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American Social Health Association declares Hepatitis C an STD

Hepatitis C Movement for Awareness

We need your help, please copy and send std-hivnet@...

Date: 4/7/2004

The many members of the Hepatitis C community are appalled with your

claim that HCV is a sexually transmitted disease.

Hepatitis C patients already suffer from a stigmatism more dehumanizing

than HIV/AIDS. Your claims has just made their lives that much harder to

cope.

As an advocate for this “silent epidemic”, not only have I experienced

this stigmatism, but I have consoled countless others who have suffered

the same. I hear horror stories of how the misinformed public

consistently shun them, treating them like lepers, make working

conditions unbearable, dismissing them from employment and claiming

other grounds for release, and making friends and family members fear

personal or casual contact.

I recently spoke with a man that reached out to us. He explained how his

outside family resort to using paper plates and cups for meals when he

visits in fear they may contract HCV. They constantly beg him to have

his children tested regularly for HCV because of their contact with him.

As a widower, he now avoids any future relationships in fear he may

infect someone that may become close to him.

This is just one of the examples I of the stories I hear from many of

those that are newly infected with HCV, and I can guarantee there are

many more who can claim hearing those same stories.

While HCV is mainly a Bloodborne Infection, transmitted mainly by blood

to blood contact, IV drug use, or contaminated blood products or medical

equipment; your claim has now place more emphasis on sexual

transmission. Placing Hepatitis C in the category of an STD will now

cause the general public to view HCV as primarily a sexually transmitted

disease, when in fact it is not.

Your report primarily focuses on Hepatitis A and B. Only briefly, in one

sentence, do you refer to Hepatitis C, and I quote;

“It is important to note that Hepatitis C, which can also be sexually

transmitted, cannot be prevented via vaccination.”

Nowhere else in the report, other that the Title, do you explain HCV

further, you state no facts, figures, references, or clinical trials to

support your statement that HCV is transmitted sexually. You only

address Hepatitis A and B.

Your association has now placed increased fear in people, stigmatizing

the Hep C community even further; a battle we strive so hard to fight.

Furthermore, your claims has now called all of us who educate, advocate,

and support others, “BOLD FACED LIARS”.

We as a community demand you support your claim with scientific evidence

or retract your claim that HCV IS a sexually transmitted disease and

help put a stop to the stigmatism we face already.

Signed,

Pamela Bell

Media Awareness Coordinator

Hepatitis C Movement for Awareness

520-284-7324

http://hcvets.com/forum_public/hma/disc.htm

American Social Health Association declares Hepatitis C an STD

Awareness of Viral Hepatitis Compared to Other Common STDs Ranked Lowest

RESEARCH TRIANGLE PARK, N.C., April 6 /PRNewswire/ -- New survey results

unveiled today by the American Social Health Association (ASHA) -- an

organization dedicated to preventing sexually transmitted diseases

(STDs) -- suggest that lack of awareness may put Americans at risk for

contracting STDs. While an overwhelming majority surveyed (84 percent)

felt that they take the necessary precautions to protect themselves

against STDs, many people do not use protection on a regular basis when

they engage in sexual activities*. Furthermore, over half were unsure or

had not been vaccinated against hepatitis A and hepatitis B, also known

as vaccine-preventable hepatitis (VPH), which are the only STDs that can

be prevented through immunization. It is important to note that

hepatitis C, which can also be sexually transmitted, cannot be prevented

via vaccination. The survey was conducted to assess the sexual

attitudes, behaviors and knowledge of STDs of Americans aged 18-35 as

part of an educational initiative surrounding STD Awareness Month in

April.

In addition, the survey showed some contrary findings when it comes to

what people think they know about STDs. From a list of common

conditions including heart disease, diabetes and depression, Americans

said they felt the most knowledgeable about STDs. Interestingly, they

said they felt the least knowledgeable about viral hepatitis, suggesting

that Americans dissociate viral hepatitis from STDs, with the two at

opposite ends of the awareness scale. In fact, a large number failed to

recognize that hepatitis A and hepatitis B can be sexually transmitted.

" The findings in our survey are quite disturbing. Despite the fact that

STDs are extremely widespread and have severe consequences, it is

troubling that there is such a large portion of people who still feel

invincible, " noted R. , M.D., M.P.H, president and chief

executive officer of ASHA. " In addition, people's lack of awareness

about the various STDs only underscores the need for continued education

to prevent the spread of these serious diseases. "

One in every four Americans will contract an STD sometime in their

lifetime. In 2000 alone, there were more than 18.9 million new

infections, which are a significant burden on the economy, costing an

estimated $8 billion to diagnose and treat. And yet nearly 7 in 10 (68

percent) of people surveyed are not concerned about contracting an STD.

Viral Hepatitis: The Least Known STD

Regarding people's knowledge of specific STDs, viral hepatitis ranked

the lowest (compared to HIV, herpes, gonorrhea, and chlamydia).

Alarmingly, many people did not realize that hepatitis A and hepatitis B

can be sexually transmitted (57 percent and 44 percent, respectively).

In addition, about half did not know that hepatitis A (55%) and

hepatitis B (42%) are vaccine- preventable. Nearly all (97 percent)

people knew that HIV can be sexually transmitted. However, hepatitis B

can be 100 times more contagious than HIV and is more common, with more

than 1.25 million people living with hepatitis B in the United States.

In fact, 1 out of every 20 people will acquire hepatitis B sometime in

their life, although many will be unaware of it because the infection

often doesn't cause any signs or symptoms.

America Silent about STDs

One of the most disturbing findings is that people are not communicating

about STDs, thereby putting themselves unknowingly at risk for

contracting and spreading diseases. In the recent survey, the vast

majority (93 percent) believe their current or most recent partner

didn't have an STD, yet about 1 out of 3 people have never discussed

STDs with their partner. About half (53 percent) said their partner had

been tested. Beyond reluctance to discuss STDs with their sex partners,

respondents also appeared hesitant to seek information from their

physicians. Despite the fact that nearly 70 percent of people rely on

healthcare providers for health information, less than half of those

surveyed have ever spoken to their providers about STDs. Interestingly,

among those who are sexually active, the most common reason cited for

not talking to their doctor was that they didn't feel they were at risk.

" For years we have known that perceived stigma has been a barrier to

discussion of STDs, and this latest survey shows that people simply

don't believe they are at risk, " says Dr. R. . " This false

sense of security is problematic, as it can lead to exposure to serious,

incurable diseases. We encourage everyone to speak to their providers

about ways to protect themselves from these infections, including

available vaccines. "

How to " Get the STDetails on Hepatitis "

To provide the public with information about the sexual transmission of

hepatitis A and hepatitis B, ASHA has developed an educational brochure.

In addition, a one-page checklist for risk factors is available to help

people assess whether or not they may be at risk for vaccine-preventable

hepatitis. Since the survey showed that the Internet is the most common

resource for health information, ASHA is making these materials

available on their website, www.ASHASTD.org.

Together, hepatitis A and hepatitis B cause more than 170,000 infections

and more than 5,000 deaths each year in the U.S. About one-quarter of

hepatitis A cases can be attributed to household (sharing living

quarters with an infected person) or sexual contact. In addition,

certain populations may be at increased risk for contracting hepatitis

A, such as men who have sex with men. The hepatitis A virus can be

spread during oral-anal sex by the contaminated stool of someone who has

the disease. Hepatitis B can be spread from person to person via direct

or indirect contact with infected blood or body fluids such as semen and

vaginal secretions. Over one half (54 percent) of hepatitis B

infections are transmitted sexually.

Symptoms of hepatitis may include fatigue, jaundice, nausea and vomiting

and abdominal pain. Sometimes, however, no symptoms are present and

it's difficult to ascertain whether someone has hepatitis A or hepatitis

B. It is therefore important that people take steps to protect

themselves. Vaccination is the most effective method of prevention of

hepatitis A and hepatitis B. There are safe and effective vaccines that

can provide long-term protection.

About ASHA

The American Social Health Association is a non-profit organization

chartered in 1914 and dedicated to improving the health of people,

families, and communities, with a focus on preventing sexually

transmitted diseases and their harmful consequences.

Survey Background

This survey was conducted online by Interactive® within the

United States between March 3 - 8, 2004 among a nationwide cross section

of 1,155 adults (aged 18 to 35). Figures for age, sex, race, education

and income were weighted where necessary to bring them into line with

their actual proportions in the population. " Propensity score " weighting

was also used to adjust for respondents' propensity to be online. In

theory, with probability samples of this size, one could say with 95

percent certainty that the results have a statistical precision of plus

or minus three percentage points of what they would be if the entire

adult population had been polled with complete accuracy. Unfortunately,

there are several other possible sources of error in all polls or

surveys that are probably more serious than theoretical calculations of

sampling error. They include refusals to be interviewed (non-response),

question wording and question order, and weighting. It is impossible to

quantify the errors that may result from these factors. This online

survey is not a probability sample.

The survey was funded by GlaxoKline.

* Sexual activity denotes vaginal, anal and oral intercourse (45

percent,

66 percent, 91 percent, respectively of single people who do not use

protection while engaging in these activities).

SOURCE American Social Health Association

Web site: http://www.ASHASTD.org

March on Dc June 11, 2004

http://hcvets.com/forum_public/hma/disc.htm

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Guest guest

Bloom Where You Are Planted!

Everyday is Earth Day!

Visit and joi my group:hepcnonresponders

American Social Health Association declares Hepatitis C an STD

Hepatitis C Movement for Awareness

We need your help, please copy and send std-hivnet@...

Date: 4/7/2004

The many members of the Hepatitis C community are appalled with your

claim that HCV is a sexually transmitted disease.

Hepatitis C patients already suffer from a stigmatism more dehumanizing

than HIV/AIDS. Your claims has just made their lives that much harder to

cope.

As an advocate for this “silent epidemic”, not only have I experienced

this stigmatism, but I have consoled countless others who have suffered

the same. I hear horror stories of how the misinformed public

consistently shun them, treating them like lepers, make working

conditions unbearable, dismissing them from employment and claiming

other grounds for release, and making friends and family members fear

personal or casual contact.

I recently spoke with a man that reached out to us. He explained how his

outside family resort to using paper plates and cups for meals when he

visits in fear they may contract HCV. They constantly beg him to have

his children tested regularly for HCV because of their contact with him.

As a widower, he now avoids any future relationships in fear he may

infect someone that may become close to him.

This is just one of the examples I of the stories I hear from many of

those that are newly infected with HCV, and I can guarantee there are

many more who can claim hearing those same stories.

While HCV is mainly a Bloodborne Infection, transmitted mainly by blood

to blood contact, IV drug use, or contaminated blood products or medical

equipment; your claim has now place more emphasis on sexual

transmission. Placing Hepatitis C in the category of an STD will now

cause the general public to view HCV as primarily a sexually transmitted

disease, when in fact it is not.

Your report primarily focuses on Hepatitis A and B. Only briefly, in one

sentence, do you refer to Hepatitis C, and I quote;

“It is important to note that Hepatitis C, which can also be sexually

transmitted, cannot be prevented via vaccination.”

Nowhere else in the report, other that the Title, do you explain HCV

further, you state no facts, figures, references, or clinical trials to

support your statement that HCV is transmitted sexually. You only

address Hepatitis A and B.

Your association has now placed increased fear in people, stigmatizing

the Hep C community even further; a battle we strive so hard to fight.

Furthermore, your claims has now called all of us who educate, advocate,

and support others, “BOLD FACED LIARS”.

We as a community demand you support your claim with scientific evidence

or retract your claim that HCV IS a sexually transmitted disease and

help put a stop to the stigmatism we face already.

Signed,

Pamela Bell

Media Awareness Coordinator

Hepatitis C Movement for Awareness

520-284-7324

http://hcvets.com/forum_public/hma/disc.htm

American Social Health Association declares Hepatitis C an STD

Awareness of Viral Hepatitis Compared to Other Common STDs Ranked Lowest

RESEARCH TRIANGLE PARK, N.C., April 6 /PRNewswire/ -- New survey results

unveiled today by the American Social Health Association (ASHA) -- an

organization dedicated to preventing sexually transmitted diseases

(STDs) -- suggest that lack of awareness may put Americans at risk for

contracting STDs. While an overwhelming majority surveyed (84 percent)

felt that they take the necessary precautions to protect themselves

against STDs, many people do not use protection on a regular basis when

they engage in sexual activities*. Furthermore, over half were unsure or

had not been vaccinated against hepatitis A and hepatitis B, also known

as vaccine-preventable hepatitis (VPH), which are the only STDs that can

be prevented through immunization. It is important to note that

hepatitis C, which can also be sexually transmitted, cannot be prevented

via vaccination. The survey was conducted to assess the sexual

attitudes, behaviors and knowledge of STDs of Americans aged 18-35 as

part of an educational initiative surrounding STD Awareness Month in

April.

In addition, the survey showed some contrary findings when it comes to

what people think they know about STDs. From a list of common

conditions including heart disease, diabetes and depression, Americans

said they felt the most knowledgeable about STDs. Interestingly, they

said they felt the least knowledgeable about viral hepatitis, suggesting

that Americans dissociate viral hepatitis from STDs, with the two at

opposite ends of the awareness scale. In fact, a large number failed to

recognize that hepatitis A and hepatitis B can be sexually transmitted.

" The findings in our survey are quite disturbing. Despite the fact that

STDs are extremely widespread and have severe consequences, it is

troubling that there is such a large portion of people who still feel

invincible, " noted R. , M.D., M.P.H, president and chief

executive officer of ASHA. " In addition, people's lack of awareness

about the various STDs only underscores the need for continued education

to prevent the spread of these serious diseases. "

One in every four Americans will contract an STD sometime in their

lifetime. In 2000 alone, there were more than 18.9 million new

infections, which are a significant burden on the economy, costing an

estimated $8 billion to diagnose and treat. And yet nearly 7 in 10 (68

percent) of people surveyed are not concerned about contracting an STD.

Viral Hepatitis: The Least Known STD

Regarding people's knowledge of specific STDs, viral hepatitis ranked

the lowest (compared to HIV, herpes, gonorrhea, and chlamydia).

Alarmingly, many people did not realize that hepatitis A and hepatitis B

can be sexually transmitted (57 percent and 44 percent, respectively).

In addition, about half did not know that hepatitis A (55%) and

hepatitis B (42%) are vaccine- preventable. Nearly all (97 percent)

people knew that HIV can be sexually transmitted. However, hepatitis B

can be 100 times more contagious than HIV and is more common, with more

than 1.25 million people living with hepatitis B in the United States.

In fact, 1 out of every 20 people will acquire hepatitis B sometime in

their life, although many will be unaware of it because the infection

often doesn't cause any signs or symptoms.

America Silent about STDs

One of the most disturbing findings is that people are not communicating

about STDs, thereby putting themselves unknowingly at risk for

contracting and spreading diseases. In the recent survey, the vast

majority (93 percent) believe their current or most recent partner

didn't have an STD, yet about 1 out of 3 people have never discussed

STDs with their partner. About half (53 percent) said their partner had

been tested. Beyond reluctance to discuss STDs with their sex partners,

respondents also appeared hesitant to seek information from their

physicians. Despite the fact that nearly 70 percent of people rely on

healthcare providers for health information, less than half of those

surveyed have ever spoken to their providers about STDs. Interestingly,

among those who are sexually active, the most common reason cited for

not talking to their doctor was that they didn't feel they were at risk.

" For years we have known that perceived stigma has been a barrier to

discussion of STDs, and this latest survey shows that people simply

don't believe they are at risk, " says Dr. R. . " This false

sense of security is problematic, as it can lead to exposure to serious,

incurable diseases. We encourage everyone to speak to their providers

about ways to protect themselves from these infections, including

available vaccines. "

How to " Get the STDetails on Hepatitis "

To provide the public with information about the sexual transmission of

hepatitis A and hepatitis B, ASHA has developed an educational brochure.

In addition, a one-page checklist for risk factors is available to help

people assess whether or not they may be at risk for vaccine-preventable

hepatitis. Since the survey showed that the Internet is the most common

resource for health information, ASHA is making these materials

available on their website, www.ASHASTD.org.

Together, hepatitis A and hepatitis B cause more than 170,000 infections

and more than 5,000 deaths each year in the U.S. About one-quarter of

hepatitis A cases can be attributed to household (sharing living

quarters with an infected person) or sexual contact. In addition,

certain populations may be at increased risk for contracting hepatitis

A, such as men who have sex with men. The hepatitis A virus can be

spread during oral-anal sex by the contaminated stool of someone who has

the disease. Hepatitis B can be spread from person to person via direct

or indirect contact with infected blood or body fluids such as semen and

vaginal secretions. Over one half (54 percent) of hepatitis B

infections are transmitted sexually.

Symptoms of hepatitis may include fatigue, jaundice, nausea and vomiting

and abdominal pain. Sometimes, however, no symptoms are present and

it's difficult to ascertain whether someone has hepatitis A or hepatitis

B. It is therefore important that people take steps to protect

themselves. Vaccination is the most effective method of prevention of

hepatitis A and hepatitis B. There are safe and effective vaccines that

can provide long-term protection.

About ASHA

The American Social Health Association is a non-profit organization

chartered in 1914 and dedicated to improving the health of people,

families, and communities, with a focus on preventing sexually

transmitted diseases and their harmful consequences.

Survey Background

This survey was conducted online by Interactive® within the

United States between March 3 - 8, 2004 among a nationwide cross section

of 1,155 adults (aged 18 to 35). Figures for age, sex, race, education

and income were weighted where necessary to bring them into line with

their actual proportions in the population. " Propensity score " weighting

was also used to adjust for respondents' propensity to be online. In

theory, with probability samples of this size, one could say with 95

percent certainty that the results have a statistical precision of plus

or minus three percentage points of what they would be if the entire

adult population had been polled with complete accuracy. Unfortunately,

there are several other possible sources of error in all polls or

surveys that are probably more serious than theoretical calculations of

sampling error. They include refusals to be interviewed (non-response),

question wording and question order, and weighting. It is impossible to

quantify the errors that may result from these factors. This online

survey is not a probability sample.

The survey was funded by GlaxoKline.

* Sexual activity denotes vaginal, anal and oral intercourse (45

percent,

66 percent, 91 percent, respectively of single people who do not use

protection while engaging in these activities).

SOURCE American Social Health Association

Web site: http://www.ASHASTD.org

March on Dc June 11, 2004

http://hcvets.com/forum_public/hma/disc.htm

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Guest guest

Personally, I could care less that the American Social Health Association

( never heard of them) declares Hepatitis C an STD. Most people have

sex. Not everyone sticks needles with drugs in their body. So what is

your problem? What dehumanizing stigma are you talking about? It

certainly isn't from Hep C. Your protest is a very silly waste of energy

regarding a non issue. Why not spend your energy lobbying for more

funding for research if you want to be an activist?

J

On Wed, 14 Apr 2004 20:39:09 -0700 " tataina " <tataina@...>

writes:

>

> Bloom Where You Are Planted!

> Everyday is Earth Day!

> Visit and joi my

> group:hepcnonresponders

> American Social Health Association declares Hepatitis C an

> STD

>

>

> Hepatitis C Movement for Awareness

>

> We need your help, please copy and send std-hivnet@...

>

>

>

> Date: 4/7/2004

>

>

>

>

>

> The many members of the Hepatitis C community are appalled with your

> claim that HCV is a sexually transmitted disease.

>

> Hepatitis C patients already suffer from a stigmatism more

> dehumanizing

> than HIV/AIDS. Your claims has just made their lives that much

> harder to

> cope.

>

>

>

> As an advocate for this “silent epidemic”, not only have I

> experienced

> this stigmatism, but I have consoled countless others who have

> suffered

> the same. I hear horror stories of how the misinformed public

> consistently shun them, treating them like lepers, make working

> conditions unbearable, dismissing them from employment and claiming

> other grounds for release, and making friends and family members fear

> personal or casual contact.

>

>

>

> I recently spoke with a man that reached out to us. He explained how

> his

> outside family resort to using paper plates and cups for meals when

> he

> visits in fear they may contract HCV. They constantly beg him to have

> his children tested regularly for HCV because of their contact with

> him.

> As a widower, he now avoids any future relationships in fear he may

> infect someone that may become close to him.

>

>

>

> This is just one of the examples I of the stories I hear from many of

> those that are newly infected with HCV, and I can guarantee there are

> many more who can claim hearing those same stories.

>

>

>

> While HCV is mainly a Bloodborne Infection, transmitted mainly by

> blood

> to blood contact, IV drug use, or contaminated blood products or

> medical

> equipment; your claim has now place more emphasis on sexual

> transmission. Placing Hepatitis C in the category of an STD will now

> cause the general public to view HCV as primarily a sexually

> transmitted

> disease, when in fact it is not.

>

>

>

> Your report primarily focuses on Hepatitis A and B. Only briefly, in

> one

> sentence, do you refer to Hepatitis C, and I quote;

>

>

>

> “It is important to note that Hepatitis C, which can also be sexually

> transmitted, cannot be prevented via vaccination.”

>

>

>

> Nowhere else in the report, other that the Title, do you explain HCV

> further, you state no facts, figures, references, or clinical trials

> to

> support your statement that HCV is transmitted sexually. You only

> address Hepatitis A and B.

>

>

>

> Your association has now placed increased fear in people,

> stigmatizing

> the Hep C community even further; a battle we strive so hard to

> fight.

>

>

>

> Furthermore, your claims has now called all of us who educate,

> advocate,

> and support others, “BOLD FACED LIARS”.

>

>

>

> We as a community demand you support your claim with scientific

> evidence

> or retract your claim that HCV IS a sexually transmitted disease and

> help put a stop to the stigmatism we face already.

>

>

>

> Signed,

>

>

>

>

>

> Pamela Bell

>

> Media Awareness Coordinator

>

> Hepatitis C Movement for Awareness

>

> 520-284-7324

>

> http://hcvets.com/forum_public/hma/disc.htm

>

>

>

>

>

> American Social Health Association declares Hepatitis C an STD

> Awareness of Viral Hepatitis Compared to Other Common STDs Ranked

> Lowest

>

>

> RESEARCH TRIANGLE PARK, N.C., April 6 /PRNewswire/ -- New survey

> results

> unveiled today by the American Social Health Association (ASHA) -- an

> organization dedicated to preventing sexually transmitted diseases

> (STDs) -- suggest that lack of awareness may put Americans at risk

> for

> contracting STDs. While an overwhelming majority surveyed (84

> percent)

> felt that they take the necessary precautions to protect themselves

> against STDs, many people do not use protection on a regular basis

> when

> they engage in sexual activities*. Furthermore, over half were

> unsure or

> had not been vaccinated against hepatitis A and hepatitis B, also

> known

> as vaccine-preventable hepatitis (VPH), which are the only STDs that

> can

> be prevented through immunization. It is important to note that

> hepatitis C, which can also be sexually transmitted, cannot be

> prevented

> via vaccination. The survey was conducted to assess the sexual

> attitudes, behaviors and knowledge of STDs of Americans aged 18-35 as

> part of an educational initiative surrounding STD Awareness Month in

> April.

>

> In addition, the survey showed some contrary findings when it comes

> to

> what people think they know about STDs. From a list of common

> conditions including heart disease, diabetes and depression,

> Americans

> said they felt the most knowledgeable about STDs. Interestingly,

> they

> said they felt the least knowledgeable about viral hepatitis,

> suggesting

> that Americans dissociate viral hepatitis from STDs, with the two at

> opposite ends of the awareness scale. In fact, a large number

> failed to

> recognize that hepatitis A and hepatitis B can be sexually

> transmitted.

>

> " The findings in our survey are quite disturbing. Despite the fact

> that

> STDs are extremely widespread and have severe consequences, it is

> troubling that there is such a large portion of people who still feel

> invincible, " noted R. , M.D., M.P.H, president and chief

> executive officer of ASHA. " In addition, people's lack of awareness

> about the various STDs only underscores the need for continued

> education

> to prevent the spread of these serious diseases. "

>

> One in every four Americans will contract an STD sometime in their

> lifetime. In 2000 alone, there were more than 18.9 million new

> infections, which are a significant burden on the economy, costing an

> estimated $8 billion to diagnose and treat. And yet nearly 7 in 10

> (68

> percent) of people surveyed are not concerned about contracting an

> STD.

>

> Viral Hepatitis: The Least Known STD

>

> Regarding people's knowledge of specific STDs, viral hepatitis ranked

> the lowest (compared to HIV, herpes, gonorrhea, and chlamydia).

> Alarmingly, many people did not realize that hepatitis A and

> hepatitis B

> can be sexually transmitted (57 percent and 44 percent,

> respectively).

> In addition, about half did not know that hepatitis A (55%) and

> hepatitis B (42%) are vaccine- preventable. Nearly all (97 percent)

> people knew that HIV can be sexually transmitted. However,

> hepatitis B

> can be 100 times more contagious than HIV and is more common, with

> more

> than 1.25 million people living with hepatitis B in the United

> States.

> In fact, 1 out of every 20 people will acquire hepatitis B sometime

> in

> their life, although many will be unaware of it because the infection

> often doesn't cause any signs or symptoms.

>

> America Silent about STDs

>

> One of the most disturbing findings is that people are not

> communicating

> about STDs, thereby putting themselves unknowingly at risk for

> contracting and spreading diseases. In the recent survey, the vast

> majority (93 percent) believe their current or most recent partner

> didn't have an STD, yet about 1 out of 3 people have never discussed

> STDs with their partner. About half (53 percent) said their partner

> had

> been tested. Beyond reluctance to discuss STDs with their sex

> partners,

> respondents also appeared hesitant to seek information from their

> physicians. Despite the fact that nearly 70 percent of people rely

> on

> healthcare providers for health information, less than half of those

> surveyed have ever spoken to their providers about STDs.

> Interestingly,

> among those who are sexually active, the most common reason cited for

> not talking to their doctor was that they didn't feel they were at

> risk.

>

> " For years we have known that perceived stigma has been a barrier to

> discussion of STDs, and this latest survey shows that people simply

> don't believe they are at risk, " says Dr. R. . " This

> false

> sense of security is problematic, as it can lead to exposure to

> serious,

> incurable diseases. We encourage everyone to speak to their

> providers

> about ways to protect themselves from these infections, including

> available vaccines. "

>

> How to " Get the STDetails on Hepatitis "

>

> To provide the public with information about the sexual transmission

> of

> hepatitis A and hepatitis B, ASHA has developed an educational

> brochure.

> In addition, a one-page checklist for risk factors is available to

> help

> people assess whether or not they may be at risk for

> vaccine-preventable

> hepatitis. Since the survey showed that the Internet is the most

> common

> resource for health information, ASHA is making these materials

> available on their website, www.ASHASTD.org.

>

> Together, hepatitis A and hepatitis B cause more than 170,000

> infections

> and more than 5,000 deaths each year in the U.S. About one-quarter

> of

> hepatitis A cases can be attributed to household (sharing living

> quarters with an infected person) or sexual contact. In addition,

> certain populations may be at increased risk for contracting

> hepatitis

> A, such as men who have sex with men. The hepatitis A virus can be

> spread during oral-anal sex by the contaminated stool of someone who

> has

> the disease. Hepatitis B can be spread from person to person via

> direct

> or indirect contact with infected blood or body fluids such as semen

> and

> vaginal secretions. Over one half (54 percent) of hepatitis B

> infections are transmitted sexually.

>

> Symptoms of hepatitis may include fatigue, jaundice, nausea and

> vomiting

> and abdominal pain. Sometimes, however, no symptoms are present and

> it's difficult to ascertain whether someone has hepatitis A or

> hepatitis

> B. It is therefore important that people take steps to protect

> themselves. Vaccination is the most effective method of prevention of

> hepatitis A and hepatitis B. There are safe and effective vaccines

> that

> can provide long-term protection.

>

> About ASHA

>

> The American Social Health Association is a non-profit organization

> chartered in 1914 and dedicated to improving the health of people,

> families, and communities, with a focus on preventing sexually

> transmitted diseases and their harmful consequences.

>

> Survey Background

>

> This survey was conducted online by Interactive® within the

> United States between March 3 - 8, 2004 among a nationwide cross

> section

> of 1,155 adults (aged 18 to 35). Figures for age, sex, race,

> education

> and income were weighted where necessary to bring them into line with

> their actual proportions in the population. " Propensity score "

> weighting

> was also used to adjust for respondents' propensity to be online. In

> theory, with probability samples of this size, one could say with 95

> percent certainty that the results have a statistical precision of

> plus

> or minus three percentage points of what they would be if the entire

> adult population had been polled with complete accuracy.

> Unfortunately,

> there are several other possible sources of error in all polls or

> surveys that are probably more serious than theoretical calculations

> of

> sampling error. They include refusals to be interviewed

> (non-response),

> question wording and question order, and weighting. It is impossible

> to

> quantify the errors that may result from these factors. This online

> survey is not a probability sample.

>

> The survey was funded by GlaxoKline.

>

> * Sexual activity denotes vaginal, anal and oral intercourse (45

> percent,

>

> 66 percent, 91 percent, respectively of single people who do not use

>

> protection while engaging in these activities).

>

> SOURCE American Social Health Association

> Web site: http://www.ASHASTD.org

>

> March on Dc June 11, 2004

> http://hcvets.com/forum_public/hma/disc.htm

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>

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Guest guest

That was actually a very nice response cause I reread my post and I'm afraid the

tone was a little rude. I still think you are a little misguided. Hep C can be

sexually transmitted although as you pointed out, that's not how most people get

it, so yes, it is a STD, among other things. So they ( who ever they are) are

not going to retract their statement.

It is not necessarily a bad thing for Hep C to be classified as a STD. There is

probably more funding around for STD than for a disease that was in many cases

self inflicted by IV drug users.

I don't think it's a matter of my not standing up to those who might shun me

because I have Hep C. ( Would I really want them as friends anyway?) If I

thought anyone were treating me with unfair prejudice I would be the first to

stand up and fight. Prejudice is usually the result of ignorance.

I don't know what part of the world you live in but for now I live in Boston

where barely an eyebrow is raised at the mention of HIV or Hep C.

Peace,and consider yourself hugged

Joanie

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Guest guest

I am definitely NOT trying to make enemies here, and thank you,

Joanie, for submitting such a polite and honest post. I probably

may have appeared a bit " rude " myself ... and if so, " sorry " . I

just honestly feel that when it comes to Hep C, we should take into

consideration ALL feelings. When you want to talk technicalities,

then yes, Hep C may be classified as a STD. The main point I was

trying to make is that we are all in this together, and it would not

hurt us to take a little time to help " lobby " for issues that may

affect some of us, although not all of us. I am glad you live

somewhere where you are treated kindly. I live in Florida, where

our county health departments won't even recognize a need for

treatment. This is really a shame, as the head of epidimiology{sp?}

at the main health department put it, because Orange County alone

has a huge number of sufferers of Hep C. The only thing we can

count on is a free test for it IF we meet the qualifications. As

far as the stigma goes, well, we're talking about a city that is

over-run with prostitutes, drug dealers, gangs, etc., so when you

mention Hep C, you are automatically assumed to be amongst these

groups. I have had family doctors who " all of a sudden, after 22

years " decided to be " curt " . If a professional can treat me this

way, imagne the general public response!

Again, I am running on. I understand your issue ... we do get more

funding for STD's than other things. But, perhaps if we started

stepping on the right toes, we could reverse that. And one way to

start would be by asking the " powers that be " to start seeing us in

the true light. And we have to also not respond curtly to others

who feel that they are being " shunned " , because then we are ignoring

THEIR feelings.

>

> That was actually a very nice response cause I reread my post and

I'm afraid the tone was a little rude. I still think you are a

little misguided. Hep C can be sexually transmitted although as you

pointed out, that's not how most people get it, so yes, it is a STD,

among other things. So they ( who ever they are) are not going to

retract their statement.

>

> It is not necessarily a bad thing for Hep C to be classified as a

STD. There is probably more funding around for STD than for a

disease that was in many cases self inflicted by IV drug users.

>

> I don't think it's a matter of my not standing up to those who

might shun me because I have Hep C. ( Would I really want them as

friends anyway?) If I thought anyone were treating me with unfair

prejudice I would be the first to stand up and fight. Prejudice is

usually the result of ignorance.

>

> I don't know what part of the world you live in but for now I live

in Boston where barely an eyebrow is raised at the mention of HIV or

Hep C.

>

> Peace,and consider yourself hugged

>

> Joanie

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Joanie, I've been following these posts with interest because I'm still trying

to sort out how I feel about Hep C being classified an STD. And I wish none of

these diseases were accompanied by finger pointing at different behaviors

anyway. PLEASE know that I am not talking about you, I am talking about

experiences I have had. I'm glad there is such a liberal attitude in Boston,

because there is still a lot of ignorance here in the Chicago Metro area. Maybe

it will spread.

I would have probably never known I have Hep C if my doctor didn't suggest

testing for it as part of the bloodwork of a routine physical. And I'll tell

you, had I known that when my test came back positive, that she would have to

turn me over to the County Health Department as a known carrier of an STD, I

would have *never* allowed her to run the test!

I could have gone through the floor when I got the call from the health

department. Here in IL, it is illegal not to answer their questions, but I

suppose it really wouldn't have mattered, because they still had all my

pertinent information. It pissed me off no end when the woman kept saying " are

you *sure* you never injected illegal drugs? Are you *sure* you haven't had

multiple sexual partners? " She even asked me questions about specific sexual

practices! And this is all written down as a permanent record that who knows

who has access to. I can't remember the last time I was so offended! I can't

say I'm any expert, but I thought I'd read that something like 3% of people

contracting Hep C can directly link it back to sexual contact. I can't justify

it in my mind that we should be lumped in with other more deadly diseases.

And I've had the experience that had, I confided to a friend (now

ex-friend), only to walk into a room full of whispers. I've gotten snide

remarks, like, " Well, you must have been quite the party girl in your younger

days! " One day, somebody's gonna get punched by this old lady!

There are a lot of self-righteous whackos in this world who think they have the

right to pass judgement. Remember all those poor little boys with AIDS who got

it from the blood products they needed because they were hemophiliac? Adults

were calling them " fag " and " queer " , and those poor little boys in Florida even

had their home burned down!

Please forgive me for rambling on, I'm thinking with my typing fingers. There

are so many people who have Hep C that haven't a clue how they got it. We're

guessing I got it from a blood transfusion 45 years ago, but it might have come

from an ear piercing in 1976. It might not have been either of those. I just

wish we lived in a kinder world where the cause of something didn't matter.

Even if someone injected drugs, there's no proof that the Hep C came from that,

because the disease doesn't show up until so many years later.

It just breaks my heart whenever a new person joins this list and starts by

sharing the guilt they feel that they did drugs when they were younger. They

somehow think they " deserve " this as a punishment. None of us does, and none of

us can say we always made good choices for our lives. Some of us were just

luckier than others.

Causes shouldn't matter so much in what is such a silent epidemic in our country

- treatment and cure should be first and foremost. I just wish the media talked

more about it, and wish they would present the facts accurately. But I'll tell

you what, I wouldn't care what people pointed fingers at, if it gets the funding

for the research that heals us all.

Thanks, Joanie and , for bringing up an interesting discussion, you've

given me a lot to think about. And now I *really* want to know who this ASHA

is.

Hugs,

Marilyn

Re: Fw: American Social Health

Association declares Hepatitis C an STD

That was actually a very nice response cause I reread my post and I'm afraid

the tone was a little rude. I still think you are a little misguided. Hep C can

be sexually transmitted although as you pointed out, that's not how most people

get it, so yes, it is a STD, among other things. So they ( who ever they are)

are not going to retract their statement.

It is not necessarily a bad thing for Hep C to be classified as a STD. There

is probably more funding around for STD than for a disease that was in many

cases self inflicted by IV drug users.

I don't think it's a matter of my not standing up to those who might shun me

because I have Hep C. ( Would I really want them as friends anyway?) If I

thought anyone were treating me with unfair prejudice I would be the first to

stand up and fight. Prejudice is usually the result of ignorance.

I don't know what part of the world you live in but for now I live in Boston

where barely an eyebrow is raised at the mention of HIV or Hep C.

Peace,and consider yourself hugged

Joanie

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Sonny, you have hit upon another thing I have thought of. I was married 10

years the first time and will be married 25 years in June in my current

marriage. Neither spouse has contracted Hep C. But the thing that freaked me

out two years ago when I was diagnosed is that I could have passed it on in

utero to my children, and possibly then to my five grandchildren. That would

have killed me. None of them do, and my children shared my blood!

I went on that ASHA website today and followed their links to the CDC studies.

The CDC is claiming that 15% of people who have Hep C got it as an STD, what

crap! After reading Randy Shilts' book, And the Band Played On many years ago,

I have no faith in the CDC.

I think the multiple partners thing is that woman who have them have a higher

chance of getting chlamidia, which makes them a lot more suceptible to other

things.

If this is a blood sharing thing, people can get it by just sharing razors.

I've heard the virus can live outside the body for up to 3 months. I don't know

what to believe anymore.

Marilyn

Re: Fw: American Social Health

Association declares Hepatitis C an STD

Of all the people I have known with hep C, I've never met anyone whose spouse

had it.

One study done in Japan shown something like 99% (can't remember the numbers

off the top of my head but it was no lower than 97.3%) of spouses that did not

have hep C.

I'm sure some spouses/partners may share some other risky patterns and can

both contact it.

Therefore, I will never believe that it is a STD.

The whole multiple partners thing is vague.

There is a stigma among the uninformed about the disease....more

misinformation does not help.

I'm not a big fan of people feeling obligated to explain why they have this

virus.

It does not matter when you are sick.

When I was first diagnosed, I was sure it was from sex. After all, in college,

in the early 70's... but after some research..I dropped that idea.

I sometimes wonder about the sterility of where I used give blood....the

various hackbone dentists I've been to....if a hep c virus is 100 times smaller

than an AIDS virus and have you ever seen shiny stainless steel sufrfaces

magnified 100 times?...1,000 times?...its not smooth at all....they used to

sterilize that stuff themselves.....hmmmm....that are a lot more stringent

nowadays.....hmmmmm

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My husband ( same husband, same partner, forty years) and I both have Hep

C. Different genotypes. I have the type with the low cure rate. Go

figure.

My husband says that, yes, we are more liberal in the East. If you are

having a problem with people responding negatively to you " Don't tell

them> " It's none of their business anyway. However, I think it is not a

reaction to you personally. They are ignorant and they are afraid. It

could just as easily been them but for the fickle finger of fate. THAt is

what terrifies them and promps the poor behavior. It's easier to handle

things at different stages of our lives. When I was thirty, it probably

would have bothered me. Now that I'm sixty, it just doesn't matter

anymore what people whisper about me. So just hold your head up high and

carry on with dignity and class, something the " whisperers " obviously

don't have. And I WAS a party girl but never did anything that would

expose me to Hep C ( needles, multiple sex partners). Remember that line

from Auntie Mame " Life is a banquet and most poor suckers are starving " ?

And Auntie Mame never got Hep C!!!!

Sorry, this post is too long. The point was to point out that both my

husband and I have the virus but different genotypes. Sometimes I wonder

how accurate their genotyping is!!! I had both my kids tested ( in their

thirties) and thank god they were negative. THAT would have made me

suicidal!!!!

Joanie

http://komondor1.tripod.com

" When the Griffon barks, the Komondor investigates "

an old Belgium proverb

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, I'm with you! I don't think medical science knows all the facts, and

until then, I will be as careful as I can. I hope I'm not quoting incorrectly,

but I think it was LeighAnn, who used to be moderator of this list, said Hep C

can live outside the body for as long as 3 months. If I'm wrong to attribute

this to her, I'm sorry. I do all the things you do, and have bought extra nail

clippers and emory boards for my family's use, that I don't use. One other

thing I have done is to buy a big box of latex gloves. I wear them when I cook,

just in case I have a nick or scratch on my fingers (which is quite often). I

keep a couple of pairs of them in my purse, and keep the box under my kitchen

sink. Everyone in my family and my close friends knows that even in the event

that I am bleeding to death, they are not to touch me until they go to the sink

or in my purse and put the gloves on first.

I probably sound so paranoid, but studies I trust tell me I will probably never

die from this virus since I got it at such a young age and have no damage from

it yet. I just don't want to put anyone at risk who may not be as fortunate as

I have been. It would kill me to know I gave this to someone I loved!

What I found out about the ASHA site is that they have been around since 1914,

and they are all about STDs. I think they may have to join the 21st century!

Just because they have been around for 90 years doesn't make it right for them

to classify Hep C as an STD. There are so many other ways it gets passed on,

and I'm so glad we are checking the blood supply for it and informing drug users

about it. It's a major step in prevention. But I feel it is people like you

and I who will be on the front line to finally eradicate this virus. It's like

we are the mopping up crew!

Marilyn

Re: Fw: American Social Health

Association declares Hepatitis C an STD

Thats what makes this thing so hard!!! I honestly do not believe that they

know EVERYTHING there is to know about this. Luckily, my husband and children

all have tested negative. BUT, I will continue to have them get tested every

year just for my own peace of mind. Razors? I make sure mine are placed in a

" MOM " labeled cup in the bathroom ... and each razor individually has my name on

it. My toothbrush sits in the same cup. {I know -- YUCKERS! But, the

toothbrush is much " taller " than the razors, so the bristles never contact!} I

had purchased a huge " tool box " for all my hair stuff, and then decided I would

also place my earrings, emery boards, nail polish, makeup, and personal nail

clippers in there .. and everyone knows NOT TO TOUCH MY STUFF! I figure, better

safe than sorry! The way I look at it, sometimes I cut to the " quip " when I do

my nails, so nobody should use my fingernail stuff - - not even the polish

because the brush or the polish itself main contain traces.

I know I have gotten blood on my emery boards at times, so that's why they are

in there. Everytime I come upon something that may have contact, I throw it in

there for keeps.

I hate to have to be so paranoid about it all ... but safety first! My

husband likes to point out that for 20+ years we have shared razors. My

daughter and I exchanged earrings for years. We all used the nail clippers and

emery boards. Well, what I have to say about that is that we were all just very

lucky! Until someone can tell me different, HEP C is a blood borne illness, and

I will treat it as such. As I said before, I think there is a lot we do not

know yet . . . just because of the facts of past experiences with shared razors

and and such without family members getting sick. But, they say the virus does

live for a while out in the air, so we ahould all be careful.

It has been pointed out that Hep C research funding gets alot by being

classified as an STD. And that may be rightly so. But just because it does,

doesn't make it fair. I still think that places like the ASHA should be made

aware that they are wrong in their assumptions, A yeast infection can be passed

on sexually ... that does not make it a STD. Heck, my nieces get it from too

much antibiotics! We are years away from proper classifications for all types

of diseases. But, we do not have to be silent! No, it may not change

professional opinions, and they certainly are not going to " retract " statements,

but at least it gets the word out. When AIDS first became a household word,

there were alot of misconceptions. Silence did not change those misconceptions.

People standing up and screaming did!

Marilyn Wilkinson <MarilynWilkinson@...> wrote:

Sonny, you have hit upon another thing I have thought of. I was married 10

years the first time and will be married 25 years in June in my current

marriage. Neither spouse has contracted Hep C. But the thing that freaked me

out two years ago when I was diagnosed is that I could have passed it on in

utero to my children, and possibly then to my five grandchildren. That would

have killed me. None of them do, and my children shared my blood!

I went on that ASHA website today and followed their links to the CDC studies.

The CDC is claiming that 15% of people who have Hep C got it as an STD, what

crap! After reading Randy Shilts' book, And the Band Played On many years ago,

I have no faith in the CDC.

I think the multiple partners thing is that woman who have them have a higher

chance of getting chlamidia, which makes them a lot more suceptible to other

things.

If this is a blood sharing thing, people can get it by just sharing razors.

I've heard the virus can live outside the body for up to 3 months. I don't know

what to believe anymore.

Marilyn

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Hee, hee, I love the way you think! When you first posted about this subject, I

thought you were some thirty year old young whippersnapper, and here you are,

four years older than me, LOL!

I do agree with you all the way, but it's different if your husband is

politically involved in the community (at least in the Midwest). I don't give a

rat's rear end what people think of me, but I don't want to take away what he

stands for. I am soooooo glad I have this commuity to come to, Joanie, you are

so important to me!

You know I believe in the fickle finger of fate! This could happen to anyone,

and most are scared to get tested. They would rather point fingers than accept

responsibility. I *wish* I could have been the party girl I was accused of

being! I would have had a lot more fun, hee, hee!

We are where we are, and I have to say, I couldn't feel more comfortable in a

community of friends as I am here.

And as an aside, I love your doggie quote at the end of your e-mail. Do you

have a Komondor? I have another rare breed, a Flat Coated Retriever.

Marilyn

Re: Fw: American Social Health

Association declares Hepatitis C an STD

My husband ( same husband, same partner, forty years) and I both have Hep

C. Different genotypes. I have the type with the low cure rate. Go

figure.

My husband says that, yes, we are more liberal in the East. If you are

having a problem with people responding negatively to you " Don't tell

them> " It's none of their business anyway. However, I think it is not a

reaction to you personally. They are ignorant and they are afraid. It

could just as easily been them but for the fickle finger of fate. THAt is

what terrifies them and promps the poor behavior. It's easier to handle

things at different stages of our lives. When I was thirty, it probably

would have bothered me. Now that I'm sixty, it just doesn't matter

anymore what people whisper about me. So just hold your head up high and

carry on with dignity and class, something the " whisperers " obviously

don't have. And I WAS a party girl but never did anything that would

expose me to Hep C ( needles, multiple sex partners). Remember that line

from Auntie Mame " Life is a banquet and most poor suckers are starving " ?

And Auntie Mame never got Hep C!!!!

Sorry, this post is too long. The point was to point out that both my

husband and I have the virus but different genotypes. Sometimes I wonder

how accurate their genotyping is!!! I had both my kids tested ( in their

thirties) and thank god they were negative. THAT would have made me

suicidal!!!!

Joanie

http://komondor1.tripod.com

" When the Griffon barks, the Komondor investigates "

an old Belgium proverb

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>

> Perhaps standing up for yourself may be a " non-issue " for you, but

to me, it is of extreme importance.

Bravo , theres plenty of people lobbing for more

funding....somebodies gotta take care of the other stuff too.......

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