Re: Things my new doctor told me

[Guest guest]

In a message dated 10/17/98 2:38:05 PM Eastern Daylight Time,

mlmccoy@... writes:

<< I would be curious to find out if your nausea stops once you stop the

doxy, I had severe nausea with my early Lyme, and was not on doxy at the

time. I never, ever heard of drinking tonic water...did he give you a

reason for this??? ?>>

All I can say is I stopped taking the doxy yesterday & have not been nauseous

since. As far as drinking tonic water, it has something to do with either the

erlichiosis or babeosis, one of which the treatment for is quinine, which is

in tonic water.

<My white blood cell count is high, which indicates an active infection. Is

this common with Lyme?

Marta wrote: Yes, very common. Do you have swollen glands and lymph nodes?

Nope, neither are swollen.

I wrote: He is starting me on IV Rocephin next week for a one week trial.

Marta wrote: I guess he means try for a week, and continue on if no bad

reaction??? I am so glad you finally got to a Lyme literate doc, doesn't it

make a world of difference, dealing with someone who believes you????>>

I believe the plan is to start me on the IV Rocephin for a week while we

waited for my IGENEX tests to come back and also to see what my reaction will

be.

I was very impressed with this doctor after one visit, but being a native New

Yorker am naturally VERY cynical! LOL, and so will reserve final judgement

until AFTER we get this latest blood work back and I see what he comes up with

for a treatment plan......

[Guest guest]

Hi ,

I am going to respond to each of your 5 points just below where you wrote

them.

>

>I was very lucky to get an appointment with a highly-regarded,

Lyme-literate

>MD in Tampa yesterday. I would appreciate all and any comments/suggestions

on

>the following:

>

>

>1. For the weight gain, he told me to go on the Atkins diet for 2 weeks

(no

>carbohydrates or sugar).

This is supposed to be an excellent diet for people with Lyme, if you

already have a cholesterol problem (like I do) two weeks would never hurt.

Talk to your doctor after your blood work comes back, if cholesterol is

good, maybe you could 'pulse' this diet, like 2 weeks on, one week off.

>

>2. Stop taking the oral doxy (which isn't doing anything, besides making

me

>REALLY nauseous) and to start drinking tonic water.

>(He sent blood to IGENEX to test for erlichiosis and babeosis.)

I would be curious to find out if your nausea stops once you stop the

doxy, I had severe nausea with my early Lyme, and was not on doxy at the

time. I never, ever heard of drinking tonic water...did he give you a

reason for this??? I am glad he is using IGENEX, it is supposed to be the

best.

>

>3. Since I have an IgM response (but no IgG) I was probably infected in

>Florida (we moved here from NYC in November 97), not 3-4 years ago in NY as

I

>had originally believed.

That would depend on how reliable the tests you had done before were. I

would wait till you get the IGENEX tests back before you are sure how old

your infection is.

>

>4. My white blood cell count is high, which indicates an active infection.

>Is this common with Lyme?

Yes, very common. Do you have swollen glands and lymph nodes?

>

>5. He is starting me on IV Rocephin next week for a one week trial.

I guess he means try for a week, and continue on if no bad reaction??? I

am so glad you finally got to a Lyme literate doc, doesn't it make a world

of difference, dealing with someone who believes you????

Marta