not

selling...I get tired of not doing anything!

Geri

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Geri,

I can relate. My sister (when we talked) used to get in me for not wanting to go

to the beach or lake. She actually told people that I was a bad mother because I

never took my kids to these places. I finally had to tell my adult niece that

WE (me and my CMT kids) did not like to wear shorts, walk on sand, or climb into

a boat. Not to mention I get sunburned like no other.

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I don't get depressed because I like the cooler weather.  I feel more

comfortable with jeans and sturdy shoes during the cool weather where as

summertime, sandals and clothing that show my skinny legs don't appeal to me. 

 

What I find in the winter is that my hands really are almost usless.  I have no

muscles around my thumb and when my hands are cold they are just there but are

useless.  I can't do anything that involves the thumb and end up " pawing " at

things.  It is impossible to unbutton or hold a pen.  Very frustrating!!!!

Cyndi

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