Guest guest Posted January 1, 1999 Report Share Posted January 1, 1999 Hi guys, just want to wish you all a much happier and healthier year. If we all pray hard enough and keep positive energy focused on a cure, we will succeed. I also wanted to ask if any of you suffer from ocd (obsessive compulsive disorder) I have it pretty bad and was wondering if it could be related to Lyme. Keep up all the great posts. Feel better everyone. -Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 1999 Report Share Posted January 2, 1999 Dear Val, Yes, I think OCD is related to Lyme. I can't remember where I read it, maybe it was in Dr. Fallon's report. I will try and find it for you. I do know I have read it more than once. I have been to several conferences and it was mentioned each time. HAPPY HEALTHY NEW YEAR EVERYONE Hugs, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 1999 Report Share Posted January 2, 1999 HAPPY NEW YEAR to you too, Val, and to the rest of you as well!!! Hopefully, this will be a better year for us all! I am not sure how symptomatic the OCD you are suffering from is, but I know that I have become extremely anxious and hung up on things that never used to bother me in the least. When my shrink was filling out the papers for SSDI, he stated that I now suffer from dementia and personality disorder syndrome (no offense, he added) I am not so offended as I am disturbed by this. I know for SURE that in my pre-Lyme days these were not words that would ever be used to describe ME. But, Lyme has a HUGE mental component and I am sure that if you ever had the slightest tendancy towards OCD type behavior, that the Lyme is totally capable of enhancing it. Try not to let it get to you! Hugs, Alison ValP74@... wrote: > From: ValP74@... > > Hi guys, just want to wish you all a much happier and healthier year. If we > all pray hard enough and keep positive energy focused on a cure, we will > succeed. > > I also wanted to ask if any of you suffer from ocd (obsessive compulsive > disorder) I have it pretty bad and was wondering if it could be related to > Lyme. > > Keep up all the great posts. Feel better everyone. > -Val > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 1999 Report Share Posted January 3, 1999 Thanks . I do think the OCD was brought on by the Lyme. It is just so weird how this disease works. I have been on meds now since July and am stil not well. I think I am better than before but not anywhere near myself. In the past I would go on meds and be close to fine within a month or so's time. This relapse is completely different. I have never been so afraid of it as I am now. I guess because I always just became well on the meds and thought it was a managable illness. (HA HA HA) By the way what meds are you taking now? Write me when you can. I am so thankful for all of you gutys. Feel better -Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 1999 Report Share Posted January 3, 1999 Hi Connie just writing to say thanks for the reply and hope you are feeling better. -Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 1999 Report Share Posted January 4, 1999 Hi Val, yes I have been dx with that disorder also, amazingly enough at the start of my symptoms. It will be interesting to see if it is another vicious part of lyme disease. Take care and here's looking to a new year full of hopes and dreams of healthy living. Hugs Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 1999 Report Share Posted January 4, 1999 Alison, your attitude is truly remarkable, especially with all the meds your on. Hope you have a terrific 99.....you deserve it. Sounds like you also have a smart doc, can you let me know where your from, maybe he is closer to me than my doc I am using now, who is 10 hrs one way by car. (I'm from Maine and he's in NY) Hugs Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 1999 Report Share Posted January 4, 1999 Don't be scared, Val...I am sure that what is happening is that the bacteria is just becoming more resistant to the meds, but eventually you will be able to overcome even the most stubborn of the buggers! Currently I am on (don't laugh) IV Doxy, oral Raxar and Zithromax, Famvir and injectible Bicillin. I have really had my doubts over the past few weeks too but the most important thing (says my doc) is to stay positive, so my new yar's resolution is...to stay positive! The good news is I'm covered for just about anything else I might normally get!<G> I find the mental component the hardest to deal with and the hardest to shake. But at least I know its not me! Hugs, Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 1999 Report Share Posted January 4, 1999 I had to laugh. You travel from Maine to NY and I travel from NY to central NJ! But my doctor and her whole family have Lyme and she is very aggressive. She won't let me quit and trust me, there are times I really want to! I have so many problems stemming from this disease (not physical) that every minute of my life is a fight and I am just not a fighter. I spent the whole night crying and feeling sorry for myself-but I would feel like such a traitor to my doctor if I just gave up. I happen to really love her. She is a real person, not just a doctor...a real humanitarian and if she refuses to give up on me, I don't dare give up on myself! Anyway, now we all have each other!!!! So we have to hang in there for the sake of all of us! Hugs, Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 1999 Report Share Posted January 5, 1999 since being dx'ed with lyme, besides all of my nuero and physical problems i have been dx'ed with a " bipolar disorder " however my biggest problem has cropped up in the last few weeks and i have to talk to my shrink about it on Friday... i am now very fearful of leaving my house even for short times.....don't know if it is due to depression or just that the only place i am comfortable is at home if i am tired i can sleep and i have been in enormous pain lately......that could also have something to do with it....also since coming down with lyme 9 years ago i can no longer handle weather changes or extreme hot or cold and here in jersey it has been bitter cold to me. Is anyone else going thru this " recluse stage " or am I really off to the funny farm? Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 1999 Report Share Posted January 5, 1999 ALLISON, WOW SHE SOUNDS GREAT, keep on trudging. I believe with a doc like that you can only get better, it just may take some time Hugs Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 1999 Report Share Posted January 5, 1999 Hi Rid, Don't worry it's not time for the funny farm -- I went thru the same thing. I've gotten over that, but I'm still terribly claustrophobic, something that NEVER bothered me before this past year. I found out several of my psychological problems were related to the foods I was eating and a never ending yeast infection. I've done elimination diets to figure out what bothers me, you might want to try this. I found the worst culprit to be mushrooms (the organic kind, not the " funny " mushrooms!) Before the diet I felt the same way, when I was out all I wanted to do was go home. But after the diet that went away. One night I splurged and had mushrooms at dinner. I could barely handle going to the store with my husband driving, and I didn't even go into the store. Try staying away from fungi and yeast, hopefully this will help. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 1999 Report Share Posted January 5, 1999 Hi Reid, Just wanted to apologize for the misspelling of your name -- Lyme brain at work. Sorry, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 1999 Report Share Posted January 5, 1999 Dear Reid: It could be depression, or it just could be that the reality of your life [as with the rest of us] is just depressing! Is it really wrong to want to be able to control something, even if it is just your surroundings and the ability to nap if you want to? On my " good " days, I try to keep a routine of sorts so I don't become too sluggish. Like, get up at a certain time, and shower, and make myself breakfast, feed the bird, and log onto the Internet to see what's going on with you folks. Maybe if you have a routine it will help to give you the impetus to want to interact with people. But personally, in the winter everyone here has colds/flu - who needs the interaction?? Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 1999 Report Share Posted January 6, 1999 Poor Reid, I do hope that you are not suffering from a new disorder...darned if I can recall the name of the one where you fear going outdoors...so frustrating isn't it?? I used to know all those terms and how to spell them too...but really you should discuss this latest symptom with your doctor, and not rely on us to help diagnose you. Lyme disease effects so many of us mentally. Since you mention that the winter weather is also keeping you indoors, maybe that is the main reason you are feeling this way. It is warm and toasty indoors and oh so safe too, no wonder we prefer it when our bones ache. My Lyme is only 2 and half years old, but I still prefer the cool weather to the hot summers we have had to put up with lately. Let us know what your shrink thinks when you see him on Friday. Marta >From: RMcmur3194@... > >since being dx'ed with lyme, besides all of my nuero and physical problems i >have been dx'ed with a " bipolar disorder " however my biggest problem has >cropped up in the last few weeks and i have to talk to my shrink about it on >Friday... i am now very fearful of leaving my house even for short >times..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 1999 Report Share Posted January 6, 1999 Would it be called agoraphobia? I believe I have some of that these days too. I seldom get out of the house due to the pain, and have " reasoned " it out for myself that getting out of the house increases the pain, thus, I don't want to get out of the house. I get out to go to the doctor, rarely anything else. I also agree, it takes a doctor to determine these issues and not necessarily others with Lyme because so much is different for each one of us. I just don't mention it to my doctors at this time because there is so much else going on and frankly I don't feel good enough to have anyone forcing me out of my home when I don't want to go out because of increased pain. When the pain is less, I am able and willing to leave the house, so possibly not true disorder but possibly bordering on it. Wishing us all health and freedom from pain, both physical and emotiona - Marta McCoy wrote: > From: " Marta McCoy " <mlmccoy@...> > > Poor Reid, > I do hope that you are not suffering from a new disorder...darned if I > can recall the name of the one where you fear going outdoors...so > frustrating isn't it?? I used to know all those terms and how to spell them > too...but really you should discuss this latest symptom with your doctor, > and not rely on us to help diagnose you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 1999 Report Share Posted January 6, 1999 That's the word, thanks Sandi! Marta >From: <swsftwtx@...> > >Would it be called agoraphobia? I believe I have >some of that these days too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 1999 Report Share Posted January 6, 1999 I can't tell ou the overwhelming relief I felt when I read your letter, Reid. In fact, I printed it to show my husband. I am EXACTLY the same way. It is so unlike me but this is what I have become-reclusive and supersensitive to the cold, and totally reluctant to do anything that involves going out the front door.... I think that when people have been sick for a long time and get a lot of " you LOOK allright " stares from casual acquaintances and when people have that " you always have a problem " look even if you don't complain but they just know, it just becomes easier to hide in a safe place. Or maybe we are all just crazy. The one thing I do know for sure is that these symptoms are Lyme related!!!!! That has to help a little. <G> Hugs, Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 1999 Report Share Posted January 6, 1999 Hi Reid, It is not unusual for people to become agoraphobic after being housebound with a long illness. I think we Lymies are even more prone to it since anxiety and panic attacks can be symptoms of Lyme and can cause agoraphoba.. It might well go away on its own when you are feeling better physically. If not, don't worry because it is very treatable with behavior therapy and /or medicaation . I'm guessing that you are less upset about not going out, since it's cold now anyway, than you are about having this fear in the first place - thinking you're going nuts or that you're never going to be able to get over it,. You are not 'losing it " and you will get over the fear. I don't have an actual fear of going out, but I know I find it very exhausting and stressful to go out when I'm tired. I want to keep my space as small as possible when I'm feeling bad. I'm sure there must be something biological about it. I know when I've had a sick pet, it has usually found a corner of the closet to hide in. which sometimes sounds pretty good to me. Although I know it sounds hollow, please try not to worry too much about this symptom because it is reversible and very understandable under the circumstances. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 1999 Report Share Posted January 6, 1999 thanks to all who replied to my post , i figured it has to do with being ill but will check with the shrink anyway......sometimes i just want to scream over what this disease has done to me,my family and my way of living.....the drs. say learn to live with it....i am trying but sometimes it is very difficult as u all know....thank god for this forum.....by the way a friend of mine runs 1-800-tickbite yes , it is and infusion co. in new jersey,and yes they recomend lld who WANT to be named not ALL LLD'S..... the person who runs the lyme disease care center as it is called lost his brother ( a very close friend of mine) to complications from this disease at the age of 38.....he has all of our best intentions at heart believe me..... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 1999 Report Share Posted January 6, 1999 alison, thank you, it is not just me......just for me to drive a block to get the newspapers take talking myself into it......it sucks......i use to be very outgoing now i would rather be by myself so much for misery loves company,.....when i don't feel good (always) i would rather be at home,warm, in my bed or on the computer.....guess i'm just a big baby but.....oh well glad i could help u with ur hubby.....i really think that spouses should have a support group too.....was going to start a combination group here in north jersey last year but then i went farther downhill and can not orginize it(lyme brained fool i am) Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 1999 Report Share Posted January 6, 1999 God, I hope you're right. I think I would have a better chance if my problem was just tick bite but with this stupid vaccine roaming my bloodstream...who knows what those people really gave me? One doctor told me " off the record " that it was a genetic thing that " makes " my body think it has Lyme but it doesn't really and abx won't help because there is nothing to kill! Well...the + Western Blot negated that but maybe there is some substance to this doctor's theory...and if there is, I don't know if there really is help for me, but I can always hope, and thank God for my doctor! Hugs, Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 1999 Report Share Posted January 7, 1999 Reid, this is good to know about 1800 tick bite. I know they were very helpful with me, but one becomes skeptical after falling through the cracks with so many of the medical professionals out there. Take Care Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 1999 Report Share Posted January 8, 1999 The support group is a GREAT idea, Reid! Sometimes, especially when I am in a rage, I feel sl sorry for him! I used to be so even tempered and now I foam at the mouth if you LOOK at me the wrong way! I hate myself for it but I have no control over it! he is really pretty good about who I have become-fat, nasty, and totally dependent on him for EVERYTHING! But he is also now on Paxil and I know this is because of yours truly! Maybe we can convince them to start an online support group, something like what we have going here! Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 1999 Report Share Posted January 9, 1999 Hi , Wow that is a lot of medicine. How are you fairing with it. What is raxzr I have never heard of it. How long does the Dr. want to keep you on the meds. Do you feel your symptoms are disapearing. Sorry for all the questions, try and write back when you get a chance. I pray all of your meds can cure you. Feel better -Val Quote Link to comment Share on other sites More sharing options...
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