Re: Head and ear pains

[Guest guest]

Sue,

A friend of mine had the same problems, even lost her hearing for a while,

and it turned out she was positive for babesiosis! Have you been tested?

[Guest guest]

WELCOME SUE

[Guest guest]

Hi Sue,

I sometimes get ear pains out of the blue, don't think they come from

taking pills though. I don't know what you call the thingamagig part of the

ear that is closest to your face, but my left ear suddenly hurts and is

impossible to touch, just that part. It lasts about 10-15 minutes and go

away. Doesn't sound near as severe as what you are experiencing, but I

suspect like you do that it is a neuritis, I definitely never had it before

Lyme. My Lyme doc gave me some kind of drops to put in my ears a few years

ago when I first complained of this, but since it goes away so fast, I don't

bother anymore. The worst is when I get it when in bed, roll over on the

ear, and then I see stars from the pain.

I don't think in my case it is part of a herx. Since your ear pain

occurs right after you take a pill, or IV it must be related to that

somehow. Sorry I can't figure out what this is either. Hopefully someone

else on the list will be able to help you. I am glad you finally decided to

post, I know there are many on this list who don't, I hope they will one of

these days, but in the meantime I hope some of our rambling here can help

them at least to know they are not alone. What is NADH?

Hugs,

Marta

--

>From: Sue929@...

>

>Hi, my name is Sue and I faithfully read all the posts and appreciate all

the

>information, but have not posted up to this point. I have had Lyme for 5

>years and as so many others, went to 12 doctors prior to a proper

diagnosis.

>. . .the eight months of waiting about " did me in " back in 1994, but I

thank

>God that the 12th doctor asked the proper questions--yes, I did have a bite

>and pulled a tick from my leg in June of 94, etc, etc. My trusting

internal

>med. doc. told me no bull's eye, no Lyme; thus, I never mentioned or

>questioned his professional response. We have all learned these lessons

the

>hard way, haven't we--we HAVE to take charge and make decsions and not be

as

>trusting. I was an alternative high school counselor and was too ill to

work

>so I resigned two years ago and did recieve S.S. disability. And now to my

>main concern--head pains and primarily severe ear pains, a choking feeling,

>etc.

>

>When I take one pill, which is all I can tolerate right now of the ceftin

>(drug of choice for my bacteria), within two hours I experience severe head

>and ear pains. This has been on-going for over four years. I recall when

on

>IV's that within five minute of starting the med, the ears would begin to

>pain and the choking and nausea would hit. This of course is not quite as

>severe as early on when the teeth were also affected and the pain killers

>were always at the highest doses, but I am curious if anyone else

experiences

>this so quickly and if you have found any special tricks that have worked

for

>you, other than neurotin, high dose pain killers, ultram,

>anti-inflammotories, etc. Sometimes applying pressure under the ears seems

>to help, but not always. Yes, I have had the MRI's, been to two ENT docs

for

>tests, along with the tube down to check, pain doctors, cranial and

>acupuncture,etc, etc, I believe this is some form of neuritis that will

just

>take a LONG time before it disappears. Have any of you been given answers

by

>your Lyme literate docs on this? I am very curious--is this part of a

herx?

>

>Thanks for your assistance!!!! Sue in southern Michigan. . . .getting

better

>each year!!! NADH has really helped me a lot!

>