Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Dear Goddess, Everyone has their down days that is for sure. You are extremely young, you perhaps have barely any damgae to your liver. You have so much hope because of your age, so many possibilities, so many things to look forward to. I don't know what Genotype you have and I don't know your history at all, I've never seen it posted on the board since I joined this group. An ER doctor I would say isn't qualified to give you a "time frame" in any sense of the word. I don't know the reasons you failed treatrments, and I'm sure they'll try another one for you. Never feel sad or silly about questions, we all have them. Each one of us on here is different...the unique situations we find ourselves is the reason we come to this board. We get wonderful answers not just support. Never give up.... darker_goddess <darker_goddess@...> wrote: I have been feeling kinda down today. My doctor has not givin me any good news lately. Its all been bad.I feel like there is no hope for me left. The treatment didnt work for me, and he says its unlikely Ill be put on the transplant list. Not sure yet they still have some tests to run.Im scared. I know its silly and stupid, cause there is nothing I can do about it.Its just I am only 20, and Im not ready to go yet. The doctor in the ER told me its just a matter of time. That I dont have much time left. Im so scared, and im sorry if I am being a bother to anyone. I dont mean to lay my problems all on you guys. DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Hey hon, Some people love reading this stuff. Even the ones who claim to be christian and god-fearing will go hypocritical on you in a flash if it serves their purpose. They call it rescuing, but I call it cowardice. I say let's let it go once and for all. Pam's post was the most appropriate of all who were " supposed " to know how to handle such situations. It's a new day! What are your plans for the New Year? Johanna > > I wonder if everyone has followed all of these > messages including the wanting s & m sex advice. Wrong > support group. > Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 As ALWAYS,, you give good advice and Im so glad you are part of our forum.. its the support that we all give each other,, THAT is what helps! hugs jax Wolfgang <ifonlyouknew@...> wrote: Dear Goddess, Everyone has their down days that is for sure. You are extremely young, you perhaps have barely any damgae to your liver. You have so much hope because of your age, so many possibilities, so many things to look forward to. I don't know what Genotype you have and I don't know your history at all, I've never seen it posted on the board since I joined this group. An ER doctor I would say isn't qualified to give you a "time frame" in any sense of the word. I don't know the reasons you failed treatrments, and I'm sure they'll try another one for you. Never feel sad or silly about questions, we all have them. Each one of us on here is different...the unique situations we find ourselves is the reason we come to this board. We get wonderful answers not just support. Never give up.... darker_goddess <darker_goddess@...> wrote: I have been feeling kinda down today. My doctor has not givin me any good news lately. Its all been bad.I feel like there is no hope for me left. The treatment didnt work for me, and he says its unlikely Ill be put on the transplant list. Not sure yet they still have some tests to run.Im scared. I know its silly and stupid, cause there is nothing I can do about it.Its just I am only 20, and Im not ready to go yet. The doctor in the ER told me its just a matter of time. That I dont have much time left. Im so scared, and im sorry if I am being a bother to anyone. I dont mean to lay my problems all on you guys. DSL Something to write home about. Just $16.99/mo. or less Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Sounds like someone needs to go get a life.Johanna, i hope u will be available for me when i finish my treatments. and give me advice on some s & m LOL. Have a great day!! hepckitty <johanna@...> wrote: Hey hon,Some people love reading this stuff. Even the ones who claim to be christian and god-fearing will go hypocritical on you in a flash if it serves their purpose. They call it rescuing, but I call it cowardice.I say let's let it go once and for all. Pam's post was the most appropriate of all who were "supposed" to know how to handle such situations. It's a new day!What are your plans for the New Year?Johanna>> I wonder if everyone has followed all of these> messages including the wanting s & m sex advice. Wrong> support group.> Sharon Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 ROFL!!! Bad Girl! LOL You have a great New Year, Darlin’ Sending good thoughts your way.:hugs: Johanna From: [mailto: ] On Behalf Of Sent: Friday, December 30, 2005 3:53 PM Subject: Re: [ ] Re: Is there Hope?? Sounds like someone needs to go get a life.Johanna, i hope u will be available for me when i finish my treatments. and give me advice on some s & m LOL. Have a great day!! hepckitty <johanna@...> wrote: Hey hon, Some people love reading this stuff. Even the ones who claim to be christian and god-fearing will go hypocritical on you in a flash if it serves their purpose. They call it rescuing, but I call it cowardice. I say let's let it go once and for all. Pam's post was the most appropriate of all who were " supposed " to know how to handle such situations. It's a new day! What are your plans for the New Year? Johanna > > I wonder if everyone has followed all of these > messages including the wanting s & m sex advice. Wrong > support group. > Sharon Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 I think going through treatment is masochistic enough. lol SharonJohanna <johanna@...> wrote: ROFL!!! Bad Girl! LOL You have a great New Year, Darlin’ Sending good thoughts your way.:hugs: Johanna From: [mailto: ] On Behalf Of Sent: Friday, December 30, 2005 3:53 PM Subject: Re: [ ] Re: Is there Hope?? Sounds like someone needs to go get a life.Johanna, i hope u will be available for me when i finish my treatments. and give me advice on some s & m LOL. Have a great day!! hepckitty <johanna@...> wrote: Hey hon,Some people love reading this stuff. Even the ones who claim to be christian and god-fearing will go hypocritical on you in a flash if it serves their purpose. They call it rescuing, but I call it cowardice.I say let's let it go once and for all. Pam's post was the most appropriate of all who were "supposed" to know how to handle such situations. It's a new day!What are your plans for the New Year?Johanna>> I wonder if everyone has followed all of these> messages including the wanting s & m sex advice. Wrong> support group.> Sharon PhotosRing in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 HEP C LINE (888).436.HEPC (4372) - P.O. Box 35033 Kansas City, Missouri 64134 - OFFICE (816)763.4766 LOL! Yeah, really! What do think about this whole saliva- test issue? Any opinions? I just sent an email to Dr. Leevy to see what he’s got to say about it. Johanna “When we fail to recognize the lives of those around us, we invariably diminish ourselves.” – Ursula Copeland Johanna Koskinen Executive Director/Outreach Coordinator Email: johanna@... Website: http://www.hepcmo.org From: [mailto: ] On Behalf Of Sharon Zeis Sent: Friday, December 30, 2005 4:15 PM Subject: RE: [ ] Re: Is there Hope?? I think going through treatment is masochistic enough. lol Sharon Johanna <johanna@...> wrote: ROFL!!! Bad Girl! LOL You have a great New Year, Darlin’ Sending good thoughts your way.:hugs: Johanna From: [mailto: ] On Behalf Of Sent: Friday, December 30, 2005 3:53 PM Subject: Re: [ ] Re: Is there Hope?? Sounds like someone needs to go get a life.Johanna, i hope u will be available for me when i finish my treatments. and give me advice on some s & m LOL. Have a great day!! hepckitty <johanna@...> wrote: Hey hon, Some people love reading this stuff. Even the ones who claim to be christian and god-fearing will go hypocritical on you in a flash if it serves their purpose. They call it rescuing, but I call it cowardice. I say let's let it go once and for all. Pam's post was the most appropriate of all who were " supposed " to know how to handle such situations. It's a new day! What are your plans for the New Year? Johanna > > I wonder if everyone has followed all of these > messages including the wanting s & m sex advice. Wrong > support group. > Sharon Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 ::rolling eyes:: RTWFT > > > > > > > > I have been feeling kinda down today. My doctor > > > has not givin me any > > > > good news lately. Its all been bad. > > > > I feel like there is no hope for me left. The > > > treatment didnt work > > > for > > > > me, and he says its unlikely Ill be put on the > > > transplant list. Not > > > > sure yet they still have some tests to run. > > > > Im scared. I know its silly and stupid, cause > > > there is nothing I can > > > > do about it. > > > > Its just I am only 20, and Im not ready to go > > yet. > > > The doctor in the > > > > ER told me its just a matter of time. That I > > dont > > > have much time > > > left. > > > > Im so scared, and im sorry if I am being a > > bother > > > to anyone. I dont > > > > mean to lay my problems all on you guys. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________ > > for Good - Make a difference this year. > > http://brand./cybergivingweek2005/ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 mary, If ur daughter is so ill, why is she so concerned about sex. And trying to find out about orgasms. She does how however sound very sick, but only in the head. You should be ashamed of yourself letting her post that stuff.What kind of mother r you? I have six children and i am very fortunate they r healthy , but i guantee one damn thing if they were that dog gone sick i'd be getting them good treatment for her mental disorder. She is not even asking about the Hep C, It's all about sex. She needs to think about this boy and let him go. If she is truely that sick and is going to die why would she want to jeopardize his life as well. She is gonna be gone and she will leave him heartbroken.So mom get a grip. She needs to go away and stop playing these games. I am very sick as well with Hep C. and i just want to have civilized conversations with people that can relate to what i am going through.I don't have a mean bone in my body, but don't piss me off. Good luck!! hepckitty <johanna@...> wrote: ::rolling eyes:: RTWFT > > > >> > > > I have been feeling kinda down today. My doctor> > > has not givin me any > > > > good news lately. Its all been bad.> > > > I feel like there is no hope for me left. The> > > treatment didnt work > > > for > > > > me, and he says its unlikely Ill be put on the> > > transplant list. Not > > > > sure yet they still have some tests to run.> > > > Im scared. I know its silly and stupid, cause> > > there is nothing I can > > > > do about it.> > > > Its just I am only 20, and Im not ready to go> > yet.> > > The doctor in the > > > > ER told me its just a matter of time. That I> > dont> > > have much time > > > left. > > > > Im so scared, and im sorry if I am being a> > bother> > > to anyone. I dont > > > > mean to lay my problems all on you guys.> > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________ > > for Good - Make a difference this year. > > http://brand./cybergivingweek2005/> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 U say you r gonna make her go away ,but she's still hanging out here.Don't blame us for your problems. She brought them on herself. She sounds like a brat!! For the love of God as u put it .Get her real help, we can't help her .How dare u come in here and blame us. I think u need to get help as well. Anya/SpringGoddess <anya@...> wrote: I have one thing to say, the reply here is horrible and not empathic or considerate. I can't believe that someone who lives with this terrible illness and others aren't empathic to others. Please look at yourself before you tramp on others footprints. Re: [ ] Re: Is there> Hope??> > this is stephanie's mother, stephanie is twenty> years> old, trapped at home, and lonely, she's very very> sick> and just wanted a friend, so if it's too much for> you> too handle, then just don't talk to her.she's also> very depressed and you all made her happy for a> while,> you should also be ashamed. she is getting help, all> she wanted from you was friendship. it wasn't easy> for> her to find out she has no hope left, you people are> incredible. just please, leave her alone, i won't> let> her bother you anymore. thank you, mary> > --- hepckitty <johanna@...> wrote:> > > You really should stop this. There are people here> > who really need > > help and advice, and what you're doing is taking> > away from that. If > > you're really 20 years old, having sexual issues,> > boyfriend issues, > > and now this, you don't need to be here. You need> to> > be in therapy. > > > > Stop vying for attention from people who really> need> > it.> > > > > > > > > > > > >> > > I have been feeling kinda down today. My doctor> > has not givin me any > > > good news lately. Its all been bad.> > > I feel like there is no hope for me left. The> > treatment didnt work > > for > > > me, and he says its unlikely Ill be put on the> > transplant list. Not > > > sure yet they still have some tests to run.> > > Im scared. I know its silly and stupid, cause> > there is nothing I can > > > do about it.> > > Its just I am only 20, and Im not ready to go> yet.> > The doctor in the > > > ER told me its just a matter of time. That I> dont> > have much time > > left. > > > Im so scared, and im sorry if I am being a> bother> > to anyone. I dont > > > mean to lay my problems all on you guys.> > >> > > > > > > > > > > > > > > > __________________________________ > for Good - Make a difference this year. > http://brand./cybergivingweek2005/> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Hey , how you doing today? 2005 went out with bang (we had fireworks in our neighborhood). Fortunately, it quieted down after 1am. Johanna From: [mailto: ] On Behalf Of Sent: Sunday, January 01, 2006 10:31 AM Subject: Re: [ ] Re: Is there Hope?? U say you r gonna make her go away ,but she's still hanging out here.Don't blame us for your problems. She brought them on herself. She sounds like a brat!! For the love of God as u put it .Get her real help, we can't help her .How dare u come in here and blame us. I think u need to get help as well. Anya/SpringGoddess <anya@...> wrote: I have one thing to say, the reply here is horrible and not empathic or considerate. I can't believe that someone who lives with this terrible illness and others aren't empathic to others. Please look at yourself before you tramp on others footprints. Re: [ ] Re: Is there > Hope?? > > this is stephanie's mother, stephanie is twenty > years > old, trapped at home, and lonely, she's very very > sick > and just wanted a friend, so if it's too much for > you > too handle, then just don't talk to her.she's also > very depressed and you all made her happy for a > while, > you should also be ashamed. she is getting help, all > she wanted from you was friendship. it wasn't easy > for > her to find out she has no hope left, you people are > incredible. just please, leave her alone, i won't > let > her bother you anymore. thank you, mary > > --- hepckitty <johanna@...> wrote: > > > You really should stop this. There are people here > > who really need > > help and advice, and what you're doing is taking > > away from that. If > > you're really 20 years old, having sexual issues, > > boyfriend issues, > > and now this, you don't need to be here. You need > to > > be in therapy. > > > > Stop vying for attention from people who really > need > > it. > > > > > > > > > > > > > > > > I have been feeling kinda down today. My doctor > > has not givin me any > > > good news lately. Its all been bad. > > > I feel like there is no hope for me left. The > > treatment didnt work > > for > > > me, and he says its unlikely Ill be put on the > > transplant list. Not > > > sure yet they still have some tests to run. > > > Im scared. I know its silly and stupid, cause > > there is nothing I can > > > do about it. > > > Its just I am only 20, and Im not ready to go > yet. > > The doctor in the > > > ER told me its just a matter of time. That I > dont > > have much time > > left. > > > Im so scared, and im sorry if I am being a > bother > > to anyone. I dont > > > mean to lay my problems all on you guys. > > > > > > > > > > > > > > > > > > > __________________________________ > for Good - Make a difference this year. > http://brand./cybergivingweek2005/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 this is steph's mother, she wanted me to let everyone know it will be a while before she is back on. she was seriously injured. she will be fine, but it will be awhile before she recovers enough to get back online. have a happy new year. mary --- hepckitty <johanna@...> wrote: > > ::rolling eyes:: RTWFT > > > > > > > > > > > > > I have been feeling kinda down today. My > doctor > > > > has not givin me any > > > > > good news lately. Its all been bad. > > > > > I feel like there is no hope for me left. > The > > > > treatment didnt work > > > > for > > > > > me, and he says its unlikely Ill be put on > the > > > > transplant list. Not > > > > > sure yet they still have some tests to > run. > > > > > Im scared. I know its silly and stupid, > cause > > > > there is nothing I can > > > > > do about it. > > > > > Its just I am only 20, and Im not ready to > go > > > yet. > > > > The doctor in the > > > > > ER told me its just a matter of time. That > I > > > dont > > > > have much time > > > > left. > > > > > Im so scared, and im sorry if I am being a > > > bother > > > > to anyone. I dont > > > > > mean to lay my problems all on you guys. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________ > > > for Good - Make a difference this year. > > > > http://brand./cybergivingweek2005/ > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 She will be welcome back whenever she's ready. It is not necessary to post to keep membership in our group. Many just come to listen and absorb. I hope she gets well soon. -dz- g <darker_goddess@...> wrote: this is steph's mother, she wanted me to let everyoneknow it will be a while before she is back on. she wasseriously injured. she will be fine, but it will beawhile before she recovers enough to get back online.have a happy new year. mary--- hepckitty <johanna@...> wrote:> > ::rolling eyes:: RTWFT > > > > > > > >> > > > > I have been feeling kinda down today. My> doctor> > > > has not givin me any > > > > > good news lately. Its all been bad.> > > > > I feel like there is no hope for me left.> The> > > > treatment didnt work > > > > for > > > > > me, and he says its unlikely Ill be put on> the> > > > transplant list. Not > > > > > sure yet they still have some tests to> run.> > > > > Im scared. I know its silly and stupid,> cause> > > > there is nothing I can > > > > > do about it.> > > > > Its just I am only 20, and Im not ready to> go> > > yet.> > > > The doctor in the > > > > > ER told me its just a matter of time. That> I> > > dont> > > > have much time > > > > left. > > > > > Im so scared, and im sorry if I am being a> > > bother> > > > to anyone. I dont > > > > > mean to lay my problems all on you guys.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________ > > > for Good - Make a difference this year.> > > > http://brand./cybergivingweek2005/> > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Are you using drugs or alcohol? That's the only reason I can think of that they wouldn't put you an the waiting list. Either that or your liver is in better condition than you have been led to believe. I know my former girlfriend had cirrhosis and they wouldn't put her on the list until she had 1 year of sobriety. -dz-darker_goddess <darker_goddess@...> wrote: I have been feeling kinda down today. My doctor has not givin me any good news lately. Its all been bad.I feel like there is no hope for me left. The treatment didnt work for me, and he says its unlikely Ill be put on the transplant list. Not sure yet they still have some tests to run.Im scared. I know its silly and stupid, cause there is nothing I can do about it.Its just I am only 20, and Im not ready to go yet. The doctor in the ER told me its just a matter of time. That I dont have much time left. Im so scared, and im sorry if I am being a bother to anyone. I dont mean to lay my problems all on you guys. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 I do not do drugs or drink. They said I may not be put on the list due to a heart problem, I am not sure for sure yet. I will know when I have more tests. --- Dave <dhz920@...> wrote: > Are you using drugs or alcohol? That's the only > reason I can think of that they wouldn't put you an > the waiting list. Either that or your liver is in > better condition than you have been led to believe. > I know my former girlfriend had cirrhosis and they > wouldn't put her on the list until she had 1 year of > sobriety. -dz- > > darker_goddess <darker_goddess@...> wrote: I > have been feeling kinda down today. My doctor has > not givin me any > good news lately. Its all been bad. > I feel like there is no hope for me left. The > treatment didnt work for > me, and he says its unlikely Ill be put on the > transplant list. Not > sure yet they still have some tests to run. > Im scared. I know its silly and stupid, cause there > is nothing I can > do about it. > Its just I am only 20, and Im not ready to go yet. > The doctor in the > ER told me its just a matter of time. That I dont > have much time left. > Im so scared, and im sorry if I am being a bother to > anyone. I dont > mean to lay my problems all on you guys. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Good luck, I hope you find your way through all this. I know my dad needed some heart surgery that they wouldn't schedule, because they didn't think he was strong enough for it. He had been trough radiation therapy, etc. He finally did get it, though. Hang in there and know we're pulling for you -dz- g <darker_goddess@...> wrote: I do not do drugs or drink. They said I may not be puton the list due to a heart problem, I am not sure forsure yet. I will know when I have more tests.--- Dave <dhz920@...> wrote:> Are you using drugs or alcohol? That's the only> reason I can think of that they wouldn't put you an> the waiting list. Either that or your liver is in> better condition than you have been led to believe.> I know my former girlfriend had cirrhosis and they> wouldn't put her on the list until she had 1 year of> sobriety. -dz-> > darker_goddess <darker_goddess@...> wrote: I> have been feeling kinda down today. My doctor has> not givin me any > good news lately. Its all been bad.> I feel like there is no hope for me left. The> treatment didnt work for > me, and he says its unlikely Ill be put on the> transplant list. Not > sure yet they still have some tests to run.> Im scared. I know its silly and stupid, cause there> is nothing I can > do about it.> Its just I am only 20, and Im not ready to go yet.> The doctor in the > ER told me its just a matter of time. That I dont> have much time left. > Im so scared, and im sorry if I am being a bother to> anyone. I dont > mean to lay my problems all on you guys.> > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.