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ranlin@... wrote:

>

> From: ranlin@...

>

> I have had lyme disease for 4 years. Like most others,I went from a very

functional life to a couch potatoe. Very disabled.

Dear : You have found the most supportive group on the Net!

Welcome!! I have had lyme since August - CNS lyme, and my brain is

mush!! Please let us know if the oxygen chamber works and best of luck

to you.

Lovette

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Hi ,

Welcome to the list, you came to the right place, I personally have not

done the HBO treatments but I know some who have. I am forwarding a copy of

this mail to someone I know who did several weeks of HBO, Jane can probably

answer a lot of your questions. There are lots of websites available about

HBO. Let me know if you need help finding them.

There are just about 100 subscribers to this list, and someone always

jumps in to help with your questions. Keep asking questions, and we will

try to help whenever.

Hugs,

Marta

> From: ranlin@...

>

> I have had lyme disease for 4 years. Like most others,I went from a very

functional life to a couch potatoe. Very disabled. I am about to under go

the oxygen (dive chamber) treatment hoping to get some results. Has anyone

tried this yet? I also have have change in my skin pigmentation. I get

very red when I am warm and when you rub against my skin, it turns pale

white. I also have crawling sensations over the entire body. I have a lot

of questions and I am not sure if I am in the right place for communication

with others...Could someone respond?

> I have already had 7 momths of aggressive I.V. treatment. Feel some

better, but not enough to get on with my life...Thanks...

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ranlin@... writes:

<snipped>

> I have already had 7 months of aggressive IV treatment. Feel some better,

> but not enough to get on with my life...Thanks...

Dear ,

Welcome to this Lyme support list! We all know how you feel because

we've either been there ... or ... are there now. I thought I would NEVER get

my life

back but I finally feel better then I have since all this happened which will

be 3 years in June.

I'm not symptom free, still have many things wrong, but if I judge

how I was ...

this is better! I did 6 weeks of Clafron IV and 7 weeks of Doxy IV. Someone

told me her daughter had done the Doxy IV and was better also. I don't know

if that was it or not but I'm grateful to be better.

I'm sure people who have been through the HBO treatment will share

their

thoughts about that. I haven't tried it so I don't know about that. We sure

hope

you and everyone on this list gets better from this horrible disease.

Here are a few honest sites for you to check out. This will keep you

busy

learning and you do have to educate yourself about this disease. There are

people on our side, honest!

My best,

Marleen

Lyme Disease Foundation :

http://www.lyme.org/index2.html

-----------------------------------------------------------

Lyme Alliance

http://www.lymealliance.org/

You may receive a free subscription to the Lyme Alliance Newsletter by

going to website http://lymealliance.org/index.shtml

------------------------------------------------------------

http://www.execpc.com/~jbehnke/index.html

---------------------------------

http://www.onelook.com/browse.shtml#all_med This site has links to all kinds

of medical dictionaries/glossaries.

----------------------------------------------

To anyone linking to Lyme Disease Information Resource

originally http://www.sky.net/~dporter/lyme1.htm

(some have other extensions)

If you wouldn't mind please update your link to the

newer site http://x-l.net/Lyme/

-------------------------------------------------

http://MentalHealthandIllness.com/

An extensive database and articles relating to Physical Illnesses

(particularly Lyme disease) as contributing/causal effects of Mental Health

problems. By Dr. Bransfield

--------------------------------------------------

Please be advised that I have changed internet access and now use AOL. My

e-mail address is now:

LymeLawyer@...

This information is also posted on the Lymenet Law Page

-----------------------------------------------------

The Lyme Disease Network of NJ, Inc.

LymeNet Series of Internet Services

Periodic Posting

Last updated: 06-AUG-1998

The following Internet services are currently available from the Lyme

Disease Network of NJ, Inc:

http://www.LymeNet.org/

LymeNet Home Page. Headlines and links to all other LymeNet services.

http://search.LymeNet.org/

LymeNet Medical & Scientific Search Server. A searchable collection

of over 4,300 references and abstracts to Lyme and tick borne disease

related literature. Includes Medline and non-Medline content.

http://support.LymeNet.org/

LymeNet Support Group Listings. A listing of patient support groups

maintained by Internet users. Add your support group to the list

today!

http://law.LymeNet.org/

LymeNet Law Server. A listing of legal documents and advice

maintained by attorney Ira M. Maurer.

http://newsletter.LymeNet.org/

The LymeNet Newsletter. Subscription information and back issues.

http://flash.LymeNet.org/

The LymeNet Flash announcement board.

--------------------------------------------------------------

Subject: Accessing " Lyme Disease in the United States and Canada "

Lyme Disease in the United States and Canada

http://www.geocities.com/HotSprings/Spa/6772/lyme.html

I have nothing to do with the " little black advertising/sponsor boxes "

that are displayed upon accessing my web site " Lyme Disease in the

United States and Canada " . G--cities displays them using JavaScript -

that's the price I pay for a free web site. However, you can avoid the

" black boxes " by disabling JavaScript for your browser. For Netscape

3.01 this is done by the following procedure:

- Select " Options " from the top menu, then

- Network Preferences, then

- Languages tab

- Then, remove the check mark in the " Enable JavaScript " little white

box by clicking on it and finally, save this reconfiguration by clicking

on the OK button at the bottom. You can always go back and enable the

JavaScript if needed for that one-in-a-hundred search engine or other

web site application.

Also, note that my site will now present a " cookie notification " as of

1 August 1998 because I have added a " hit counter " to each " Index " page.

I probably will remove them at a later time but if you are annoyed by

" cookie notification messages " they may be suppressed with the following

procedure:

- Select " Options " from the top menu, then

- Network Preferences, then

- Protocols tab

- Then, remove the check mark in the Show an Alert Before " Accepting

a Cookie " little white box by clicking on it and finally, save this

reconfiguration by clicking on the OK button at the bottom. You can

always go back and enable the " cookie alert messages " if desired. I

have disabled my cookie notifications since I do a lot of searching and

accessing of web pages. Can anyone beat a 23K sized cookie.txt in

C:\Program Files\Netscape\Navigator ? By the way, there is a good FAQ

on " cookies " on the Netscape web site at:

http://form.netscape.com/assist/security/faqs/cookies.html

and, for even more detail on " cookies " see:

http://www.netscape.com/newsref/std/cookie_spec.html

Art Doherty

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Meg.

I have also had lyme diseases for 11 years. Has your daughter ever been

tested for Babesia or echrilosis. At the lyme conference Dr. B said that

most chronic lyme patients have a co-infection. I just found out this

Christmas that I have both babesia and echrilois. My doctor said that

co-infections have to be taken care of oreles you will never get your life

back. I just had a rough week. I hope Annie is feeling better.

Take care,

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Dear , Where are you doing the Hyperbaric treatments at? My daughter

did 6 weeks of treatment in Jan. and Feb. in Chico, CA and we feel she is

much better. Out of a wheelchair and really doing better, not 100% by any

means but every little bit helps. She has had Lyme for 11 years. Meg

>From: ranlin@...

>

>I have had lyme disease for 4 years. Like most others,I went from a very

functional life to a couch potatoe. Very disabled. I am about to under go

the oxygen (dive chamber) treatment hoping to get some results. Has anyone

tried this yet? I also have have change in my skin pigmentation. I get

very red when I am warm and when you rub against my skin, it turns pale

white. I also have crawling sensations over the entire body. I have a lot

of questions and I am not sure if I am in the right place for communication

with others...Could someone respond?

> I have already had 7 momths of aggressive I.V. treatment. Feel some

better, but not enough to get on with my life...Thanks...

>

>------------------------------------------------------------------------

>Start a new hobby. Meet a new friend.

>http://www.ONElist.com

>ONElist: The leading provider of free e-mail list services!

>------------------------------------------------------------------------

>Please send privately messages unrelated to lyme.

>/archives.cgi/

>/archives.cgi/Lyme-Docs

>Email: -subscribeonelist

>You may substitute " unsubscribe " , " digest " , or " normal " for

>the word " subscribe " ( " normal " is the opposite of " digest " )

>

>

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Guest guest

Gail, There's two chambers in Reno, NV. I used one for 6 weeks. Then I

returned to the Eastcoast. I'm going back out at the end of summer. I'm

SATURATED with Lyme. The Dr. I will be using uses the chamber along

w/antibiotics and other procedures to " invite " the Lyme to " come out and

play! "

BEST WISHES, Stacey (in Pennsylvania)

[Lyme-aid] Re: Lyme 'disease

>From: IAMAVIPTWO@...

>

>Anywhere on the east coast that has these " chambers " ? What does it cost?

>I'm sure insurance doesn't cover right?

>Gail

>

>------------------------------------------------------------------------

>You can now easily share photos and documents with your fellow list members

>http://www.ONElist.com

>Check out our homepage for details on how to use our new shared files

feature!

>------------------------------------------------------------------------

>Please send privately messages unrelated to lyme.

>/archives.cgi/

>/archives.cgi/Lyme-Docs

>Email: -subscribeonelist

>You may substitute " unsubscribe " , " digest " , or " normal " for

>the word " subscribe " ( " normal " is the opposite of " digest " )

>

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Dear Gail, I couldn't find any place here on the Eastcoast, but please let

me know if you do. The cost was $200 ea.--not picked up by

insurance...unfortunately! :-(

Let me know how it's

going.

Stacey

[Lyme-aid] Re: Lyme 'disease

>

>

>>From: IAMAVIPTWO@...

>>

>>Anywhere on the east coast that has these " chambers " ? What does it cost?

>>I'm sure insurance doesn't cover right?

>>Gail

>>

>>------------------------------------------------------------------------

>>You can now easily share photos and documents with your fellow list

members

>>http://www.ONElist.com

>>Check out our homepage for details on how to use our new shared files

>feature!

>>------------------------------------------------------------------------

>>Please send privately messages unrelated to lyme.

>>/archives.cgi/

>>/archives.cgi/Lyme-Docs

>>Email: -subscribeonelist

>>You may substitute " unsubscribe " , " digest " , or " normal " for

>>the word " subscribe " ( " normal " is the opposite of " digest " )

>>

>

>

>------------------------------------------------------------------------

>Start a new hobby. Meet a new friend.

>http://www.ONElist.com

>ONElist: The leading provider of free e-mail list services!

>------------------------------------------------------------------------

>Please send privately messages unrelated to lyme.

>/archives.cgi/

>/archives.cgi/Lyme-Docs

>Email: -subscribeonelist

>You may substitute " unsubscribe " , " digest " , or " normal " for

>the word " subscribe " ( " normal " is the opposite of " digest " )

>

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Guest guest

I hear there's one in Orlando, Fla.

On Tue, 20 Apr 1999 19:50:48 -0400 " Stacey K. " <staceyk@...> writes:

>From: " Stacey K. " <staceyk@...>

>

>Dear Gail, I couldn't find any place here on the Eastcoast, but please

>let

>me know if you do. The cost was $200 ea.--not picked up by

>insurance...unfortunately! :-(

> Let me know how it's

>going.

>

>Stacey

>

>

>

> [Lyme-aid] Re: Lyme 'disease

>>

>>

>>>From: IAMAVIPTWO@...

>>>

>>>Anywhere on the east coast that has these " chambers " ? What does it

>cost?

>>>I'm sure insurance doesn't cover right?

>>>Gail

>>>

>>>------------------------------------------------------------------------

>>>You can now easily share photos and documents with your fellow list

>members

>>>http://www.ONElist.com

>>>Check out our homepage for details on how to use our new shared

>files

>>feature!

>>>------------------------------------------------------------------------

>>>Please send privately messages unrelated to lyme.

>>>/archives.cgi/

>>>/archives.cgi/Lyme-Docs

>>>Email: -subscribeonelist

>>>You may substitute " unsubscribe " , " digest " , or " normal " for

>>>the word " subscribe " ( " normal " is the opposite of " digest " )

>>>

>>

>>

>>------------------------------------------------------------------------

>>Start a new hobby. Meet a new friend.

>>http://www.ONElist.com

>>ONElist: The leading provider of free e-mail list services!

>>------------------------------------------------------------------------

>>Please send privately messages unrelated to lyme.

>>/archives.cgi/

>>/archives.cgi/Lyme-Docs

>>Email: -subscribeonelist

>>You may substitute " unsubscribe " , " digest " , or " normal " for

>>the word " subscribe " ( " normal " is the opposite of " digest " )

>>

>

>

>------------------------------------------------------------------------

>Start a new hobby. Meet a new friend.

>http://www.ONElist.com

>ONElist: The leading provider of free e-mail list services!

>------------------------------------------------------------------------

>Please send privately messages unrelated to lyme.

>/archives.cgi/

>/archives.cgi/Lyme-Docs

>Email: -subscribeonelist

>You may substitute " unsubscribe " , " digest " , or " normal " for

>the word " subscribe " ( " normal " is the opposite of " digest " )

>

___________________________________________________________________

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Guest guest

Hi Gail, I was just reading through my e-mails and came to yours about

chambers Are you talking about hyperbaric chambers?If so, I know of one in

East Hampton NY one at UPenn University and one in land. If this is what

you are taking about I can get the phone numbers for you. Hope you are

feeling better-Val

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