Re: A little good news!

[Guest guest]

In a message dated 3/29/01 7:50:48 AM, cmontana@... writes:

<< The good news is I'm about to become employed again! I will be able to

establish my office in my home >>

That is VERY good news indeed. Congratulations.

I hope you'll succeed beyond your wildest dreams.

Kat

[Guest guest]

In a message dated 3/29/01 10:50:55 AM Eastern Standard Time,

cmontana@... writes:

<< The good news is I'm about to become employed again >>

That is good news, I hope it puts you right up there with Bill Gates

:-)

By the way what type of work are we talking about?

E

[Guest guest]

In a message dated 3/29/2001 10:50:58 AM Eastern Standard Time,

cmontana@... writes:

<< The good news is I'm about to become employed again! I will be able

to establish my office in my home - answer to a prayer that has been

constant with me for all these months!!

>>

Great news Carolyn. I'm very excited for you, as I know how you worried so

when you lost your job. Good luck on your new venture.

[Guest guest]

Finally got word they are going to try a pain shot next

Thursday for my lower lumbar disc disease and bulging

disc. Still checking with my CMT specialist to see if

this will impact my nerve condition?

> Hi Carolyn, I'd say that is some really great news! Way to go! ~

> Gretchen PS. See, things DO work out for the best!

>

>

>

[Guest guest]

Thanks for the update Diane. So glad to hear that Maggie is responding well. I

pray that will continue and that you can take her home soon. I am sure that Ally

needs you also. With her just beginning her journey along the JRA path she will

certainly need the extra hugs and attention. It will be good for you all to be

together today. Have a happy valentines day.?

Veri & Jaye 15 poly

A little good news!

Hello Everyone,

?

?? It is very early in the morning here but I just wanted to give you a quick

update on Maggie and Thank all of you for your kind words and prayers. It is

such a comfort to know that we are not dealing with this all alone, I have a

whole new respect for autoimmune/auto inflammatory diseases and will never again

underestimate the power that they can potentially have once they begin to wreak

havoc on one's body.

?

? I also have a great feeling that anyone that knows Maggie now realizes that

the word " Arthritis " can go way beyond someone having swollen, stiff joints.

?

? Maggie seems to have become the medical students dream here in the Pediatric

unit. We have now met every doctor from every service in the Pediatric clinic.

Not that she needed to meet them all, just that they wanted to meet her.(not

going to lie, it has been a little overwhelming for her)

?

? Her doctor's started her on Vancomycin for the bloodstream infection and

cultured another set of labs for back up just to make sure that the first

culture was accurate, this is kind of a normal thing to do just to make sure the

first one was not a contaminant. They have to use large amounts of meds and

cannot really rely on Maggie's body to fight. Because of her Primary

Immunodeficiency, both Immunology and Infectious Disease had to be called in to

consult on her care.

?

? Infectious Disease doc also thinks that her Histoplasmosis was reactivated by

the meer two injections of the Enbrel. Histo is a fungal infection in her

bloodstream which can reactivate at any time. This just makes things all the

more complicated. We knew going into the TNF inhibitor that this could happen,

but having no other choice out there in meds, decided to " just see " if it would

give Maggie a better quality of life. If we hadn't tried we may have never known

and always wondered, it was a risk that we chose to take. Maggie wants so bad to

slow down the progression of her disease and live her life in less pain.

?

? The Urine Antigen that they use to diagnose Histo is carefully watched with

her because the infection is ALWAYS there, even if it is not active. She has

been on Sporonox for over a year to keep the levels low in her body,the

infection is life threatening.

?

? The labs have to be sent to both Mayo Clinic(in Rochester Minnesota) and

somewhere in Indianapolis to be tested, this usually takes 4 or 5 days to get

the results back. The ID doc would like to start her on Amphotereicn B

(otherwise known as Ampho-terrible) which is an IV antifungal antibiotic until

the tests come back, just incase they are positive.This is a nasty med with

horrible side effects. On one hand we are hoping she changes her mind and on the

other if the infection is activated we will need to be aggressive in her

treatment and waiting another 4 days could be crutual in her care..

?

? We do have some good news however, the steroids and Kineret?are working and

Maggie's fingers now look like fingers, her other joints are doing well too.

Most importantly her throat is opening back up and the ulcers are starting to

disappear!!

?

? I just wanted you to know how much I appreciate all of your kind words and

prayers as I sit here by myself with one child and dad sits at home with the

other. Both kids are miserable and I feel very pulled between the 40 miles from

my home to here with both Allyson and Maggie.

?

? Dad is driving down to see Maggie today and bringing Ally along so at least I

will get to give her some extra love and attention too.

?

?The University of Iowa Children's Hospital is one of the top 20 in the world.

Maggie is in very good hands and all of her specialty doctors are here. She is

also one very strong little girl which is a huge bonus when you add?up all of

the things she has going on right now.

?

? The best news of all is that she can eat now that her throat is in better

shape. Lots of mashed potatoes and vanilla shakes.......oh yes and chocolate

because it melts in her mouth and slides down very easily! (go figure)

?

? I will update again when I can. Maggie does have her laptop up here but the

service is horrible. she can still play her computer games though and that is

keeping her busy!

?

?? God is listening to your prayers, even with everything that is going on,the

inflammation?in her body is finally going down!!!

?

?? With Love,

????? Diane?

[Guest guest]

Diane,

I am so glad to hear that Maggie is doing a little better. I hope she

continues to get better quickly and you can take her home soon. I'm

sure it is hard with Ally being so far away from you having just been

diagnosed with JA herself, but I'm sure she understands.

We will continue to pray for Maggie and the rest of you. Please tell

her we are all thinking of her and sending positive thoughts her way.

Please try to take care of yourself as well.

Sending gentle hugs your way!

and girls

>

> Hello Everyone,

>  

>    It is very early in the morning here but I just wanted to give

you a quick update on Maggie and Thank all of you for your kind words

and prayers. It is such a comfort to know that we are not dealing

with this all alone, I have a whole new respect for autoimmune/auto

inflammatory diseases and will never again underestimate the power

that they can potentially have once they begin to wreak havoc on

one's body.

>  

>   I also have a great feeling that anyone that knows Maggie now

realizes that the word " Arthritis " can go way beyond someone having

swollen, stiff joints.

>  

>   Maggie seems to have become the medical students dream here in

the Pediatric unit. We have now met every doctor from every service

in the Pediatric clinic. Not that she needed to meet them all, just

that they wanted to meet her.(not going to lie, it has been a little

overwhelming for her)

>  

>   Her doctor's started her on Vancomycin for the bloodstream

infection and cultured another set of labs for back up just to make

sure that the first culture was accurate, this is kind of a normal

thing to do just to make sure the first one was not a contaminant.

They have to use large amounts of meds and cannot really rely on

Maggie's body to fight. Because of her Primary Immunodeficiency, both

Immunology and Infectious Disease had to be called in to consult on

her care.

>  

>   Infectious Disease doc also thinks that her Histoplasmosis was

reactivated by the meer two injections of the Enbrel. Histo is a

fungal infection in her bloodstream which can reactivate at any time.

This just makes things all the more complicated. We knew going into

the TNF inhibitor that this could happen, but having no other choice

out there in meds, decided to " just see " if it would give Maggie a

better quality of life. If we hadn't tried we may have never known

and always wondered, it was a risk that we chose to take. Maggie

wants so bad to slow down the progression of her disease and live her

life in less pain.

>  

>   The Urine Antigen that they use to diagnose Histo is carefully

watched with her because the infection is ALWAYS there, even if it is

not active. She has been on Sporonox for over a year to keep the

levels low in her body,the infection is life threatening.

>  

>   The labs have to be sent to both Mayo Clinic(in Rochester

Minnesota) and somewhere in Indianapolis to be tested, this usually

takes 4 or 5 days to get the results back. The ID doc would like to

start her on Amphotereicn B (otherwise known as Ampho-terrible) which

is an IV antifungal antibiotic until the tests come back, just incase

they are positive.This is a nasty med with horrible side effects. On

one hand we are hoping she changes her mind and on the other if the

infection is activated we will need to be aggressive in her treatment

and waiting another 4 days could be crutual in her care..

>  

>   We do have some good news however, the steroids and Kineret are

working and Maggie's fingers now look like fingers, her other joints

are doing well too. Most importantly her throat is opening back up

and the ulcers are starting to disappear!!

>  

>   I just wanted you to know how much I appreciate all of your kind

words and prayers as I sit here by myself with one child and dad sits

at home with the other. Both kids are miserable and I feel very

pulled between the 40 miles from my home to here with both Allyson

and Maggie.

>  

>   Dad is driving down to see Maggie today and bringing Ally along

so at least I will get to give her some extra love and attention too.

>  

>  The University of Iowa Children's Hospital is one of the top 20 in

the world. Maggie is in very good hands and all of her specialty

doctors are here. She is also one very strong little girl which is a

huge bonus when you add up all of the things she has going on right

now.

>  

>   The best news of all is that she can eat now that her throat is

in better shape. Lots of mashed potatoes and vanilla shakes.......oh

yes and chocolate because it melts in her mouth and slides down very

easily! (go figure)

>  

>   I will update again when I can. Maggie does have her laptop up

here but the service is horrible. she can still play her computer

games though and that is keeping her busy!

>  

>    God is listening to your prayers, even with everything that is

going on,the inflammation in her body is finally going down!!!

>  

>    With Love,

>       Diane 

>

>

>

>

>