Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 CONGRATULATIONS!!!! YOU DID IT!!!!!!!!!!!! As for sleep, I didn't have good sleep before tx so it wasn't a surprise that tx didn't improve it. I used Ambien when necessary. You could try Melatonin, it's over the counter. As for hot flashes, I had them for months after. I think it was due to my thyroid increasing (got a little above 7, limit was 6) and as my thyroid (TSH) has returned to normal I've lost the hot flashes. The first month after I stopped tx was the absolute worst for me. I had the shakes, hot and cold flashes, nausea and vomiting, just awful. After that month tho it went away and it was about 6 months later before I really could say I " felt better " . And still I have good days and bad days. Good luck! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Edie - Congratulations!!!! I don't know about the sweating. I'm hot and sweat a lot all the time too, summer and winter (what little we have here.) The old interferon just took a few days really, maybe a week, to work out of your system, but I'm sure the peg will take longer. My GUESS is a couple of weeks. If it were me I'd keep taking the Benedryl to help with sleep until you don't need it anymore. Or gradually reduce the dose. The ribavirin can take many weeks to work completely out of your system, and I don't know about the amantadine at all. Everyone is different, but I think it's pretty safe to say you should feel better within a couple of weeks. I can't wait to hear the results of your PCR! Good luck, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Edie - Congratulations!!!! I don't know about the sweating. I'm hot and sweat a lot all the time too, summer and winter (what little we have here.) The old interferon just took a few days really, maybe a week, to work out of your system, but I'm sure the peg will take longer. My GUESS is a couple of weeks. If it were me I'd keep taking the Benedryl to help with sleep until you don't need it anymore. Or gradually reduce the dose. The ribavirin can take many weeks to work completely out of your system, and I don't know about the amantadine at all. Everyone is different, but I think it's pretty safe to say you should feel better within a couple of weeks. I can't wait to hear the results of your PCR! Good luck, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Dear Edie, congratulations on finishing!!!! Uh..the sweating thing...beatsme, I'm still doing it and it's been 6 months! The sleep came back pretty soon for me. I don't even take any sleep meds at all now. I have just had my 6 month PCR & am still 'undect.' Somethings went away but took a while, others just didn't and I guess that's because they are products of the Hep or other autoimmune things. All in all being OFF treatment beats being On it anyday!!!!! Hope ur PCR is a good one! love, mzgee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Dear Edie, congratulations on finishing!!!! Uh..the sweating thing...beatsme, I'm still doing it and it's been 6 months! The sleep came back pretty soon for me. I don't even take any sleep meds at all now. I have just had my 6 month PCR & am still 'undect.' Somethings went away but took a while, others just didn't and I guess that's because they are products of the Hep or other autoimmune things. All in all being OFF treatment beats being On it anyday!!!!! Hope ur PCR is a good one! love, mzgee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Edie, Congratulatons on finishing treatment. I am fighting to get on the Peg. I have cirrhosis and my doc is doing tests to decide if I should do treatment or get ready for a transplant. I want one more chance to wage war against the dragon!!! About the sweating..... it took 2 years, after finishing the combo for my bod to cool off. It feels good to be able to wear a sweatshirt again. I live in Minnesota (alleys favorite state..lol) and I didn't even wear a winter coat for 2 winters! Good luck on your PCR and I hope you never have to do treatment again...... hugs, Judy http://community.webtv.net/jcmmo/Affirmation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Edie, Congratulatons on finishing treatment. I am fighting to get on the Peg. I have cirrhosis and my doc is doing tests to decide if I should do treatment or get ready for a transplant. I want one more chance to wage war against the dragon!!! About the sweating..... it took 2 years, after finishing the combo for my bod to cool off. It feels good to be able to wear a sweatshirt again. I live in Minnesota (alleys favorite state..lol) and I didn't even wear a winter coat for 2 winters! Good luck on your PCR and I hope you never have to do treatment again...... hugs, Judy http://community.webtv.net/jcmmo/Affirmation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 WTG Edie!!! About the sleeping....I'm not even on treatment yet and have terrible trouble sleeping, even with sleeping pills. I'll either just lay awake, or go to sleep for an hour and wake up and wide awake for hours. It's very frustrating and I'm always tired cuz I don't get the proper sleep. Some of it could be meno too, who knows. Carol wrote: > CONGRATULATIONS!!!! > > YOU DID IT!!!!!!!!!!!! > > As for sleep, I didn't have good sleep before tx so it wasn't a > surprise > that tx didn't improve it. I used Ambien when necessary. You could try > > Melatonin, it's over the counter. > > As for hot flashes, I had them for months after. I think it was due to > my > thyroid increasing (got a little above 7, limit was 6) and as my > thyroid > (TSH) has returned to normal I've lost the hot flashes. > > The first month after I stopped tx was the absolute worst for me. I > had the > shakes, hot and cold flashes, nausea and vomiting, just awful. After > that > month tho it went away and it was about 6 months later before I really > could > say I " felt better " . And still I have good days and bad days. > > Good luck! > > alley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 WTG Edie!!! About the sleeping....I'm not even on treatment yet and have terrible trouble sleeping, even with sleeping pills. I'll either just lay awake, or go to sleep for an hour and wake up and wide awake for hours. It's very frustrating and I'm always tired cuz I don't get the proper sleep. Some of it could be meno too, who knows. Carol wrote: > CONGRATULATIONS!!!! > > YOU DID IT!!!!!!!!!!!! > > As for sleep, I didn't have good sleep before tx so it wasn't a > surprise > that tx didn't improve it. I used Ambien when necessary. You could try > > Melatonin, it's over the counter. > > As for hot flashes, I had them for months after. I think it was due to > my > thyroid increasing (got a little above 7, limit was 6) and as my > thyroid > (TSH) has returned to normal I've lost the hot flashes. > > The first month after I stopped tx was the absolute worst for me. I > had the > shakes, hot and cold flashes, nausea and vomiting, just awful. After > that > month tho it went away and it was about 6 months later before I really > could > say I " felt better " . And still I have good days and bad days. > > Good luck! > > alley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Good luck Judy...I hope you have the chance to do treatment again. I loved the affirmation on the bottom of your post. Huggggggs Carol jcmmo@... wrote: > Edie, > > Congratulatons on finishing treatment. > I am fighting to get on the Peg. > I have cirrhosis and my doc is doing tests > to decide if I should do treatment or get ready for a transplant. I > want one more chance to wage war against the dragon!!! > > About the sweating..... it took 2 years, after finishing the combo for > > my bod to cool off. It feels good to be able to wear a sweatshirt > again. I live in Minnesota (alleys favorite state..lol) and I didn't > even wear a winter coat for 2 winters! > > Good luck on your PCR and I hope you never have to do treatment > again...... > > hugs, > Judy > > > http://community.webtv.net/jcmmo/Affirmation > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Good luck Judy...I hope you have the chance to do treatment again. I loved the affirmation on the bottom of your post. Huggggggs Carol jcmmo@... wrote: > Edie, > > Congratulatons on finishing treatment. > I am fighting to get on the Peg. > I have cirrhosis and my doc is doing tests > to decide if I should do treatment or get ready for a transplant. I > want one more chance to wage war against the dragon!!! > > About the sweating..... it took 2 years, after finishing the combo for > > my bod to cool off. It feels good to be able to wear a sweatshirt > again. I live in Minnesota (alleys favorite state..lol) and I didn't > even wear a winter coat for 2 winters! > > Good luck on your PCR and I hope you never have to do treatment > again...... > > hugs, > Judy > > > http://community.webtv.net/jcmmo/Affirmation > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Mzgee Congratulations on yur 6 month pcr being undectable! That is wonderful news. Hope it stays that way. Suzy _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Edie Congratulations on finishing treatment. What a wonderful feeling huh? hope your pcr comes back undectable too. that would be another success story here for the medicine. take care and keep us posted Suzy _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 its amazing how everyone is different I was freezing when I was on combo!! except for when I had hot flashes but most of the time I couldn't have enough clothes on. of course I did lose a lot of weight and my body is used to body fat which I didn't have much of esp. at the end Suzy _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 ---------- >From: " Edie " <erodriguez7@...> > What kind of experience should I expect? Dr. has told me to stop taking > all med's except my Zoloft starting first thing tomorrow morning. Hurray! No more shots! Everybody is different-some come back quickly from their round of treatment, others take longer to recup. I bet the sweating/heat stuff will disappear quickly as it sounds like the feverish effect you get from interferon. May you reach the sustained response state that we all look for. gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 ---------- >From: Mzgee1@... >Hepatitis C >Subject: Re: Post Treatment >Date: Fri, Mar 1, 2002, 4:27 PM > > Dear Edie, congratulations on finishing!!!! Uh..the sweating > thing...beatsme, I'm still doing it and it's been 6 months! The sleep came > back pretty soon for me. I don't even take any sleep meds at all now. I > have just had my 6 month PCR & am still 'undect.' Great news on sustained response!!! I am envious! gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 ---------- >From: Mzgee1@... >Hepatitis C >Subject: Re: Post Treatment >Date: Fri, Mar 1, 2002, 4:27 PM > > Dear Edie, congratulations on finishing!!!! Uh..the sweating > thing...beatsme, I'm still doing it and it's been 6 months! The sleep came > back pretty soon for me. I don't even take any sleep meds at all now. I > have just had my 6 month PCR & am still 'undect.' Great news on sustained response!!! I am envious! gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 Thanks Suzy, me too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 , the first month or so after I completed treatment I felt awful, worse than ever while on treatment and I seriously thought I must have been dying. But it passed, with no help from my doc. Be sure to tell your doc of your symptoms, just in case there's not something else going on. I know how you feel tho. It ain't fun. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 , the first month or so after I completed treatment I felt awful, worse than ever while on treatment and I seriously thought I must have been dying. But it passed, with no help from my doc. Be sure to tell your doc of your symptoms, just in case there's not something else going on. I know how you feel tho. It ain't fun. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Willem... After my 13 months on the old combo, I went through withdrawal type stuff. Felt awful, was jittery and jumpy, crummy tummy for the jitteriness and very tired but couldn't sleep. I even had to take some time off work which I hadn't had to do all through treatment. As always, everyone experiences things differently. But at the time, I said the same thing...is this withdrawal???? Tatezi willem landstra wrote: > HI.Now 9 days post-treatment and I feel bloody awfull.Worse then I > was on the PEG-combo.Do I suffer from withdrawel symptons?.Never had > this when I withdrew from standard.Is this normal and somebody else > has the same experience?Thanks,not ROFL,. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Willem... After my 13 months on the old combo, I went through withdrawal type stuff. Felt awful, was jittery and jumpy, crummy tummy for the jitteriness and very tired but couldn't sleep. I even had to take some time off work which I hadn't had to do all through treatment. As always, everyone experiences things differently. But at the time, I said the same thing...is this withdrawal???? Tatezi willem landstra wrote: > HI.Now 9 days post-treatment and I feel bloody awfull.Worse then I > was on the PEG-combo.Do I suffer from withdrawel symptons?.Never had > this when I withdrew from standard.Is this normal and somebody else > has the same experience?Thanks,not ROFL,. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 : I am now almost 8 weeks post-treatment. After the first few days, I felt a lot better really fast. Then, about 3 weeks into that, I started to go downhill. But, I don't know if it was withdrawal or my stupid thyroid shutting down. Watch that thyroid.... Edie post treatment > HI.Now 9 days post-treatment and I feel bloody awfull.Worse then I was on the PEG-combo.Do I suffer from withdrawel symptons?.Never had this when I withdrew from standard.Is this normal and somebody else has the same experience?Thanks,not ROFL,. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 : I am now almost 8 weeks post-treatment. After the first few days, I felt a lot better really fast. Then, about 3 weeks into that, I started to go downhill. But, I don't know if it was withdrawal or my stupid thyroid shutting down. Watch that thyroid.... Edie post treatment > HI.Now 9 days post-treatment and I feel bloody awfull.Worse then I was on the PEG-combo.Do I suffer from withdrawel symptons?.Never had this when I withdrew from standard.Is this normal and somebody else has the same experience?Thanks,not ROFL,. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Hi , I'm sorry to hear you are feeling so bad! I'm afraid there are not too many of us with personal experience with the pegylated interferon. It's pretty new here, many are just getting started on it. However, you would not be the first person I have heard say they felt better on treatment than off. Maybe your body just needs some time to adjust and eliminate the drugs. Ribavirin can take a long time to be completely eliminated from your body although low red cell counts usually return to normal within a few weeks. Also, don't discount that it's possible something else is wrong and it's just coincedental that you just stopped treatment. Keep drinking lots of fluids to help flush the drugs from your system, but try to make some of those fluids juices and maybe some sports drink or something similiar. You can actually drink too much water and be flushing needed minerals such as sodium from your body. It can make you feel pretty sick when this happens, and if you were in the habit of drinking lots of water while on treatment due to the dehydrating effects of the medications, and now your body doesn't need those extra fluids this MIGHT be a reason why you are feeling worse. Just an idea that popped into my head! Hopefully soon you will feel like LOL, whether you are ROTF or not. Claudine --- willem landstra <wmland@...> wrote: > HI.Now 9 days post-treatment and I feel bloody awfull.Worse then I > was on the PEG-combo.Do I suffer from withdrawel symptons?.Never > had this when I withdrew from standard.Is this normal and somebody > else has the same experience?Thanks,not ROFL,. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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