Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 >Timing is Everything>> How very right you are! WOW!!!! Ask me about my new MSM lotion for aches/pains! http://www.scentsappeal.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 My pain has been increasing and it's not psychological. I am taking more percocet at night time and resting more frequently. If I roll out of bed to quickly like I used to in my younger days of 6 months ago I have difficulty breathing followed by nausea. It subsides pretty quickly just trying to calm down and stay still. Also when I sleep on my rightside it happens which is the direction the herniated discs are already pressing. -Nick > > Nick I am so sorry they are giving you such a hard time. Will all that laying around you must be doing something productive if you are not frustrated in that way, lol. I hope that it all works out for you soon. Are your pain levels pretty high still? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 My pain has been increasing and it's not psychological. I am taking more percocet at night time and resting more frequently. If I roll out of bed to quickly like I used to in my younger days of 6 months ago I have difficulty breathing followed by nausea. It subsides pretty quickly just trying to calm down and stay still. Also when I sleep on my rightside it happens which is the direction the herniated discs are already pressing. -Nick > > Nick I am so sorry they are giving you such a hard time. Will all that laying around you must be doing something productive if you are not frustrated in that way, lol. I hope that it all works out for you soon. Are your pain levels pretty high still? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Hi , I appreciate your wanting to help and understanding. I have all the pain medications right now that I need and would like to get off of them. All that I am waiting on is surgery for closure. After surgery if there is more or different pain then I will have to either have them cut nerve endings or be on more pain killers. Hope you are feeling well. -Nick > They had done studies in England regarding topicals regarding neuropathic > pain CAUSED by back problems. It does NOT cure but they do relieve. I am > proof positive of this. I have talked to many neuros who although you have > to in the end have surgery, the prescription pain med when applied to the > disks involved does numb them a bit. Also there is a numbing patch you can > apply temporarily, but only once within a twelve hour period, called > Lidoderm patch. I did not say that it would cure your back, only relieve > some of the neuropathic pain which spreads throughout your body when you > have severe back problems > > I have severe back problems, sometimes cannot walk. I have severe > neuropathic and myofascial pain as a result of an entrapped nerve in my > cervical region from a large osteophite and severe stenosis which causes > paralysis of my right leg and sciatica plus ddd throughout my spine. I know > all about back pain and all I wa sdoing was suggesting a help and coping aid > which will only HELP to relieve SOME of the pain. I am also on morphine and > vicodan for break through pain. And neurontin. > > My surgeon will not operate. They do not operate readily in Canada for > cervical problems like mine in my area so I am stuck. The medicare system in > Canada is crashing and all our good doctors have gone stateside for sunnier > places and more money! > > The study in england showed that the pain creams such as the prescription > one I posted, DOES help temporarily if used appropriately and under the > directions of your doctor as they have numbing agents and inflammatory > agents that sink right into the affected area ie: I apply it on my C6 and > C7 cervical region where I have the most pain and problem and in my lumbar > region. But as a tiny little jar is 130.00 in canada, I rely on the > homemade for the rest of my burning and aching skin which has spread all > over my body now due to my back problems. > > I only was suggesting what I am doing, and what is relieving some of my > pain. Morphine is the gold standard for pain relief and any good pain > management specialist knows this. Thankfully, they exist or we would all be > bedridden and crying with pain. > > Sorry about your pain, my hubby also had back surgery and his nerve was > almost severed. This was in the military. He saw so many sub lieutenants who > gave him frozen popsicles, and muscle relaxants that fianlly when we took > him into the hospital he demanded to see a higher rank. He was immediately > hospitalized and operated on the next day and his nerve was partially > severed. Now arthritis has set in and he uses the cream too because his next > disk is going. He is out of the military now and retired as a Chief Warrant > Officer but even in the military he did not get immediate treatment until he > had to become his own health advocate. > > I believe we have to be our own health advocates and go armed with > information to our doctors and insist that we get relief and the up to date > treatments, I believe in second opinions and finding out the reputation of > the surgeon who will be doing the surgery. Hope you feel better, Mermie aka > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Hi , I appreciate your wanting to help and understanding. I have all the pain medications right now that I need and would like to get off of them. All that I am waiting on is surgery for closure. After surgery if there is more or different pain then I will have to either have them cut nerve endings or be on more pain killers. Hope you are feeling well. -Nick > They had done studies in England regarding topicals regarding neuropathic > pain CAUSED by back problems. It does NOT cure but they do relieve. I am > proof positive of this. I have talked to many neuros who although you have > to in the end have surgery, the prescription pain med when applied to the > disks involved does numb them a bit. Also there is a numbing patch you can > apply temporarily, but only once within a twelve hour period, called > Lidoderm patch. I did not say that it would cure your back, only relieve > some of the neuropathic pain which spreads throughout your body when you > have severe back problems > > I have severe back problems, sometimes cannot walk. I have severe > neuropathic and myofascial pain as a result of an entrapped nerve in my > cervical region from a large osteophite and severe stenosis which causes > paralysis of my right leg and sciatica plus ddd throughout my spine. I know > all about back pain and all I wa sdoing was suggesting a help and coping aid > which will only HELP to relieve SOME of the pain. I am also on morphine and > vicodan for break through pain. And neurontin. > > My surgeon will not operate. They do not operate readily in Canada for > cervical problems like mine in my area so I am stuck. The medicare system in > Canada is crashing and all our good doctors have gone stateside for sunnier > places and more money! > > The study in england showed that the pain creams such as the prescription > one I posted, DOES help temporarily if used appropriately and under the > directions of your doctor as they have numbing agents and inflammatory > agents that sink right into the affected area ie: I apply it on my C6 and > C7 cervical region where I have the most pain and problem and in my lumbar > region. But as a tiny little jar is 130.00 in canada, I rely on the > homemade for the rest of my burning and aching skin which has spread all > over my body now due to my back problems. > > I only was suggesting what I am doing, and what is relieving some of my > pain. Morphine is the gold standard for pain relief and any good pain > management specialist knows this. Thankfully, they exist or we would all be > bedridden and crying with pain. > > Sorry about your pain, my hubby also had back surgery and his nerve was > almost severed. This was in the military. He saw so many sub lieutenants who > gave him frozen popsicles, and muscle relaxants that fianlly when we took > him into the hospital he demanded to see a higher rank. He was immediately > hospitalized and operated on the next day and his nerve was partially > severed. Now arthritis has set in and he uses the cream too because his next > disk is going. He is out of the military now and retired as a Chief Warrant > Officer but even in the military he did not get immediate treatment until he > had to become his own health advocate. > > I believe we have to be our own health advocates and go armed with > information to our doctors and insist that we get relief and the up to date > treatments, I believe in second opinions and finding out the reputation of > the surgeon who will be doing the surgery. Hope you feel better, Mermie aka > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Hi , How do I feel? I feel like a little child that needs a hug and a shoulder to rest on when I am a man trying to battle to many fronts. I am a Christian and believe that God will work some miracles in my life as I try my best to keep fighting. I do have friends and family but I isolate myself probably because I don't want to be looked at differently and would rather sleep then be social. I am not working right now, I am on convelesent leave until this matter is resolved. I was ordered to go down to Walter Medical Center in DC. It was a huge waste of time and tax payers money yet they want me to go back. I dropped off the paperwork from D.C. to the Base and hopefully next week they can make a few phone calls to get things going in the right direction. thanks for thinking of me. Hope all is well by you. -Nick > Ok Nick, > How are you doing today? I think the cosmos has assigned me the > task of being your fairy godmother, althought I refuse to wear > anything pink or fluffy, my wings are for decorative purposes only, > and my magic wand (I actually have one of these) has lost all of its > powers over the years of demonstrating its sparkling presence to > students. I'd wave it over the heads of students who did not study > for the test, or do their assignments, etc, and we found that the > wand had simply lost its power to perform miracles. So I'm pretty > much useless in the magic department, but I'm fairly good for > encouragement and humor. > > I'm sure I asked before, but since I've had packages delivered by > Brown that I have absolutely no recollection of ordering, I'm > putting the blame for any cognitive short-comings at the doorstep of > modern pharmacology - do you have family close for support? What > about friends? And do I understand correctly that you are still > working full time? And did you go rattle any cages in the past > couple of day? Bad as a nosey mom, eh? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Hi , How do I feel? I feel like a little child that needs a hug and a shoulder to rest on when I am a man trying to battle to many fronts. I am a Christian and believe that God will work some miracles in my life as I try my best to keep fighting. I do have friends and family but I isolate myself probably because I don't want to be looked at differently and would rather sleep then be social. I am not working right now, I am on convelesent leave until this matter is resolved. I was ordered to go down to Walter Medical Center in DC. It was a huge waste of time and tax payers money yet they want me to go back. I dropped off the paperwork from D.C. to the Base and hopefully next week they can make a few phone calls to get things going in the right direction. thanks for thinking of me. Hope all is well by you. -Nick > Ok Nick, > How are you doing today? I think the cosmos has assigned me the > task of being your fairy godmother, althought I refuse to wear > anything pink or fluffy, my wings are for decorative purposes only, > and my magic wand (I actually have one of these) has lost all of its > powers over the years of demonstrating its sparkling presence to > students. I'd wave it over the heads of students who did not study > for the test, or do their assignments, etc, and we found that the > wand had simply lost its power to perform miracles. So I'm pretty > much useless in the magic department, but I'm fairly good for > encouragement and humor. > > I'm sure I asked before, but since I've had packages delivered by > Brown that I have absolutely no recollection of ordering, I'm > putting the blame for any cognitive short-comings at the doorstep of > modern pharmacology - do you have family close for support? What > about friends? And do I understand correctly that you are still > working full time? And did you go rattle any cages in the past > couple of day? Bad as a nosey mom, eh? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Nick - Can you send me your e-mail? joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Nick - Can you send me your e-mail? joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 Sorry Nick a lot of those posts are from me and they aren't short I know I'm remembering to erase the junk at the end of the emails tho and just leaving my message and the original :) lol Glad to hear you slept good last night, and glad you will hopefully have some answers soon from your MRI. Connie Re: Chatroom > I had another MRI of Cervical done yesterday and made sure to dope up on the muscle relaxents. Sleep came easy last night. Now I'll call up to see if the films and report are available. > > -Nick > > PS Wow its hard to catch up on one night let alone if I had to do a few days of posts, lol. -- _______________________________________________ Sign-up for your own FREE Personalized E-mail at Mail.com http://www.mail.com/?sr=signup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 Sorry Nick a lot of those posts are from me and they aren't short I know I'm remembering to erase the junk at the end of the emails tho and just leaving my message and the original :) lol Glad to hear you slept good last night, and glad you will hopefully have some answers soon from your MRI. Connie Re: Chatroom > I had another MRI of Cervical done yesterday and made sure to dope up on the muscle relaxents. Sleep came easy last night. Now I'll call up to see if the films and report are available. > > -Nick > > PS Wow its hard to catch up on one night let alone if I had to do a few days of posts, lol. -- _______________________________________________ Sign-up for your own FREE Personalized E-mail at Mail.com http://www.mail.com/?sr=signup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 Joe, For the legs try bracing your upper body against a counter top or imovable object and do partial squats just above parellel. This will strengthen your quads, hamstrings, glutes, while not causing to much pressure on your legs or worrying about balance. Next brace yourself again and stand up on your toes then go back down, repeat 10 times then increase as you get good at it. This builds your calves. If I ever come across a good link I'll post it for yah. hope this helps. -Nick > Nick - > > I remember a post you made a while back about exercises > we could do to help build our strength. The one you spoke > about was the " push-ups " against the wall. Do you have > any more that you can tell us about? I really would like to > strengthen my legs. > > joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 Joe, For the legs try bracing your upper body against a counter top or imovable object and do partial squats just above parellel. This will strengthen your quads, hamstrings, glutes, while not causing to much pressure on your legs or worrying about balance. Next brace yourself again and stand up on your toes then go back down, repeat 10 times then increase as you get good at it. This builds your calves. If I ever come across a good link I'll post it for yah. hope this helps. -Nick > Nick - > > I remember a post you made a while back about exercises > we could do to help build our strength. The one you spoke > about was the " push-ups " against the wall. Do you have > any more that you can tell us about? I really would like to > strengthen my legs. > > joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Nick, I'm real sorry you're in a lot of pain. It's hard to sit at a chair & type a post when your back is hurting something gruesome, we all know. Sometimes we all gotta' just rest & lie down. Take it real easy. sonia Re: Please help > I've been in allot of pain lately I haven't posted. We each deal with it differently. -Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 Thanks for the nice words . Although I am just beginning my tx, I am not new to it. My brother has been through it already with the older tx and is currently in his 5th week with Pegatron. I just feel sorry for our families when we are together and having Ribo- rage lol. He's been very supportive and helpful and shoots from the hip when I ask him what to possibly expect. It saddens me when I hear people are fired for this. The place where I work is a big corporation, but they have been very supportive and given me a month off with pay (to start) to allow me to get used to the side-effects. We also have a fantastic benefits and insurance package. Then after the first month, whatever it takes to help me through this ordeal, they are willing to play ball and help in any way. I'm very thankful to be working for a place like that. Thanks for the prayers and my prayers go out to you too. I'll be a frequent member here. Nick > Starting tx is scary. For both you and your loved ones. Everyone > here told us that the first month is the worst, and Shane's made it > through that so I figure we're home free. We were also told that it > is all about managing the side effects and keeping positive, and > that is so true with Shane. Shane was fired due to his Hep C and > beginning tx so I am the one working now and I've found that on the > days that our son is home with Shane and not at pre-school that he > (Shane) is more upbeat and positive...the same ole Shane, but on the > days that he is home alone without anything or anyone to really keep > him " busy " it is very difficult for him to not get depressed or > angry. Just stay positive...we're all here for you. You're in our > thoughts and prayers. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 , I hope things work out and your significant other. I know that you are going through a really tough time right now - keep you faith strom and know that all things all possible through God and payer. I am sorry about yyou husband looding hi job= sounds like a good lawsuit. It just seems so unfair, I hope you can do something to make a difference and maybe it won't happen to others i your company - I guess that would be start... May God continue to bless us all Marie -- [ ] Re: Nick Thanks for the nice words . Although I am just beginning my tx, I am not new to it. My brother has been through it already with the older tx and is currently in his 5th week with Pegatron. I just feel sorry for our families when we are together and having Ribo-rage lol. He's been very supportive and helpful and shoots from the hip when I ask him what to possibly expect. It saddens me when I hear people are fired for this. The place where I work is a big corporation, but they have been very supportive and given me a month off with pay (to start) to allow me to get used to the side-effects. We also have a fantastic benefits and insurance package. Then after the first month, whatever it takes to help me through this ordeal, they are willing to play ball and help in any way. I'm very thankful to be working for a place like that. Thanks for the prayers and my prayers go out to you too. I'll be a frequent member here.Nick > Starting tx is scary. For both you and your loved ones. Everyone > here told us that the first month is the worst, and Shane's made it > through that so I figure we're home free. We were also told that it > is all about managing the side effects and keeping positive, and > that is so true with Shane. Shane was fired due to his Hep C and > beginning tx so I am the one working now and I've found that on the > days that our son is home with Shane and not at pre-school that he > (Shane) is more upbeat and positive...the same ole Shane, but on the > days that he is home alone without anything or anyone to really keep > him "busy" it is very difficult for him to not get depressed or > angry. Just stay positive...we're all here for you. You're in our > thoughts and prayers.> > Letter by TaRacey Font is Safran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Nick, Geez, ya'll have a double whammy with both of ya'll on treatment, but also a benefit to have him to go through it together. I am so glad your company is supportive. It sounds like you're surrounded by a great support group with your family and employer. Best of luck...we're all here for you! Jen > > Starting tx is scary. For both you and your loved ones. Everyone > > here told us that the first month is the worst, and Shane's made > it > > through that so I figure we're home free. We were also told that > it > > is all about managing the side effects and keeping positive, and > > that is so true with Shane. Shane was fired due to his Hep C and > > beginning tx so I am the one working now and I've found that on > the > > days that our son is home with Shane and not at pre-school that he > > (Shane) is more upbeat and positive...the same ole Shane, but on > the > > days that he is home alone without anything or anyone to really > keep > > him " busy " it is very difficult for him to not get depressed or > > angry. Just stay positive...we're all here for you. You're in > our > > thoughts and prayers. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 People with hepatitis C are under protection from being discriminated against in the workplace. Please look into this, you may have some recourse here. Let me know if you are considering it, and I’ll get you some more information. I have done some research on this before. –dz- [ ] Nick Starting tx is scary. For both you and your loved ones. Everyone here told us that the first month is the worst, and Shane's made it through that so I figure we're home free. We were also told that it is all about managing the side effects and keeping positive, and that is so true with Shane. Shane was fired due to his Hep C and beginning tx so I am the one working now and I've found that on the days that our son is home with Shane and not at pre-school that he (Shane) is more upbeat and positive...the same ole Shane, but on the days that he is home alone without anything or anyone to really keep him " busy " it is very difficult for him to not get depressed or angry. Just stay positive...we're all here for you. You're in our thoughts and prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 Thanks. We've retained an attorney here in town...really nice ethical man who's a mad as we are about what happened. Any information you have would be great. The unemployment officer hit them with some pretty interesting questions which they didn't answer very well (praise God) so we're probably going to give them the opportunity to settle. I want the attorney to let them know that if they don't settle then we're going to involve to Equal Employment Opportunity Commision and file suit under the Americans With Disabilities Act plus seek triple what we're requesting now. Hopefully that will scare them. Oh, did I mention the fact that they (his old employer) said that they never fired him due to his illness and rising healthcare costs? Funny, but Friday before the unemployment appeal we got a letter stating that they are " changing insurance carriers due to the rising premium costs " . Okay, I'm stopping before I go off again....lol. Good news though, the pharmacy input insurance info into the computer wrong...Shane's blood pressure med are formulary and only $25!!! Happy dance! Hope everyone has/had a good Monday. Jen > People with hepatitis C are under protection from being discriminated > against in the workplace. Please look into this, you may have some > recourse here. Let me know if you are considering it, and I'll get you > some more information. I have done some research on this before. - dz- > > [ ] Nick > > Starting tx is scary. For both you and your loved ones. Everyone > here told us that the first month is the worst, and Shane's made it > through that so I figure we're home free. We were also told that it > is all about managing the side effects and keeping positive, and > that is so true with Shane. Shane was fired due to his Hep C and > beginning tx so I am the one working now and I've found that on the > days that our son is home with Shane and not at pre-school that he > (Shane) is more upbeat and positive...the same ole Shane, but on the > days that he is home alone without anything or anyone to really keep > him " busy " it is very difficult for him to not get depressed or > angry. Just stay positive...we're all here for you. You're in our > thoughts and prayers. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Helen: Good to see you posting again. I am so glad that Nick is doing well and had a great summer. It is strange that insurance doesn't want to cover Nick's MTX. Would they rather pay for one of the biologics???? Makes no sense. Again, I am so happy that Nick has made such good progress. and Rob 15 Spondy > Hi Gang!!! > > Phew, life is just too busy sometimes. We have been on vacation and > then company from England arrived, they are still here but I have a > few minutes to myself so I thought I would check in. > > Welcome to all the new list members, Sorry I can not welcome you all > separately, but i am just soo far behind, its not even funny. I've > scanned the list quickly and was so sorry to read that out dear > was in the hospital, I need to go check out her website to read what > went on. I hope alls well by now. And to Val and Robbie, I have to > go back and read your posts, but i hope things are better for Robbie > now and that you are getting everything sorted out. > > I hope to be back to my usual posting and replies soon.. im really > looking forward to school going back and life slowing down a bit. > > In the meantime I have to share with you about Nicks great rhuemy > appt last week. Nick has had a great summer, its been quite a few > weeks now since has complained of any pain at all!!!! hes still slow > going in the mornings and the fatigue is always present, but on the > whole hes doing fantastic. His doctor was very happy with him, hes > finally grown a little (1/2in) and gained a pound since june!! All > his joints are moving well also. The good news is we can stretch out > his next appt for 2 months.... > > I was a little confused by a copy of a letter the doctor gave me, it > was to the insurance company as we are still fighting with them to > cover Nicks MTX. In the letter she listed Nicks DX as systemic > onset, polyarticular JRA. I was a little thrown by the polyarticular > part?? Can anyone explain this part to me, I thought you were either > Systemic, poly or pauci....depending on your 1st 6 months. I didnt > know you could be both....Anyone have any insight??? > > I will talk to the doc next time time we see her, I didnt read the > letter till I was home so I couldnt do it at the time. We also had a > good talk about biologics.. basically she was telling me Nick would > go onto Enbrel next, if needed, and after that remicade. I told her > about all the good results that I was reading about concerning > kineret and she told me she was seeing the same results, but as of > yet has not put anyone on it. She says its daily shots and she has > heard they are painful. Nick doesnt need one right now so i was not > too concerned, but it was good to get an idea what her treatment > plans were beyond the MTX. > > So Nicks doing great, lets hope it continues....... > > Hugs Helen and (7, systemic) > > P.s Oh Yea, I nearly forgot turned 7 last week!!!!!! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Helen, I hope Nick is feeling better today. How's he doing, having missed a dose of Enbrel? And how are you doing? I hope you've been able to get a bit of sleep! Liz Re: Nick --Hey Liz, Thanks for asking... We were at the peds 1st thing this morning, and i should have posted, but I was running on 2 hours sleep in the last 48 hrs and just flopped on the sofa and fell alseep. Nick is one of 10% of people who are allergic to the penicillin family who also are allergic to penicillins distant cousin, the cephalosporin family. We are to continue to give benadryl till the end of the week. I have a new RX for Zithromycin, but am to hold off for a couple of days to let his body settle down. If he is doing better by wednesday, im not to give it at all. I also called the rheumys office and was told to hold off on the enbrel tonight and depending on how he is on thursday, give it if hes doing better. We see the rheumy next Tuesday. Nicks face has gone down... hes still spiking high fevers, but he seems to be in pretty good spirits. His knee pain has gone away. The fevers are a little worrisome. Not sure of they are from the illness, the reaction to cefzil or the start of a flare.... I guess time will tell. Hugs Helen and (7,systemic) smith@c...> wrote: > Helen, > > How is Nick today? > > Liz > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 --Hey Liz... Well Nick had his high fevers again monday night... Tuesday he woke up fever free and feeling ok and he really wanted to go to school as it was their music program that hes worked on all year. So I talked to the school and sent him. They took his temp a few times during the day and he was fine. He rested at recess. I went to the 2.30pm performance. You could tell he was not feeling well, he was very pale and I worried about his passing put, he kept wiping his brow. Needless to say he was not up to going back for the 6.30pm performance and of course his fever came back again last night. Thankfully hes not having anymore joint pain. Im glad hes seeing the rheumy next Tuesday... thanks for asking... hugs Helen and (7,systemic) - In , " liz smith " <liz_smith@c...> wrote: > Helen, > > > > I hope Nick is feeling better today. How's he doing, having missed a dose of > Enbrel? And how are you doing? I hope you've been able to get a bit of > sleep! > > > > Liz > > > > Re: Nick > > > > > --Hey Liz, > > Thanks for asking... We were at the peds 1st thing this morning, and > i should have posted, but I was running on 2 hours sleep in the last > 48 hrs and just flopped on the sofa and fell alseep. > > Nick is one of 10% of people who are allergic to the penicillin > family who also are allergic to penicillins distant cousin, the > cephalosporin family. We are to continue to give benadryl till the > end of the week. I have a new RX for Zithromycin, but am to hold off > for a couple of days to let his body settle down. If he is doing > better by wednesday, im not to give it at all. > > I also called the rheumys office and was told to hold off on the > enbrel tonight and depending on how he is on thursday, give it if > hes doing better. We see the rheumy next Tuesday. > > Nicks face has gone down... hes still spiking high fevers, but he > seems to be in pretty good spirits. His knee pain has gone away. The > fevers are a little worrisome. Not sure of they are from the > illness, the reaction to cefzil or the start of a flare.... I guess > time will tell. > > Hugs Helen and (7,systemic) > > > > smith@c...> wrote: > > Helen, > > > > How is Nick today? > > > > Liz > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Sorry Nick is not feeling well and had to miss that second performance. Ugh - this disease stinks!! Hugs to you and Nick, Michele Re: Nick > > > > > --Hey Liz, > > Thanks for asking... We were at the peds 1st thing this morning, and > i should have posted, but I was running on 2 hours sleep in the last > 48 hrs and just flopped on the sofa and fell alseep. > > Nick is one of 10% of people who are allergic to the penicillin > family who also are allergic to penicillins distant cousin, the > cephalosporin family. We are to continue to give benadryl till the > end of the week. I have a new RX for Zithromycin, but am to hold off > for a couple of days to let his body settle down. If he is doing > better by wednesday, im not to give it at all. > > I also called the rheumys office and was told to hold off on the > enbrel tonight and depending on how he is on thursday, give it if > hes doing better. We see the rheumy next Tuesday. > > Nicks face has gone down... hes still spiking high fevers, but he > seems to be in pretty good spirits. His knee pain has gone away. The > fevers are a little worrisome. Not sure of they are from the > illness, the reaction to cefzil or the start of a flare.... I guess > time will tell. > > Hugs Helen and (7,systemic) > > > > smith@c...> wrote: > > Helen, > > > > How is Nick today? > > > > Liz > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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