Re: Falling down (was: Which ABX is right?)

[Guest guest]

,

I'm not sure if this would show up or not. In the article I saw, it was pretty

obvious. If you took a slice through the middle of your brain (like taking the

top of your head off -- don't try this at home, kids) you'd see a space in the

middle of your brain that's shaped like a butterfly. It's called a cistern and

it's full of fluid. It's supposed to be fairly small; in this case of cerebral

hypertension it was larger than normal because there was too much fluid.

I think it's pretty rare and mostly found in elderly people, though.

When you fall, what does it feel like? Do your knees buckle and you fall down

due to weak legs, or do you lose your balance, or what? I have a weak left leg

from the Lyme and sometimes it feels like my left knee is just going to go out

from under me. It hasn't so far, though. I've also had some episodes of

dizziness, lightheadedness and vertigo. Have you had anything like that?

Jean

Girard wrote:

> From: " Girard " <ranlin@...>

>

>

> I had an MRI done last fall. Would something llike that show up? I did

> not start losing my balance until about a month or so ago. So who knows. My

> Lyme doc says it is from the Lyme. I fell 3 times last week so I had to get

> a cane. I hate it....I cried because I have to use it. It was bad enough

> having to ride in a wheel chair at Disney. It is the only way I could enjoy

> the trip....Love

> Re: [Lyme-aid] Which ABX is right?

>

> >From: Scully <jscully@...>

> >

> >You know, , for what it's worth.... I read an article in the newspaper

> a

> >few years ago about something called " cerebral hypertension " . Basically it

> was

> >an overaccumulation of fluid in the brain. (The actual cerebro-spinal

> fluid,

> >not fluid in the membranes). It caused loss of balance, a kind of tippy-toe

> >walking, and some other things I forget. I recognized symptoms that my

> >grandmother was experiencing and passed it on to her doctor, but he said

> she

> >was just getting old. The fact that she was 92 and had been walking just

> fine

> >until then didn't seem to phase him.

> >I thought it might be an avenue to explore.

> >

> > Girard wrote:

> >

> >> From: " Girard " <ranlin@...>

> >>

> >> Joan,

> >> I had Lyme for almost 4 years before I finally got help. He started

> me

> >> out on Doxy, Ceftin, and Mephron because of a co-infection. Have you

> been

> >> checked for other tick diseases?

> >> After 6 months of oral, he switched me to I.V. I am going to try the

> >> hyperbaric chamber at the end of the month. I then am supposed to go

> back

> >> on I.V. I feel some better, but far from functioning like a normal human

> >> being. I have neurological lyme as well. I just recently started

> falling

> >> down a lot. So I have had to resort to a cane. I get my knees Xrayed

> next

> >> week to see what is going on. Balance is bad also.

> >>

> >

> >

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[Guest guest]

Hi

I also have a weak left leg (and left arm) as well as the balance

problems, lightheadedness and dizziness. The muscles in my left leg feel

weak, cramped and tired. Is that how your leg feels? Does exercise or

rest help? I can't believe how many new symptoms I've gotten lately. My

best, Joan

[Guest guest]

Starkman wrote:

> From: Namkrats3@... ( Starkman)

>

> Hi

> I also have a weak left leg (and left arm) as well as the balance

> problems, lightheadedness and dizziness. The muscles in my left leg feel

> weak, cramped and tired. Is that how your leg feels? Does exercise or

> rest help? I can't believe how many new symptoms I've gotten lately. My

> best, Joan

>

Yes, that's about how my leg felt for a long time. It's gotten a lot better

lately, though, and so have my arms. They used to tire out and cramp up

just from stirring a pot of food or brushing my daughter's hair. Now they're

just about normal unless I'm herxing. My legs used to cramp up and start

shaking when I was driving (I have a manual shift car) and I'd have to pull

over. That hasn't happened in a long time either.

It sounds like you're not on enough or the right drugs! Where are you

located?

Jean

[Guest guest]

Hi

I live on Long Island.

Joan

[Guest guest]

Sometimes my knee (left) gives out. Other times I just simply fall

toward theleft. I fell the other day and hurt my arm. Struck it on my

mom's mailbox. I feel like things are getting worse instead of better. I

have been off the I.V. meds almost a month now. So by the time I get to the

Hyperbaric chamber I will probably have whopper of a herks...Hugs

Re: [Lyme-aid] Which ABX is right?

>>

>> >From: Scully <jscully@...>

>> >

>> >You know, , for what it's worth.... I read an article in the

newspaper

>> a

>> >few years ago about something called " cerebral hypertension " . Basically

it

>> was

>> >an overaccumulation of fluid in the brain. (The actual cerebro-spinal

>> fluid,

>> >not fluid in the membranes). It caused loss of balance, a kind of

tippy-toe

>> >walking, and some other things I forget. I recognized symptoms that my

>> >grandmother was experiencing and passed it on to her doctor, but he said

>> she

>> >was just getting old. The fact that she was 92 and had been walking just

>> fine

>> >until then didn't seem to phase him.

>> >I thought it might be an avenue to explore.

>> >

>> > Girard wrote:

>> >

>> >> From: " Girard " <ranlin@...>

>> >>

>> >> Joan,

>> >> I had Lyme for almost 4 years before I finally got help. He

started

>> me

>> >> out on Doxy, Ceftin, and Mephron because of a co-infection. Have you

>> been

>> >> checked for other tick diseases?

>> >> After 6 months of oral, he switched me to I.V. I am going to try

the

>> >> hyperbaric chamber at the end of the month. I then am supposed to go

>> back

>> >> on I.V. I feel some better, but far from functioning like a normal

human

>> >> being. I have neurological lyme as well. I just recently started

>> falling

>> >> down a lot. So I have had to resort to a cane. I get my knees Xrayed

>> next

>> >> week to see what is going on. Balance is bad also.

>> >>

>> >

>> >

>> >------------------------------------------------------------------------

>> >Did you know ONElist has over 300 Star Wars lists?

>> >http://www.ONElist.com

>> >Join one today!

>> >------------------------------------------------------------------------

>> >Please send privately messages unrelated to lyme.

>> >/archives.cgi/

>> >/archives.cgi/Lyme-Docs

>> >Email: -subscribeonelist

>> >You may substitute " unsubscribe " , " digest " , or " normal " for

>> >the word " subscribe " ( " normal " is the opposite of " digest " )

>> >

>>

>> ------------------------------------------------------------------------

>> Looking for a new hobby? Want to make a new friend?

>>

>> Come join one of the 145,000 email communities at ONElist!

>> ------------------------------------------------------------------------

>> Please send privately messages unrelated to lyme.

>> /archives.cgi/

>> /archives.cgi/Lyme-Docs

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>> You may substitute " unsubscribe " , " digest " , or " normal " for

>> the word " subscribe " ( " normal " is the opposite of " digest " )

>

>

>

>

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[Guest guest]

When I fall it is because my knees give out.. Then Sometimes I just

plain loose my balance..Memory so bad, I don't know whether I am coming or

going. And then when I remember, It quickly leaves me again. I think I need

a seeing eye dog with ESP. Get two sturdy canes so I don't fall down and

the be on my way.. the only problem then is, I would not remember where I

was going.....I can not believe how intellegent..these bugs are . They are

like a thief in the night....Stealing a littlte bit of our lives at a time.

I can hardly type correctly anymore...everything spelled wrong most of the

time....Love...

Re: [Lyme-aid] Which ABX is right?

>>

>> >From: Scully <jscully@...>

>> >

>> >You know, , for what it's worth.... I read an article in the

newspaper

>> a

>> >few years ago about something called " cerebral hypertension " . Basically

it

>> was

>> >an overaccumulation of fluid in the brain. (The actual cerebro-spinal

>> fluid,

>> >not fluid in the membranes). It caused loss of balance, a kind of

tippy-toe

>> >walking, and some other things I forget. I recognized symptoms that my

>> >grandmother was experiencing and passed it on to her doctor, but he said

>> she

>> >was just getting old. The fact that she was 92 and had been walking just

>> fine

>> >until then didn't seem to phase him.

>> >I thought it might be an avenue to explore.

>> >

>> > Girard wrote:

>> >

>> >> From: " Girard " <ranlin@...>

>> >>

>> >> Joan,

>> >> I had Lyme for almost 4 years before I finally got help. He

started

>> me

>> >> out on Doxy, Ceftin, and Mephron because of a co-infection. Have you

>> been

>> >> checked for other tick diseases?

>> >> After 6 months of oral, he switched me to I.V. I am going to try

the

>> >> hyperbaric chamber at the end of the month. I then am supposed to go

>> back

>> >> on I.V. I feel some better, but far from functioning like a normal

human

>> >> being. I have neurological lyme as well. I just recently started

>> falling

>> >> down a lot. So I have had to resort to a cane. I get my knees Xrayed

>> next

>> >> week to see what is going on. Balance is bad also.

>> >>

>> >

>> >

>> >------------------------------------------------------------------------

>> >Did you know ONElist has over 300 Star Wars lists?

>> >http://www.ONElist.com

>> >Join one today!

>> >------------------------------------------------------------------------

>> >Please send privately messages unrelated to lyme.

>> >/archives.cgi/

>> >/archives.cgi/Lyme-Docs

>> >Email: -subscribeonelist

>> >You may substitute " unsubscribe " , " digest " , or " normal " for

>> >the word " subscribe " ( " normal " is the opposite of " digest " )

>> >

>>

>> ------------------------------------------------------------------------

>> Looking for a new hobby? Want to make a new friend?

>>

>> Come join one of the 145,000 email communities at ONElist!

>> ------------------------------------------------------------------------

>> Please send privately messages unrelated to lyme.

>> /archives.cgi/

>> /archives.cgi/Lyme-Docs

>> Email: -subscribeonelist

>> You may substitute " unsubscribe " , " digest " , or " normal " for

>> the word " subscribe " ( " normal " is the opposite of " digest " )

>

>

>

>

>------------------------------------------------------------------------

>What was YOUR favorite part?!

>

>Tell other Star Wars fans at ONElist!

>------------------------------------------------------------------------

>Please send privately messages unrelated to lyme.

>/archives.cgi/

>/archives.cgi/Lyme-Docs

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>You may substitute " unsubscribe " , " digest " , or " normal " for

>the word " subscribe " ( " normal " is the opposite of " digest " )

>