Guest guest Posted April 22, 2000 Report Share Posted April 22, 2000 Hi Steve, >I agree with every thing you said -- what I meant by dead end is there is not alot you can do about it. I am on the mito list serve & it is very interesting. I have taken CQ10 and no matter how much I >take it made no difference.For all I know mito could be the most significant part of CFS. But until they figure out how to cure it what can one do. Ones treatment depends on which complex one has, and doc and pt sometimes have to play with doses. This is not curable as diabetes isn't, but one can treat the symtoms to ward off further damage. ------------------------------------ On thing though is since hormones play such a >significant role is muscle strength why not load up on testosterone & other hormones (testosterone is a lot cheaper that human growth hormone & yest I keep track of my PSA). I am not say these are a cure >but they sure improve ones quality of life. I wonder if docs would give this to a female ;-) ----------------------------------- I do light weight lifting when ever I can -- bench press my lap top. I do a few light exercises through out the day so I never over load my muscles. My main >recreation when I am feeling well is fishing. I fish with lures so I am constantly casting. I do get a little pain in the back but not to much. Maybe I will try CQ10 again, by the way DHEA did nothing for >me. Testosterone rules! >Steve I used to lift weights and now the joints don't allow it. I thought of trying my son's creatine, but it can be dangerous. Also done DHEA myself for autoimmune stuff and CO=Q 10. I don't stay on them due to the expense, and worry about this if I have Mito. But I was feeling better on all the supplements. Testonsterone does sound promising and I don't argue with success! Take care, Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2000 Report Share Posted April 22, 2000 Women can get on testosterone but it is very different doses than men. But if I was a woman & had severe muscle weakness going with higher doses and dealing with a little facial hair might be so bad. Steve " C.Tab. " wrote: > Hi Steve, > > >I agree with every thing you said -- what I meant by dead end is there is > not alot you can do about it. I am on the mito list serve & it is very > interesting. I have taken CQ10 and no matter how much I > >take it made no difference.For all I know mito could be the most > significant part of CFS. But until they figure out how to cure it what can > one do. > > Ones treatment depends on which complex one has, and doc and pt sometimes > have to play with doses. This is not curable as diabetes isn't, but one can > treat the symtoms to ward off further damage. > ------------------------------------ > > On thing though is since hormones play such a > >significant role is muscle strength why not load up on testosterone & other > hormones (testosterone is a lot cheaper that human growth hormone & yest I > keep track of my PSA). I am not say these are a cure > >but they sure improve ones quality of life. > > I wonder if docs would give this to a female ;-) > ----------------------------------- > > I do light weight lifting when ever I can -- bench press my lap top. I do a > few light exercises through out the day so I never over load my muscles. My main > >recreation when I am feeling well is fishing. I fish with lures so I am > constantly casting. I do get a little pain in the back but not to much. > Maybe I will try CQ10 again, by the way DHEA did nothing for > >me. Testosterone rules! > >Steve > > I used to lift weights and now the joints don't allow it. I thought of > trying my son's creatine, but it can be dangerous. > Also done DHEA myself for autoimmune stuff and CO=Q 10. I don't stay on > them due to the expense, and worry about this if I have Mito. But I was > feeling better on all the supplements. Testonsterone does sound promising > and I don't argue with success! > > Take care, > Christie > > ------------------------------------------------------------------------ > Your high school sweetheart-where is he now? With 4.4 million alumni > already registered at Classmates.com, there's a good chance you'll > find her here. Visit your online high school class reunion at: > 1/3139/2/_/531724/_/956449096/ > ------------------------------------------------------------------------ > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2000 Report Share Posted April 23, 2000 Hi, I wish somebody could explain this. I understand the mitochondria problem and that CoQ10 and L-carnitin and ATP can help mito functioning and thus help muscles to work better. But I thought testosteron can only build up muscles - you have more muscle mass. I thought mito problem doesn't mean to have really weak muscles - the muscles miss energy due to bad mito functioning. Can testosteron affect mitochondrial function? Thanks in advance Stania -----Pùvodní zpráva----- Od: Steve <moores@...> Komu: egroups <egroups> Datum: 23. dubna 2000 0:06 Pøedmìt: Re: Digest Number 863 > > >I agree with every thing you said -- what I meant by dead end is there is not alot you can do about it. I am on the mito list serve & it is very interesting. I have taken CQ10 and no matter how much I >take it made no difference. For all I know mito could be the most significant part of CFS. But until they figure out how to cure it what can one do. On thing though is since hormones play such a >significant role is muscle strength why not load up on testosterone & other hormones (testosterone is a lot cheaper that human growth hormone & yest I keep track of my PSA). I am not say these are a cure >but they sure improve ones quality of life. I do light weight lifting when ever I can -- bench press my lap top. I do a few light exercises through out the day so I never over load my muscles. My main >recreation when I am feeling well is fishing. I fish with lures so I am constantly casting. I do get a little pain in the back but not to much. Maybe I will try CQ10 again, by the way DHEA did nothing for >me. Testosterone rules! >Steve > > >------------------------------------------------------------------------ >Your high school sweetheart-where is he now? With 4.4 million alumni >already registered at Classmates.com, there's a good chance you'll >find her here. Visit your online high school class reunion at: >1/3139/2/_/531724/_/956441165/ >------------------------------------------------------------------------ > >This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2000 Report Share Posted April 23, 2000 i do not know but that is a very good question. It is also a very complicated question because testosterone (like human growth hormone) raises the level of IGF-1. This helps repair muscle damage as well as increase muscle mass. But we need a real expert to explain this one. Hey Christie would your Cleveland Neuro take some time to explain this? Steve Stanislava Mužíková wrote: > Hi, I wish somebody could explain this. > I understand the mitochondria problem and that CoQ10 and L-carnitin and ATP > can help mito functioning and thus help muscles to work better. > But I thought testosteron can only build up muscles - you have more muscle > mass. I thought mito problem doesn't mean to have really weak muscles - the > muscles miss energy due to bad mito functioning. Can testosteron affect > mitochondrial function? > Thanks in advance > Stania > ---- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2000 Report Share Posted June 19, 2000 Donna, I'm on that yeast treatment program. I bought it at a local health food store and have used it mixed in water every morning for several months. I thought I'd gag the first few days of drinking it but the difference was felt almost immediately. It works beautifully. Don't forget to take acidolphous in the evening though. You have to replace the bacteria with the good stuff. Here it is sold as a Yeast Buster's kit. Worth every penny. ne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Hi Judy, I have been dutifully drinking green tea daily, along with using grapeseed oil in cooking, salad dsgs etc, and taking 1300 mg of EPO per day for the past 4 1/2 months. I tapered off the MTX at Christmas time, and overall, feeling better than I have for a long time. I especially notice the stiffness and gets worse if I forget the tea for a couple days. I recently found constant coment green tea which has a little orange and spice in it thats really good. in Wisconsin << Green Tea >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 In a message dated 1/30/2001 8:06:51 PM Pacific Standard Time, clonan@... writes: I recently found constant coment green tea which has a little orange and spice in it thats really good. in Wisconsin , Is constant coment a brand name of green tea? Joanne ( Ohio ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 Is there such a thing as green tea in pill form? I would love to try it but can't stand the taste (or even the smell.) in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 > Is there such a thing as green tea in pill form? I would love to try > it but can't stand the taste (or even the smell.) > > in Illinois Hey , I drink Salada decaffienated tea with citrus flavors and love it but for those who think its nasty, I believe there is a pill. Probably just ask at a good healthfood store. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 For itchy hands I use Baby Gold Bond lotion....seems to help quite well....I use the extra strength. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 I agree , the Gold Bond lotion is great as is the Gold Bond powder. Since I think I am Evil Knievel on my mountain bike I usually have a good case of road rash going on my legs and elbows. When the abrasions start to heal and scab up the itching is enough to drive you nuts. The Gold Bond products are great. They sooth poison oak as well. OK, Gold Bond, send me my commission check. Regards, BC ----- Original Message ----- From: <cat926@...> < > Sent: Tuesday, April 24, 2001 6:54 AM Subject: Re: [] Digest Number 863 > For itchy hands I use Baby Gold Bond lotion....seems to help quite > well....I use the extra strength. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Hummm.....Bill you better watch that mountain bike and road rash! Are you wearing a helmet? My son, who is 17 yrs. old just started working part-time at the Honda Four-Wheeler dealership. He is learning to " work " on four wheelers and motorcycles. He just started the job and now he just has to have a four wheeler! ----- Original Message ----- From: Bill , Digitec Security <BILL@...> < > Sent: Tuesday, April 24, 2001 10:27 AM Subject: Re: [] Digest Number 863 > I agree , the Gold Bond lotion is great as is the Gold Bond powder. > Since I think I am Evil Knievel on my mountain bike I usually have a good > case of road rash going on my legs and elbows. When the abrasions start to > heal and scab up the itching is enough to drive you nuts. The Gold Bond > products are great. They sooth poison oak as well. OK, Gold Bond, send me my > commission check. > Regards, > BC > ----- Original Message ----- > From: <cat926@...> > < > > Sent: Tuesday, April 24, 2001 6:54 AM > Subject: Re: [] Digest Number 863 > > > > For itchy hands I use Baby Gold Bond lotion....seems to help quite > > well....I use the extra strength. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 , I always wear a helmet even if I am pedaling 3 blocks to the market. What little brains I have need protection. Although many of our kids today think helmets are uncool, uncool is spending the rest of your life with a feeding tube in your mouth and no brain waves. I to have a passion for anything on two wheels, I have been riding motorcycles for 30 years.Four wheelers are great fun too! Being able to do your own " wrenching " is a big plus. Good for your son. Make sure he takes you for a ride and wear that helmet. regards, BC ----- Original Message ----- From: <lisarich.com@...> < > Sent: Tuesday, April 24, 2001 12:17 PM Subject: Re: [] Digest Number 863 > Hummm.....Bill you better watch that mountain bike and road rash! Are you > wearing a helmet? My son, who is 17 yrs. old just started working part-time > at the Honda Four-Wheeler dealership. He is learning to " work " on four > wheelers and motorcycles. He just started the job and now he just has to > have a four wheeler! > > > > ----- Original Message ----- > From: Bill , Digitec Security <BILL@...> > < > > Sent: Tuesday, April 24, 2001 10:27 AM > Subject: Re: [] Digest Number 863 > > > > I agree , the Gold Bond lotion is great as is the Gold Bond powder. > > Since I think I am Evil Knievel on my mountain bike I usually have a good > > case of road rash going on my legs and elbows. When the abrasions start > to > > heal and scab up the itching is enough to drive you nuts. The Gold Bond > > products are great. They sooth poison oak as well. OK, Gold Bond, send me > my > > commission check. > > Regards, > > BC > > ----- Original Message ----- > > From: <cat926@...> > > < > > > Sent: Tuesday, April 24, 2001 6:54 AM > > Subject: Re: [] Digest Number 863 > > > > > > > For itchy hands I use Baby Gold Bond lotion....seems to help quite > > > well....I use the extra strength. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 That MTV " documentary " was sent to me as well. I wrote back to Mr. Motta, and he basically declined to give further information, or to speak to my parents about any information he would use in his film. Just thought that was worth passing along, Dan Kennedy Wrote: > > Just passing this on. Caveat emptor. > > Dan Kennedy > Internet services coordinator > Little People of America, Inc. > http://www.lpaonline.org > > >X-eGroups-Return: Ron.Motta@... > >From: " Motta, Ron " <Ron.Motta@...> > > " 'dwarfism-owner ' " > <dwarfism-owner > > >Subject: MTV Documentary on Little People > >Date: Wed, 23 May 2001 14:58:47 -0400 > >X-eGroups-Moderators: dwarfism > > > >To whom it may concern, > > > >My name is Ron Motta and I'm currently working on a > documentary series > >called " True Life " here at MTV. We're currently > gearing up for next season > >and one of the ideas for an episode we had was > " True Life: I'm A Little > >Person. " Basically, we're looking to follow and > interview young (teens to > >twenties) little people around to get a sense of > their lives and their > >stories. I am writing to you because I would like > you to pass on the > >message at the end of this e-mail to the members of > your group. Right now, > >we're interviewing people and gathering stories and > trying to figure out > >what direction we're going to take from here. > > > >I just want to assure you that this isn't going to > be a sensational tabloid > >piece...we want to show our audience some of the > difficulties of growing up > >as a little person (teen-age years can be difficult > enough) and also show > >how little people lead perfectly normal lives, have > jobs, families, etc. > >It's going to be a very positive show. > > > >Thank you very much for your time and cooperation. > If you have any > >questions, please don't hesitate to contact me. > > > >Sincerely, > >Ron Motta > >Production Associate, " True Life " > >Office: (212)654-6617 > >E-Mail: ron.motta@... > > > > > >MTV DOCUMENTARY ON LITTLE PEOPLE > > > >MTV's award-winning documentary series, " True > Life, " is preparing an episode > >on young little people for next season. We are > currently seeking to > >interview young little people, ages 14-29, for our > episode. > > > >If you are interested in participating and if you > fit into the above age > >group, then call me, Ron Motta at (212)654-6617, or > you can e-mail me at > >ron.motta@.... I'd be happy to answer any > questions you may have. > > > >Thank you for your time and I look forward to > hearing from you! > > > >Sincerely, > >Ron Motta > >Production Association, MTV's True Life __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 I'm interested. Thanks, Jacque > household cleansers - I will post some really easy, inexpensive recipes if > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2001 Report Share Posted August 26, 2001 Hear , hear! (for ABA with older children) We're still doing it with my 16 year old--very successfully. And Marcia, you are so right about what you said about people who don't do it right, and then think the whole methodology doesn't work. This is true of people who supposedly try the dietary restrictions, but never truly remove the offensive foods (never stop " cheating " ) I also have a friend who is still doing a home program with her 21 year old--also a patient of Dr. G's as well---he is doing fantastic Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2001 Report Share Posted August 26, 2001 Thank you Marcia for your inspiring words about your son, . My son is also and is 4, and we are going to see Dr. Goldberg on October 4. I am so excited and encouraged by your words, I just wanted to thank you! Lavandowska (LAVJULIE@...). PS: If you have any tips for me about going out to see Dr. G, I would appreciate them! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 I am not sure how to go about replying or posting here to a particular message.. anyway we shall see.. just wanted to add that I was not genotyped at first either by my doc... he said later that he didnt start to back then .. later decided to when studies on the different types have shown different results for genotypes to different treatments ..so he does now.. anyway just wanted to add that.. Dawn patriciajean@... writes: " Usually, the genotype is done along with the pcr, at least it was with me, went to the same lab I think. I asked for genotype even tho I didn't know if I'd be doing treatment or not. But I needed to know just for myself. " When I was told they would do a PCR viral load test I just assumed it would include genotype since I thought they went hand in hand, and was surprised when Dr. told me yesterday they had not done genotype test--he said that's quite expensive. Maybe he thought the insurance co. would object. He said the Hep Dr. can decide whether or not to do further testing, depending on whether he decides I'm a candidate for treatment or not. I'm wondering, how can he (and hopefully I too) make that decision without knowing all the facts first? Guess each group of doctors handles these things a little differently. Thanks for your message! Torrie My message to you: Don't worry, be happy!! Love to hear from YOU! Dawn --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 I am not sure how to go about replying or posting here to a particular message.. anyway we shall see.. just wanted to add that I was not genotyped at first either by my doc... he said later that he didnt start to back then .. later decided to when studies on the different types have shown different results for genotypes to different treatments ..so he does now.. anyway just wanted to add that.. Dawn patriciajean@... writes: " Usually, the genotype is done along with the pcr, at least it was with me, went to the same lab I think. I asked for genotype even tho I didn't know if I'd be doing treatment or not. But I needed to know just for myself. " When I was told they would do a PCR viral load test I just assumed it would include genotype since I thought they went hand in hand, and was surprised when Dr. told me yesterday they had not done genotype test--he said that's quite expensive. Maybe he thought the insurance co. would object. He said the Hep Dr. can decide whether or not to do further testing, depending on whether he decides I'm a candidate for treatment or not. I'm wondering, how can he (and hopefully I too) make that decision without knowing all the facts first? Guess each group of doctors handles these things a little differently. Thanks for your message! Torrie My message to you: Don't worry, be happy!! Love to hear from YOU! Dawn --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 I am not sure how to go about replying or posting here to a particular message.. anyway we shall see.. just wanted to add that I was not genotyped at first either by my doc... he said later that he didnt start to back then .. later decided to when studies on the different types have shown different results for genotypes to different treatments ..so he does now.. anyway just wanted to add that.. Dawn patriciajean@... writes: " Usually, the genotype is done along with the pcr, at least it was with me, went to the same lab I think. I asked for genotype even tho I didn't know if I'd be doing treatment or not. But I needed to know just for myself. " When I was told they would do a PCR viral load test I just assumed it would include genotype since I thought they went hand in hand, and was surprised when Dr. told me yesterday they had not done genotype test--he said that's quite expensive. Maybe he thought the insurance co. would object. He said the Hep Dr. can decide whether or not to do further testing, depending on whether he decides I'm a candidate for treatment or not. I'm wondering, how can he (and hopefully I too) make that decision without knowing all the facts first? Guess each group of doctors handles these things a little differently. Thanks for your message! Torrie My message to you: Don't worry, be happy!! Love to hear from YOU! Dawn --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 I am not sure how to go about replying or posting here to a particular message.. anyway we shall see.. just wanted to add that I was not genotyped at first either by my doc... he said later that he didnt start to back then .. later decided to when studies on the different types have shown different results for genotypes to different treatments ..so he does now.. anyway just wanted to add that.. Dawn patriciajean@... writes: " Usually, the genotype is done along with the pcr, at least it was with me, went to the same lab I think. I asked for genotype even tho I didn't know if I'd be doing treatment or not. But I needed to know just for myself. " When I was told they would do a PCR viral load test I just assumed it would include genotype since I thought they went hand in hand, and was surprised when Dr. told me yesterday they had not done genotype test--he said that's quite expensive. Maybe he thought the insurance co. would object. He said the Hep Dr. can decide whether or not to do further testing, depending on whether he decides I'm a candidate for treatment or not. I'm wondering, how can he (and hopefully I too) make that decision without knowing all the facts first? Guess each group of doctors handles these things a little differently. Thanks for your message! Torrie My message to you: Don't worry, be happy!! Love to hear from YOU! Dawn --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Hi everyone! THANK YOU for all the suggestions offered on my sore ear problem. In the last two days, I gave my ear a rest since I was off from work and staying around the house. It healed up some. I will dig through my bag for the other metal earhook part and give it a shot. I know I got that one but assumed it was for the earmoulds. I also followed 's suggestion that I bend it some more. It worked but I have not given it a full active day yet. It felt a little slippery but no soreness. I will keep you posted. PS I go thru airport security with my 3G on, and no problems with the screeners or the mappings. It does not even set off the alarm. IB/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Dear Caroline, I'd love to be able to just take spirulina or a green barley or similar product, but I am very underweight, and I can't imagine fasting or taking only green barley/spirulina will help me maintain my weight. AAAAAAAAAAAAARRRRRGGGGGHHHHHHH! Any thoughts? I'm very desperate (and scared) Love Emma P.S Does anyone get colon pain? Not like gas or cramps but like an actual irritation on the lining of the transverse colon??? It's really painful and also causes nausea. Re: Re: Metabolic typing Hello Bee, Well said. I fully agree with your findings. Dr. Mercola has some good information, and he has some incomplete information. With that said, I believe his heart is in the right place. As far as metabolic types, blood types, vata/pitta/kapha, etc., Dr. Weston Price is much more accurate. He researched the healthy and the not-so-healthy; including: Eskimos (very healthy), tribes (some healthy some not), Indians (some healthy some not), etc. from all over the world, and of all the healthy people, none of them ate according to body type. We all would benefit from the study of his work, and the reading of Nourishing Traditions by Sally Fallon. Long Live Bee! PS Bee, lately I've been drinking 1-2 Tbsp of whey with meals (homemade from fermented raw milk) and it seems to have some powerful healing properties. What are your thoughts? Quote Link to comment Share on other sites More sharing options...
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