Re: Digest Number 1109

August 4, 2000

Can someone please send me this digest? Mine seems to be corrupted or

something.

Thanks!

August 5, 2000

HI Ellen,

>How do I know if I have CFS with my FMS?

The only way is symptomatic, and with the big overlap between the two

syndromes it may come down to a matter of preference between you & docs.

CFS always has fatigue as a major component; FM always has tender points.

The other stuff can occur in both, to a greater or lesser extent. The neuro

symptoms are more common in CFS - impaired memory, short attention span,

poor concentration, dificulty finding words, difficulty planning ahead,

difficulty following instructions, difficulty listening (not hearing, but

listening to what's said). Joint pains, swollen lymph nodes and

post-exertion malaise (crashing the day after physical exertion) are typical

of CFS but not common in FM.

FM is much more physical pain - tender points, trigger points, muscle pain,

etc.

Jerry

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

May 7, 2002

> If you already have a bicycle I would suggest a company called

> computrainer. It has the advantage of using your own bike that is

> hopefully set up for you and also has a nice computer program that

> allows you to race a opponent that you program. www.computrainer.com

>

> Amos Brumble westerly R.I.

There is also an excellent trainer called 1UpUsa, engineered and

hand-made in the US by Corky . It's the best trainer I've ever

used, well ahead of the imported mag or fluid ones. Corky bundles a

Sigma computer that works with the trainer. It's light and easily

foldable for storage or transport, and very well-machined. No substitute

for riding outdoors on a beautiful day, but nice when the weather is

sucky. http://www.1upusa.com/

DeLorenzo

NY, NY

May 7, 2002

> If you already have a bicycle I would suggest a company called

> computrainer. It has the advantage of using your own bike that is

> hopefully set up for you and also has a nice computer program that

> allows you to race a opponent that you program. www.computrainer.com

>

> Amos Brumble westerly R.I.

There is also an excellent trainer called 1UpUsa, engineered and

hand-made in the US by Corky . It's the best trainer I've ever

used, well ahead of the imported mag or fluid ones. Corky bundles a

Sigma computer that works with the trainer. It's light and easily

foldable for storage or transport, and very well-machined. No substitute

for riding outdoors on a beautiful day, but nice when the weather is

sucky. http://www.1upusa.com/

DeLorenzo

NY, NY

May 5, 2003

Arnold

Why don't you upload the file to the FILES section of this group? That

way, anyone at any time can have access to it.

mjh

ps I've misplace my copy of your report.

In a message dated 5/5/03 10:33:19 AM Eastern Daylight Time,

writes:

> Arnold,

>

> I recall your posting an overview of that 2001 NYU Symposium on

> Alternative Therapies for Epilepsy from your own personal experience of

> being in attendance at the event. In fact, I know you have posted it to

> this group several times. Therfore, you may not want to post it

> here again. If not, would you be so kind as to send it to me via my

> personal e-mail address at lamar@.... Or, even better, if you

> have it posted to a website somewhere, could you just provide the

> website link? I would very much like to share your information with

> some folks who are unaware there may be ways to address epileptic

> problems outside the use of drugs and surgery.

>

> I appreciate your help in this matter.

>

> Lamar

>

May 5, 2003

Do you take supplemental Magnesium, B complex, l-taurine and fish oil?

Have you read the two books out of dealing with epilepsy naturally?

Have you learned to identify and manage the stressors in your life?

Do you eat any neuroexcitoxins?

mjh

In a message dated 5/5/03 10:33:19 AM Eastern Daylight Time,

writes:

> From: " dmccall " <dmccall3@...>

> Subject: Re: what to do

>

> okay everyone here I am sitting in front of my PC looking for some support.

> Okay I had another seizure Thursday night while I was sleep.Last one was 20

> days before that also in my sleep. Woke up to a sore tongue and confusion.

> Anyway I have looked and found an epileptogist at the Burrow neurological

> institute here in AZ.I have not called yet but will tomorrow. Okay my plans

> are to have them examine me and hopefully do a sleep study on me.But in my

> heart I know they are going to recommend medication. Something as some of

> you know I have been avoiding for 5 years. But I am tired of this sh**t and

> the effects of the seizures seem to be lasting longer and more profound. I

> have been exercising juicing and caring for myself but still they

> come.Everyone is trying to get off AED meds and here I am thinking of

> getting on. Is it so bad.Or will it stop the seizures.and if it does stop

> them is it worth the side affects if any.Well I know I am tired of living in

> this shadow.But is the medication that bad. So any advice is welcome

> although I hope I dont sound like a broken record from my last post. It's

> just that I am scared.

> Darrell

>

December 17, 2003

I have spent a lot of time abroad and I think above everything that I missed

was starting the day with the Today programme, it is completely addictive.

Anyway, I am not a great competition enterer however.......

This is my submission to the Radio 4 competition that started today to try

to create a new law. It is part of the Today programme looking at policy

making and the competition is to be overseen by MP Pound. They are

attempting to watch the progress of legislation through the system by

hopefully tagging their law [something thoughtful from listeners] onto

something else going through Parliament. I thought what the heck nothing

ventured!! You can read about it on the Today website, incidentally they are

showing a particularly beautiful xmas card made and sent in by a reader.

And a merry Christmas to you all in Senate!

The health visiting register will be disbanded (despite vociferous

protestations from the profession) and all current registrants are to be

transferred on to a nursing register on the 1st April 2004.

The health visiting title and training will no longer be protected in law.

Where now for the profession and public safety? After April 2004 anyone can

call himself or herself, a health visitor to gain bogus access to a home or

to sell infant products under the guise of registration. The only way to

rectify this mistake (we were told that's what it was) is to legislate to

bring back the protected title and registration of health visitors. Smaller

in number than the Nursing Profession and with a different training, it is

the only profession committed to primary preventive work with individuals,

families and communities.

>From:

>Reply-

>

>Subject: Digest Number 1109

>Date: 17 Dec 2003 10:37:47 -0000

>

>There are 4 messages in this issue.

>

>Topics in this digest:

>

> 1. Re: Meeting 20th January

> From: Toity Deave <toity.deave@...>

> 2. Re: proposed changes to HV management

> From: " Tom Lund-Lack " <tcll@...>

> 3. RE: : Fw: Post Natal Guideline Scope Consultation

> From: " Sheelah Seeley " <sheelah@...>

> 4. RE: Meeting 20th January

> From: " Sheelah Seeley " <sheelah@...>

>

>________________________________________________________________________

>

>Message: 1

> Date: Tue, 16 Dec 2003 11:26:51 +0000

> From: Toity Deave <toity.deave@...>

>Subject: Re: Meeting 20th January

>

>I am sorry but I am going ot have send my a;ologies for this meeting

>since I already have 2 going on at the same time for three hours each!

>

>I hope that you get a good turn out and I look forward to hearing the

>'results' of it.

>

>Best wishes

>Toity

>

>On Sat, 13 Dec 2003 13:05:41 +0000 Cowley

><sarah@...> wrote:

>

> > Sally Kendall, has kindly agreed to host this meeting, even offering

> > refreshments. Many tahnks sally. Please will anyone who is able to

> > come let her PA know by the week before, i.e. 13th January? Best wishes

> >

> > Event Name: Removal of health visiting register: where now?

> > Date: Tuesday, January 20, 2004

> > Time: 12:30pm-3:30pm

> >

> > Description: On 20th January 2004, 12.30-3.30pm, we will hold a business

> > meeting with one item on the agenda (Venue Hertfordshire University,

> > Hatfield Campus).

> > The health visiting register will be disbanded and all current

> > registrants transferred on to a nursing register on 1st April 2004.

> > The health visiting title and training will no longer be protected in

>law.

> > Where now?

> > For further details and if you are able to come, please notify

> > J.Field@...

> >

>

>----------------------

>Dr. Toity Deave

>Research Fellow

>Primary Care Nursing Research Unit, Rm G15

>Florence Nightingale School of Nursing and Midwifery

> Clerk Maxwell Building

>57 Waterloo Road

>London SE1 8WA

>Tel: 020 7848 3527

>Fax: 020 7848 3506

>toity.deave@...

>http://www.pcps.ucl.ac.uk/pcnru

>

>________________________________________________________________________

>

>Message: 2

> Date: Tue, 16 Dec 2003 18:53:23 -0000

> From: " Tom Lund-Lack " <tcll@...>

>Subject: Re: proposed changes to HV management

>

>From Lund-Lack

>Thanks for your reply . I take everything you say on board and agree

>with you that close working between agencies can only be a good thing.

>However, my concerns still exist in relation to my original comments

>particularly when you hear that student social workers have been told at

>the local HEI that HVs are an expensive luxury and that their role in child

>protection is to facilitate activities by others. Does this mean that all

>the child protection assessment work may be parcelled off to HVs in the

>future if we are managed by them. Also, their extensive use of unqualified

>Family Support Workers could open the way to HV work being delegated to

>Nursery Nurses in a more wholesale way? Who would be responsible for the

>risk management? The supervising HV probably. I am also concerned about how

>the title 'Health Visitor' could be downgraded particularly now with the

>changes form April 2004. Who would take responsibility for recruitment and

>the writing of person specs, whose HR would it fall to.

>Here we offer a very much targeted universal service and there is alot of

>emphasis on the development of public health initiatives. We are not

>afraid of new challenges and embrace new ways of working on a regular basis

>but there are some proposed changes which feel very threatening. I only

>speak as a coal face worker.

>By the way, 3 of us will be attending the study day in Hatfield.

>Message -----

> From: Cowley

>

> Sent: Saturday, December 13, 2003 12:45 PM

> Subject: Re: proposed changes to HV management

>

> , it is always worrying when service changes are 'sprung' on

>practitioners with no consultation locally, so I do sympathise with the

>sudden shock and feeling this announcement must have created.

>

> But if health and social care agencies are merging from April 2004

>(which they will be in many areas) it can be expected that some

>directorates will have an NHS lead and some a social care lead. The Green

>Paper 'Every Child Matters' proposes that children's services should all

>come under a 'children's services director' encompassing at least social

>and educational services, so that post will automatically be a local

>authority one. One of the criticisms of the green paper was that there is

>too little 'health' in the proposals, so if local organisations are seeking

>to rectify that, it could be very positive. In some respects, it will be

>worrying if health visitors and school nurses are left out, since all the

>targets for improving child health are requirements for local authorities

>now, but they are optional priorities for the NHS. There seems little

>doubt that the government are determined to see children's trusts rolled

>out across the country, too; although the exact models are still being

>debated they will often have a local authority as lead agency as well.

>

> What all these policies mean, in effect, is that any funding for e.g.

>children's centres, preventive services, community development and so on,

>will all be vested, along with directives to comply, within the local

>children's services that will usually be led by local authorities. As we

>have seen with 'liberating the talents' (especially the 'public health '

>one), NHS priorities are strictly bounded by the clinical targets and

>access to services; children and families are simply not on their agenda.

>

> As so often, health visiting is between a 'rock and a hard place.' As

>an organisation, the NHS undoubtedly regards health visitors as useful only

>if they work as nurses (as indicated by removal of the health visiting

>register and medicalisation of the competences), adopting the illness model

>wholsesale and working in medical substitution and clinical care (as in

>'liberating the talents' and CNOs recent assertion in HSJ that health

>visitors should do clinical nursing care). The 'universal service' vision

>may still be strong in your area, but in much of the NHS, all it means is

>that people can contact a health visitor if they have a problem, as they

>could contact their GP or be referred to a specialist if they have a

>problem. Career pathways are almost non-existent (except via nursing)

>and, as witnessed in agenda for change, pay is unlikely to improve and set

>to be reduced for new entrants to health visiting, making recruitment even

>harder. Anyone who has been around health visiting for a number of years

>will be aware of the gradual slipping of pay differentials, ever since

>health visitors moved from local authority into NHS employ in 1974. Hardly

>a past or present track record to inspire confidence.

>

> On the other hand, the new visions coming out of DfES child and family

>services, under the Children's Minister, emphasise universal services for

>all children and families, prevention of risk of any kind (to health,

>educational development, as well as the more traditional focus on

>safeguarding and child protection) and promotion of health and social

>well-being through a focus on families and communities as well as the

>children themselves. Whenever I have been in a forum discussing these

>services, health visiting is extremely well regarded and considered (along

>with midwives) to be central to the workforce. Prevention, positive

>promotion and a multi-faceted 'can-do' flexibility is ever-present, unlike

>the NHS. There is great concern about how hard it is to engage health

>visitors in the discussions, because they are unable to reach through the

>NHS hierarchies to even speak to practitioners, let alone improve things

>like recruitment and workforce numbers. These fora include social

>services, but the new workforce will not, by any means, be only about

>social work or child protection, any more than PCTs are only about general

>practitoners. In many respects, it is a completely new venture, though, so

>that makes it risky for individuals, as well as potentially exciting.

>Funding for local authority services has never been as secure in the long

>term as for NHS services, and social services are even more run down,

>demoralised and damaged than health visiting services - hence poor

>relationships in many areas.

>

> I do hope your fears turn out to be unfounded, , and that my

>optimism on your behalf is more accurate: but of course, I know that local

>working relationships are far more powerful than any structures or

>political visions, so fully respect your concerns. Do keep us all posted.

>Is anyone else aware of similar plans in their areas?

> Best wishes

>

> Tom Lund-Lack wrote:

>

> From Lund-Lack

> Our local PCT has just distributed documents relating to health and

>social care. The idea is to merge health and social care agencies from

>April 2004. The document has been written by a local Social Service chief.

>Get this - social workers involved with the elderly will come under joint

>management with DNs but managed by NHS staff. HVs however will come under

>the management of social services. This is serious stuff and likely to

>cause an uproar. Our local social services got a 1 star rating in the last

>review and we don't have the best working relationship with them. It's

>horrifying to think that we might become totally child protection focussed

>and lose the public health and community development and all the other

>child and family work. I may be over-reacting but it does seem to be the

>wrong step. There's been no local consultation that I can see. Who takes

>accountability for our practice at manager level if that person is non-NHS?

>Whatever happened to Shifting the Balance of Power, LEO and Liberating the

>Talents? This also has implications for career ladders. Worst of all, what

>on earth are the clients going to think? Community Specialist Public Health

>Social Workers? Our neutrality and non-stigmatised service could be

>seriously undermined.

> I shall be asking our local CPHVA reps to take it up as an urgent

>issue.

>

December 17, 2003

-cogratulations on coming up with and proposing a legislative change

around the Register for the Today programme competition-I think that is a

brilliant idea and if nothing else it will get us some good publicity-but

obviously I hope you will win-Good Luck!

frances

Frances Appleby Principal Lecturer

Programme Director

BSc(Hons)/PGDip Community Health Care

020 7815 8014

applebfm@...

December 17, 2003

Well done ; what a wodnerful idea! Is there any way anyone can

support your efforts to get it selected?

Houston wrote:

>I have spent a lot of time abroad and I think above everything that I missed

>was starting the day with the Today programme, it is completely addictive.

>Anyway, I am not a great competition enterer however.......

>This is my submission to the Radio 4 competition that started today to try

>to create a new law. It is part of the Today programme looking at policy

>making and the competition is to be overseen by MP Pound. They are

>attempting to watch the progress of legislation through the system by

>hopefully tagging their law [something thoughtful from listeners] onto

>something else going through Parliament. I thought what the heck nothing

>ventured!! You can read about it on the Today website, incidentally they are

>showing a particularly beautiful xmas card made and sent in by a reader.

>And a merry Christmas to you all in Senate!

>

>The health visiting register will be disbanded (despite vociferous

>protestations from the profession) and all current registrants are to be

>transferred on to a nursing register on the 1st April 2004.

>The health visiting title and training will no longer be protected in law.

>Where now for the profession and public safety? After April 2004 anyone can

>call himself or herself, a health visitor to gain bogus access to a home or

>to sell infant products under the guise of registration. The only way to

>rectify this mistake (we were told that's what it was) is to legislate to

>bring back the protected title and registration of health visitors. Smaller

>in number than the Nursing Profession and with a different training, it is

>the only profession committed to primary preventive work with individuals,

>families and communities.

>

December 18, 2003

Dear and Senate,

On 8 January 2004 in London (the Queen II conference centre

near Parliament) the conference Health of the People - the Highest Law?

is addressing public health legislation. Registration is £160 via

Professional Briefings, london@... and the organisers

are the Nuffield Foundation, UKPHA and FPHM.

More details from

http://www.nuffieldtrust.org.uk/PRO2882%20Health%20of%20People%20v3.pdf

's idea is a good one - let's show off our cardigans to the

lawmakers!

Woody.

On Wed, 17 Dec 2003 20:27:22 +0000 Cowley

<sarah@...> wrote:

> Well done ; what a wodnerful idea! Is there any way anyone can

> support your efforts to get it selected?

>

> Houston wrote:

>

> >I have spent a lot of time abroad and I think above everything that I missed

> >was starting the day with the Today programme, it is completely addictive.

> >Anyway, I am not a great competition enterer however.......

> >This is my submission to the Radio 4 competition that started today to try

> >to create a new law. It is part of the Today programme looking at policy

> >making and the competition is to be overseen by MP Pound. They are

> >attempting to watch the progress of legislation through the system by

> >hopefully tagging their law [something thoughtful from listeners] onto

> >something else going through Parliament. I thought what the heck nothing

> >ventured!! You can read about it on the Today website, incidentally they are

> >showing a particularly beautiful xmas card made and sent in by a reader.

> >And a merry Christmas to you all in Senate!

> >

> >The health visiting register will be disbanded (despite vociferous

> >protestations from the profession) and all current registrants are to be

> >transferred on to a nursing register on the 1st April 2004.

> >The health visiting title and training will no longer be protected in law.

> >Where now for the profession and public safety? After April 2004 anyone can

> >call himself or herself, a health visitor to gain bogus access to a home or

> >to sell infant products under the guise of registration. The only way to

> >rectify this mistake (we were told that's what it was) is to legislate to

> >bring back the protected title and registration of health visitors. Smaller

> >in number than the Nursing Profession and with a different training, it is

> >the only profession committed to primary preventive work with individuals,

> >families and communities.

> >

>

December 18, 2003