Re: Fwd: Help do you think my son may have lyme??

[Guest guest]

Hi Amy (my daughters name too). Don't think that you are being

overprotective because this disesase is MEAN> Your son could have lyme and a

co-infection as well....(we just found out me and my son have both) I have

had lyme for at least 25 years, maybe more b/c my Mom has it too, so she may

have passed it to me inurto.

Find a doctor who will work with Igenex Labs in Palto Alto California. They

do the accurate testing for all this stuff, as well as Stoneybrook, Long

Island, NY.I hope all goes well.

Gail in PA

[Guest guest]

GAIL, THANKS FOR THE INFO oops sorry the caps lock was on. I am taking him

to the pediatrition tomorrow, hopefully we will get some anwswes.

Hugs

Amy

[Guest guest]

Amy, It is very possible that your son has Lyme. Make sure you demand a lyme

test from the pediatrician and have it sent to one of the specialty labs

(Igenx, Stonybrook) Don't let the Dr.s shrug you off and act like it is not

Lyme. At least you will have a little better piece of mine getting the tests

done and then you can focus on whatever the problem might turn out to be. God

Bless you! Hope you and your son are feeling better -Val

[Guest guest]

Hi Gail,

I've very curious about something you mentioned in your reply to Amy. You

think you were born with Lyme. I'm 33, married 1 1/2 years and I want to

start a family, but everything I've read about pregnant women with Lyme

(miscarriages, etc...) has scared the hell out of me. If you were born with

Lyme, when did symptoms appear? Were you sick as a kid? Also, do you thing

your kids might have it? I'm almost at the point where I don't think I will

ever have children (intentionally) because of my fear of passing this

horrible disease to them. Either that or wait until they find a way to cure

Lyme -- but I may be 50 by then LOL! I'd appreciate any encouraging words

you might have.

Thanks a lot,

[Guest guest]

Thanks Val, well we have spent the last few days running tests, such as

abdominal ultrasound, ct and bloodwork, and today we went to see a surgeon to

see what he thought. They have found that he may have a kidney problem for

one of his kidneys is much larger than the other, we should know more

tomorrow....amazingly enough he is mostly complaining about his belly right

now. My ped doc did send out a lyme test to the local lab and asked that I

bring her info on the other labs, she is keeping an open mind thank god.

Will update you later....am not on much any more for with the IV roceph, and

the mepron and oral zith, (soon to be IV zith, ) I am pretty much wiped out

at the end of the day, but the bright side is that at least I am getting a

lot more sleep. Thanks for the words of encouragment.

Hugs

Amy

[Guest guest]

Hi Amy, I did not realize you were on IV too. Have you noticed an improvement

I hope and pray that your son gets better from whatever he does have nd if it

is Lyme that he will be one of those who gets cured. I hope you are feeling

better too. Keep the faith and God Bless You! -Val

[Guest guest]

In a message dated 5/6/99 3:49:28 AM !!!First Boot!!!, ValP74@... writes:

<< Hi Amy, I did not realize you were on IV too. Have you noticed an

improvement

I hope and pray that your son gets better from whatever he does have nd if

it

is Lyme that he will be one of those who gets cured. I hope you are feeling

better too. Keep the faith and God Bless You! -Val >>

Hi Val, I noticed an immense improvement the first 10 days and its been all

down hill since. I am exhausted, my back hurts all the time, and my memory

is failing again, but hopefully adding mepron and IV zithromax to my 2grams

of rocephrin will help. Thanks for the vote of confidence with my son.

Hugs

Amy