Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 hope everyone is having wonderful night.....i wanted to asked what treatmeans are they using now for hepc???? when i took my treatments i was on interferon and rebetron which was pills and shots. i had to do shots 3 times a week and eat 2 pills twice a day.. it was some bad stuff when i first started on it.... luckily at that time i found support group where i livenad went to it while on treatments.it was a blessing because i was having hard time w/it.....well thank god i responded and am living live to the fulliest now.........hope to here back from someone thank yall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 To my knowledge, the current treatment is the same treatment only they learned to "pegylate" the interferon, which causes the interferon to stay in the blood longer and you only have to inject once a week. They are also reporting much better results with it, I guess the action of the interferon staying in the system longer allows for a more sustained attack with less peaks and valleys as the 3x wkly shots. I hear rumors of upcoming new treatments, but nothing certain yet. -dz-rod <rcajun85@...> wrote: hope everyone is having wonderful night.....i wanted to asked what treatmeans are they using now for hepc???? when i took my treatments i was on interferon and rebetron which was pills and shots. i had to do shots 3 times a week and eat 2 pills twice a day.. it was some bad stuff when i first started on it.... luckily at that time i found support group where i livenad went to it while on treatments.it was a blessing because i was having hard time w/it.....well thank god i responded and am living live to the fulliest now.........hope to here back from someone thank yall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Pegasys is interferon, but it is chemically altered by adding another molecule which is harder for the body to break down and therefore it stays in the system longer. The people I have talked to that have had both reported lighter sides on the pegylated version. -dz-Lynne Dunham <lynne@...> wrote: Morning, I take the pegasus with rebetron. Same thing I believe but thepegasus doesn't make one as sick as the interferon did.-----Original Message-----From: rod [mailto:rcajun85@...]Sent: Wednesday, January 21, 2004 12:11 AM Subject: [ ] hello to all.hope everyone is having wonderful night.....i wanted to asked whattreatmeans are they using now for hepc???? when i took my treatmentsi was on interferon and rebetron which was pills and shots. i had todo shots 3 times a week and eat 2 pills twice a day.. it was some badstuff when i first started on it.... luckily at that time i foundsupport group where i livenad went to it while on treatments.it was ablessing because i was having hard time w/it.....well thank god iresponded and am living live to the fulliest now.........hope to hereback from someone thank yall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 Geo,Welcome and greetings from across the big pond! We are glad to have you here and look forward to chatting with you! You have found a great place here, we have a lot of information and a lot of great people in all stages of their walk with Hep C. From newly diagnosed to going thru treatment, waiting for treatment, decided not to treat and some of us that have gone the full gamut and are cured. The really good news is you've found a soft spot to land. I went thru treatment in 2005-2006 and needed several blood transfusions. It's a pain isn't it? The Ribavirin tends to cause anemia. I am happy to hear your doctor is treating you with blood transfusions.. it's the quickest way to get your blood levels up. There is a drug out there called Pro-Crit. Or at least that's what they call it here in the states. I know some of the drug names change over there. But Pro-Crit is a shot you give yourself once a week and it helps boost your blood count. I was able to fend off the transfusions for many months while I was taking that medication. The other thing I can tell you is to make sure you are drinking plenty of water and eating whenever you can. Your body needs the fluids and the calories to produce blood cells on its own. If you're not drinking at least a gallon of water a day, you're not getting enough. I can't even begin to stress how important the water is. How far into your treatment are you? What is your genotype? How many weeks of treatment are you in for? Now it's your turn... you can ask whatever you like, no questions are off limits... We are all here and happy to help in any way that we can! Hugs,TeriOn Tue, Dec 7, 2010 at 12:11 PM, georyd1 <georyd1@...> wrote: Greetings from UK. Hoping I can get advice and perhaps even offer some for the Hep C treatment. At the moment I am currently on the treatment which has casued anemia and leads to blood transfusion about every month. Any tips or advice on this issue? Geo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 Hi GeoGlad you made it into this group!! This is definitely the group that can help you get through your treatment etc.What part of the UK are you?? I'm in Canada. Away over on the far west of Canada, on an island that is off the coast from Vancouver.Gloria Geo,Welcome and greetings from across the big pond! We are glad to have you here and look forward to chatting with you! You have found a great place here, we have a lot of information and a lot of great people in all stages of their walk with Hep C. From newly diagnosed to going thru treatment, waiting for treatment, decided not to treat and some of us that have gone the full gamut and are cured. The really good news is you've found a soft spot to land. I went thru treatment in 2005-2006 and needed several blood transfusions. It's a pain isn't it? The Ribavirin tends to cause anemia. I am happy to hear your doctor is treating you with blood transfusions.. it's the quickest way to get your blood levels up. There is a drug out there called Pro-Crit. Or at least that's what they call it here in the states. I know some of the drug names change over there. But Pro-Crit is a shot you give yourself once a week and it helps boost your blood count. I was able to fend off the transfusions for many months while I was taking that medication. The other thing I can tell you is to make sure you are drinking plenty of water and eating whenever you can. Your body needs the fluids and the calories to produce blood cells on its own. If you're not drinking at least a gallon of water a day, you're not getting enough. I can't even begin to stress how important the water is. How far into your treatment are you? What is your genotype? How many weeks of treatment are you in for? Now it's your turn... you can ask whatever you like, no questions are off limits... We are all here and happy to help in any way that we can! Hugs,TeriOn Tue, Dec 7, 2010 at 12:11 PM, georyd1 <georyd1@...> wrote: Greetings from UK. Hoping I can get advice and perhaps even offer some for the Hep C treatment. At the moment I am currently on the treatment which has casued anemia and leads to blood transfusion about every month. Any tips or advice on this issue? Geo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 Hi GloriaThanks for your kind welcome.I live on the south coast of England a rather busy city called Brighton. Brighton is about about 50 miles south of London.Years ago I used to fly for British Airways and Vancouver was always my fondest memory of trips. It is nice to know that there are people that understand the ups and downs of this treatment.Hope to chat with you more and once again thanks for your warm welcome.Geo.From: Gloria <gadamscan@...> Sent: Wed, 8 December, 2010 7:14:22Subject: Re: [ ] Hello to all. Hi GeoGlad you made it into this group!! This is definitely the group that can help you get through your treatment etc.What part of the UK are you?? I'm in Canada. Away over on the far west of Canada, on an island that is off the coast from Vancouver.Gloria Geo,Welcome and greetings from across the big pond! We are glad to have you here and look forward to chatting with you! You have found a great place here, we have a lot of information and a lot of great people in all stages of their walk with Hep C. From newly diagnosed to going thru treatment, waiting for treatment, decided not to treat and some of us that have gone the full gamut and are cured. The really good news is you've found a soft spot to land. I went thru treatment in 2005-2006 and needed several blood transfusions. It's a pain isn't it? The Ribavirin tends to cause anemia. I am happy to hear your doctor is treating you with blood transfusions.. it's the quickest way to get your blood levels up. There is a drug out there called Pro-Crit. Or at least that's what they call it here in the states. I know some of the drug names change over there. But Pro-Crit is a shot you give yourself once a week and it helps boost your blood count. I was able to fend off the transfusions for many months while I was taking that medication. The other thing I can tell you is to make sure you are drinking plenty of water and eating whenever you can. Your body needs the fluids and the calories to produce blood cells on its own. If you're not drinking at least a gallon of water a day, you're not getting enough. I can't even begin to stress how important the water is. How far into your treatment are you? What is your genotype? How many weeks of treatment are you in for? Now it's your turn... you can ask whatever you like, no questions are off limits... We are all here and happy to help in any way that we can! Hugs,TeriOn Tue, Dec 7, 2010 at 12:11 PM, georyd1 <georyd1@...> wrote: Greetings from UK. Hoping I can get advice and perhaps even offer some for the Hep C treatment. At the moment I am currently on the treatment which has casued anemia and leads to blood transfusion about every month. Any tips or advice on this issue? Geo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 Dear Teri:Thank you so much for your welcome email.Yes the anemia is a pain especially when you live in a city with many hills! Grin. However, I know what good advice you give regarding water I cannot get enough and usually can tell when it is time for another blood transfusion by the amount of water I need to drink just not to feel thirsty.I add Rose's Lime Juice to a bottle of water that helps and also makes you aware of how many bottles of water you are drinking but the actual action of adding the lime juice.Thank you for your welcome and it is good to know there are people out there dealing with these issues.GeoFrom: Theresa Gottlieb <theresagottlieb@...> Sent: Tue, 7 December, 2010 18:21:02Subject: Re: [ ] Hello to all. Geo,Welcome and greetings from across the big pond! We are glad to have you here and look forward to chatting with you! You have found a great place here, we have a lot of information and a lot of great people in all stages of their walk with Hep C. From newly diagnosed to going thru treatment, waiting for treatment, decided not to treat and some of us that have gone the full gamut and are cured. The really good news is you've found a soft spot to land. I went thru treatment in 2005-2006 and needed several blood transfusions. It's a pain isn't it? The Ribavirin tends to cause anemia. I am happy to hear your doctor is treating you with blood transfusions.. it's the quickest way to get your blood levels up. There is a drug out there called Pro-Crit. Or at least that's what they call it here in the states. I know some of the drug names change over there. But Pro-Crit is a shot you give yourself once a week and it helps boost your blood count. I was able to fend off the transfusions for many months while I was taking that medication. The other thing I can tell you is to make sure you are drinking plenty of water and eating whenever you can. Your body needs the fluids and the calories to produce blood cells on its own. If you're not drinking at least a gallon of water a day, you're not getting enough. I can't even begin to stress how important the water is. How far into your treatment are you? What is your genotype? How many weeks of treatment are you in for? Now it's your turn... you can ask whatever you like, no questions are off limits... We are all here and happy to help in any way that we can! Hugs,TeriOn Tue, Dec 7, 2010 at 12:11 PM, georyd1 <georyd1@...> wrote: Greetings from UK. Hoping I can get advice and perhaps even offer some for the Hep C treatment. At the moment I am currently on the treatment which has casued anemia and leads to blood transfusion about every month. Any tips or advice on this issue? Geo Quote Link to comment Share on other sites More sharing options...
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