Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Is it common for people who are recently diagnosed with CMT to run low grade fevers??? Thanks, Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 -----Original Message----- From: Vickie Queen <vickiequeen_92646@...> < > Date: Tuesday, April 24, 2001 10:29 PM Subject: [] Low Grade Fevers Is it common for people who are recently diagnosed with CMT to run low grade fevers??? Thanks, Vickie >>>>>>>>My son has them for no apparent reason. No colds, flu, virus. He just starts to feel bad and has a fever of anywhere from 99.8-101 point whatever! He has them too often. ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 In a message dated 4/25/2001 8:29:37 AM Pacific Daylight Time, khampton@... writes: > . has been running the low fevers on and off since last > week. > My son Adam ran fevers when his CMT was first getting noticeable. He is 9 was 4 when he ran the fevers. jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 In a message dated 4/25/2001 10:04:17 AM Pacific Daylight Time, khampton@... writes: > Thank you for your fast reply!!! Another ?........did your son have > lower back pain at all? > During that time he seemed to just feel bad all over. I remember him crying at night tell us that he was not feeling good. I wonder if your daughters back pain is from a change of gait? jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 In a message dated 4/25/2001 10:15:01 AM Pacific Daylight Time, khampton@... writes: > what is change of gait? > karen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 In a message dated 4/25/2001 10:15:01 AM Pacific Daylight Time, khampton@... writes: > what is change of gait? > karen > A change in the way she walks.. When my back hurts I see a chriopractor.. Have you tried that yet? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Becky: Hi. Vickie Queen e-mailed you reguarding low-grade fevers. It is my 16 yr old daughter, , who was diagnosed with CMT on 4-4-01. We are still waiting for the blood test to come back.(said it would take 3 to 4 weeks to get results. has been running the low fevers on and off since last week. She also has problems with her lower back hurting all the time. Has your son experienced that problem? We are just starting with all this and of course as a parent I tend to panic at any little thing. How old is your son and how long has he been diagnosed with CMT? Hampton -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Tuesday, April 24, 2001 9:02 PM Subject: Re: [] Low Grade Fevers -----Original Message----- From: Vickie Queen <vickiequeen_92646@...> < > Date: Tuesday, April 24, 2001 10:29 PM Subject: [] Low Grade Fevers Is it common for people who are recently diagnosed with CMT to run low grade fevers??? Thanks, Vickie >>>>>>>>My son has them for no apparent reason. No colds, flu, virus. He just starts to feel bad and has a fever of anywhere from 99.8-101 point whatever! He has them too often. ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Thank you for your fast reply!!! Another ?........did your son have lower back pain at all? -----Original Message----- From: Mommy2Adam@... [mailto:Mommy2Adam@...] Sent: Wednesday, April 25, 2001 9:42 AM Subject: Re: [] Low Grade Fevers In a message dated 4/25/2001 8:29:37 AM Pacific Daylight Time, khampton@... writes: > . has been running the low fevers on and off since last > week. > My son Adam ran fevers when his CMT was first getting noticeable. He is 9 was 4 when he ran the fevers. jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 what is change of gait? karen -----Original Message----- From: Mommy2Adam@... [mailto:Mommy2Adam@...] Sent: Wednesday, April 25, 2001 10:07 AM Subject: Re: [] Low Grade Fevers In a message dated 4/25/2001 10:04:17 AM Pacific Daylight Time, khampton@... writes: > Thank you for your fast reply!!! Another ?........did your son have > lower back pain at all? > During that time he seemed to just feel bad all over. I remember him crying at night tell us that he was not feeling good. I wonder if your daughters back pain is from a change of gait? jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 -----Original Message----- From: Mommy2Adam@... [mailto:Mommy2Adam@...] Sent: Wednesday, April 25, 2001 10:16 AM Subject: Re: [] Low Grade Fevers In a message dated 4/25/2001 10:15:01 AM Pacific Daylight Time, khampton@... writes: > what is change of gait? > karen > A change in the way she walks.. When my back hurts I see a chriopractor.. Have you tried that yet? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 I haven't taken to the Chiro yet, but I will be very soon. Thank you for your input...... is l6 and was just diagnoised a few weeks ago. This is all still very new and confusing. It really helps me to be able to talk to someone out there that has been dealing with this. As a mother it's heart breaking as I'm sure you know. -----Original Message----- From: Hampton, [mailto:khampton@...] Sent: Wednesday, April 25, 2001 10:25 AM ' ' Subject: RE: [] Low Grade Fevers -----Original Message----- From: Mommy2Adam@... [mailto:Mommy2Adam@...] Sent: Wednesday, April 25, 2001 10:16 AM Subject: Re: [] Low Grade Fevers In a message dated 4/25/2001 10:15:01 AM Pacific Daylight Time, khampton@... writes: > what is change of gait? > karen > A change in the way she walks.. When my back hurts I see a chriopractor.. Have you tried that yet? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 In a message dated 4/25/2001 10:37:52 AM Pacific Daylight Time, khampton@... writes: > . As a mother it's heart breaking as I'm sure you know. > > > Oh I kn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 -----Original Message----- From: Hampton, <khampton@...> ' ' < > Date: Wednesday, April 25, 2001 10:12 AM Subject: RE: [] Low Grade Fevers Becky: Hi. Vickie Queen e-mailed you reguarding low-grade fevers. It is my 16 yr old daughter, , who was diagnosed with CMT on 4-4-01. We are still waiting for the blood test to come back.(said it would take 3 to 4 weeks to get results. has been running the low fevers on and off since last week. She also has problems with her lower back hurting all the time. Has your son experienced that problem? We are just starting with all this and of course as a parent I tend to panic at any little thing. How old is your son and how long has he been diagnosed with CMT? Hampton >>>>>>>>>Hi , my son is 11. His back hurts him off and on. Just last nite, he and his sister were watching 102 dalmations in his room and his little sister came running in the frontroom to tell me he wanted me fast. I went in and he was on his back on the bed and had a spasm/cramp in his lower back and could not move or roll him self over, he was crying with pain. I massaged his back and gently turned him on his back. He then relaxed. He has never had cramps that bad before in his back. He was diagnosed over a year ago. He gets cramps in his legs and feet and hands, hands when he is doing a lot of school work, or drawing. His heels are starting to turn in and I think its time for AFO. (braces) As parents we all panic at the unknown. I hate to see him going through this, but all I can do is get him the best medical care possible and support him and help him when needed. He has type 2 CMT. I have it too. I tell him all the time he may never have it progress any farther then it is now and thats what I pray for. Its a scary time for your daughter and you too. READ, READ READ!!! Everything you can find on CMT. Go to the archives and read posts and please go to the links/bookmark section at and check out the CMT info there. Knowledge is power against the unknown, ~>Becky M. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Tuesday, April 24, 2001 9:02 PM Subject: Re: [] Low Grade Fevers -----Original Message----- From: Vickie Queen <vickiequeen_92646@...> < > Date: Tuesday, April 24, 2001 10:29 PM Subject: [] Low Grade Fevers Is it common for people who are recently diagnosed with CMT to run low grade fevers??? Thanks, Vickie >>>>>>>>My son has them for no apparent reason. No colds, flu, virus. He just starts to feel bad and has a fever of anywhere from 99.8-101 point whatever! He has them too often. ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 Hi Cat: Wow, thank you for the info. This is all so new to my daughter and I. Hope we will keep in touch -----Original Message----- From: cat926@... [mailto:cat926@...] Sent: Wednesday, April 25, 2001 7:53 PM Subject: [] Low Grade Fevers I have had low grade fevers and low back pain....But also have been having the bladder and kidney trouble also for the past couple of years....I was sick the summer before last for a almost 6 months....The Doc sent me in for a (pylogram) I believe that was what it was called....took xrays of my stomache shot dye in my arm...He thought possiby the muscle wasn't doing its job getting all the urine out and it was backing up causing bactera to build up and that was causing blood in my urine and the low backpain and mild fever.....all turned out ok they said but I still do have some minor pain and slight fever at times. My Grandson has had this also and he is 8 also has type 1 CMT as do I. Quote Link to comment Share on other sites More sharing options...
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